Skip to main content
Top
Published in: Medicine, Health Care and Philosophy 3/2019

01-09-2019 | Scientific Contribution

Τhe multiple temporalities of deep brain stimulation (DBS) in Greece

Author: Marilena Pateraki

Published in: Medicine, Health Care and Philosophy | Issue 3/2019

Login to get access

Abstract

This contribution intends to explore patients’ lived experience, with a focus on the temporal dimension. On the basis of a qualitative study that led me to interview persons with Parkinson’s disease (PD), caregivers, and medical professionals, I develop an empirical and philosophical investigation of the temporalities surrounding the implementation of deep brain stimulation (DBS) in Greece. I raise the issue of access to DBS medical care, and show how distinct temporalities are implied when the patients face such a matter: that of linear time, linked with the medical discourse, the bureaucratic time linked to administrative and financial hurdles in the implementation and maintenance of DBS, and the technological time of the body/technology fusion. I consider initially the impact of technology and health care settings on the lived experience of patients and the enactment of multiple bodies which are interrelated with the social world. I then expand my analysis in order to show that this experience cannot be a solipsistic one, or specific to one physician/patient relationship. It is fully socially shaped.
Footnotes
1
I obtained written consent for the use of the interviews for research purposes, after explaining the project to the participants, and I guaranteed them their anonymity.
 
2
It is not uncommon to perform DBS implantations in two distinct surgeries (Okun and Zeilman 2017, p. 33). The difference is that often in Greece, scheduling is uncertain.
 
