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Published in: Archives of Women's Mental Health 3/2010

01-06-2010 | Original Contribution

Under My Umbrella”: The housing experiences of HIV positive parents who live with and care for their children in Ontario

Authors: Saara Greene, Ruthann Tucker, Sean B. Rourke, LaVerne Monette, Jay Koornstra, Michael Sobota, Steve Byers, Stephen Hwang, James Dunn, Dale Guenter, Amrita Ahluwalia, James Watson

Published in: Archives of Women's Mental Health | Issue 3/2010

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Abstract

Positive Spaces, Healthy Places (PSHP) is the first longitudinal community-based research (CBR) initiative in Canada to examine housing stability and its relationship to health related quality of life (HRQOL) for people living with of HIV/AIDS (PHAs). As part of our mixed method data collection strategy in-depth, semi-structured interviews were conducted with 50 PHAs across Ontario to provide a deeper understanding of the impact that housing instability has on their mental and physical health. Emerging from the qualitative interviews were the unique issues and concerns that were reported by parents who live with and care for their children. These parents face dire housing, economic and social challenges that are associated with significant risks for poor health outcomes. Poor housing conditions, unsafe neighborhoods, barriers to supports for themselves and their children, HIV related stigma, discrimination, racism, and poverty have been identified by these families as being among their most pressing concerns. This results in increased stress and anxiety that has a negative impact on the mental health of HIV positive parents. In order to more effectively support HIV positive parents and their children, health and social service practices and policies must respond to the unique challenges that face these families.
Literature
go back to reference Aidala A, Cross JE, Stall R, Harre D, Sumartojo E (2005) Housing status and HIV risk behaviors: implications for prevention and policy. AIDS and Behavior 9:1–15CrossRef Aidala A, Cross JE, Stall R, Harre D, Sumartojo E (2005) Housing status and HIV risk behaviors: implications for prevention and policy. AIDS and Behavior 9:1–15CrossRef
go back to reference AIDS Bureau (2007) Building Bridges: an analysis and summary of the HIV/AIDS community planning initiative in Ontario, Ministry of Health and Long Term Care AIDS Bureau (2007) Building Bridges: an analysis and summary of the HIV/AIDS community planning initiative in Ontario, Ministry of Health and Long Term Care
go back to reference Antle B, Wells L, Salter Goldie R, Matteo D, King S (2001) Challenges of parenting for families living with HIV/AIDS in. Social Work 46(2):159–169PubMed Antle B, Wells L, Salter Goldie R, Matteo D, King S (2001) Challenges of parenting for families living with HIV/AIDS in. Social Work 46(2):159–169PubMed
go back to reference Bryant T (2004) Housing and health. In: Raphael D (ed) Social determinants of health: Canadian perspectives. Toronto, ON, Canadian Scholars Press Bryant T (2004) Housing and health. In: Raphael D (ed) Social determinants of health: Canadian perspectives. Toronto, ON, Canadian Scholars Press
go back to reference Cheung AM, Hwang SW (2004) Risk of death among homeless women: a cohort study and review of the literature. Can Med Assoc J 170(8):1243–1247CrossRef Cheung AM, Hwang SW (2004) Risk of death among homeless women: a cohort study and review of the literature. Can Med Assoc J 170(8):1243–1247CrossRef
go back to reference Culhane DP, Gollub E, Kuhn R, Shpaner M (2001) The co-occurrence of AIDS and homelessness: results from the integration of administrative databases for AIDS surveillance and public shelter utilization in Philadelphia. J Epidemiol Community health 55:515–520CrossRefPubMed Culhane DP, Gollub E, Kuhn R, Shpaner M (2001) The co-occurrence of AIDS and homelessness: results from the integration of administrative databases for AIDS surveillance and public shelter utilization in Philadelphia. J Epidemiol Community health 55:515–520CrossRefPubMed
