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01-08-2018 | Original Article

Epidemiology and care structures for children and adolescents and young adults up to the 26th year of life with inflammatory bowel diseases (IBD) in Leipzig/Saxony/Germany

Authors: Marlen Zurek, Ivana Kern, Ulf Manuwald, Joachim Kugler, Thoralf Stange, Peter Fischer, Thomas Richter, Ulrike Rothe, All members of the Pediatric IBD Registry of Saxony and Leipzig’ Gastroenterologists

Published in: Journal of Public Health | Issue 4/2018

Abstract

Aims

Valid data on the incidence of inflammatory bowel disease (IBD) in children and adolescents in Germany have not yet been published. Unpublished data of the Pediatric IBD Registry of Saxony (primary data source) have shown a decrease in age-specific incidence rates after the 14th year of age; therefore, a second data source was collected from adult gastroenterologists in Leipzig.

Methods

All patients up to 25 years of age with a newly diagnosed IBD from adult gastroenterologists in Leipzig between 2005 and 2009 were included in the second data source: a total of 150 young patients with only two patients before age of 16 and 11 patients before age of 18 years.

Results

Using a second data source, the incidence of IBD in children and adolescents up to the completion of the 18th year, as determined by IBD Registry, was corrected from 6.6/100,000 (95%-CI 5.4–8.4) to an actual incidence of 11.0/100,000 (95%-CI 9.1–12.9). Age-specific incidence of IBD was also corrected, increasing continuously until the 18th year was completed.

Conclusions

Nearly all patients up to 15 years (completeness 87.5%) were recorded by pediatricians to the IBD Registry. The actual incidence up to the age of 18 years for IBD in Leipzig is one of the highest worldwide. To obtain valid epidemiologic data up to the age of 18, the inclusion of adult gastroenterologists are necessary.

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Title: Epidemiology and care structures for children and adolescents and young adults up to the 26th year of life with inflammatory bowel diseases (IBD) in Leipzig/Saxony/Germany
Authors: Marlen Zurek
Ivana Kern
Ulf Manuwald
Joachim Kugler
Thoralf Stange
Peter Fischer
Thomas Richter
Ulrike Rothe
All members of the Pediatric IBD Registry of Saxony and Leipzig’ Gastroenterologists
Publication date: 01-08-2018
Publisher: Springer Berlin Heidelberg
Published in: Journal of Public Health / Issue 4/2018
Print ISSN: 2198-1833
Electronic ISSN: 1613-2238
DOI: https://doi.org/10.1007/s10389-017-0884-2

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Epidemiology and care structures for children and adolescents and young adults up to the 26th year of life with inflammatory bowel diseases (IBD) in Leipzig/Saxony/Germany

Abstract

Aims

Methods

Results

Conclusions

At a glance: The ONWARDS insulin icodec trials

Springer Medicine

Abstract

Aims

Methods

Results

Conclusions

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