Skip to main content
Top
Published in: Intensive Care Medicine 12/2009

01-12-2009 | Original

Family satisfaction in the intensive care unit: what makes the difference?

Authors: Kay H. Stricker, Oliver Kimberger, Kurt Schmidlin, Marcel Zwahlen, Ulrike Mohr, Hans U. Rothen

Published in: Intensive Care Medicine | Issue 12/2009

Login to get access

Abstract

Purpose

To assess family satisfaction in the ICU and to identify parameters for improvement.

Methods

Multicenter study in Swiss ICUs. Families were given a questionnaire covering overall satisfaction, satisfaction with care and satisfaction with information/decision-making. Demographic, medical and institutional data were gathered from patients, visitors and ICUs.

Results

A total of 996 questionnaires from family members were analyzed. Individual questions were assessed, and summary measures (range 0–100) were calculated, with higher scores indicating greater satisfaction. Summary score was 78 ± 14 (mean ± SD) for overall satisfaction, 79 ± 14 for care and 77 ± 15 for information/decision-making. In multivariable multilevel linear regression analyses, higher severity of illness was associated with higher satisfaction, while a higher patient:nurse ratio and written admission/discharge criteria were associated with lower overall satisfaction. Using performance-importance plots, items with high impact on overall satisfaction but low satisfaction were identified. They included: emotional support, providing understandable, complete, consistent information and coordination of care.