go back to reference DeMatteo D, Wells LM, Salter Goldie R, King SM (2002) The ‘family’ context of HIV: a need for comprehensive health and social policies. AIDS CARE 14(2):261–278CrossRefPubMed DeMatteo D, Wells LM, Salter Goldie R, King SM (2002) The ‘family’ context of HIV: a need for comprehensive health and social policies. AIDS CARE 14(2):261–278CrossRefPubMed
go back to reference Dunn JR (2000) Housing and health inequalities: review and prospects for research. Housing Studies 15(3):341–366CrossRef Dunn JR (2000) Housing and health inequalities: review and prospects for research. Housing Studies 15(3):341–366CrossRef
go back to reference Dunn JR, Hays MV, Hulchanski D, Hwang SW, Potvin L (2004) Housing as a socio-economic determinant of health: a Canadian research framework. In: Howden-Chapman P, Carroll P (eds) Housing and health: research, policy and innovation. Steele Roberts, Wellington, pp 12–39 Dunn JR, Hays MV, Hulchanski D, Hwang SW, Potvin L (2004) Housing as a socio-economic determinant of health: a Canadian research framework. In: Howden-Chapman P, Carroll P (eds) Housing and health: research, policy and innovation. Steele Roberts, Wellington, pp 12–39
go back to reference Duran B, Butlerys M, Iralu J, Graham C, Edwards A, Harrison M (2000) American Indians with HIV/AIDS: health and social service needs, barriers to care, and satisfaction with services among a Western tribe. Am Indian Alsk Native Ment Health Res 9(2):22–36 Duran B, Butlerys M, Iralu J, Graham C, Edwards A, Harrison M (2000) American Indians with HIV/AIDS: health and social service needs, barriers to care, and satisfaction with services among a Western tribe. Am Indian Alsk Native Ment Health Res 9(2):22–36
go back to reference Enriquez M, Farnam R, Simpson K, Grantello S, Shandor MM. (2007). Pregnancy, poverty and HIV in, The Journal of Nurse Practitioners, pp.687–693 Enriquez M, Farnam R, Simpson K, Grantello S, Shandor MM. (2007). Pregnancy, poverty and HIV in, The Journal of Nurse Practitioners, pp.687–693
go back to reference Fisher B, Hovell M, Hofstetter CR, Hough R (1995) Risks associated with long-term homelessness among women: battery, rape and HIV infection. Int J Health Serv 25:351–369PubMed Fisher B, Hovell M, Hofstetter CR, Hough R (1995) Risks associated with long-term homelessness among women: battery, rape and HIV infection. Int J Health Serv 25:351–369PubMed
go back to reference Frankish CJ, Hwang CW, Quantz D (2005) Homelessness and health in canada: lessons and priorities. Can J Public Health 96(Suppl 2):s23–s29PubMed Frankish CJ, Hwang CW, Quantz D (2005) Homelessness and health in canada: lessons and priorities. Can J Public Health 96(Suppl 2):s23–s29PubMed
go back to reference Geduld J, Gatali M, Remis R, Archibald CP (2003) Estimates of HIV prevalence and incidence in Canada. CCDR 2003 29:197–206 Geduld J, Gatali M, Remis R, Archibald CP (2003) Estimates of HIV prevalence and incidence in Canada. CCDR 2003 29:197–206
go back to reference Gielen AC, McDonnell KA, Burke JG, O’Campo P (2000) Women's lives after HIV positive diagnosis: disclosure and violence. Matern Child Health J 4(2):111–120 Gielen AC, McDonnell KA, Burke JG, O’Campo P (2000) Women's lives after HIV positive diagnosis: disclosure and violence. Matern Child Health J 4(2):111–120
go back to reference Greene S, Tucker R, Rourke SB, Monet L, Sobota M, Koornstra J, Byers S, Hwang S, Dunn J, Guenter D (2007) Significant housing, economic and social challenges for people with HIV who are living with and caring for their children: result from the positive spaces, healthy places research study. NIMH Annual International Research Conference on the Role of Families in Preventing and Adapting to HIV/AIDS, July 24–27th, San Francisco Greene S, Tucker R, Rourke SB, Monet L, Sobota M, Koornstra J, Byers S, Hwang S, Dunn J, Guenter D (2007) Significant housing, economic and social challenges for people with HIV who are living with and caring for their children: result from the positive spaces, healthy places research study. NIMH Annual International Research Conference on the Role of Families in Preventing and Adapting to HIV/AIDS, July 24–27th, San Francisco
