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Published in: Journal of Religion and Health 3/2014

01-06-2014 | Original Paper

Spiritual Well-Being Among HIV-Infected Adolescents and Their Families

Authors: Maureen E. Lyon, Patricia Garvie, Jianping He, Robert Malow, Robert McCarter, Lawrence J. D’Angelo

Published in: Journal of Religion and Health | Issue 3/2014

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Abstract

Congruence in spirituality between HIV+ adolescent (n = 40)/family (n = 40) dyads and psychological adjustment and quality of life were assessed, using the Spiritual Well-Being Scale of the Functional Assessment of Chronic Illness Therapy, Beck Depression Inventory-II, Beck Anxiety Inventory and Pediatric Quality of Life Inventory at baseline and 3-month post-intervention. Adolescents were 60 % female and 92 % African American. Congruence in spirituality between adolescent/surrogate dyads remained unchanged at 3 months. High congruence existed for “having a reason for living”; rejection of “life lacks meaning/purpose” and “HIV is a punishment from God.” Adolescents were less likely to forgive the harm others caused them than their families.
Literature
go back to reference Abbas, A. (2002). Intensive short-term dynamic psychotherapy in a private psychiatric office, clinical and cost effectiveness. American Journal Psychotherapy, 56, 225–232. Abbas, A. (2002). Intensive short-term dynamic psychotherapy in a private psychiatric office, clinical and cost effectiveness. American Journal Psychotherapy, 56, 225–232.
go back to reference Abramovitz, S., Koenig, L. J., Chandwani, S., Orban, L., Stein, R., Lagrange, R., et al. (2009). Characterizing social support: Global and specific social support experiences of HIV-infected youth. AIDS Patient Care and STDS, 23, 323–330.CrossRef Abramovitz, S., Koenig, L. J., Chandwani, S., Orban, L., Stein, R., Lagrange, R., et al. (2009). Characterizing social support: Global and specific social support experiences of HIV-infected youth. AIDS Patient Care and STDS, 23, 323–330.CrossRef
go back to reference Beck, A. T., & Steer, R. A. (1993). Beck anxiety inventory manual. San Antonio: The Psychological Corporation, Harcourt Brace & Company. Beck, A. T., & Steer, R. A. (1993). Beck anxiety inventory manual. San Antonio: The Psychological Corporation, Harcourt Brace & Company.
go back to reference Beck, A. T., Steer, R. A., & Brown, G. K. (1996). Beck depression inventory manual (2nd ed.). San Antonio: The Psychological Corporation, Harcourt Brace & Company. Beck, A. T., Steer, R. A., & Brown, G. K. (1996). Beck depression inventory manual (2nd ed.). San Antonio: The Psychological Corporation, Harcourt Brace & Company.
go back to reference Berkley-Patton, J., Thompson, C. B., Martinez, D. A., Hawes, S. M., Moore, E., Williams, E., et al. (2012). Examining church capacity to develop and disseminate a religiously appropriate HIV tool kit with African American churches. Journal of Urban Health. 4(7). pii: a006783. doi:10.1101/cshperspect.a006783. Berkley-Patton, J., Thompson, C. B., Martinez, D. A., Hawes, S. M., Moore, E., Williams, E., et al. (2012). Examining church capacity to develop and disseminate a religiously appropriate HIV tool kit with African American churches. Journal of Urban Health. 4(7). pii: a006783. doi:10.​1101/​cshperspect.​a006783.
go back to reference Bernstein, K., D’Angelo, L., & Lyon, M. E. (2012). An exploratory study of HIV+ adolescents’ spirituality: Will you pray with me? Journal of Religion and Health. (Epub 2012 January 19). doi:10.1007/s10943-012-9565-1. Bernstein, K., D’Angelo, L., & Lyon, M. E. (2012). An exploratory study of HIV+ adolescents’ spirituality: Will you pray with me? Journal of Religion and Health. (Epub 2012 January 19). doi:10.​1007/​s10943-012-9565-1.
