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Pediatric Nephrology
Published in: Pediatric Nephrology 4/2006

01-04-2006 | Original Article

The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood

Authors: Martha Alexandra Grootenhuis, Heleen Stam, Bob F. Last, Jaap W. Groothoff

Published in: Pediatric Nephrology | Issue 4/2006

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Abstract

Little is known about the impact of the course of life of children with end-stage renal disease (ESRD) on their quality of life in adulthood. We therefore assessed the course of life of adult patients with onset of ESRD at an age of <15 years between 1972 and 1992 and compared it with that of the general population. Furthermore, we explored how course of life is associated with quality of life (QoL) in young adulthood. A total of 75 young adult patients who had had ESRD since childhood, aged between 20 years and 30 years, completed the RAND-36 Health Survey and a questionnaire, which retrospectively assesses the achievement of development milestones. Patients achieved fewer milestones than peers with respect to autonomy, social, and psycho-sexual development, and displayed less risk behaviour. Patients who achieved fewer social milestones while growing up experienced more emotional problems and less vitality, and they had a lesser overall mental quality of life. Paediatric nephrologists should pay more attention to the development of social and independent functioning of children with ESRD in order to prepare them for active participation in society in adult life.
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Metadata
Title
The impact of delayed development on the quality of life of adults with end-stage renal disease since childhood
Authors
Martha Alexandra Grootenhuis
Heleen Stam
Bob F. Last
Jaap W. Groothoff
Publication date
01-04-2006
Publisher
Springer-Verlag
Published in
Pediatric Nephrology / Issue 4/2006
Print ISSN: 0931-041X
Electronic ISSN: 1432-198X
DOI
https://doi.org/10.1007/s00467-006-0030-9

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