3
It is explicitly reported that the postponement of surgeries is due to a lack of funding (POEDYN 2016).
 
Literature
go back to reference Bourdieu, Pierre. 2000. Pascalian Meditations, trans. Richard Nice. Stanford, CA: Stanford University Press. Bourdieu, Pierre. 2000. Pascalian Meditations, trans. Richard Nice. Stanford, CA: Stanford University Press.
go back to reference Canguilhem, Georges. 1991. The Normal and the Pathological, trans Carolyn R. Fawcett and Robert S. Cohen. New York: Zone Books. Canguilhem, Georges. 1991. The Normal and the Pathological, trans Carolyn R. Fawcett and Robert S. Cohen. New York: Zone Books.
go back to reference Carel, Havi. 2016. Phenomenology of Illness. Oxford: Oxford University Press.CrossRef Carel, Havi. 2016. Phenomenology of Illness. Oxford: Oxford University Press.CrossRef
go back to reference Charmaz, Kathy. 1991. Good Days, Bad Days: The Self in Chronic Illness and Time. New Brunswick, NJ: Rutgers University Press. Charmaz, Kathy. 1991. Good Days, Bad Days: The Self in Chronic Illness and Time. New Brunswick, NJ: Rutgers University Press.
go back to reference Dolezal, Luna. 2015. The Body and Shame: Phenomenology, Feminism and the Socially Shaped Body. London: Lexington Books. Dolezal, Luna. 2015. The Body and Shame: Phenomenology, Feminism and the Socially Shaped Body. London: Lexington Books.
go back to reference Economou, Charalampos, et al. 2014. The impact of the Financial Crisis on the Health System and Health in Greece. Copenhagen: WHO, Regional Office for Europe. Economou, Charalampos, et al. 2014. The impact of the Financial Crisis on the Health System and Health in Greece. Copenhagen: WHO, Regional Office for Europe.
go back to reference Flaherty, Michael G. 2011. The Textures of Time: Agency and Temporal Experience. Philadelphia: Temple University Press. Flaherty, Michael G. 2011. The Textures of Time: Agency and Temporal Experience. Philadelphia: Temple University Press.
go back to reference Haraway, Donna J. 1991. Simians, Cyborgs, and Women: The Reinvention of Nature. London: Free Association Books. Haraway, Donna J. 1991. Simians, Cyborgs, and Women: The Reinvention of Nature. London: Free Association Books.
go back to reference Heidegger, Martin. 1962. Being and Time, trans. John Macquarrie and Edward Robinson. Oxford and Cambridge, MA: Blackwell. Heidegger, Martin. 1962. Being and Time, trans. John Macquarrie and Edward Robinson. Oxford and Cambridge, MA: Blackwell.
go back to reference Husserl, Edmund. 1991. On the Phenomenology of the Consciousness of Internal Time (1893–1917), trans John Barnett Brough. Dordrecht, Boston, and London: Kluwer Academic Publishers. Husserl, Edmund. 1991. On the Phenomenology of the Consciousness of Internal Time (1893–1917), trans John Barnett Brough. Dordrecht, Boston, and London: Kluwer Academic Publishers.
go back to reference Ihde, Don. 1990. Technology and prognostic predicaments. AI & Society 13: 44–51.CrossRef Ihde, Don. 1990. Technology and prognostic predicaments. AI & Society 13: 44–51.CrossRef
go back to reference Ihde, Don. 1993. Postphenomenology: Essays in the Postmodern Context. Evanston, IL: Northwestern University Press. Ihde, Don. 1993. Postphenomenology: Essays in the Postmodern Context. Evanston, IL: Northwestern University Press.
go back to reference Kaufman, Gershen. 1996. The Psychology of Shame: Theory and Treatment of Shame-Based Syndromes. 2nd ed. New York: Springer Publishing Company. Kaufman, Gershen. 1996. The Psychology of Shame: Theory and Treatment of Shame-Based Syndromes. 2nd ed. New York: Springer Publishing Company.
go back to reference Leder, Drew. 1990. The Absent Body. Chicago: The University of Chicago Press. Leder, Drew. 1990. The Absent Body. Chicago: The University of Chicago Press.
go back to reference Lee, Kendall H., S. Penelope, Duffy, and Charles D. Blaha. 2017. Overview of the history and application of deep brain stimulation. In Deep Brain Stimulation: Indications and Applications, eds. Kendall H. Lee, Penelope S. Duffy, and Charles D. Blaha, 3–24. Singapore: Pan Stanford Publishing. Lee, Kendall H., S. Penelope, Duffy, and Charles D. Blaha. 2017. Overview of the history and application of deep brain stimulation. In Deep Brain Stimulation: Indications and Applications, eds. Kendall H. Lee, Penelope S. Duffy, and Charles D. Blaha, 3–24. Singapore: Pan Stanford Publishing.
go back to reference Lury, Celia. 1998. Prosthetic Culture: Photography, Memory and Identity. London and New York: Routledge.CrossRef Lury, Celia. 1998. Prosthetic Culture: Photography, Memory and Identity. London and New York: Routledge.CrossRef
go back to reference Mensch, James. 2014. A brief account of husserl’s conception of our consciousness of time. In Subjective Time: The Philosophy, Psychology and Neuroscience of Temporality, eds. Valtteri Arstila and Dan Lloyd, 43–59. Cambridge, MA and London: The MIT Press. Mensch, James. 2014. A brief account of husserl’s conception of our consciousness of time. In Subjective Time: The Philosophy, Psychology and Neuroscience of Temporality, eds. Valtteri Arstila and Dan Lloyd, 43–59. Cambridge, MA and London: The MIT Press.
go back to reference Merleau-Ponty, Maurice. 2014. Phenomenology of Perception, trans. Donald A. Landes. London and New York: Routledge. Merleau-Ponty, Maurice. 2014. Phenomenology of Perception, trans. Donald A. Landes. London and New York: Routledge.