go back to reference Bernstein, K., Lyon, M. E., & D’Angelo, L. J. (2009). Spirituality and religion in adolescents with and without HIV/AIDS. Journal of Adolescent Health, 44, S25.CrossRef Bernstein, K., Lyon, M. E., & D’Angelo, L. J. (2009). Spirituality and religion in adolescents with and without HIV/AIDS. Journal of Adolescent Health, 44, S25.CrossRef
go back to reference Centers for Disease Control and Prevention. (1992). 1993 revised classification system for HIV infection and expanded surveillance case definition for AIDS among adolescents and adults. MMWR, 41, 1–17. Centers for Disease Control and Prevention. (1992). 1993 revised classification system for HIV infection and expanded surveillance case definition for AIDS among adolescents and adults. MMWR, 41, 1–17.
go back to reference Centers for Disease Control and Prevention. (2006). CDC executive summary: CDC consultation on faith and HIV prevention. Centers for Disease Control and Prevention. (2006). CDC executive summary: CDC consultation on faith and HIV prevention.
go back to reference Ciesla, J., & Roberts, J. (2001). Meta-analysis of the relationship between HIV infection and risk of depressive disorders. American Journal of Psychiatry, 158, 725–730.PubMedCrossRef Ciesla, J., & Roberts, J. (2001). Meta-analysis of the relationship between HIV infection and risk of depressive disorders. American Journal of Psychiatry, 158, 725–730.PubMedCrossRef
go back to reference Cotton, S., Kudel, I., Roberts, Y. H., Pallerla, H., Tsevat, J., Succop, P., et al. (2009). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. Journal of Adolescent Health, 44, 485–492.PubMedCentralPubMedCrossRef Cotton, S., Kudel, I., Roberts, Y. H., Pallerla, H., Tsevat, J., Succop, P., et al. (2009). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. Journal of Adolescent Health, 44, 485–492.PubMedCentralPubMedCrossRef
go back to reference Cotton, S., Larkin, E., Hoopes, A., et al. (2005). Impact of adolescent spirituality on depressive symptoms and health behaviors. Journal of Adolescent Health, 36, 529.PubMedCrossRef Cotton, S., Larkin, E., Hoopes, A., et al. (2005). Impact of adolescent spirituality on depressive symptoms and health behaviors. Journal of Adolescent Health, 36, 529.PubMedCrossRef
go back to reference Cotton, S., Puchalski, C. M., Sherman, S. N., Mrus, J. M., Peterman, A. H., Feinberg, J., et al. (2006). Spirituality and religion in patients with HIV/AIDS. Journal of General Internal Medicine, 21(Suppl 5), S5–S13.PubMedCentralPubMedCrossRef Cotton, S., Puchalski, C. M., Sherman, S. N., Mrus, J. M., Peterman, A. H., Feinberg, J., et al. (2006). Spirituality and religion in patients with HIV/AIDS. Journal of General Internal Medicine, 21(Suppl 5), S5–S13.PubMedCentralPubMedCrossRef
go back to reference Dew, R. E., Daniel, S. S., Goldstone, D. B., & Koenig, H. G. (2008). Religion, spirituality, and depression in adolescent psychiatric outpatients. Nervous Mental Diseases, 196, 247–251.CrossRef Dew, R. E., Daniel, S. S., Goldstone, D. B., & Koenig, H. G. (2008). Religion, spirituality, and depression in adolescent psychiatric outpatients. Nervous Mental Diseases, 196, 247–251.CrossRef
