Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress 2023 EHA Congress 2023 ASCO Annual Meeting
Clinical Collections
Advances in Alzheimer’s

At a glance: The ONWARDS insulin icodec trials

A round-up of the ONWARDS phase 3 clinical trials evaluating the novel weekly insulin icodec in people with diabetes.
ADVANCED SEARCH
Log in
Top
Supportive Care in Cancer
Published in: Supportive Care in Cancer 10/2016

01-10-2016 | Original Article

Transition journey from hospital to home in patients with cancer and their caregivers: a qualitative study

Authors: Wei How Darryl Ang, Siew Ping Lang, Emily Ang, Violeta Lopez

Published in: Supportive Care in Cancer | Issue 10/2016

Login to get access

Abstract

Background

The National Cancer Institute Singapore initiated the NUH2 Home program in January 2014, referred to as “Caring Across the Cancer Continuum,” a nurse-led cancer transitional care service (CTCS) that provides home care to patients with cancer and their caregivers. The study aimed to explore the transition experiences of patients with cancer and their caregivers.

Method

Using a purposive sampling, 12 patients with cancer and 12 caregivers were recruited. Audiotape interviews were conducted until data saturation was achieved. Each interview was transcribed verbatim, and thematic analyses were performed to extract significant themes and subthemes.

Results

Four themes emerged from the data including (1) ongoing concerns, (2) needing timely help, (3) resuming control and normality of life, and (4) appreciating the transition care. The transition journey of patients and caregivers provided them with an ability to regain control and normality in their lives, be reassured and confident in being able to care for themselves and manage the physiological and psychological strains associated with the multiple vicissitudes associated with having cancer and its treatment while at home.