go back to reference Hwang SW (2001) Homelessness and health. Can Med Assoc J 164(2):229–233 Hwang SW (2001) Homelessness and health. Can Med Assoc J 164(2):229–233
go back to reference Ingram D, Hutchison S (1999) Defensive mothering in HIV positive mothers. Qual Health Res 9(2):243–258 Ingram D, Hutchison S (1999) Defensive mothering in HIV positive mothers. Qual Health Res 9(2):243–258
go back to reference Kappel Ramji Consulting Group (2002) Common occurrence: the impact of homelessness on women’s health. Phase II: Community Based Action Research-Final Report, Toronto Kappel Ramji Consulting Group (2002) Common occurrence: the impact of homelessness on women’s health. Phase II: Community Based Action Research-Final Report, Toronto
go back to reference Kilbourne A, Herndon B, Andersen RM, Wenzel SL, Gelberg L (2002) Psychiatric symptoms, health services, and HIV risk factors among homeless women. Journal of Health Care for the Poor and Underserved 13(1):49–65CrossRefPubMed Kilbourne A, Herndon B, Andersen RM, Wenzel SL, Gelberg L (2002) Psychiatric symptoms, health services, and HIV risk factors among homeless women. Journal of Health Care for the Poor and Underserved 13(1):49–65CrossRefPubMed
go back to reference Kushel MB, Gupta R, Gee L, Hass JS (2006) Housing instability and food insecurity as barriers to health care among low income Americans. J Gen Intern Med 21(1):71–77CrossRefPubMed Kushel MB, Gupta R, Gee L, Hass JS (2006) Housing instability and food insecurity as barriers to health care among low income Americans. J Gen Intern Med 21(1):71–77CrossRefPubMed
go back to reference Lawson E, Gardezi F, Calzavara L, Husbands W, Myers T, Tharao WE (2006) HIV/AIDS, stigma, denial, fear and discrimination: experiences and responses of people from African and Caribbean communities in Toronto. African and Caribbean Council on HIV/AIDS (ACCHO) and the HIV Social, Behavioral and Epidemiological Studies Unit, Department of Health Sciences, University of Toronto Lawson E, Gardezi F, Calzavara L, Husbands W, Myers T, Tharao WE (2006) HIV/AIDS, stigma, denial, fear and discrimination: experiences and responses of people from African and Caribbean communities in Toronto. African and Caribbean Council on HIV/AIDS (ACCHO) and the HIV Social, Behavioral and Epidemiological Studies Unit, Department of Health Sciences, University of Toronto
go back to reference Leaver CA, Bargh G, Dunn J, Hwang S (2007) The effects of housing status on health related outcomes in people living with HIV: a systematic review of the literature in. AIDS and Behavior 11(2):85–100CrossRefPubMed Leaver CA, Bargh G, Dunn J, Hwang S (2007) The effects of housing status on health related outcomes in people living with HIV: a systematic review of the literature in. AIDS and Behavior 11(2):85–100CrossRefPubMed
go back to reference Leserman J, Ironson G, O’Cleirigh C, Fordiani JM, Balbin B (2008) Stressful life events and adherence in HIV. AIDS Patient Care STDS 22(5):403–411CrossRefPubMed Leserman J, Ironson G, O’Cleirigh C, Fordiani JM, Balbin B (2008) Stressful life events and adherence in HIV. AIDS Patient Care STDS 22(5):403–411CrossRefPubMed
go back to reference Li A, Gillis L, Woolcott L, et al (2001) Improving access to legal services and health care for people with HIV/AIDS who are immigrants, refugees or without status in Canada. Toronto: Committee for Accessible AIDS Treatment Li A, Gillis L, Woolcott L, et al (2001) Improving access to legal services and health care for people with HIV/AIDS who are immigrants, refugees or without status in Canada. Toronto: Committee for Accessible AIDS Treatment
go back to reference McGowan J, Shah S (2000) Prevention of perinatal HIV transmission during pregnancy. J Antimicrob Chemother 46:657–668CrossRefPubMed McGowan J, Shah S (2000) Prevention of perinatal HIV transmission during pregnancy. J Antimicrob Chemother 46:657–668CrossRefPubMed