Conclusions

Overall, proxies were satisfied with care and with information/decision-making. Still, several factors, such as emotional support, coordination of care and communication, are associated with poor satisfaction, suggesting the need for improvement.
Appendix
Available only for authorised users
Literature
1.
go back to reference Herridge MS, Cheung AM, Tansey CM, Matte-Martyn A, Diaz-Granados N, Al-Saidi F, Cooper AB, Guest CB, Mazer CD, Mehta S, Stewart TE, Barr A, Cook D, Slutsky AS (2003) One-year outcomes in survivors of the acute respiratory distress syndrome. N Engl J Med 348:683–693CrossRefPubMed Herridge MS, Cheung AM, Tansey CM, Matte-Martyn A, Diaz-Granados N, Al-Saidi F, Cooper AB, Guest CB, Mazer CD, Mehta S, Stewart TE, Barr A, Cook D, Slutsky AS (2003) One-year outcomes in survivors of the acute respiratory distress syndrome. N Engl J Med 348:683–693CrossRefPubMed
2.
go back to reference Granja C, Lopes A, Moreira S, Dias C, Costa-Pereira A, Carneiro A (2005) Patients’ recollections of experiences in the intensive care unit may affect their quality of life. Crit Care 9:R96–R109CrossRefPubMed Granja C, Lopes A, Moreira S, Dias C, Costa-Pereira A, Carneiro A (2005) Patients’ recollections of experiences in the intensive care unit may affect their quality of life. Crit Care 9:R96–R109CrossRefPubMed
3.
go back to reference Terblanche M, Adhikari NK (2006) The evolution of intensive care unit performance assessment. J Crit Care 21:19–22CrossRefPubMed Terblanche M, Adhikari NK (2006) The evolution of intensive care unit performance assessment. J Crit Care 21:19–22CrossRefPubMed
4.
go back to reference Rothen HU, Stricker KH, Einfalt J, Bauer P, Metnitz PG, Moreno RP, Takala J (2007) Variability in outcome and resource use in intensive care units. Intensive Care Med 33:1329–1336CrossRefPubMed Rothen HU, Stricker KH, Einfalt J, Bauer P, Metnitz PG, Moreno RP, Takala J (2007) Variability in outcome and resource use in intensive care units. Intensive Care Med 33:1329–1336CrossRefPubMed
5.
go back to reference Davidson JE, Powers K, Hedayat KM, Tieszen M, Kon AA, Shepard E, Spuhler V, Todres ID, Levy M, Barr J, Ghandi R, Hirsch G, Armstrong D (2007) Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task force 2004–2005. Crit Care Med 35:605–622CrossRefPubMed Davidson JE, Powers K, Hedayat KM, Tieszen M, Kon AA, Shepard E, Spuhler V, Todres ID, Levy M, Barr J, Ghandi R, Hirsch G, Armstrong D (2007) Clinical practice guidelines for support of the family in the patient-centered intensive care unit: American College of Critical Care Medicine Task force 2004–2005. Crit Care Med 35:605–622CrossRefPubMed
6.
go back to reference Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I (2002) A measure of the quality of dying and death: Initial validation using after-death interviews with family members. J Pain Sympt Manag 24:17–31CrossRef Curtis JR, Patrick DL, Engelberg RA, Norris K, Asp C, Byock I (2002) A measure of the quality of dying and death: Initial validation using after-death interviews with family members. J Pain Sympt Manag 24:17–31CrossRef
7.
go back to reference Lautrette A, Darmon M, Megarbane B, Joly L-M, Chevret S, Adrie C, Barnoud D, Bleichner G, Bruel C, Choukroun G, Curtis JR, Fieux F, Galliot R, Garrouste-Orgeas M, Huguea G, Goldgran-Toledano D, Jourdain M, Loubert G, Reignier J, Saidi F, Souweine B, Vincent F, Kentish-Barnes N, Pochard F, Schlemmer B, Azoulay E (2007) A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 356:469–478CrossRefPubMed Lautrette A, Darmon M, Megarbane B, Joly L-M, Chevret S, Adrie C, Barnoud D, Bleichner G, Bruel C, Choukroun G, Curtis JR, Fieux F, Galliot R, Garrouste-Orgeas M, Huguea G, Goldgran-Toledano D, Jourdain M, Loubert G, Reignier J, Saidi F, Souweine B, Vincent F, Kentish-Barnes N, Pochard F, Schlemmer B, Azoulay E (2007) A communication strategy and brochure for relatives of patients dying in the ICU. N Engl J Med 356:469–478CrossRefPubMed
8.
go back to reference Jones C, Bäckmann C, Capuzzo M, Flaaten H, Rylander C, Griffiths R (2007) Precipitants of post-traumatic stress disorder following intensive care: a hypothesis generating study of diversity in care. Intensive Care Med 33:978–985CrossRefPubMed Jones C, Bäckmann C, Capuzzo M, Flaaten H, Rylander C, Griffiths R (2007) Precipitants of post-traumatic stress disorder following intensive care: a hypothesis generating study of diversity in care. Intensive Care Med 33:978–985CrossRefPubMed
9.
go back to reference Boer KR, van Ruler O, Van Emmerik AA, Sprangers MA, De Rooij SE, Vroom MB, De Vorgie CA, Boermeester MA, Reitsma JB (2008) Factors associated with posttraumatic stress symptoms in a prospective cohort of patients after abdominal sepsis: a nomogram. Intensive Care Med 34:664–674CrossRefPubMed Boer KR, van Ruler O, Van Emmerik AA, Sprangers MA, De Rooij SE, Vroom MB, De Vorgie CA, Boermeester MA, Reitsma JB (2008) Factors associated with posttraumatic stress symptoms in a prospective cohort of patients after abdominal sepsis: a nomogram. Intensive Care Med 34:664–674CrossRefPubMed
10.
go back to reference Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Goldgran-Toledano D, Hyon J, Jourdain M, Kaidomar M, Lapace C, Larché J, Liotier J, Papazian L, Poisson C, Reignier J, Daidi F, Schlemmer B (2005) Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 171:987–994CrossRefPubMed Azoulay E, Pochard F, Kentish-Barnes N, Chevret S, Aboab J, Adrie C, Annane D, Bleichner G, Bollaert PE, Darmon M, Fassier T, Galliot R, Garrouste-Orgeas M, Goulenok C, Goldgran-Toledano D, Hyon J, Jourdain M, Kaidomar M, Lapace C, Larché J, Liotier J, Papazian L, Poisson C, Reignier J, Daidi F, Schlemmer B (2005) Risk of post-traumatic stress symptoms in family members of intensive care unit patients. Am J Respir Crit Care Med 171:987–994CrossRefPubMed
11.