Conclusion

Our study addressed the nature, patterns, conditions, and responses to transition care. Our findings provided relevant contextual knowledge to further improve the transition care service based on the recommendations of the patients with cancer and their caregivers who first experienced the new service.
Appendix
Available only for authorised users
Literature
1.
2.
3.
Hanan T, Mullen L, Richmond J, Wynne M, Laffoy M, O’Toole E (2014) Delivering care to oncology patients in the community: an innovative integrated approach. Br J Community Nurs 19(8):382–387CrossRefPubMed
4.
5.
6.
Singapore Nursing Board (2013) Singapore nursing board annual report 2012. Singapore
7.
8.
9.
10.
Bordonaro S, Romano F, Lanteri E, Cappucio F, Indorato R, Butera A, D’Angelo A et al (2014) Effect of a structured, active, home-based cancer-treatment program for the managements of patients on oral chemotherapy. Patient Prefer Adherence 8:917–923. doi:10.​2147/​PPA.​S62666 CrossRefPubMedPubMedCentral
11.
12.
Nissim R, Rodin G, Schimmer A, Minden M, Rydall A, Yuen D, Mischitelle A (2014) Finding new bearings: a qualitative study on the transition from inpatient to ambulatory care of patients with acute myeloid leukemia. Support Care Cancer 22:2435–2443CrossRefPubMed
13.
Brumley R, Enguidanos S, Jamison P, Seitz R, Morgenstern N, Saito S, Gonzalez J (2007) Increased satisfaction with care and lower costs: results of a randomized trial of in-home palliative care. J Am Geriatr Soc 55:993–1000CrossRefPubMed
14.
Harrison MB, Browne GB, Roberts J, Tugwell P, Agfni A, Graham I (2002) Quality of life of individuals with heart failure: a randomized trial of the effectiveness of two models of hospital-to-home transition. Med Care 40:271–282CrossRefPubMed
15.
16.
Molassiotis A, Brearley S, Saunders M, Craven O, Wardley A, Farrell C, Swindell R et al (2009) Effectiveness of a home care nursing program in symptom management of patients with colorectal and breast cancer receiving oral chemotherapy: a randomized, controlled trial. J Clin Oncol 27:6191–6198CrossRefPubMed
17.
18.
Ugur S, Elcigil A, Arslan D, Sonmez A (2014) Responsibilities and difficulties of caregivers of cancer patients in home care. Asian Pac J Cancer Prev 15:725–729CrossRefPubMed
19.
Mollica M, Nemeth L (2015) Transition from patients to survivor in African American breast cancer survivors. Cancer Nurs 38:16–22CrossRefPubMed
20.
Afflect G, Tennen H, Rowe J, Roscher B, Walker L (1989) Effects of formal support on mothers’ adaptation and hospital-to-home transition of high-risk infants: the benefits and costs of helping. Child Dev 60:488–501CrossRef
21.
Roundtree AK, Giordano SH, Price A, Suarez-Almazor ME (2011) Problems in transition and quality of care: perspectives of breast cancer survivors. Support Care Cancer 19:1921–1929CrossRefPubMed
22.
Hashemi-Ghasemabadi M, Teleghani F, Yousefy A, Kohan S (2016) Transition to new role of caregiving for families of patients with breast cancer: a qualitative descriptive exploratory study. Support Care Cancer 24(3):1269–1276CrossRefPubMed
23.
Aranda S, Hayman-White K (2001) Home caregivers of the person with advanced cancer. Cancer Nurs 24:300–307CrossRefPubMed
24.
Doumit MA, Huijer H, Kelly JH, Nassar N (2008) The lived experience of Lebanese family caregivers of cancer patients. Cancer Nurs 31:E36–E42CrossRefPubMed
25.
Lee KC, Yiin JJ, Lu SH, Chao YF (2015) The burden of caregiving and sleep disturbance among family caregivers of advanced cancer patients. Cancer Nurs 38:E10–E18CrossRefPubMed
26.
Lopez V, Copp G, Molassiotis A (2012) Male caregivers of patients with breast and gynecologic cancer. Cancer Nurs 35:402–410CrossRefPubMed
27.
Holmberg M, Valmari G, Lundgren AM (2012) Patients’ experiences of homecare nursing: balancing duality between obtaining care and to maintain dignity and self-determination. Scand J Caring Sci 26:705–712CrossRefPubMed
28.
Meleis AI, Sawyer LM, Im EO, Hilfinger- Messias DA, Schumacher K (2010) Transition theory. transitions theory. Middle-range and situation-specific theories in nursing research and practice. Springer Publishing Company, New York, pp 52–83
29.
Robinson JP (2000) Phases of qualitative research interview with institutionalized elderly individuals. J Gerontol Nurs 26:17–23CrossRefPubMed
30.
Sandelowski M (2000) Focus on research methods-whatever happened to qualitative description? Res Nurs Health 23:334–340CrossRefPubMed
31.
32.
33.
34.
Mittman N, Isogai PK, Saskin R, Liu N, Porter JM, Cheung MC, Leigh NB et al (2012) Population-based home care services in breast cancer: utilization and costs. Curr Oncol 19:e383–e391. doi:10.​3747/​co.​19.​1078 CrossRef
35.
Jones PS, Zhang XE, Jaceldo-Siegl K, Meleis AI (2002) Caregiving between two cultures: an integrative experience. J Transcult Nurs 13:202–209CrossRefPubMed
36.
37.
38.
Ong KJ, Back MF, Lu JJ, Shakespeare TS, Wynne CJ (2002) Cultural attitudes to cancer management in traditional South-East Asian patients. Australas Radiol 46:370–374CrossRefPubMed
39.
Lee J, Bell K (2011) The impact of cancer on family relationships among Chinese patients. J Transcult Nurs 22:225–234CrossRefPubMed
40.
41.
Zhai X, Qui R-Z (2007) Perceptions of long-term crae, autonomy and dignity by residents, family and caregivers: the Beijing experience. J Med Philos 32:425–445CrossRefPubMed
42.
Badger TA, Segrin C, Meek P, Lopez AM, Bonham E (2004) A case study of telephone interpersonal counseling for women with breast cancer and their partners. Oncol Nurs Forum 31:997–1003CrossRefPubMed
Metadata
Title
Transition journey from hospital to home in patients with cancer and their caregivers: a qualitative study
Authors
Wei How Darryl Ang
Siew Ping Lang
Emily Ang
Violeta Lopez
Publication date
01-10-2016
Publisher
Springer Berlin Heidelberg
Published in
Supportive Care in Cancer / Issue 10/2016
Print ISSN: 0941-4355
Electronic ISSN: 1433-7339
DOI
https://doi.org/10.1007/s00520-016-3269-0

Other articles of this Issue 10/2016

Supportive Care in Cancer 10/2016 Go to the issue

Original Article

Determinants of exercise adherence and contamination in a randomized controlled trial in cancer patients during and after allogeneic HCT

Original Article

Effectiveness of tapentadol prolonged release for the management of painful mucositis in head and neck cancers during intensity modulated radiation therapy

Original Article

Impact of obesity and exercise on chemotherapy-related fatigue

Original Article

Barriers and facilitators to endocrine therapy adherence among underserved hormone-receptor-positive breast cancer survivors: a qualitative study

Letter to the editor

Comment on “Linfotaping with Kinesio® Tape to manage and treat lymphedema patients: safety and tolerability are more important than efficacy”

Original Article

The role of “closed abdomen” hyperthermic intraperitoneal chemotherapy (HIPEC) in the palliative treatment of neoplastic ascites from peritoneal carcinomatosis: report of a single-center experience
Webinar | 19-02-2024 | 17:30 (CET)

Keynote webinar | Spotlight on antibody–drug conjugates in cancer

Watch now

Antibody–drug conjugates (ADCs) are novel agents that have shown promise across multiple tumor types. Explore the current landscape of ADCs in breast and lung cancer with our experts, and gain insights into the mechanism of action, key clinical trials data, existing challenges, and future directions.

Dr. Véronique Diéras
Prof. Fabrice Barlesi
Developed by: Springer Medicine
Image Credits