go back to reference Dowling, E. M., Gestsdottir, S., Anderson, P. M., von Eye, A., Almerigi, J., & Lerner, R. M. (2004). Structural relations among spirituality, religiosity, and thriving in adolescence. Applied Developmental Science, 8, 7–16.CrossRef Dowling, E. M., Gestsdottir, S., Anderson, P. M., von Eye, A., Almerigi, J., & Lerner, R. M. (2004). Structural relations among spirituality, religiosity, and thriving in adolescence. Applied Developmental Science, 8, 7–16.CrossRef
go back to reference Dowshen, N., Forke, C. M., Johnson, A. K., Kuhns, L. M., Rubin, D., & Garofalo, R. (2011). Religiosity as a protective factor against HIV risk among young transgender women. Journal of Adolescent Health, 48, 410–414.PubMedCrossRef Dowshen, N., Forke, C. M., Johnson, A. K., Kuhns, L. M., Rubin, D., & Garofalo, R. (2011). Religiosity as a protective factor against HIV risk among young transgender women. Journal of Adolescent Health, 48, 410–414.PubMedCrossRef
go back to reference Emmons, R. A., & McCullough, M. E. (2003). Counting blessings versus burdens: An experimental investigation of gratitude and subjective well being in daily life. Journal of Personality and Social Psychology, 84, 377–389.PubMedCrossRef Emmons, R. A., & McCullough, M. E. (2003). Counting blessings versus burdens: An experimental investigation of gratitude and subjective well being in daily life. Journal of Personality and Social Psychology, 84, 377–389.PubMedCrossRef
go back to reference Finocchario-Kessler, S., Catley, D., Berkley-Patton, J., Gerkovich, M., Williams, K., Banderas, J., et al. (2011). Baseline predictors of ninety percent or higher antiretroviral therapy adherence in a diverse urban sample: The role of patient autonomy and fatalistic religious beliefs. AIDS Patient Care and STDS, 25, 103–111.PubMedCentralPubMedCrossRef Finocchario-Kessler, S., Catley, D., Berkley-Patton, J., Gerkovich, M., Williams, K., Banderas, J., et al. (2011). Baseline predictors of ninety percent or higher antiretroviral therapy adherence in a diverse urban sample: The role of patient autonomy and fatalistic religious beliefs. AIDS Patient Care and STDS, 25, 103–111.PubMedCentralPubMedCrossRef
go back to reference Foster, M. L., Arnold, E., Rebchook, G., & Kegeles, S. M. (2011). ‘It’s my inner strength’: Spirituality, religion and HIV in the lives of young African American men who have sex with men. Culture, Health & Sexuality, 13, 1103–1117.CrossRef Foster, M. L., Arnold, E., Rebchook, G., & Kegeles, S. M. (2011). ‘It’s my inner strength’: Spirituality, religion and HIV in the lives of young African American men who have sex with men. Culture, Health & Sexuality, 13, 1103–1117.CrossRef
go back to reference Froh, J. J., Emmons, R. A., Card, N. A., Bono, G., & Wilson, J. A. (2010). Gratitude and the reduced costs of materialism in adolescents. Journal of Happiness Studies, 12, 289–302.CrossRef Froh, J. J., Emmons, R. A., Card, N. A., Bono, G., & Wilson, J. A. (2010). Gratitude and the reduced costs of materialism in adolescents. Journal of Happiness Studies, 12, 289–302.CrossRef
go back to reference Garvie, P. A., He, J., Wang, J., D’Angelo, L. J., & Lyon, M. E. (2012). An exploratory survey of end-of-life attitudes, beliefs and experiences of adolescents with HIV/AIDS and their families. Journal of Pain and Symptom Management, 44(3), 373–385.e29. (Epub 2012 Jul 7). Garvie, P. A., He, J., Wang, J., D’Angelo, L. J., & Lyon, M. E. (2012). An exploratory survey of end-of-life attitudes, beliefs and experiences of adolescents with HIV/AIDS and their families. Journal of Pain and Symptom Management, 44(3), 373–385.e29. (Epub 2012 Jul 7).
