Top

Published in:

Open Access 01-11-2018 | Patient Facing Systems

The Role of PAEHRs in Patient Involvement

Authors: Sofie Wass, Vivian Vimarlund

Published in: Journal of Medical Systems | Issue 11/2018

Abstract

With increased patient access to data, healthcare services are experiencing change where patients are moving away from being mere passive actors towards becoming more active and involved participants. In this paper, we explore the role of patient accessible electronic health records (PAEHRs) with respect to this increase in patient involvement. The study was performed as a case study and included nine interviews with patients and a survey that was responded to by 56 patients. Our results show that PAEHRs have a role in the enhancement of patient involvement because PAEHRs (i) foster a more balanced relationship between patients and healthcare professionals and (ii) increase access to information.

Ammenwerth, E., Schnell-Inderst, P., and Hoerbst, A., The Impact of Electronic Patient Portals on Patient Care: A Systematic Review of Controlled Trials. J. Med. Internet Res. 14(6):e162, 2012. https://doi.org/10.2196/jmir.2238.CrossRefPubMedPubMedCentral

Esch, T., Mejilla, R., Anselmo, M., Podtschaske, B., Delbanco, T., and Walker, J., Engaging patients through open notes: an evaluation using mixed methods. BMJ Open 6(1):e010034, 2016. https://doi.org/10.1136/bmjopen-2015-010034.CrossRefPubMedPubMedCentral

Adler-Milstein, J., Embi, P. J., Middleton, B., Sarkar, I. N., Smith, J., Crossing the health IT chasm: Considerations and policy recommendations to overcome current challenges and enable value-based care. J. Am. Med. Inform. Assoc. 24(5):1036–1043, 2017.CrossRef

Hoerbst, A., Kohl, C. D., Knaup, P., and Ammenwerth, E., Attitudes and behaviors related to the introduction of electronic health records among Austrian and German citizens. Int. J. Med. Inform. 79(2):81–89, 2010.CrossRef

Jilka, S. R., Callahan, R., Sevdalis, N., Mayer, E. K., and Darzi, A., “Nothing About Me Without Me”: An Interpretative Review of Patient Accessible Electronic Health Records. J. Med. Internet Res. 17(6):e161, 2015. https://doi.org/10.2196/jmir.4446.CrossRefPubMedPubMedCentral

Cahill, J., Patient participation — a review of the literature. J. Clin. Nurs. 7(2):119–128, 1998. https://doi.org/10.1046/j.1365-2702.1998.00132.x.CrossRefPubMed

Longtin, Y., Sax, H., Leape, L. L., Sheridan, S. E., Donaldson, L., and Pittet, D., Patient Participation: Current Knowledge and Applicability to Patient Safety. Mayo Clin. Proc. 85(1):53–62, 2010. https://doi.org/10.4065/mcp.2009.0248.CrossRefPubMedPubMedCentral

Snyder, H., and Engström, J., The antecedents, forms and consequences of patient involvement: A narrative review of the literature. Int. J. Nurs. Stud. 53:351–378, 2016.CrossRef

Delbanco, T., Walker, J., Bell, S. K., Darer, J. D., Elmore, J. G., Farag, N., Feldman, H. J., Mejilla, R., Ngo, L., Ralston, J. D., Ross, S. E., Trivedi, N., Vodicka, E., and Leveille, S. G., Inviting Patients to Read Their Doctors' Notes: A Quasi-experimental Study and a Look Ahead. Ann. Intern. Med. 157(7):461–470, 2012. https://doi.org/10.7326/0003-4819-157-7-201210020-00002.CrossRefPubMedPubMedCentral

10.

Wright, E., Darer, J., Tang, X., Thompson, J., Tusing, L., Fossa, A., Delbanco, T., Ngo, L., and Walker, J., Sharing Physician Notes Through an Electronic Portal is Associated With Improved Medication Adherence: Quasi-Experimental Study. J. Med. Internet Res. 17(10):e226, 2015. https://doi.org/10.2196/jmir.4872.CrossRefPubMedPubMedCentral

11.