go back to reference McKeown I, Reid S, Turner S, Orr P (2002) Sexual violence and dislocation as social risk factors involved in the acquisition of HIV among women in Manitoba, The Prairie Women’s Health Centre of Excellence, Project #25 McKeown I, Reid S, Turner S, Orr P (2002) Sexual violence and dislocation as social risk factors involved in the acquisition of HIV among women in Manitoba, The Prairie Women’s Health Centre of Excellence, Project #25
go back to reference Murphy D (2006) FEANTSA, Prepared for the 2006 ENHR Conference, Workshop 5 “The Residential Context of Health” Brussels, June 2006 Murphy D (2006) FEANTSA, Prepared for the 2006 ENHR Conference, Workshop 5 “The Residential Context of Health” Brussels, June 2006
go back to reference Nelson G, Sylevestre J, Aubry TJ, George L, Trainor J (2007) Housing choice and control, housing quality, and control over professional support as contributors to the subjective quality of life and community adaptation of people with severe mental illness. Adm Policy Ment Health 34(2):89–100 Nelson G, Sylevestre J, Aubry TJ, George L, Trainor J (2007) Housing choice and control, housing quality, and control over professional support as contributors to the subjective quality of life and community adaptation of people with severe mental illness. Adm Policy Ment Health 34(2):89–100
go back to reference Ontario Advisory Committee on HIV/AIDS (2002). A proposed HIV/AIDS Strategy for Ontario to 2008 Ontario Advisory Committee on HIV/AIDS (2002). A proposed HIV/AIDS Strategy for Ontario to 2008
go back to reference Parish M, Burry C, Pabst MS (2003) Providing comprehensive case management to urban women with HIV/AIDS and their families in. Affilia 18:302CrossRef Parish M, Burry C, Pabst MS (2003) Providing comprehensive case management to urban women with HIV/AIDS and their families in. Affilia 18:302CrossRef
go back to reference Peressini T, McDonald L (2000). Urban homelessness in Canada. In: Bunting T, Filion P (eds) Canadian cities in transition. Oxford University Press Peressini T, McDonald L (2000). Urban homelessness in Canada. In: Bunting T, Filion P (eds) Canadian cities in transition. Oxford University Press
go back to reference Pequegnat W, Bray JH (1997) Families and HIV/AIDS: introduction to the special section. J Fam Psychol 11:3–10CrossRef Pequegnat W, Bray JH (1997) Families and HIV/AIDS: introduction to the special section. J Fam Psychol 11:3–10CrossRef
go back to reference Phelan JC, Link BG (1999) Who are the “homeless”? Reconsidering the stability and composition of the homeless population. Am J Public Health 89:1334–1338 Phelan JC, Link BG (1999) Who are the “homeless”? Reconsidering the stability and composition of the homeless population. Am J Public Health 89:1334–1338
go back to reference Remis RS (2006) Report on HIV/AIDS in Ontario Remis RS (2006) Report on HIV/AIDS in Ontario
go back to reference Remis RS, Swantee C, Schiedel L, Liu J (2008) Report on HIV/AIDS in Ontario 2006 Remis RS, Swantee C, Schiedel L, Liu J (2008) Report on HIV/AIDS in Ontario 2006
go back to reference Rotheram-Borus MJ, Weiss R, Alber S, Lester P (2005) Adolescent adjustment before nd after HIV-related parental death. J Consult Clin Psychol 73(2):221–228CrossRefPubMed Rotheram-Borus MJ, Weiss R, Alber S, Lester P (2005) Adolescent adjustment before nd after HIV-related parental death. J Consult Clin Psychol 73(2):221–228CrossRefPubMed
go back to reference Salter Goldie R, De Matteo D, Wells L, Aykroyd G, King S (2000) Social planning in canada for families with HIV infection in. Can J Public Health 91(5):353–356 Salter Goldie R, De Matteo D, Wells L, Aykroyd G, King S (2000) Social planning in canada for families with HIV infection in. Can J Public Health 91(5):353–356