go back to reference Gorsuch, R. L., & Hao, J. Y. (1993). Forgiveness: An exploratory factor analysis and its relationship to religious variables. Review of Religious Research, 34, 333–347.CrossRef Gorsuch, R. L., & Hao, J. Y. (1993). Forgiveness: An exploratory factor analysis and its relationship to religious variables. Review of Religious Research, 34, 333–347.CrossRef
go back to reference Ironson, G., Solomon, G. G., Balbin, E. G., O’Cleirigh, C., George, A., Kumar, M., et al. (2002). The Ironson-Woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress, and low cortisol in people with HIV/AIDS. Annals of Behavioral Medicine, 24, 34–48.PubMedCrossRef Ironson, G., Solomon, G. G., Balbin, E. G., O’Cleirigh, C., George, A., Kumar, M., et al. (2002). The Ironson-Woods Spirituality/Religiousness Index is associated with long survival, health behaviors, less distress, and low cortisol in people with HIV/AIDS. Annals of Behavioral Medicine, 24, 34–48.PubMedCrossRef
go back to reference Ironson, G., Stuetzle, R., & Fletcher, M. A. (2006). An increase in religiousness/spirituality occurs after HIV diagnosis and predicts slower disease progression over 4 years in people with HIV. Journal of General Internal Medicine, 21(Suppl 5), S62–S68.PubMedCentralPubMedCrossRef Ironson, G., Stuetzle, R., & Fletcher, M. A. (2006). An increase in religiousness/spirituality occurs after HIV diagnosis and predicts slower disease progression over 4 years in people with HIV. Journal of General Internal Medicine, 21(Suppl 5), S62–S68.PubMedCentralPubMedCrossRef
go back to reference Ironson, G., Stuetzle, R., Kronson, D., Balbin, E., Kremer, H., George, A., et al. (2011). View of God as benevolent and forgiving or punishing and judgmental predicts HIV disease progression. Journal of Behavioral Medicine, 34, 414–425.PubMedCrossRef Ironson, G., Stuetzle, R., Kronson, D., Balbin, E., Kremer, H., George, A., et al. (2011). View of God as benevolent and forgiving or punishing and judgmental predicts HIV disease progression. Journal of Behavioral Medicine, 34, 414–425.PubMedCrossRef
go back to reference Kazdin, A. E. (1994). Informant variability in the assessment of childhood depression. In W. M. Reynolds & H. F. Johnson (Eds.), Handbook of depression in children and adolescents: Issues in clinical child psychology (pp. 249–271). New York: Plenum Press.CrossRef Kazdin, A. E. (1994). Informant variability in the assessment of childhood depression. In W. M. Reynolds & H. F. Johnson (Eds.), Handbook of depression in children and adolescents: Issues in clinical child psychology (pp. 249–271). New York: Plenum Press.CrossRef
go back to reference Krauss, B. J., Godfrey, C., O’Day, J., Freidin, E., & Kaplan, R. (2006). Learning to live with an epidemic: Reducing stigma and increasing safe and sensitive socializing with persons with HIV. In M. Lyon & J. D’Angelo (Eds.), Teenagers HIV and AIDS: Insights from youths living with the virus (pp. 83–103). London: Praeger Press. Krauss, B. J., Godfrey, C., O’Day, J., Freidin, E., & Kaplan, R. (2006). Learning to live with an epidemic: Reducing stigma and increasing safe and sensitive socializing with persons with HIV. In M. Lyon & J. D’Angelo (Eds.), Teenagers HIV and AIDS: Insights from youths living with the virus (pp. 83–103). London: Praeger Press.
