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Pediatric Nephrology
Published in: Pediatric Nephrology 7/2014

01-07-2014 | Educational Review

Psychosocial support for children and families requiring renal replacement therapy

Author: Alan R. Watson

Published in: Pediatric Nephrology | Issue 7/2014

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Abstract

Chronic kidney disease (CKD) and the need for renal replacement therapy (RRT) can place a great strain on the child and family. As well as the medical and nutritional prescription, each child and family requires an individual psychosocial prescription that requires input from multiprofessional team members. The information needs of each child and family need to be constantly evaluated as well as the choice of therapy in relation to social, psychological and economic factors. Many tertiary units lack adequate “time” to deliver such assessments and coordinate the support and respite care for those on long-term dialysis, especially when significant numbers of children are now accepted onto RRT programmes with co-morbidities. National and international standards are needed for the staffing of comprehensive tertiary paediatric renal units as well as studies evaluating supportive care to families.
Literature
1.
2.
Tjaden L, Tong A, Henning P, Groothoff J, Craig JC (2012) Children’s experiences of dialysis: a systematic review of qualitative studies. Arch Dis Child 97:395–402PubMedCrossRef
3.
Groothoff JW, Grootenhuis MA, Offringa M, Stronks K, Hutten GJ, Heymans HS (2005) Social consequences in adult life of end-stage renal disease in childhood. J Pediatr 146:512–517PubMedCrossRef
4.
Riley CM (1964) Thoughts about kidney homotransplantation in children. J Pediatr 65:797–800CrossRef
5.
Chantler C, Carter JE, Bewick M, Counahan R, Cameron JS, Ogg CS, Williams DG, Winder E (1980) 10 years’ experience with regular haemodialysis and renal transplantation. Arch Dis Child 55:435–445PubMedCentralPubMedCrossRef
6.
Von Lilien T, Salusky IB, Boechat I, Ettenger RB, Fine RN (1987) Five years’ experience with continuous ambulatory or continuous cycling peritoneal dialysis in children. J Pediatr 111:513–518CrossRef
7.
Zurowska A, Fischbach M, Watson AR, Edefontiport A, Stefanidis CJ, on behalf of the European Pediatric Dialysis Working Group (2012) Clinical practice recommendations for the care of infants with stage 5 chronic kidney disease (CKD5). Pediatr Nephrol 28:1739–1748PubMedCentralPubMedCrossRef
8.
9.
Neu AM, Sander A, Borzych-Duzalka D, Watson AR, Valles PG, Ha IS, Patel H, Askenazi D, Balasz-Chmielewska I, Lauronen J, Groothoff JW, Feber J, Schaefer F, Warady BA, IPPN investigators (2012) Comorbidities in chronic paediatric peritoneal dialysis patients: a report of the International Pediatric Peritoneal Dialysis Network. Perit Dial Int 32:410–418PubMedCentralPubMedCrossRef
10.
Vidal E, Edefonti A, Murer L, Gianoglio B, Maringhini S, Pecoraro C, Sorino P, Leozappa G, Lavoratti G, Ratsch IM, Chimenz R, Verrina E, Italian Registry of Paediatric Chronic Dialysis (2012) Peritoneal dialysis in infants: the experience of the Italian Registry of Paediatric Chronic Dialysis. Nephrol Dial Transplant 27:385–395CrossRef
11.
Watson AR (1997) Stress and burden of care in families with children commencing renal replacement therapy. Adv Perit Dial 13:300–304PubMed
12.
Brownbridge G, Fielding DM (1994) Psychosocial adjustment and adherence to dialysis treatment regimes. Pediatr Nephrol 8:744–749PubMedCrossRef
13.
Report of a Working Party of Royal College of Paediatrics and Child Health, British Association for Paediatric Nephrology and NHS Kidney Care (2011) Improving the standards of care of children with kidney disease through paediatric nephrology networks. www.​rcpch.​ac.​uk/​networks Accessed 16 April 2013
14.
Tong A, Lowe A, Sainsbury P, Craig JC (2008) Experiences of parents who have children with chronic kidney disease: a systematic review of qualitative studies. Pediatrics 121:349–360PubMedCrossRef
15.
Aldridge MD (2008) How do families adjust to having a child with chronic kidney failure? A systematic review. Nephrol Nurs J 35:157–162PubMed
16.
Tsai TC, Lui SI, Tsai JD, Chou LH (2006) Psychosocial effects on caregivers for children on chronic peritoneal dialysis. Kidney Int 70:1983–1987PubMedCrossRef