go back to reference Moutaud, Baptiste. 2011a. From the experimental body to the experimental patient. medical experimentation in neuroscience. In Of Bodies and Symptoms: Anthropological Perspectives on Their Social and Medical Treatment, eds. Sylvie Fainzang and Claudie Haxaire, 239–259. Tarragona: Publications URV. Moutaud, Baptiste. 2011a. From the experimental body to the experimental patient. medical experimentation in neuroscience. In Of Bodies and Symptoms: Anthropological Perspectives on Their Social and Medical Treatment, eds. Sylvie Fainzang and Claudie Haxaire, 239–259. Tarragona: Publications URV.
go back to reference Moutaud, Baptiste. 2011b. Are we receptive to naturalistic explanatory models of our disease experience? Applications of deep brain stimulation to obsessive compulsive disorder and parkinson’s disease. In Sociological Reflections on the Neurosciences, eds Martyn Pickersgill and Ira Van Keulen 179–202. Bingley: Emerald.CrossRef Moutaud, Baptiste. 2011b. Are we receptive to naturalistic explanatory models of our disease experience? Applications of deep brain stimulation to obsessive compulsive disorder and parkinson’s disease. In Sociological Reflections on the Neurosciences, eds Martyn Pickersgill and Ira Van Keulen 179–202. Bingley: Emerald.CrossRef
go back to reference Reeve, Donna. 2012. Cyborgs, cripples and icrip: Reflections on the contribution of haraway to disability studies. In Disability and Social Theory: New Developments and Directions. eds. Dan Goodley, Bill Hughes and Lennard Davis. Houndmills-Basingstoke: Palgrave Macmillan. Reeve, Donna. 2012. Cyborgs, cripples and icrip: Reflections on the contribution of haraway to disability studies. In Disability and Social Theory: New Developments and Directions. eds. Dan Goodley, Bill Hughes and Lennard Davis. Houndmills-Basingstoke: Palgrave Macmillan.
go back to reference Rosenberger, Robert, and Peter-Paul Verbeek. 2015. A postphenomenological field guide. In Postphenomenological Investigations: Essays on Human-Technology Relations, eds. Robert Rosenberger and Peter-Paul Verbeek, 1–41. London: Lexington Books. Rosenberger, Robert, and Peter-Paul Verbeek. 2015. A postphenomenological field guide. In Postphenomenological Investigations: Essays on Human-Technology Relations, eds. Robert Rosenberger and Peter-Paul Verbeek, 1–41. London: Lexington Books.
go back to reference Scarry, Elaine. 1985. The Body in Pain: The Making and Unmaking of the World. New York and Oxford: Oxford University Press. Scarry, Elaine. 1985. The Body in Pain: The Making and Unmaking of the World. New York and Oxford: Oxford University Press.
go back to reference Shakespeare, Tom. 2014. Foreword: Five thoughts about enhancement. In The Human Enhancement Debate and Disability: New Bodies for a Better Life. eds. Miriam Eilers, Katrin Grüber, and Christoph Rehmann-Sutter. Basingstoke and New York: Palgrave Macmillan. Shakespeare, Tom. 2014. Foreword: Five thoughts about enhancement. In The Human Enhancement Debate and Disability: New Bodies for a Better Life. eds. Miriam Eilers, Katrin Grüber, and Christoph Rehmann-Sutter. Basingstoke and New York: Palgrave Macmillan.
go back to reference Siebers, Tobin. 2008. Disability Theory. Ann Arbor, MI: The University of Michigan Press.CrossRef Siebers, Tobin. 2008. Disability Theory. Ann Arbor, MI: The University of Michigan Press.CrossRef
go back to reference Sobchack, Vivian Carol. 2004. Carnal Thoughts: Embodiment and Moving Image Culture. Berkeley, CA and London: University of California Press. Sobchack, Vivian Carol. 2004. Carnal Thoughts: Embodiment and Moving Image Culture. Berkeley, CA and London: University of California Press.
go back to reference STOA. 2012. Making Perfect Life: European Governance Challenges in 21st Century Bio-engineering. European Parliament, Document no IP/A/STOA/FWC/2008-096/ LOT6/CI/SC3. STOA. 2012. Making Perfect Life: European Governance Challenges in 21st Century Bio-engineering. European Parliament, Document no IP/A/STOA/FWC/2008-096/ LOT6/CI/SC3.
go back to reference Sveneaus, Fredrik. 2000a. Das unheimliche—Towards a phenomenology of illness. Medicine, Health Care and Philosophy 3: 3–16.CrossRef Sveneaus, Fredrik. 2000a. Das unheimliche—Towards a phenomenology of illness. Medicine, Health Care and Philosophy 3: 3–16.CrossRef
go back to reference Sveneaus, Fredrik. 2000b. The body uncanny—Further steps towards a phenomenology of illness. Medicine, Health Care and Philosophy 3: 125–137.CrossRef Sveneaus, Fredrik. 2000b. The body uncanny—Further steps towards a phenomenology of illness. Medicine, Health Care and Philosophy 3: 125–137.CrossRef
go back to reference Toombs, S. Kay. 1990. The temporality of illness: Four levels of experience. Theoretical Medicine 11: 227–241.CrossRef Toombs, S. Kay. 1990. The temporality of illness: Four levels of experience. Theoretical Medicine 11: 227–241.CrossRef
go back to reference Volkmann, Jens. 2004. Deep brain stimulation for the treatment of Parkinson’s disease. Journal of Clinical Neurophysiology 21: 6–17.CrossRef Volkmann, Jens. 2004. Deep brain stimulation for the treatment of Parkinson’s disease. Journal of Clinical Neurophysiology 21: 6–17.CrossRef
Metadata
Title
Τhe multiple temporalities of deep brain stimulation (DBS) in Greece
Author
Marilena Pateraki
Publication date
01-09-2019
Publisher
Springer Netherlands
Published in
Medicine, Health Care and Philosophy / Issue 3/2019
Print ISSN: 1386-7423
Electronic ISSN: 1572-8633
DOI
https://doi.org/10.1007/s11019-018-9861-y

Other articles of this Issue 3/2019

Medicine, Health Care and Philosophy 3/2019 Go to the issue