go back to reference Kudel, I., Cotton, S., Szaflarski, M., Holmes, W. C., & Tsevat, J. (2011). Spirituality and religiosity in patients with HIV: A test and expansion of a model. Annals of Behavioral Medicine, 41, 92–103.PubMedCrossRef Kudel, I., Cotton, S., Szaflarski, M., Holmes, W. C., & Tsevat, J. (2011). Spirituality and religiosity in patients with HIV: A test and expansion of a model. Annals of Behavioral Medicine, 41, 92–103.PubMedCrossRef
go back to reference Le, T. N., Tov, W., & Taylor, J. (2007). Religiousness and depressive symptoms in five ethnic adolescent groups. International Journal for the Psychology of Religion, 17, 209–232.CrossRef Le, T. N., Tov, W., & Taylor, J. (2007). Religiousness and depressive symptoms in five ethnic adolescent groups. International Journal for the Psychology of Religion, 17, 209–232.CrossRef
go back to reference Lee, C. C., Czaja, S. J., & Schulz, R. (2010). The moderating influence of demographic characteristics, social support, and religious coping on the effectiveness of a multicomponent psychosocial caregiver intervention in three racial ethnic groups. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 65B, 185–194.CrossRef Lee, C. C., Czaja, S. J., & Schulz, R. (2010). The moderating influence of demographic characteristics, social support, and religious coping on the effectiveness of a multicomponent psychosocial caregiver intervention in three racial ethnic groups. Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 65B, 185–194.CrossRef
go back to reference Leichsenring, F., Rabung, S., & Leibing, E. (2004). The efficacy of short-term psychodynamic psychotherapy in specific psychiatric disorders. A meta-analysis. Archives of General Psychiatry, 61, 1208–1216.PubMedCrossRef Leichsenring, F., Rabung, S., & Leibing, E. (2004). The efficacy of short-term psychodynamic psychotherapy in specific psychiatric disorders. A meta-analysis. Archives of General Psychiatry, 61, 1208–1216.PubMedCrossRef
go back to reference Leserman, J. (2003). HIV disease progression: Depression, stress and possible mechanisms. Biological Psychiatry, 54, 295–306.PubMedCrossRef Leserman, J. (2003). HIV disease progression: Depression, stress and possible mechanisms. Biological Psychiatry, 54, 295–306.PubMedCrossRef
go back to reference Lippman, L. H., & McIntosh, H. (2010). The demographics of spirituality and religiosity among youth: International and U. S. Patterns. Child Trends Research Brief. September 2010; Pub#2010-21 www.childtrends.org. Lippman, L. H., & McIntosh, H. (2010). The demographics of spirituality and religiosity among youth: International and U. S. Patterns. Child Trends Research Brief. September 2010; Pub#2010-21 www.​childtrends.​org.
go back to reference Loser, R. W., Klein, S. R., Hill, E. J., & Dollahite, D. C. (2008). Religion and the daily lives of LDS families: An ecological perspective. Family and Consumer Sciences Research Journal, 37, 52–70.CrossRef Loser, R. W., Klein, S. R., Hill, E. J., & Dollahite, D. C. (2008). Religion and the daily lives of LDS families: An ecological perspective. Family and Consumer Sciences Research Journal, 37, 52–70.CrossRef
go back to reference Lyon, M. E., Garvie, P. A., Briggs, L., He, J., D’Angelo, L., & McCarter, R. (2009a). Development, feasibility and acceptability of the family-centered (FACE) advance care planning intervention for adolescents with HIV. Journal of Palliative Medicine, 12, 363–372.PubMedCentralPubMedCrossRef Lyon, M. E., Garvie, P. A., Briggs, L., He, J., D’Angelo, L., & McCarter, R. (2009a). Development, feasibility and acceptability of the family-centered (FACE) advance care planning intervention for adolescents with HIV. Journal of Palliative Medicine, 12, 363–372.PubMedCentralPubMedCrossRef
go back to reference Lyon, M. E., Garvie, P. A., Briggs, L., He, J., Malow, R., D’Angelo, L. J., et al. (2010). Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of FAmily CEntered (FACE) advance care planning—anxiety, depression quality of life. HIV/AIDS—Research Palliative Care, 2, 1–11. Lyon, M. E., Garvie, P. A., Briggs, L., He, J., Malow, R., D’Angelo, L. J., et al. (2010). Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of FAmily CEntered (FACE) advance care planning—anxiety, depression quality of life. HIV/AIDS—Research Palliative Care, 2, 1–11.