go back to reference Shelton D (1993) Issues related to health care utilization and medical adherence among prenatal HIV seropositive African-American women in Miami: the role of the family and the extended 50 kinship network. Fam Syst Med 11:1–14CrossRef Shelton D (1993) Issues related to health care utilization and medical adherence among prenatal HIV seropositive African-American women in Miami: the role of the family and the extended 50 kinship network. Fam Syst Med 11:1–14CrossRef
go back to reference Song J (2003) AIDS housing of Washington. AIDS Housing Survey, p.1 Song J (2003) AIDS housing of Washington. AIDS Housing Survey, p.1
go back to reference Stewart MJ, Neufeld A, Harrison MJ, Spitzer D, Hughes K, Makwarimba E (2006) Immigrant woman family caregivers in Canada: implications for policies and programmes in health and social sectors in. Health Soc Care Community 14(4):329–340CrossRefPubMed Stewart MJ, Neufeld A, Harrison MJ, Spitzer D, Hughes K, Makwarimba E (2006) Immigrant woman family caregivers in Canada: implications for policies and programmes in health and social sectors in. Health Soc Care Community 14(4):329–340CrossRefPubMed
go back to reference Tischler V, Karim K, Rustall S, Gregory P, Vostanis P (2004) A family support service for homeless children and parents: users perspectives and characteristics in. Health Soc Care Community 12(4):327–335CrossRefPubMed Tischler V, Karim K, Rustall S, Gregory P, Vostanis P (2004) A family support service for homeless children and parents: users perspectives and characteristics in. Health Soc Care Community 12(4):327–335CrossRefPubMed
go back to reference Tischler V, Rademeyer A, Vostanis P (2007) Mothers experiencing homelessness: mental health, support and social care needs in. Health Soc Care Community 15(3):246–253PubMedCrossRef Tischler V, Rademeyer A, Vostanis P (2007) Mothers experiencing homelessness: mental health, support and social care needs in. Health Soc Care Community 15(3):246–253PubMedCrossRef
go back to reference Tremblay J, Ward J (1998) Homeless voices: follow-up to the homeless, not helpless report. Toronto Health City Office, Toronto Tremblay J, Ward J (1998) Homeless voices: follow-up to the homeless, not helpless report. Toronto Health City Office, Toronto
go back to reference Waegemakers Schiff J (2007) Homeless families in Canada: discovering total families. Families in Society 88(1):131–140 Waegemakers Schiff J (2007) Homeless families in Canada: discovering total families. Families in Society 88(1):131–140
go back to reference Weinreb L, Goldberg R, Lessard D, Perloff J, Bassuk E (1999) HIV-risk practices among homeless and low-income housed mothers. J Fam Pract 48:859–867PubMed Weinreb L, Goldberg R, Lessard D, Perloff J, Bassuk E (1999) HIV-risk practices among homeless and low-income housed mothers. J Fam Pract 48:859–867PubMed
go back to reference Wenzel SL, Tucker J, Elliot M, Hambarsoomian K (2007) Sexual risk among impoverished women: understanding the role of housing status. AIDS and Behavior 11(2):9–20 Wenzel SL, Tucker J, Elliot M, Hambarsoomian K (2007) Sexual risk among impoverished women: understanding the role of housing status. AIDS and Behavior 11(2):9–20
go back to reference Zierler S, Krieger N (2000) Social inequality and HIV infection in women. In: Mayer K, Pizer HF (eds) The emergence of AIDS: the impact on immunology, micorbiology and public health. American Public Health Association, Washington, DC Zierler S, Krieger N (2000) Social inequality and HIV infection in women. In: Mayer K, Pizer HF (eds) The emergence of AIDS: the impact on immunology, micorbiology and public health. American Public Health Association, Washington, DC
Metadata
Title
“Under My Umbrella”: The housing experiences of HIV positive parents who live with and care for their children in Ontario
Authors
Saara Greene
Ruthann Tucker
Sean B. Rourke
LaVerne Monette
Jay Koornstra
Michael Sobota
Steve Byers
Stephen Hwang
James Dunn
Dale Guenter
Amrita Ahluwalia
James Watson
Publication date
01-06-2010
Publisher
Springer Vienna
Published in
Archives of Women's Mental Health / Issue 3/2010
Print ISSN: 1434-1816
Electronic ISSN: 1435-1102
DOI
https://doi.org/10.1007/s00737-009-0090-5

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