Skip to main content
Top
Published in: Journal of Genetic Counseling 4/2018

01-08-2018 | Original Research

Genetic Counsellors and Private Practice: Professional Turbulence and Common Values

Authors: Sarah Collis, Clara Gaff, Samantha Wake, Alison McEwen

Published in: Journal of Genetic Counseling | Issue 4/2018

Login to get access

Abstract

Genetic counsellors face tensions between past and future identities: between established values and goals, and a broadening scope of settings and activities. This study examines the advent of genetic counsellors in private practice in Australia and New Zealand from the perspectives of the small numbers working in this sector and those who have only worked in public practice. Semi-structured interviews were conducted with 16 genetic counsellors who had experience in private practice, and 14 genetic counsellors without private sector experience. Results demonstrated that circumstantial and personal factors can mitigate the challenges experienced and the amount of support desired by those who had established a private practice, and those who were employed by private companies. Notably, most participants with private sector experience perceived themselves to be viewed negatively by other genetic counsellors. Most participants without private sector experience expressed concern that the challenges they believed genetic counsellors face in private practice may impact service quality, but wished to address such concerns by providing appropriate support. Together, our results reinforce that participants in private and public sectors are strong advocates for peer support, multidisciplinary team work, and professional development. These core values, and seeking understanding of different circumstances and support needs, will enable genetic counsellors in different sectors to move forward together. Our results suggest supports that may be acted upon by members of the profession, professional groups, and training programs, in Australia, New Zealand, and overseas.
Literature
go back to reference Alliman, S., Veach, P. M., Bartels, D. M., Lian, F., James, C., & LeRoy, B. S. (2009). A comparative analysis of ethical and professional challenges experienced by Australian and US genetic counselors. Journal of Genetic Counseling, 18(4), 379–394.CrossRefPubMed Alliman, S., Veach, P. M., Bartels, D. M., Lian, F., James, C., & LeRoy, B. S. (2009). A comparative analysis of ethical and professional challenges experienced by Australian and US genetic counselors. Journal of Genetic Counseling, 18(4), 379–394.CrossRefPubMed
go back to reference Bates, M. (2002). Reflecting on part-time private practice: is it worth it? Australian Social Work, 55, 268–278. Bates, M. (2002). Reflecting on part-time private practice: is it worth it? Australian Social Work, 55, 268–278.
go back to reference Callanan, N., & Grosse, K. R. (2016). Time flies: an examination of genetic counselor professional development: Introduction to special issue on genetic counselor development. Journal of Genetic Counseling, 25(4), 611–616.CrossRefPubMed Callanan, N., & Grosse, K. R. (2016). Time flies: an examination of genetic counselor professional development: Introduction to special issue on genetic counselor development. Journal of Genetic Counseling, 25(4), 611–616.CrossRefPubMed
go back to reference Elder, G. H. (1994). Time, human agency, and social-change: perspectives on the life-course. Social Psychology Quarterly, 57(1), 4–15.CrossRef Elder, G. H. (1994). Time, human agency, and social-change: perspectives on the life-course. Social Psychology Quarterly, 57(1), 4–15.CrossRef
go back to reference Elo, S., & Kyngaes, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115.CrossRefPubMed Elo, S., & Kyngaes, H. (2008). The qualitative content analysis process. Journal of Advanced Nursing, 62(1), 107–115.CrossRefPubMed