go back to reference Lyon, M. E., Garvie, P. A., Kao, E., Briggs, L., He, J., Malow, R., et al. (2011). Spirituality in HIV infected adolescents and their families: FAmily Centered (FACE) advance care planning and medication adherence. Journal of Adolescent Health, 48, 633–636.PubMedCentralPubMedCrossRef Lyon, M. E., Garvie, P. A., Kao, E., Briggs, L., He, J., Malow, R., et al. (2011). Spirituality in HIV infected adolescents and their families: FAmily Centered (FACE) advance care planning and medication adherence. Journal of Adolescent Health, 48, 633–636.PubMedCentralPubMedCrossRef
go back to reference Lyon, M. E., Garvie, P. A., McCarter, R., Briggs, L., He, J., & D’Angelo, L. (2009b). Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families. Pediatrics, 123, e1–e8.CrossRef Lyon, M. E., Garvie, P. A., McCarter, R., Briggs, L., He, J., & D’Angelo, L. (2009b). Who will speak for me? Improving end-of-life decision-making for adolescents with HIV and their families. Pediatrics, 123, e1–e8.CrossRef
go back to reference Lyon, M. E., Townsend-Akpan, C., & Thompson, A. (2001). Spirituality and end-of-life care for an adolescent with AIDS. AIDS Patient Care and STDs, 15, 555–560.PubMedCrossRef Lyon, M. E., Townsend-Akpan, C., & Thompson, A. (2001). Spirituality and end-of-life care for an adolescent with AIDS. AIDS Patient Care and STDs, 15, 555–560.PubMedCrossRef
go back to reference Maio, G. R., Thomas, G., & Fincham, F. D. (2008). Unraveling the role of forgiveness in family relationships. Journal of Personality and Social Psychology, 94, 307–319.PubMedCrossRef Maio, G. R., Thomas, G., & Fincham, F. D. (2008). Unraveling the role of forgiveness in family relationships. Journal of Personality and Social Psychology, 94, 307–319.PubMedCrossRef
go back to reference McCree, D. H., Wingood, G. M., DiClemente, R. D., Harrington, S., & Harrington, K. F. (2003). Religiosity and risky sexual behavior in African-American adolescent females. Journal of Adolescent Health, 33, 2–8.PubMedCrossRef McCree, D. H., Wingood, G. M., DiClemente, R. D., Harrington, S., & Harrington, K. F. (2003). Religiosity and risky sexual behavior in African-American adolescent females. Journal of Adolescent Health, 33, 2–8.PubMedCrossRef
go back to reference Miller, B. A. (2005). Intergenerational transmission of religiousness and spirituality. In W. R. Miller & H. D. Delaney (Eds.), Judeo-Christian perspectives on psychology: Human nature, motivation and change (pp. 227–244). Washington, DC: American Psychological Association.CrossRef Miller, B. A. (2005). Intergenerational transmission of religiousness and spirituality. In W. R. Miller & H. D. Delaney (Eds.), Judeo-Christian perspectives on psychology: Human nature, motivation and change (pp. 227–244). Washington, DC: American Psychological Association.CrossRef
go back to reference Oser, F., & Gmunder, P. (1991). Religious judgment: A developmental perspective. Birmingham: AL Religious Education Press. Oser, F., & Gmunder, P. (1991). Religious judgment: A developmental perspective. Birmingham: AL Religious Education Press.
go back to reference Pargament, K. I. (2002). The bitter and the sweet: An evaluation of the costs and benefits of religiousness. Psychological Inquiry, 13, 168–181.CrossRef Pargament, K. I. (2002). The bitter and the sweet: An evaluation of the costs and benefits of religiousness. Psychological Inquiry, 13, 168–181.CrossRef
go back to reference Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2001). Religious struggle as a predictor of mortality among medically ill elderly patients. Archives of Internal Medicine, 161, 1881–1885.PubMedCrossRef Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2001). Religious struggle as a predictor of mortality among medically ill elderly patients. Archives of Internal Medicine, 161, 1881–1885.PubMedCrossRef
