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Journal of Immigrant and Minority Health
Published in: Journal of Immigrant and Minority Health 2/2018

01-04-2018 | Original Paper

Adapting an Autism Screening Tool for Use in the DeKalb County Refugee Pediatric Clinic

Authors: C. McClure, S. Reines, P. S. Suchdev, A. Oladele, A. B. Goodman

Published in: Journal of Immigrant and Minority Health | Issue 2/2018

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Abstract

Background

Minimal literature exists regarding Autism Spectrum Disorder (ASD) among refugee children in the United States. Reliable ASD screening tools, such as the M-CHAT-R/F, have yet to be culturally adapted and translated into some languages spoken in the homes of these children.

Methods

Pediatric refugee patients (n = 13) of caregivers of Bhutanese (Nepali-speaking) descent were screened using a newly translated Nepali M-CHAT-R/F. The M-CHAT-R/F was adapted based on feedback from Bhutanese caregivers and interpreter expertise. Qualitative interviews regarding caregiver awareness of ASD were conducted.

Results

Caregivers understood the majority of M-CHAT-R/F items (91%). Four items required revision. Interviews revealed minimal awareness among Bhutanese caregivers regarding ASD or child development.

Discussion

The M-CHAT-R/F was adapted into Nepali using a combination of translation protocols, and is publicly available for clinical use. Future validation studies are needed which will aid in clinical screening for and epidemiologic research of ASD in this population.
Footnotes
1
Note that “concerning responses” refer to M-CHAT-R/F responses that suggest risk for ASD.
 
2
Caregiver responses that were determined to reflect ‘equivocal’ understanding were coded as ‘without understanding.’
 
3
Question 1: If you point to something across the room, does your child look at it? Question 5: Does your child make unusual finger movements near his or her eyes? (For example, does your child wiggle his or her fingers close to his or her eyes?)
 
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Metadata
Title
Adapting an Autism Screening Tool for Use in the DeKalb County Refugee Pediatric Clinic
Authors
C. McClure
S. Reines
P. S. Suchdev
A. Oladele
A. B. Goodman
Publication date
01-04-2018
Publisher
Springer US
Published in
Journal of Immigrant and Minority Health / Issue 2/2018
Print ISSN: 1557-1912
Electronic ISSN: 1557-1920
DOI
https://doi.org/10.1007/s10903-017-0553-0

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