go back to reference Field, T., Brewster, S. J., Towne, M., & Campion, M. W. (2016). Emerging genetic counselor roles within the biotechnology and pharmaceutical industries: as industry interest grows in rare genetic disorders, how are genetic counselors joining the discussion? Journal of Genetic Counseling, 25(4), 708–719.CrossRefPubMed Field, T., Brewster, S. J., Towne, M., & Campion, M. W. (2016). Emerging genetic counselor roles within the biotechnology and pharmaceutical industries: as industry interest grows in rare genetic disorders, how are genetic counselors joining the discussion? Journal of Genetic Counseling, 25(4), 708–719.CrossRefPubMed
go back to reference Fischer, A. J., Arnold, A. J., & Gibbs, M. (1996). Information and the speed of innovation adoption. American Journal of Agricultural Economics, 78(4), 1073–1081.CrossRef Fischer, A. J., Arnold, A. J., & Gibbs, M. (1996). Information and the speed of innovation adoption. American Journal of Agricultural Economics, 78(4), 1073–1081.CrossRef
go back to reference Groepper, D., Veach, P. M., LeRoy, B., & Bower, M. (2015). Ethical and professional challenges encountered by laboratory genetic counselors. Journal of Genetic Counseling, 24, 580–596.CrossRefPubMed Groepper, D., Veach, P. M., LeRoy, B., & Bower, M. (2015). Ethical and professional challenges encountered by laboratory genetic counselors. Journal of Genetic Counseling, 24, 580–596.CrossRefPubMed
go back to reference Hanson, K., & Berman, P. (1998). Private health care provision in developing countries: a preliminary analysis of levels and composition. Health Policy and Planning, 13(3), 195–211.CrossRefPubMed Hanson, K., & Berman, P. (1998). Private health care provision in developing countries: a preliminary analysis of levels and composition. Health Policy and Planning, 13(3), 195–211.CrossRefPubMed
go back to reference Hippman, C., & Davis, C. (2016). Put yourself at the helm: charting new territory, correcting course, and weathering the storm of career trajectories. Journal of Genetic Counseling, 25(4), 720–730.CrossRefPubMed Hippman, C., & Davis, C. (2016). Put yourself at the helm: charting new territory, correcting course, and weathering the storm of career trajectories. Journal of Genetic Counseling, 25(4), 720–730.CrossRefPubMed
go back to reference Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.CrossRefPubMed Hsieh, H. F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15(9), 1277–1288.CrossRefPubMed
go back to reference James, C., Worthington, S., & Colley, A. (2003). The genetic counseling workplace—an Australasian perspective. Journal of Genetic Counseling, 12(5), 439–456.CrossRefPubMed James, C., Worthington, S., & Colley, A. (2003). The genetic counseling workplace—an Australasian perspective. Journal of Genetic Counseling, 12(5), 439–456.CrossRefPubMed
go back to reference Kearney, E. (2010). Stepping out to step in. Journal of Genetic Counseling, 19(1), 1–4.CrossRef Kearney, E. (2010). Stepping out to step in. Journal of Genetic Counseling, 19(1), 1–4.CrossRef
go back to reference Kessler, S. (1998). Psychological aspects of genetic counseling: XII. More on counseling skills. Journal of Genetic Counseling, 7(3), 263–278.CrossRefPubMed Kessler, S. (1998). Psychological aspects of genetic counseling: XII. More on counseling skills. Journal of Genetic Counseling, 7(3), 263–278.CrossRefPubMed
go back to reference Macklin, D. S., Smith, L. A., & Dollard, M. F. (2006). Public and private sector work stress: workers compensation, levels of distress and job satisfaction, and the demand-control-support model. Australian Journal of Psychology, 58(3), 130–143.CrossRef Macklin, D. S., Smith, L. A., & Dollard, M. F. (2006). Public and private sector work stress: workers compensation, levels of distress and job satisfaction, and the demand-control-support model. Australian Journal of Psychology, 58(3), 130–143.CrossRef
go back to reference Mary, F. (2008). A mixed public-private system for 2020 Mary, F. (2008). A mixed public-private system for 2020
go back to reference McWalter, K., & Gaviglio, A. (2015). Introduction to the special issue: public health genetics and genomics. Journal of Genetic Counseling, 24(3), 375–380.CrossRefPubMed McWalter, K., & Gaviglio, A. (2015). Introduction to the special issue: public health genetics and genomics. Journal of Genetic Counseling, 24(3), 375–380.CrossRefPubMed