go back to reference Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2004). Religious coping methods as predictors of psychological, physical and spiritual outcomes among medically ill elderly patients: A two-year longitudinal study. Journal of Health Psychology, 9, 713–730.PubMedCrossRef Pargament, K. I., Koenig, H. G., Tarakeshwar, N., & Hahn, J. (2004). Religious coping methods as predictors of psychological, physical and spiritual outcomes among medically ill elderly patients: A two-year longitudinal study. Journal of Health Psychology, 9, 713–730.PubMedCrossRef
go back to reference Perez, J. E., Little, T. D., & Henrich, C. C. (2009). Spirituality and depressive symptoms in a school-based sample of adolescents: A longitudinal examination of mediated and moderated effects. Journal of Adolescent Health, 44, 380–386.PubMedCrossRef Perez, J. E., Little, T. D., & Henrich, C. C. (2009). Spirituality and depressive symptoms in a school-based sample of adolescents: A longitudinal examination of mediated and moderated effects. Journal of Adolescent Health, 44, 380–386.PubMedCrossRef
go back to reference Peterman, A. H., Fitchett, G., Brady, M., Hernandez, L., & Cella, D. (2002). Measuring spiritual well-being in people with cancer: The Functional Assessment of chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp). Annals of Behavioral Medicine, 24, 49–58.PubMedCrossRef Peterman, A. H., Fitchett, G., Brady, M., Hernandez, L., & Cella, D. (2002). Measuring spiritual well-being in people with cancer: The Functional Assessment of chronic Illness Therapy-Spiritual Well-Being Scale (FACIT-Sp). Annals of Behavioral Medicine, 24, 49–58.PubMedCrossRef
go back to reference Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., et al. (2009). Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. Journal of Palliative Medicine, 12(10), 885–904.PubMedCrossRef Puchalski, C., Ferrell, B., Virani, R., Otis-Green, S., Baird, P., Bull, J., et al. (2009). Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. Journal of Palliative Medicine, 12(10), 885–904.PubMedCrossRef
go back to reference Regnerus, M. D., & Burdett, A. (2006). Religious change and adolescent family dynamics. The Sociological Quarterly, 47, 175–194.CrossRef Regnerus, M. D., & Burdett, A. (2006). Religious change and adolescent family dynamics. The Sociological Quarterly, 47, 175–194.CrossRef
go back to reference Rew, L., Wong, J., Torres, R., & Howell, E. (2007). Older adolescents’ perceptions of the social context, impact, and development of their spiritual/religious beliefs and practices. Issues in Comprehensive Pediatric Nursing, 30, 55–68.PubMedCrossRef Rew, L., Wong, J., Torres, R., & Howell, E. (2007). Older adolescents’ perceptions of the social context, impact, and development of their spiritual/religious beliefs and practices. Issues in Comprehensive Pediatric Nursing, 30, 55–68.PubMedCrossRef
go back to reference Rostosky, S. S., Regnerus, M. D., & Wright, M. L. (2003). Coital debut: The role of religiosity and sex attitudes in ADD Health Survey. The Journal of Sex Research, 40, 358–367.CrossRef Rostosky, S. S., Regnerus, M. D., & Wright, M. L. (2003). Coital debut: The role of religiosity and sex attitudes in ADD Health Survey. The Journal of Sex Research, 40, 358–367.CrossRef
go back to reference Rotheram-Borus, M. J., Stein, J. A., & Lester, P. (2006). Adolescent adjustment over six years in HIV-affected families. Journal of Adolescent Health, 39, 174–182.PubMedCrossRef Rotheram-Borus, M. J., Stein, J. A., & Lester, P. (2006). Adolescent adjustment over six years in HIV-affected families. Journal of Adolescent Health, 39, 174–182.PubMedCrossRef
go back to reference Sinha, J. W., Cnaan, R. A., & Gelles, R. J. (2007). Adolescent risk behaviors and religion: Findings from a national study. Journal of Adolescence, 30, 231–249.PubMedCrossRef Sinha, J. W., Cnaan, R. A., & Gelles, R. J. (2007). Adolescent risk behaviors and religion: Findings from a national study. Journal of Adolescence, 30, 231–249.PubMedCrossRef
go back to reference Smith, C., & Denton, M. L. (2005). Soul searching: The religious and spiritual lives of American teenagers. New York: Oxford University Press.CrossRef Smith, C., & Denton, M. L. (2005). Soul searching: The religious and spiritual lives of American teenagers. New York: Oxford University Press.CrossRef
