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European Journal of Pediatrics
Published in: European Journal of Pediatrics 3/2016

01-03-2016 | Original Article

Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the Netherlands

Authors: Anja Rohenkohl, Susanne Stalman, Gerdine Kamp, Monika Bullinger, Julia Quitmann

Published in: European Journal of Pediatrics | Issue 3/2016

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Abstract

The European Quality of Life in Short Stature Youth (QoLISSY) questionnaire is a disease-specific instrument assessing quality of life (QoL) in children with short stature from the child and parent perspectives. In order to use the QoLISSY in Dutch samples, a translation process and psychometric testing is needed. Children diagnosed with short stature (8 to 18 years) and their parents were recruited from a Dutch growth clinic. Reliability was assessed using Cronbach’s α and intraclass correlation coefficients (ICCs). Pearsons’ correlations with the generic KIDSCREEN and a confirmatory factor analysis (CFA) were performed to test validity. Scales showed good internal consistency with α ranging from 0.80 to 0.94 (child report) and from 0.85 to 0.95 (parent report). Test–retest reliability (ICC) ranged from 0.15 to 0.91 (child report) and from 0.14 to 0.83 (parent report). Correlations with the KIDSCREEN in the mean range indicated criterion validity. The models’ goodness of fit was confirmed by CFA results in the Dutch and in comparison with the European sample.
Conclusion: The Dutch QoLISSY is a psychometrically reliable and valid short stature-specific QoL measure. It is now available for use in clinical research and practice to evaluate well-being and possible effects of growth hormone treatment and psychological interventions in the Netherlands.
What is Known:
• Questions in terms of the efficacy and effectiveness of psychological versus pharmacological interventions alone or in combination can be answered with a disease-specific questionnaire as a self-reported outcome measure.
• There is a lack of internationally available short stature-specific QoL instruments reflecting the child and parent perspectives.
What is New:
• The Dutch QoLISSY questionnaire is a psychometrically sound short stature-specific QoL measure reflecting the child and parent perspectives.
• The Dutch QoLISSY questionnaire can be used as a treatment outcome indicator in research and practice.
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Metadata
Title
Psychometric performance of the Quality of Life in Short Stature Youth (QoLISSY) questionnaire in the Netherlands
Authors
Anja Rohenkohl
Susanne Stalman
Gerdine Kamp
Monika Bullinger
Julia Quitmann
Publication date
01-03-2016
Publisher
Springer Berlin Heidelberg
Published in
European Journal of Pediatrics / Issue 3/2016
Print ISSN: 0340-6199
Electronic ISSN: 1432-1076
DOI
https://doi.org/10.1007/s00431-015-2656-8

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