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Published in: Journal of Genetic Counseling 2/2018

01-04-2018 | Original Research

A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a BRCA Mutation

Authors: Courtney Lynam Scherr, Jessica L. Feuston, Dawn M. Nixon, Stephanie A. Cohen

Published in: Journal of Genetic Counseling | Issue 2/2018

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Abstract

Professional organizations provide surveillance guidelines for BRCA1 and BRCA2 (BRCA) carriers with intact breasts and/or ovaries to facilitate early cancer detection. However, literature indicates adherence to surveillance guidelines is inconsistent at best. Using the Messaging Model for Health Communication Campaigns framework, we undertook a two-phase formative research approach to develop an intervention to promote adherence to surveillance guidelines. Discussion groups identified preferred intervention format and function in phase I. Findings indicated carriers desired a phone application (app) to assist with surveillance management and appointment tracking. Thus, an iPhone app for carriers to track appointments based on published surveillance guidelines was developed. In phase II, we obtained feedback from BRCA carriers via a survey during a prototype demonstration at a regional conference. Participants in phase II wanted reminder capabilities and the ability to add and modify information fields. This feedback informed intervention modifications, resulting in the Scheduling Necessary Advised Procedures (SNAP) iPhone app currently being pilot tested by BRCA carriers throughout the USA.
Literature
go back to reference Botkin, J. R., Smith, K. R., Croyle, R. T., Baty, B. J., Wylie, J. E., Dutson, D., … McDonald, J. (2003). Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing. American Journal of Medical Genetics Part A, 118(3), 201–209. Botkin, J. R., Smith, K. R., Croyle, R. T., Baty, B. J., Wylie, J. E., Dutson, D., … McDonald, J. (2003). Genetic testing for a BRCA1 mutation: prophylactic surgery and screening behavior in women 2 years post testing. American Journal of Medical Genetics Part A, 118(3), 201–209.
go back to reference Cohen, S. A., & McIlvried, D. E. (2012). Do BRCA1 and BRCA2 positive women need better follow-up? Gaining perspective from a Midwest population. Paper presented at the Poster presented at the Thirty First Annual Education Conference fo the National Society of Genetic Counselors, Boston. Cohen, S. A., & McIlvried, D. E. (2012). Do BRCA1 and BRCA2 positive women need better follow-up? Gaining perspective from a Midwest population. Paper presented at the Poster presented at the Thirty First Annual Education Conference fo the National Society of Genetic Counselors, Boston.
go back to reference Daly, M. B., Pilarski, R., Axilbund, J., Berry, M., Buys, S. S., Crawford, B., … Khan, S. (2016). Genetic/familial high-risk assessment. JNCCN Journal of the National Comprehensive Cancer Network, 14(2), 153–162. Daly, M. B., Pilarski, R., Axilbund, J., Berry, M., Buys, S. S., Crawford, B., … Khan, S. (2016). Genetic/familial high-risk assessment. JNCCN Journal of the National Comprehensive Cancer Network, 14(2), 153–162.
go back to reference Garcia, C., Wendt, J., Lyon, L., Jones, J., Littell, R. D., Armstrong, M. A., … Powell, C. B. (2014). Risk management options elected by women after testing positive for a BRCA mutation. Gynecologic Oncology, 132(2), 428–433. Garcia, C., Wendt, J., Lyon, L., Jones, J., Littell, R. D., Armstrong, M. A., … Powell, C. B. (2014). Risk management options elected by women after testing positive for a BRCA mutation. Gynecologic Oncology, 132(2), 428–433.
go back to reference Mattson, M., & Basu, A. (2010). Centers for disease control’s diethylstilbestrol update: a case for effective operationalization of messaging in social marketing practice. Health Promotion Practice, 11(4), 580–588.CrossRefPubMed Mattson, M., & Basu, A. (2010). Centers for disease control’s diethylstilbestrol update: a case for effective operationalization of messaging in social marketing practice. Health Promotion Practice, 11(4), 580–588.CrossRefPubMed
go back to reference Palmer, E. (1981). Shaping persuasive messages with formative research. In R. E. Rice & W. Paisley (Eds.), Public communication campaigns (pp. 227–238). Beverly Hills: Sage. Palmer, E. (1981). Shaping persuasive messages with formative research. In R. E. Rice & W. Paisley (Eds.), Public communication campaigns (pp. 227–238). Beverly Hills: Sage.
go back to reference Peshkin, B. N., Schwartz, M. D., Isaacs, C., Hughes, C., Main, D., & Lerman, C. (2002). Utilization of breast cancer screening in a clinically based sample of women after BRCA1/2 testing. Cancer Epidemiology Biomarkers & Prevention, 11(10), 1115–1118. Peshkin, B. N., Schwartz, M. D., Isaacs, C., Hughes, C., Main, D., & Lerman, C. (2002). Utilization of breast cancer screening in a clinically based sample of women after BRCA1/2 testing. Cancer Epidemiology Biomarkers & Prevention, 11(10), 1115–1118.
go back to reference Phillips, K. A., Jenkins, M. A., Lindeman, G. J., McLachlan, S. A., McKinley, J. M., Weideman, P. C., … Friedlander, M. L. (2006). Risk-reducing surgery, screening and chemoprevention practices of BRCA1 and BRCA2 mutation carriers: a prospective cohort study. Clinical Genetics, 70(3), 198–206. Phillips, K. A., Jenkins, M. A., Lindeman, G. J., McLachlan, S. A., McKinley, J. M., Weideman, P. C., … Friedlander, M. L. (2006). Risk-reducing surgery, screening and chemoprevention practices of BRCA1 and BRCA2 mutation carriers: a prospective cohort study. Clinical Genetics, 70(3), 198–206.
go back to reference Rothstein, M. A. (2016). Some lingering concerns about the precision medicine initiative. Journal of Law, Medicine and Ethics, 3(44), 520–525.CrossRef Rothstein, M. A. (2016). Some lingering concerns about the precision medicine initiative. Journal of Law, Medicine and Ethics, 3(44), 520–525.CrossRef
go back to reference Schwartz, M. D., Kaufman, E., Peshkin, B. N., Isaacs, C., Hughes, C., DeMarco, T., … Lerman, C. (2003). Bilateral prophylactic oophorectomy and ovarian cancer screening following BRCA1/BRCA2 mutation testing. Journal of Clinical Oncology, 21(21), 4034–4041. Schwartz, M. D., Kaufman, E., Peshkin, B. N., Isaacs, C., Hughes, C., DeMarco, T., … Lerman, C. (2003). Bilateral prophylactic oophorectomy and ovarian cancer screening following BRCA1/BRCA2 mutation testing. Journal of Clinical Oncology, 21(21), 4034–4041.
go back to reference Van den Akker, J. (1999). Principles and methods of development research. Design approaches and tools in education and training (pp. 1–14): Springer. Van den Akker, J. (1999). Principles and methods of development research. Design approaches and tools in education and training (pp. 1–14): Springer.
Metadata
Title
A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a BRCA Mutation
Authors
Courtney Lynam Scherr
Jessica L. Feuston
Dawn M. Nixon
Stephanie A. Cohen
Publication date
01-04-2018
Publisher
Springer US
Published in
Journal of Genetic Counseling / Issue 2/2018
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-018-0222-z

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