17.
Wiedebusch S, Konrad M, Foppe H, Reichwald-Klugger E, Schaefer F, Schreiber V, Muthny FA (2010) Health-related quality of life, psychosocial strains, and coping in parents of children with chronic renal failure. Pediatr Nephrol 25:1477–1485PubMedCrossRef
18.
Buyan N, Turkmen MA, Bilge I, Baskin E, Haberal M, Bilginer Y, Mir S, Emre S, Akman S, Ozkaya O, Fidan K, Alpay H, Kavukcu S, Sever L, Ozcakar ZB, Dogrucan N (2010) Quality of life in children with chronic kidney disease (with child and parent assessments). Pediatr Nephrol 25:1487–1496PubMedCrossRef
19.
Neul SK, Minard CG, Currier H, Goldstein SL (2013) Health-related quality of life functioning over a 2-year period in children with end-stage renal disease. Pediatr Nephrol 28:285–293PubMedCrossRef
20.
Heath J, Mackinlay D, Watson AR, Hames A, Wirz L, Scott S, Klewchuk E, Milford D, McHugh K (2011) Self-reported quality of life in children and young people with chronic kidney disease. Pediatr Nephrol 26:767–773PubMedCrossRef
21.
Hysing M, Elgen I, Gillberg C, Lie SA, Lundervold AJ (2007) Chronic physical illness and mental health in children. Results from a large-scale population study. J Child Psychol Psychiatry 48:785–792PubMedCrossRef
22.
Glazebrook C, Hollis C, Heussler H, Goodman R, Coates L (2003) Detecting emotional and behavioural problems in paediatric clinics. Child Care Health Dev 29:141–149PubMedCrossRef
23.
Kogon AJ, Vander Stoep A, Weiss NS, Smith J, Flynn JT, McCauley E (2013) Depression and its associated factors in pediatric chronic kidney disease. Pediatr Nephrol 28:1855–1861PubMedCentralPubMedCrossRef
24.
Report of a Working Party of the British Association for Paediatric Nephrology (2003) Review of multi-professional paediatric nephrology services in the UK—towards standards and equity of care
25.
KDIGO (2012) Clinical practice guidelines for the evaluation and management of chronic kidney disease. Chapter 5: referral to specialists and models of care. Kidney Int 3:112–119
26.
27.
Bruce MA, Beech BM, Sims M, Brown TN, Wyatt SB, Taylor HA, Williams DR, Crook E (2009) Social environmental stressors, psychological factors, and kidney disease. J Investig Med 57:583–589PubMedCentralPubMed
28.
29.
30.
31.
Watson AR, Hayes WN, Vondrak K, Ariceta G, Schmitt CP, Ekim M, Fischbach M, Edefonti A, Shroff R, Holta T, Zurowska A, Klaus G, Bakkaloglu S, Stefanidos C, Van de Walle J (2013) Factors affecting choice of renal replacement therapy in European Pediatric Nephrology Units. Pediatr Nephrol. doi:10.​1007/​s00467-013-2555-z PubMedCentral
32.
Watson AR (1995) Strategies to support families of children with end-stage renal failure. Pediatr Nephrol 9:628–631PubMedCrossRef
33.
Moss AH (2010) Revised dialysis clinical practice guideline promotes more informed decision-making. Clin J Am Soc Nephrol 5:2380–2383PubMedCrossRef
34.
Collier J, Pattison H, Watson AR, Sheard C (2001) Parental information needs in chronic renal failure and diabetes mellitus. Eur J Paediatr 160:31–36CrossRef
35.
Schoenmaker NJ, Tromp WF, van der Lee JH, Adams B, Bouts AH, Collard L, Cransberg K, van Damme-Lombaerts R, Godefroid N, van Hoeck KJ, Koster-Kamphuis L, Lilien MR, Raes A, Groothoff JW (2012) Disparities in dialysis treatment and outcomes for Dutch and Belgian children with immigrant parents. Pediatr Nephrol 27:1369–1379PubMedCentralPubMedCrossRef
36.
Rossi A, De Ranieri C, Tabarini P, Di Ciommo V, Di Donato R, Biondi G, Parisi F (2011) The department of psychology within a pediatric cardiac transplant unit. Transplant Proc 43:1164–1167PubMedCrossRef
37.
Batte S, Watson AR, Amess K (2006) The effects of chronic renal failure on siblings. Pediatr Nephrol 21:246–250PubMedCrossRef
38.
Chernoff RG, Ireys HT, DeVet KA, Kim YJ (2002) A randomized, controlled trial of a community-based support program for families of children with chronic illness: pediatric outcomes. Arch Pediatr Adolesc Med 156:533–539PubMedCrossRef
39.
40.
Hothi DK, Stronach L (2012) Home haemodialysis for children. Br J Renal Med 17:4–7
41.
Duff AJ (2003) Incorporating psychological approaches into routine paediatric venepuncture. Arch Dis Child 99:931–937CrossRef
42.
