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Published in: World Journal of Urology 8/2019

01-08-2019 | Original Article

Long-term follow-up after cystectomy for bladder pain syndrome: pain status, sexual function and quality of life

Authors: Laura Mateu Arrom, Cristina Gutiérrez Ruiz, Olga Mayordomo Ferrer, Virginia Martínez Barea, Joan Palou Redorta, Carlos Errando Smet

Published in: World Journal of Urology | Issue 8/2019

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Abstract

Purpose

To assess the long-term complications, pain status, sexual function and quality of life after cystectomy for bladder pain syndrome (BPS).

Methods

We retrospectively reviewed functional variables for 35 patients (34 women/1 man, 67 ± 9 years old) who underwent cystectomy due to BPS since 1993 in our department. Cystectomy was offered to patients with BPS refractory to conservative treatments. Six cystectomies with ileal conduit (17.1%) and 29 supratrigonal cystectomies with enterocystoplasty (82.9%) were performed. Prospectively, patients completed questionnaires on pain [BPIC-SS, visual analogue scale (VAS) for pain], health-related quality of life (EQ-5D) and sexual function (FSFI; 2–36), rated satisfaction with surgery (0–10) and reported whether they would undergo the same surgery again.

Results

Mean follow-up was 107 ± 83 months. In two (5.7%) patients, pain persisted and in one patient (2.8%) pain recurred after 20 months. Significant improvements in daytime and nighttime frequency and bladder capacity were observed postoperatively. 21 patients completed questionnaires. Mean BPIC-SS was 7.5 ± 8.4, mean VAS score 2.5 ± 2.8. 14 (66.7%) patients reported no problems related to pain on the EQ-5D, similar to our regional reference population. 13 (61.9%) patients had sexual intercourse after surgery, ten of them without pain. Mean FSFI score was 9.5 ± 9. Satisfaction with surgery was 8.8 ± 1.7 and 20 (95.2%) patients would undergo the same surgery again.

Conclusion

Pain persistence or recurrence after cystectomy for BPS is infrequent. Quality of life related to pain is similar to that in the general population and patients can resume sexual activity without pain.
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Metadata
Title
Long-term follow-up after cystectomy for bladder pain syndrome: pain status, sexual function and quality of life
Authors
Laura Mateu Arrom
Cristina Gutiérrez Ruiz
Olga Mayordomo Ferrer
Virginia Martínez Barea
Joan Palou Redorta
Carlos Errando Smet
Publication date
01-08-2019
Publisher
Springer Berlin Heidelberg
Published in
World Journal of Urology / Issue 8/2019
Print ISSN: 0724-4983
Electronic ISSN: 1433-8726
DOI
https://doi.org/10.1007/s00345-018-2554-6

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