Woods, S. S., Schwartz, E., Tuepker, A., Press, N. A., Nazi, K. M., Turvey, C. L., and Nichol, W. P., Patient Experiences With Full Electronic Access to Health Records and Clinical Notes Through the My HealtheVet Personal Health Record Pilot: Qualitative Study. J. Med. Internet Res. 15(3):e65, 2013. https://doi.org/10.2196/jmir.2356.CrossRefPubMedPubMedCentral

12.

SFS (1985:562) Patient Records Act [Patientjournalen].

13.

Erlingsdóttir, G., and Lindholm, C., When patient empowerment encounters professional autonomy: The conflict and negotiation process of inscribing an eHealth service. Scand. J. Public. Adm. 19(2):27–48, 2015.

14.

Region Jönköping County, Annual budget with operational plan 2014 - long term plan 2015–2016 [In Swedish]. Huskvarna: Elanders/NRS Tryckeri AB, 2013.

15.

Inera (2015) Architecture and Infrastructure (In Swedish). http://www.inera.se/ARKITEKTUR%2D%2DINFRASTRUKTUR/. Accessed 2016-06-20

16.

Graneheim, U. H., and Lundman, B., Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Educ. Today 24(2):105–112, 2004. https://doi.org/10.1016/j.nedt.2003.10.001.CrossRefPubMed

17.

Vodicka, E., Mejilla, R., Leveille, S. G., Ralston, J. D., Darer, J. D., Delbanco, T., Walker, J., and Elmore, J. G., Online Access to Doctors' Notes: Patient Concerns About Privacy. J. Med. Internet Res. 15(9):e208, 2013. https://doi.org/10.2196/jmir.2670.CrossRefPubMedPubMedCentral

18.

Beard, L., Schein, R., Morra, D., Wilson, K., and Keelan, J., The challenges in making electronic health records accessible to patients. J. Am. Med. Inform. Assoc. 19(1):116–120, 2012. https://doi.org/10.1136/amiajnl-2011-000261.CrossRefPubMed

19.

Rexhepi, H., Åhlfeldt, R.-M., Cajander, Å., and Huvila, I., Cancer patients’ attitudes and experiences of online access to their electronic medical records: A qualitative study. Health Inform. J. (Special Issue):1–10, 2016. https://doi.org/10.1177/1460458216658778.CrossRef

20.

European Commission (2012). Patient involvement. https://ec.europa.eu/health/sites/health/files/healthcare/docs/eurobaro_patient_involvement_2012_en.pdf. Accessed 2016-05-05.

21.

Inera (2016). Electronic health records [In swedish]. http://www.inera.se/TJANSTER%2D%2DPROJEKT/Journalen/. Accessed 2016-05-02.

22.

Roberts, K., Boland, M. R., Pruinelli, L., Dcruz, J., Berry, A., Georgsson, M., Hazen, R., Sarmiento, R. F., Backonja, U., Yu, K.-H., Jiang, Y., and Brennan, P. F., Biomedical informatics advancing the national health agenda: the AMIA 2015 year-in-review in clinical and consumer informatics. J. Am. Med. Inform. Assoc. 24(e1):e185–e190, 2017. https://doi.org/10.1093/jamia/ocw103.CrossRefPubMed

Title: The Role of PAEHRs in Patient Involvement
Authors: Sofie Wass
Vivian Vimarlund
Publication date: 01-11-2018
Publisher: Springer US
Published in: Journal of Medical Systems / Issue 11/2018
Print ISSN: 0148-5598
Electronic ISSN: 1573-689X
DOI: https://doi.org/10.1007/s10916-018-1070-y

At a glance: The STEP trials

Springer Medicine

The Role of PAEHRs in Patient Involvement

Abstract

At a glance: The STEP trials

Springer Medicine

Abstract

Please log in to get access to this content

Other articles of this Issue 11/2018

Memetic Search Optimization Along with Genetic Scale Recurrent Neural Network for Predictive Rate of Implant Treatment

Finding Parameters around the Abdomen for a Vibrotactile System: Healthy and Patients with Parkinson’s Disease

Enhanced Computational Model for Gravitational Search Optimized Echo State Neural Networks Based Oral Cancer Detection

HANN: A Hybrid Model for Liver Syndrome Classification by Feature Assortment Optimization

Feature Extraction Using Dominant Local Texture-Color Patterns (DLTCP) and Classification of Color Images

Medical Image Security Using Dual Encryption with Oppositional Based Optimization Algorithm