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Neurological Sciences
Published in: Neurological Sciences 8/2020

01-08-2020 | Multiple Sclerosis | Brief Communication

Informing MS patients on treatment options: a consensus on the process of consent taking

Authors: C. Tortorella, C. Solaro, P. Annovazzi, L. Boffa, M. C. Buscarinu, F. Buttari, M. Calabrese, P. Cavalla, E. Cocco, C. Cordioli, G. De Luca, M. Di Filippo, R. Fantozzi, D. Ferraro, A. Gajofatto, A. Gallo, R. Lanzillo, A. Laroni, S. Lo Fermo, S. Malucchi, G. T. Maniscalco, M. Moccia, V. Nociti, D. Paolicelli, I. Pesci, L. Prosperini, P. Ragonese, V. Tomassini, V. L. A. Torri Clerici, M. Rodegher, M. Gherardi, C. Gasperini, on behalf of the RIReMS Group

Published in: Neurological Sciences | Issue 8/2020

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Abstract

In the last years, change in multiple sclerosis (MS) therapeutic scenario has highlighted the need for an improved doctor-patient communication in advance of treatment initiation in order to allow patient’s empowerment in the decision-making process.

Aims

The aims of our project were to review the strategies used by Italian MS specialists to inform patients about treatment options and to design a multicentre shared document that homogenizes the information about disease-modifying treatment (DMTs) and the procedure of taking informed consent in clinical practice.

Results

The new resource, obtained by consensus among 31 neurologists from 27 MS Centres in Italy with the supervision of a medico-legal advisor, received the aegis of Italian Neurological Society (SIN) and constitutes a step toward a standardized decision process around DMTs in MS.
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Lorefice L, Mura G, Coni G et al (2013) What do multiple sclerosis patients and their caregivers perceive as unmet needs? BMC Neurol 13:177CrossRef
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Heesen C, Kasper J, Köpke S, Richter T, Segal J, Muhlhauser I (2007) Informed shared decision making in multiple sclerosis—inevitable or impossible? J Neurol Sci 259(1–2):109–117CrossRef
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Forbes A, While A, Taylor M (2007) What people with multiple sclerosis perceive to be important to meeting their needs. J Adv Nurs 58(1):11–22CrossRef
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Colligan E, Metzler A, Tiryaki E (2017) Shared decision-making in multiple sclerosis. Mult Scler 23(2):185–190CrossRef
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Köpke S, Solari A, Rhan A, Khan F, Heensen C, Giordano A (2014) Information provision for people with multiple sclerosis. Cochrane Database Syst Rev 4:CD008757
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Heesen C, Solari A, Giordano A, et al. Decisions on multiple sclerosis immunotherapy: new treatment complexities urge patient engagement. J Neurol Sci 2011; 306(1–2): 192–197
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Hall DE, Prochavaza AV, Fink AS. Informed consent for clinical treatment. CMAJ 2012; 20;184(5):533–40
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Spatz E, Krumholz HM, Moulton BW. The new era of informed consent getting to a reasonable-patient standard through shared decision making. JAMA 2016; 17;315(19):2063–4
Metadata
Title
Informing MS patients on treatment options: a consensus on the process of consent taking
Authors
C. Tortorella
C. Solaro
P. Annovazzi
L. Boffa
M. C. Buscarinu
F. Buttari
M. Calabrese
P. Cavalla
E. Cocco
C. Cordioli
G. De Luca
M. Di Filippo
R. Fantozzi
D. Ferraro
A. Gajofatto
A. Gallo
R. Lanzillo
A. Laroni
S. Lo Fermo
S. Malucchi
G. T. Maniscalco
M. Moccia
V. Nociti
D. Paolicelli
I. Pesci
L. Prosperini
P. Ragonese
V. Tomassini
V. L. A. Torri Clerici
M. Rodegher
M. Gherardi
C. Gasperini
on behalf of the RIReMS Group
Publication date
01-08-2020
Publisher
Springer International Publishing
Published in
Neurological Sciences / Issue 8/2020
Print ISSN: 1590-1874
Electronic ISSN: 1590-3478
DOI
https://doi.org/10.1007/s10072-020-04339-z

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