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Open Access 01-10-2017 | Original Research

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

Authors: A. Costal Tirado, A. M. McDermott, C. Thomas, D. Ferrick, J. Harris, A. Edwards, Marion McAllister

Published in: Journal of Genetic Counseling | Issue 5/2017

Abstract

International advocacy of patient-centred healthcare delivery has led to emphasis on the (re)design and evaluation of healthcare processes and outcomes from a patient perspective. Patient-reported outcome measures (PROMs) have significant potential to inform such attempts. However there is limited understanding of the processes by which this can be achieved. This exploratory study followed attempts to utilise two different PROMs measures to support service quality improvement in clinical genetics. PROMs used were the Genetic Counseling Outcome Scale (GCOS-24), a well-validated clinical genetics-specific PROM and Euroqol (EQ-5D), a generic PROM favoured by the UK National Institute for Health and Excellence (NICE). Both of these PROMs enable pre/post intervention comparison. A service audit tool was also used, premised on a patient-reported experience measure. In addition, the study draws on interviews with clinical staff to identify challenges associated with the use of PROMs (response rate, data collection, analysis). Benefits are also explored and include the provision of insight into patients’ needs; complementing clinical judgement; identification of needs being met, evidencing the benefit of services provided; prompting consideration of areas requiring attention; and encouraging professional development.

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Title: Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study
Authors: A. Costal Tirado
A. M. McDermott
C. Thomas
D. Ferrick
J. Harris
A. Edwards
Marion McAllister
Publication date: 01-10-2017
Publisher: Springer US
Published in: Journal of Genetic Counseling / Issue 5/2017
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-017-0079-6

At a glance: The STEP trials

Springer Medicine

Using Patient-Reported Outcome Measures for Quality Improvement in Clinical Genetics: an Exploratory Study

Abstract

At a glance: The STEP trials

Springer Medicine

Abstract

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