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Supportive Care in Cancer

Published in:

01-05-2017 | Original Article

Peer support preferences among African-American breast cancer survivors and caregivers

Authors: Lindsey Haynes-Maslow, Marlyn Allicock, La-Shell Johnson

Published in: Supportive Care in Cancer | Issue 5/2017

Abstract

Purpose

Breast cancer mortality rates continue to improve due to advances in cancer control and treatment. However, gains in breast cancer survival rates vary by race. Psychosocial support systems can lead to improved health outcomes among cancer survivors. This study was a part of a larger study exploring the challenges that both African-American cancer survivors and caregivers face across the cancer continuum. The objective of this paper was to explore African-American breast cancer survivors’ and caregivers’ preferences regarding characteristics and qualities of Peer Connect guides to inform the development of a peer support program.

Methods

Forty-one African-American cancer survivors and caregivers participated in five focus groups lasting approximately 90 min. Participants were asked about what qualities or characteristics they would prefer in a peer support guide to make them feel comfortable talking with them. Focus group transcripts were analyzed using thematic content analysis, an iterative coding process. Themes were identified based on the research team’s integrated and unified final codes.

Results

Twenty-two cancer survivors, 19 caregivers, and 3 individuals who were both survivors and caregivers participated in the focus groups. Participants discussed five preferences for peer support guides: (1) competency, (2) gender, (3) age, (4) cancer role status, and (5) relationship to participant.

Conclusions

This study highlights cancer survivors’ and caregivers’ perceptions of characteristics needed for peer support providers that in turn can influence whether and how they participate in cancer support programs.

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Title: Peer support preferences among African-American breast cancer survivors and caregivers
Authors: Lindsey Haynes-Maslow
Marlyn Allicock
La-Shell Johnson
Publication date: 01-05-2017
Publisher: Springer Berlin Heidelberg
Published in: Supportive Care in Cancer / Issue 5/2017
Print ISSN: 0941-4355
Electronic ISSN: 1433-7339
DOI: https://doi.org/10.1007/s00520-016-3550-2

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