Top

Published in:

01-12-2020 | Editorial

Knowledge repositories. In digital knowledge we trust

Authors: Tsjalling Swierstra, Sophia Efstathiou

Published in: Medicine, Health Care and Philosophy | Issue 4/2020

Excerpt

It is self-evident that the practice of healthcare makes extensive use of scientific knowledge, while also contributing to it. However, the scientific work processes and the people that generate scientific knowledge often remain somewhat in the background of healthcare delivery. It is therefore less visible that when biomedical scientific practice changes, particularly in its methods, devices, and stakeholders, those changes also deeply affect how healthcare is organized and performed. …

Aronova, E., K.S. Baker, and N. Oreskes. 2010. Big science and big data in biology: from the international geophysical year through the international biological program to the long term ecological research (LTER) Network, 1957––Present. Historical Studies in the Natural Sciences 40 (2): 183–224.CrossRef

Bok, S. 1978. Lying: Moral choice in private and public life. New York: Pantheon Books.

Baier, A. 1986. Trust and antitrust. Ethics 96 (2): 231–260.CrossRef

Callebaut, W. 2012. Scientific perspectivism: A philosopher of science’s response to the challenge of big data biology. Studies in History and Philosophy of Science Part C: Studies in History and Philosophy of Biological and Biomedical Sciences 43 (1): 69–80.CrossRef

De Grandis, G., and V. Halgunset. 2016. Conceptual and terminological confusion around personalised medicine: a coping strategy. BMC Medical Ethics 17 (1): 43.CrossRef

De Grandis, G. 2020. Fair trade in building digital knowledge repositories: the knowledge economy as if researchers mattered. Medicine, Health Care and Philosophy,. https://doi.org/10.1007/s11019-020-09966-z.CrossRef

EfstathiouNydal, S.R., A. Laegreid, and M. Kuiper. 2019. Scientific knowledge in the age of computation Explicated, computable and manageable? Theoria Revista de Teoría, Historia y Fundamentos de la Ciencia 34 (2): 213–236.

Gabrielsen, A.M. 2020. Openness and trust in data-intensive science: the case of biocuration. Medicine, Health Care and Philosophy 23 (3): 497–504.CrossRef

Hardwig, J. 1991. The role of trust in knowledge. The Journal of Philosophy 88 (12): 693–708.CrossRef

Hedgecoe, A. 2004. The politics of personalised medicine: Pharmacogenetics in the clinic. Cambridge (UK): Cambridge University Press.CrossRef

Hoeyer, K. 2019. Data as promise: Reconfiguring Danish public health through personalized medicine. Social studies of science 49 (4): 531–555.CrossRef

Kuhn, T.S. 1962. The structure of scientific revolutions. Chicago: University of Chicago Press.

Leonelli, S. 2016. Data-centric biology: A philosophical study. Chicago: University of Chicago Press.CrossRef

Luhmann, N. (2000) Familiarity, Confidence, Trust: Problems and Alternatives. In Trust: Making and Breaking Cooperative Relations, ed. Gambetta, Diego. Electronic edition, Department of Sociology, University of Oxford, chapter 6, pp. 94–107.

Merton, R.K. 1942. The Normative Structure of Science [1942] reprinted in Merton 1973. The sociology of science, Chicago: University of Chicago Press.

Myskja, B & Steinsbekk, K. (2020) Personalized medicine, digital technology and trust – a Kantian account. Medicine, Health Care and Philosophy, this issue.

Nydal, R., G. Bennett, M. Kuiper, and A. Lægreid. 2020. Silencing trust: confidence and familiarity in re-engineering knowledge infrastructures. Medicine, Health Care, and Philosophy 23 (3): 471–484.CrossRef

Prainsack, B. 2017. Personalized medicine: empowered patients in the 21st century?. New York: NYU Press.CrossRef

Shapin, S. 1994. A social history of truth: Civility and science in seventeenth-century England. Chicago: University of Chicago Press.CrossRef

Ursin, L., Ytterhus, B., Christensen, E., & Skolbekken, J. A. (2020) If you give them your little finger, they’ll tear off your entire arm: losing trust in biobank research. Medicine, Health Care and Philosophy, this issue.

Woese, C.R. 2004. A new biology for a new century. Microbiology and Molecular Biology Reviews 68 (2): 173–186.CrossRef

Wilkinson, M. D., M. Dumontier, I. J. Aalbersberg, G. Appleton, M. Axton, A. Baak, N. Blomberg, J.-W. Boiten, L. B. da Silva Santos and P. E. Bourne (2016). The FAIR Guiding Principles for scientific data management and stewardship. Scientific data3.

Title: Knowledge repositories. In digital knowledge we trust
Authors: Tsjalling Swierstra
Sophia Efstathiou
Publication date: 01-12-2020
Publisher: Springer Netherlands
Published in: Medicine, Health Care and Philosophy / Issue 4/2020
Print ISSN: 1386-7423
Electronic ISSN: 1572-8633
DOI: https://doi.org/10.1007/s11019-020-09978-9

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Knowledge repositories. In digital knowledge we trust

Excerpt

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Excerpt

Please log in to get access to this content

Other articles of this Issue 4/2020

Heideggerian structures of Being-with in the nurse–patient relationship: modelling phenomenological analysis through qualitative meta-synthesis

«If you give them your little finger, they’ll tear off your entire arm»: losing trust in biobank research

Emerging viral threats and the simultaneity of the non-simultaneous: zooming out in times of Corona

Embodiment and personal identity in dementia

An analytic framework for conceptualisations of disease: nine structuring questions and how some conceptualisations of Alzheimer’s disease can lead to ‘diseasisation’

Regulating the international surrogacy market:the ethics of commercial surrogacy in the Netherlands and India