go back to reference Peel, E., Parry, O., Douglas, M., & Lawton, J. (2006). “It’s no skin off my nose”: why people take part in qualitative research. Qualitative Health Research, 16(10), 1335–1349.CrossRefPubMed Peel, E., Parry, O., Douglas, M., & Lawton, J. (2006). “It’s no skin off my nose”: why people take part in qualitative research. Qualitative Health Research, 16(10), 1335–1349.CrossRefPubMed
go back to reference Rabideau, M. M., Wong, K., Gordon, E. S., & Ryan, L. (2016). Genetic counselors in startup companies: redefining the genetic counselor role. Journal of Genetic Counseling, 25(4), 649–657.CrossRefPubMed Rabideau, M. M., Wong, K., Gordon, E. S., & Ryan, L. (2016). Genetic counselors in startup companies: redefining the genetic counselor role. Journal of Genetic Counseling, 25(4), 649–657.CrossRefPubMed
go back to reference Resta, R. (2006). Defining and redefining the scope and goals of genetic counseling. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 142C(4), 269–275.CrossRef Resta, R. (2006). Defining and redefining the scope and goals of genetic counseling. American Journal of Medical Genetics Part C: Seminars in Medical Genetics, 142C(4), 269–275.CrossRef
go back to reference Ribbens, J. (1989). Interviewing—an unnatural situation. Womens Studies International Forum, 12(6), 579–592.CrossRef Ribbens, J. (1989). Interviewing—an unnatural situation. Womens Studies International Forum, 12(6), 579–592.CrossRef
go back to reference Runyon, M., Zahm, K. W., Veach, P. M., MacFarlane, I. M., & LeRoy, B. S. (2010). What do genetic counselors learn on the job? A qualitative assessment of professional development outcomes. Journal of Genetic Counseling, 19(4), 371–386.CrossRefPubMed Runyon, M., Zahm, K. W., Veach, P. M., MacFarlane, I. M., & LeRoy, B. S. (2010). What do genetic counselors learn on the job? A qualitative assessment of professional development outcomes. Journal of Genetic Counseling, 19(4), 371–386.CrossRefPubMed
go back to reference Sane, V., Humphreys, L., & Peterson, M. (2014). Are Australasian genetic counselors interested in private practice at the primary care level of health service? Journal of Genetic Counseling, 24(5), 783–796.CrossRef Sane, V., Humphreys, L., & Peterson, M. (2014). Are Australasian genetic counselors interested in private practice at the primary care level of health service? Journal of Genetic Counseling, 24(5), 783–796.CrossRef
go back to reference Weil, J. (2010). Genetic counseling practice: advanced concepts and skills (P. M. V. Bonnie S Leroy, Dianne M Bartels Ed.). Hoboken: John Wiley & Sons. Weil, J. (2010). Genetic counseling practice: advanced concepts and skills (P. M. V. Bonnie S Leroy, Dianne M Bartels Ed.). Hoboken: John Wiley & Sons.
go back to reference Zahm, K. W., Veach, P. M., Martyr, M. A., & LeRoy, B. S. (2016). From novice to seasoned practitioner: a qualitative investigation of genetic counselor professional development. Journal of Genetic Counseling, 25(4), 818–834.CrossRefPubMed Zahm, K. W., Veach, P. M., Martyr, M. A., & LeRoy, B. S. (2016). From novice to seasoned practitioner: a qualitative investigation of genetic counselor professional development. Journal of Genetic Counseling, 25(4), 818–834.CrossRefPubMed
go back to reference Zetzsche, L., Kotzer, K., & Wain, K. (2014). Looking back and moving forward: an historical perspective from laboratory genetic counselors. Journal of Genetic Counseling, 23(3), 363–370.CrossRefPubMed Zetzsche, L., Kotzer, K., & Wain, K. (2014). Looking back and moving forward: an historical perspective from laboratory genetic counselors. Journal of Genetic Counseling, 23(3), 363–370.CrossRefPubMed
Metadata
Title
Genetic Counsellors and Private Practice: Professional Turbulence and Common Values
Authors
Sarah Collis
Clara Gaff
Samantha Wake
Alison McEwen
Publication date
01-08-2018
Publisher
Springer US
Published in
Journal of Genetic Counseling / Issue 4/2018
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI
https://doi.org/10.1007/s10897-017-0201-9

Other articles of this Issue 4/2018

Journal of Genetic Counseling 4/2018 Go to the issue