Top

Archives of Orthopaedic and Trauma Surgery

Published in:

01-02-2014 | Trauma Surgery

Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture

Authors: Joanna E. M. Sale, Cathy Cameron, Gillian Hawker, Susan Jaglal, Larry Funnell, Ravi Jain, Earl Bogoch

Published in: Archives of Orthopaedic and Trauma Surgery | Issue 2/2014

Abstract

Objective

To examine experiences and behaviours with bone health management post-fracture among members of a national osteoporosis (OP) patient group.

Methods

A qualitative study was conducted in English-speaking members of the group who had sustained a fragility fracture at 50+ years old and were not taking OP pharmacotherapy at the time of that fracture. Participants were recruited through an advertisement in the patient group newsletter and interviewed for ~1 h by telephone, responding to questions regarding visits to health care providers and their behaviours regarding bone health. We analysed the data following Giorgi’s methodology.

Results

Twenty-eight eligible participants (26 females, two males; 78 % response rate) aged 51–89 years old completed an interview. More than half of our participants described effective consumer behaviours, including making requests of health care providers for referrals to bone specialists, bone mineral density tests, and prescription medication.

Conclusion

Members of an OP patient group described effective consumer behaviours that could be incorporated as skill sets in post-fracture interventions to improve bone health.

Powell CK, Hill EG, Clancy DE (2007) The relationship between health literacy and diabetes knowledge and readiness to take health actions. Diabetes Educ 33:144–151. doi:10.1177/0145721706297452 PubMedCrossRef

Rasmussen B, Wellard S, Nankervis A (2001) Consumer issues in navigating health care services for type I diabetes. J Clin Nurs 10:628–634PubMedCrossRef

Epstein RM, Street RL (2011) The values and value of patient-centred care. Ann Family Med 9:100–103PubMedCentralPubMedCrossRef

Finset A (2011) Research on person-centred clinical care. J Eval Clin Pract 17:384–386PubMedCrossRef

Cloninger CR (2011) Person-centred integrative care. J Eval Clin Pract 17:371–372PubMedCrossRef

Mezzich JE, Snaedal J, van Weel C, Botbol M, Salloum I (2011) Introduction to person-centred medicine: from concepts to practice. J Eval Clin Pract 17:330–332PubMedCrossRef

Miles A, Mezzich JE (2011) The care of the patient and the soul of the clinic: person-centred medicine as an emergent model of modern clinical practice. Int J Person Cent Med 1:207–222

Kristjansson E, Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O’Connor AM, Qualman A, Santesso N, Wale J, Wells GA (2007) Development of the effective musculoskeletal consumer scale. J Rheumatol 34:1392–1400. pii:0315162X-34-1392PubMed

Hibbard JH, Stockard J, Mahoney ER, Tusler M (2004) Development of the Patient Activation Measure (PAM): conceptualizing and measuring activation in patients and consumers. Health Serv Res 39:1005–1026. doi:10.1111/j.1475-6773.2004.00269.x PubMedCrossRef

10.

Tugwell PS, Wilson AJ, Brooks PM, Driedger SM, Gallois C, O’Connor AM, Qualman A, Santesso N, Wale J, Wells GA (2005) Attributes and skills of an effective musculoskeletal consumer. J Rheumatol 32:2257–2261. pii:0315162X-32-2257PubMed

11.

Bastiaens H, van Royen P, Pavlic DR, Raposo V, Baker R (2007) Older people’s preferences for involvement in their own care: a qualitative study in primary health care in 11 European countries. Patient Educ Couns 68:33–42PubMedCrossRef

12.

Ende J, Kazis L, Ash A, Moskowitz MA (1989) Measuring patients’ desire for autonomy: decision making and information-seeking preferences among medical patients. J Gen Intern Med 4:23–30PubMedCrossRef

13.

Thompson SC, Pitts JS, Schwankovsky L (1993) Preferences for involvement in medical decision-making: situational and demographic influences. Patient Educ Couns 22:133–140PubMedCrossRef

14.

Beisecker AE, Beisecker TD (1990) Patient information-seeking behaviours when communicating with doctors. Med Care 28:19–28PubMedCrossRef

15.

Tariman JD, Berry DL, Cochrane B, Doorenbos A, Schepp K (2010) Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review. Ann Oncol 21:1145–1151PubMedCrossRef

16.

Thorne SE, Nyhlin KT, Paterson BL (2000) Attitudes toward patient expertise in chronic illness. Int J Nurs Stud 37:303–311PubMedCrossRef

17.

Giangregorio L, Papaioannou A, Cranney A, Zytaruk N, Adachi JD (2006) Fragility fractures and the osteoporosis care gap: an international phenomenon. Semin Arthritis Rheum 35:293–305PubMedCrossRef

18.