go back to reference Sowell, R., Moneyham, L., Hennessy, M., Guilory, J., Demi, A., & Seals, B. (2000). Spiritual activities as a resistance resource for women with human immunodeficiency virus. Annual Review of Nursing Research, 49(2), 73–82.CrossRef Sowell, R., Moneyham, L., Hennessy, M., Guilory, J., Demi, A., & Seals, B. (2000). Spiritual activities as a resistance resource for women with human immunodeficiency virus. Annual Review of Nursing Research, 49(2), 73–82.CrossRef
go back to reference Tarakeshwar, N., Vanderwerker, L. C., Paulk, E., Pearce, M. J., Kasl, S. V., & Prigerson, H. G. (2006). Religious coping is associated with the quality of life of patients with advanced cancer. Journal of Palliative Medicine, 9, 646–657.PubMedCentralPubMedCrossRef Tarakeshwar, N., Vanderwerker, L. C., Paulk, E., Pearce, M. J., Kasl, S. V., & Prigerson, H. G. (2006). Religious coping is associated with the quality of life of patients with advanced cancer. Journal of Palliative Medicine, 9, 646–657.PubMedCentralPubMedCrossRef
go back to reference Thompson, L. Y., Snyder, C. R., Hoffman, L., Michael, S. T., Rasmussen, H. N., Billings, L. S., et al. (2005). Dispositional forgiveness of self, others, and situations. Journal of Personality, 73, 313–360.PubMedCrossRef Thompson, L. Y., Snyder, C. R., Hoffman, L., Michael, S. T., Rasmussen, H. N., Billings, L. S., et al. (2005). Dispositional forgiveness of self, others, and situations. Journal of Personality, 73, 313–360.PubMedCrossRef
go back to reference Udell, W., Donenberg, G., & Emerson, E. (2011). The impact of mental health problems and religiosity on African-American girls’ HIV risk. Cultural Diversity and Ethnic Minority Psychology, 17, 217–224.PubMedCentralPubMedCrossRef Udell, W., Donenberg, G., & Emerson, E. (2011). The impact of mental health problems and religiosity on African-American girls’ HIV risk. Cultural Diversity and Ethnic Minority Psychology, 17, 217–224.PubMedCentralPubMedCrossRef
go back to reference Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329–341. Available at http://www.pedsql.org. Varni, J. W., Burwinkle, T. M., Seid, M., & Skarr, D. (2003). The PedsQL™ 4.0 as a pediatric population health measure: Feasibility, reliability, and validity. Ambulatory Pediatrics, 3, 329–341. Available at http://​www.​pedsql.​org.
go back to reference Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843–863.PubMedCrossRef Varni, J. W., & Limbers, C. A. (2009). The Pediatric Quality of Life Inventory: Measuring pediatric health-related quality of life from the perspective of children and their parents. Pediatric Clinics of North America, 56, 843–863.PubMedCrossRef
go back to reference Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39, 800–812.PubMedCrossRef Varni, J. W., Seid, M., & Kurtin, P. S. (2001). PedsQL 4.0: Reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations. Medical Care, 39, 800–812.PubMedCrossRef
go back to reference Varni, J. W., Seid, M., & Rode, C. A. (1999). The PEDSQL: Measurement model for the pediatric quality of life inventory. Medical Care, 37, 126–139.PubMedCrossRef Varni, J. W., Seid, M., & Rode, C. A. (1999). The PEDSQL: Measurement model for the pediatric quality of life inventory. Medical Care, 37, 126–139.PubMedCrossRef
go back to reference Wong, Y. J., Rew, L., & Slaikeu, K. D. (2006). A systematic review of recent research on adolescent religiosity/spirituality and mental health. Issues Mental Health Nursing, 27, 161–183.CrossRef Wong, Y. J., Rew, L., & Slaikeu, K. D. (2006). A systematic review of recent research on adolescent religiosity/spirituality and mental health. Issues Mental Health Nursing, 27, 161–183.CrossRef
Metadata
Title
Spiritual Well-Being Among HIV-Infected Adolescents and Their Families
Authors
Maureen E. Lyon
Patricia Garvie
Jianping He
Robert Malow
Robert McCarter
Lawrence J. D’Angelo
Publication date
01-06-2014
Publisher
Springer US
Published in
Journal of Religion and Health / Issue 3/2014
Print ISSN: 0022-4197
Electronic ISSN: 1573-6571
DOI
https://doi.org/10.1007/s10943-012-9657-y

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