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01-04-2017 | Original Research

My Identical Twin Sequenced our Genome

Published in: Journal of Genetic Counseling | Issue 2/2017

Abstract

With rapidly declining costs, whole genome sequencing is becoming feasible for widespread use. Although cost-effectiveness is driving increased use of the technology, comprehensive recommendations on how to handle ethical dilemmas have yet to reach a consensus. In this article, Sam shares her experience of undergoing whole genome sequencing. Despite the deeply private nature of the test, the results do not solely belong to Sam; her identical twin sister, Arielle, shares virtually the same genome and received results without a formal consent process. This article explores their parallel experiences as a way of highlighting the controversial ethics of a private test with familial implications.

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Title: My Identical Twin Sequenced our Genome
Publication date: 01-04-2017
Published in: Journal of Genetic Counseling / Issue 2/2017
Print ISSN: 1059-7700
Electronic ISSN: 1573-3599
DOI: https://doi.org/10.1007/s10897-016-0046-7

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