Skip to main content
Top
Published in: European Archives of Oto-Rhino-Laryngology 3/2020

01-03-2020 | Epistaxis | Rhinology

Patient-recorded benefit from nasal closure in a Danish cohort of patients with hereditary haemorrhagic telangiectasia

Authors: Jonas Hjelm Andersen, Anette Drøhse Kjeldsen

Published in: European Archives of Oto-Rhino-Laryngology | Issue 3/2020

Login to get access

Abstract

Background

Nasal closure, also known as the modified Young’s procedure was introduced in Denmark in 2008, as a surgical solution to severe epistaxis in patients with hereditary haemorrhagic telangiectasia (HHT). The objective of this study was to report the overall satisfaction of the procedure from a patient’s point of view as well as the occurrence of complications.

Methods

All the HHT patients who underwent nasal closure from 2008 to 2018 were included in the study. The patients were evaluated for postoperative complications and subjective outcome using Glasgow Benefit Inventory (GBI).

Results

Ten patients were included in the study and were observed for a mean of 64 months. None of the patients was completely free of complications, and reversal was requested in a single case. Haemoglobin levels rose with an average of 2.8 g/dl. The average GBI score after surgery was 38.05. Nine of ten patients would recommend nasal closure to fellow HHT patients.

Conclusion

Nasal closure is highly recommended among patients, but due to the rate of postoperative complications, the procedure should be reserved for a carefully selected group of HHT patients.
Appendix
Available only for authorised users
Literature
1.
go back to reference Shovlin CL, Guttmacher AE, Buscarini E et al (2000) Diagnostic criteria for hereditary hemorrhagic telangiectasia (Rendu–Osler–Weber Syndrome). Am J Med Genet 67:66–67CrossRef Shovlin CL, Guttmacher AE, Buscarini E et al (2000) Diagnostic criteria for hereditary hemorrhagic telangiectasia (Rendu–Osler–Weber Syndrome). Am J Med Genet 67:66–67CrossRef
Metadata
Title
Patient-recorded benefit from nasal closure in a Danish cohort of patients with hereditary haemorrhagic telangiectasia
Authors
Jonas Hjelm Andersen
Anette Drøhse Kjeldsen
Publication date
01-03-2020
Publisher
Springer Berlin Heidelberg
Published in
European Archives of Oto-Rhino-Laryngology / Issue 3/2020
Print ISSN: 0937-4477
Electronic ISSN: 1434-4726
DOI
https://doi.org/10.1007/s00405-019-05758-1

Other articles of this Issue 3/2020

European Archives of Oto-Rhino-Laryngology 3/2020 Go to the issue