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European Journal of Nuclear Medicine and Molecular Imaging

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01-10-2019 | Editorial

EANM commitment towards involvement and engagement of patients and the public: learning from the UK experience

Authors: Ana Sofia Ribeiro, Martin Lee, Wim J. G. Oyen

Published in: European Journal of Nuclear Medicine and Molecular Imaging | Issue 11/2019

Excerpt

“No matter how complicated the research, or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible and often more cost efficient as well.” Professor Dame Sally C. Davies, 2009 [1]

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Lalani M, Baines R, Bryce M, Marshall M, Mead S, Barasi S, et al. Patient and public involvement in medical performance processes: a systematic review. Health Expectations : an international journal of public participation in health care and health policy. Health Expectations. 2019;22:149–161.

INVOLVE. INVOLVE: briefing notes for researchers: public involvement in NHS, public health and social care research. http://www.invo.org.uk/wp-content/uploads/2014/11/9938_INVOLVE_Briefing_Notes_WEB.pdf.

Research and Development Directorate DoH. Best research for best health. A new national health research strategy. http://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/568772/dh_4127152_v2.pdf.

Brett J, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. A systematic review of the impact of patient and public involvement on service users, researchers and communities. Patient. 2014;7:387–395.

Caron-Flinterman JF, Broerse JE, Teerling J, Bunders JF. Patients’ priorities concerning health research: the case of asthma and COPD research in the Netherlands. Health Expectations. 2005;8:253–263.

European Lung Foundation: patient input 2013-2018 [updated 18/05/2018. Available from: http://www.europeanlung.org/en/get-involved/patient-input/.

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EUPATI. European Patients Academy: what is EUPATI? : EUPATI; 2018 [updated 30/05/2018. Available from: https://uk.eupati.eu/.

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PARADIGM. PARADIGM: Our approach 2018 [updated 18/05/2018. Available from: http://imi-paradigm.eu/.

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Chalmers JD, Timothy A, Polverino E, Almagro M, Ruddy T, Powell P, et al. Patient participation in ERS guidelines and research projects: the EMBARC experience. Breathe (Sheff). 2017;13:194–207.

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Mathie E, Wythe H, Munday D, Millac P, Rhodes G, Roberts N, et al. Reciprocal relationships and the importance of feedback in patient and public involvement: a mixed methods study. Health Expectations. 2018;21:899–908.

Title: EANM commitment towards involvement and engagement of patients and the public: learning from the UK experience
Authors: Ana Sofia Ribeiro
Martin Lee
Wim J. G. Oyen
Publication date: 01-10-2019
Publisher: Springer Berlin Heidelberg
Published in: European Journal of Nuclear Medicine and Molecular Imaging / Issue 11/2019
Print ISSN: 1619-7070
Electronic ISSN: 1619-7089
DOI: https://doi.org/10.1007/s00259-019-04457-7

At a glance: The ONWARDS insulin icodec trials

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EANM commitment towards involvement and engagement of patients and the public: learning from the UK experience

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