Rabenda V, Vanoverloop J, Fabri V, Mertens R, Sumkay R, Vannecke C, Andre D, Verpooten GA, Reginster J (2008) Low incidence of anti-osteoporosis treatment after hip fracture. J Bone Joint Surg Am 90:2142–2148PubMedCrossRef

19.

Sale JEM, Beaton D, Posen J, Elliot-Gibson V, Bogoch E (2011) Systematic review on interventions to improve osteoporosis investigation and treatment in fragility fracture patients. Osteoporos Int 22:2067–2082PubMedCrossRef

20.

Little EA, Eccles MP (2010) A systematic review of the effectiveness of interventions to improve post-fracture investigation and management of patients at risk of osteoporosis. Implement Sci 5:80PubMedCentralPubMedCrossRef

21.

Williamson C (1998) The rise of doctor-patient working groups. BMJ 317:1374–1377PubMedCrossRef

22.

Jasper MA (1994) Issues in phenomenology for researchers of nursing. J Adv Nurs 19:309–314PubMedCrossRef

23.

Rice PL, Ezzy D (2000) Qualitative research methods. Oxford University Press, South Melbourne

24.

Kvale S (1996) Interviews: an introduction to qualitative research interviewing. Sage Publications, Thousand Oaks

25.

NVivo 10 [Computer Program] (2010) Qualitative Solutions and Research Pty Ltd, Victoria, Australia

26.

Giorgi A (1989) Some theoretical and practical issues regarding the psychological phenomenological method. Saybrook Rev 7:71–85

27.

Giorgi A (1997) The theory, practice, and evaluation of the phenomenological method as a qualitative research procedure. J Phenomenol Psychol 28:235–260CrossRef

28.

Kvale S, Brinkmann S (2009) Interviews: learning the craft of qualitative research interviewing. Sage Publications Ltd, Thousand Oaks

29.

Giorgi A (2008) Concerning a serious misunderstanding of the essence of the phenomenological method in psychology. J Phenomenol Psychol 39:33–58CrossRef

30.

Wertz FJ (2005) Phenomenological research methods for counseling psychology. J Couns Psychol 52:167–177CrossRef

31.

Gearing RE (2004) Bracketing in research: a typology. Qual Health Res 14:1429–1452. doi:10.1177/1049732304270394 PubMedCrossRef

32.

Creswell JW (1998) Qualitative inquiry and research design: choosing among five traditions. Sage Publications, Thousand Oaks

33.

Polkinghorne DE (1989) Phenomenological research methods. In: Valle RS, Halling S (eds) Existential-phenomenological perspectives in psychology. Plenum Press, New York, pp 41–60CrossRef

34.

Audulv A, Asplund K, Norbergh K-G (2010) Who’s in charge? The role of responsibility attribution in self-management among people with chronic illness. Patient Educ Couns 81:94–100PubMedCrossRef

35.

Koch T, Jenkin P, Kralik D (2004) Chronic illness self-management: locating the ‘self’. J Adv Nurs 48:484–492PubMedCrossRef

36.

Coleman EA, Smith JD, Frank JC, Min SJ, Parry C, Kramer AM (2004) Preparing patients and caregivers to participate in care delivered across settings: the care transitions intervention. J Am Geriatr Soc 52:1817–1825. doi:10.1111/j.1532-5415.2004.52504.x PubMedCrossRef

37.

Michie S, Miles J, Weinman J (2002) Patient-centeredness in chronic illness: what is it and does it matter? Patient Educ Couns 51:197–206CrossRef

38.

Lawn S, McMillan J, Pulvirenti M (2011) Chronic condition self-management: expectations of responsibility. Patient Educ Couns 84:e5–e8PubMedCrossRef

Title: Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture
Authors: Joanna E. M. Sale
Cathy Cameron
Gillian Hawker
Susan Jaglal
Larry Funnell
Ravi Jain
Earl Bogoch
Publication date: 01-02-2014
Publisher: Springer Berlin Heidelberg
Published in: Archives of Orthopaedic and Trauma Surgery / Issue 2/2014
Print ISSN: 0936-8051
Electronic ISSN: 1434-3916
DOI: https://doi.org/10.1007/s00402-013-1889-0

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Strategies used by an osteoporosis patient group to navigate for bone health care after a fracture

Abstract

Objective

Methods

Results

Conclusion

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Objective

Methods

Results

Conclusion

Please log in to get access to this content

Other articles of this Issue 2/2014

How to document and report orthopedic complications in clinical studies? A proposal for standardization

Posterior root tear of the medial and lateral meniscus

The effect of gentamicin in irrigating solutions on articular infection prophylaxis during arthroscopic ACL reconstruction

Methodological challenges in the use of hip-specific composite outcomes: linking measurements from hip fracture trials to the International Classification of Functioning, Disability and Health Framework

Artificial total disc replacement versus fusion for lumbar degenerative disc disease: a meta-analysis of randomized controlled trials

Pregnancy-associated osteoporosis with eight fractures in the vertebral column treated with kyphoplasty and bracing: a case report