Bandstra NF, Skinner L, Leblanc C, Chambers CT, Hollon EC, Brennan D, Beaver C (2008) The role of child life in pediatric pain management: a survey of child life specialists. J Pain 9:320–329PubMedCrossRef
43.
Hemandez EG, Loza R, Vargas H, Jara MF (2011) Depressive symptomatology in children and adolescents with chronic renal insufficiency undergoing chronic dialysis. Int J Nephrol 2011:79869
44.
Chambers CT, Taddio A, Uman LS, McMurtry CM, HELPinKIDS Team (2009) Psychological interventions for reducing pain and distress during routine childhood immunisations: a systematic review. Clin Ther 31 [Suppl 2]:S77–S103PubMedCrossRef
45.
Uman LS, Chambers CT, McGrath PJ, Kisely S (2006) Psychological interventions for needle-related procedural pain and distress in children and adolescents. Cochrane Database Syst Rev 4:CD005179PubMed
46.
Lindley LC, Mark BA (2010) Children with special health care needs: impact of health care expenditures on family financial burden. J Child Fam Stud 19:79–89PubMedCentralPubMedCrossRef
47.
Roodnat JI, Laging M, Massey EK, Kho M, Kal-van Gestel JA, Ijzermans JN, van de Wetering J, Weimar W (2012) Accumulation of unfavourable clinical and socio-economic factors precludes living donor kidney transplantation. Transplantation 93:518–523PubMedCrossRef
48.
Gordon EJ (2012) Informed consent for living donation: a review of key empirical studies, ethical challenges and future research. Am J Transplant 12:2273–2280PubMedCrossRef
49.
Duquette PJ, Hooper SR, Wetherington CE, Icard PF, Gipson DS (2007) Brief report: intellectual and academic functioning in pediatric chronic kidney disease. J Pediatr Psychol 32:1011–1017PubMedCrossRef
50.
Icard PF, Hower SJ, Kuchenreuther AR, Hooper SR, Gipson DS (2008) The transition from childhood to adulthood with ESRD: educational and social challenges. Clin Nephrol 69:1–7PubMedCrossRef
51.
Poursanidou K, Garner P, Watson A (2008) Hospital-school liaison: perspectives of health and education professionals supporting children with renal transplants. J Child Health Care 12:253–267PubMedCrossRef
52.
Warady BA (1994) Therapeutic camping for children with end stage renal disease. Pediatr Nephrol 8:387–390PubMedCrossRef
53.
Watson A, Hilton D, Hackett D (2010) Therapeutic recreation camps to provide a residential experience for young people in transition to adult renal units. Pediatr Nephrol 25:787–788PubMedCrossRef
54.
Thyen U, Kuhlthau K, Perrin JM (1999) Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics 103:1235–1242PubMedCrossRef
55.
Watson AR (1996) Home health and respite care. Perit Dial Int 16:551–553
56.
Bell L (2007) Adolescents with renal disease in an adult world: meeting the challenge of transition of care. Nephrol Dial Transplant 22:989–991CrossRef
57.
Watson AR, Harden P, Ferris M, Kerr PG, Mahan J, Ramzy MF (2011) Transition from pediatric to adult renal services: a consensus statement by the International Society of Nephrology (ISN) and the International Pediatric Nephrology Association (IPNA). Pediatr Nephrol 26:1753–1757PubMedCrossRef
58.
Haller DM, Sanci LA, Sawyer SM, Patton G (2008) Do young people’s illness beliefs affect healthcare? A systematic review. J Adolesc Health 42:436–449PubMedCrossRef
59.
60.
Hilton D, Jepson S (2012) Evolution of a youth work service in hospital. Nurs Child Young People 24:14–18PubMedCrossRef
61.
Harden PN, Walsh G, Bandler N, Bradley S, Lonsdale D, Taylor J, Marks SD (2012) Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure. BMJ 344:e3718PubMedCrossRef
62.
Tong A, Henning P, Wong G, McTaggart S, Mackie F, Carroll RP, Craig JC (2013) Experiences and perspectives of adolescents and young adults with advanced CKD. Am J Kidney Dis 61:375–384PubMedCrossRef
63.
Verhoof E, Maurice-Stam H, Heymans H, Grootenhuis M (2013) Health-related quality of life, anxiety and depression in young adults with disability benefits due to childhood-onset somatic conditions. Child Adolesc Psychiatry Ment Health 7:12PubMedCentralPubMedCrossRef
Metadata
Title
Psychosocial support for children and families requiring renal replacement therapy
Author
Alan R. Watson
Publication date
01-07-2014
Publisher
Springer Berlin Heidelberg
Published in
Pediatric Nephrology / Issue 7/2014
Print ISSN: 0931-041X
Electronic ISSN: 1432-198X
DOI
https://doi.org/10.1007/s00467-013-2582-9

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