go back to reference Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, Le Gall J-R, Dhainout JF, Schlemmer B (2001) Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med 99:1893–1897CrossRef Pochard F, Azoulay E, Chevret S, Lemaire F, Hubert P, Canoui P, Grassin M, Zittoun R, Le Gall J-R, Dhainout JF, Schlemmer B (2001) Symptoms of anxiety and depression in family members of intensive care unit patients: ethical hypothesis regarding decision-making capacity. Crit Care Med 99:1893–1897CrossRef
12.
go back to reference Studdert DM, Mello MM, Burns JP, Puopolo AL, Galper BZ, Truog RD, Brennan TA (2003) Conflict in the care of patients with prolonged stay in the ICU: types, sources and predictors. Intensive Care Med 29:1489–1497CrossRefPubMed Studdert DM, Mello MM, Burns JP, Puopolo AL, Galper BZ, Truog RD, Brennan TA (2003) Conflict in the care of patients with prolonged stay in the ICU: types, sources and predictors. Intensive Care Med 29:1489–1497CrossRefPubMed
13.
go back to reference Alvarez GF, Kirby AS (2006) The perspective of families of the critically ill patient: their needs. Curr Opin Crit Care 12:614–618CrossRefPubMed Alvarez GF, Kirby AS (2006) The perspective of families of the critically ill patient: their needs. Curr Opin Crit Care 12:614–618CrossRefPubMed
14.
go back to reference McAdam JL, Arai S, Puntillo KA (2008) Unrecognized contributions of families in the intensive care unit. Intensive Care Med 34:1097–1101CrossRefPubMed McAdam JL, Arai S, Puntillo KA (2008) Unrecognized contributions of families in the intensive care unit. Intensive Care Med 34:1097–1101CrossRefPubMed
15.
go back to reference Lange MP (2001) Family stress in the intensive care unit. Crit Care Med 29:2025–2026CrossRef Lange MP (2001) Family stress in the intensive care unit. Crit Care Med 29:2025–2026CrossRef
16.
go back to reference Harvey MA (2004) Evidence-based approach to family care in the intensive care unit: why can’t we just be decent? Crit Care Med 32:1975–1976CrossRefPubMed Harvey MA (2004) Evidence-based approach to family care in the intensive care unit: why can’t we just be decent? Crit Care Med 32:1975–1976CrossRefPubMed
17.
18.
go back to reference Wasser T, Pasquale MA, Matchett SC, Bryan Y, Pasquale M (2001) Establishing reliability and validity of the critical care family satisfaction survey. Crit Care Med 29:192–196CrossRefPubMed Wasser T, Pasquale MA, Matchett SC, Bryan Y, Pasquale M (2001) Establishing reliability and validity of the critical care family satisfaction survey. Crit Care Med 29:192–196CrossRefPubMed
19.
go back to reference Heyland DK, Tranmer LE (2001) Measuring family satisfaction with care in the intensive care unit: the development of a questionnaire and preliminary results. J Crit Care 16:142–149CrossRefPubMed Heyland DK, Tranmer LE (2001) Measuring family satisfaction with care in the intensive care unit: the development of a questionnaire and preliminary results. J Crit Care 16:142–149CrossRefPubMed
20.
go back to reference Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR (2007) Refinement, scoring, and validation of the family satisfaction in the intensive care unit (FS-ICU) survey. Crit Care Med 35:271–279CrossRefPubMed Wall RJ, Engelberg RA, Downey L, Heyland DK, Curtis JR (2007) Refinement, scoring, and validation of the family satisfaction in the intensive care unit (FS-ICU) survey. Crit Care Med 35:271–279CrossRefPubMed
21.
go back to reference Stricker KH, Niemann S, Bugnon S, Wurz J, Rohrer O, Rothen HU (2007) Family satisfaction in the intensive care unit: cross-cultural adaptation of a questionnaire. J Crit Care 22:204–211CrossRefPubMed Stricker KH, Niemann S, Bugnon S, Wurz J, Rohrer O, Rothen HU (2007) Family satisfaction in the intensive care unit: cross-cultural adaptation of a questionnaire. J Crit Care 22:204–211CrossRefPubMed
22.
go back to reference Dodek PM, Heyland DK, Rocker GM, Cook DJ (2004) Translating family satisfaction data into quality improvement. Crit Care Med 32:1922–1927CrossRefPubMed Dodek PM, Heyland DK, Rocker GM, Cook DJ (2004) Translating family satisfaction data into quality improvement. Crit Care Med 32:1922–1927CrossRefPubMed
23.
go back to reference Hofoss D, Veenstra M, Krogstad U (2003) Multilevel analysis in health services research: a tutorial. Ann Ist Super Sanità 39:213–222PubMed Hofoss D, Veenstra M, Krogstad U (2003) Multilevel analysis in health services research: a tutorial. Ann Ist Super Sanità 39:213–222PubMed
24.
go back to reference Johnson D, Wilson M, Cavanaugh B, Bryden C, Gudmundson D, Moodley O (1998) Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 26:266–271CrossRefPubMed Johnson D, Wilson M, Cavanaugh B, Bryden C, Gudmundson D, Moodley O (1998) Measuring the ability to meet family needs in an intensive care unit. Crit Care Med 26:266–271CrossRefPubMed
25.
go back to reference Heyland DK, Rocker GM, Dodek PM, Kutsogiannis DJ, Konopad E, Cook DJ, Peters S, Tranmer JE, O’Callaghan CJ (2002) Family satisfaction with care in the intensive care unit: results of a multiple center study. Crit Care Med 30:1413–1418CrossRefPubMed Heyland DK, Rocker GM, Dodek PM, Kutsogiannis DJ, Konopad E, Cook DJ, Peters S, Tranmer JE, O’Callaghan CJ (2002) Family satisfaction with care in the intensive care unit: results of a multiple center study. Crit Care Med 30:1413–1418CrossRefPubMed
26.
go back to reference White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR (2007) Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med 35:442–448CrossRefPubMed White DB, Engelberg RA, Wenrich MD, Lo B, Curtis JR (2007) Prognostication during physician-family discussions about limiting life support in intensive care units. Crit Care Med 35:442–448CrossRefPubMed
27.
go back to reference Fumis RRL, Nishimoto IN, Deheinzelin D (2008) Families’ interaction with physicians in the intensive care unit: the impact on family’s satisfaction. J Crit Care 23:281–286CrossRefPubMed Fumis RRL, Nishimoto IN, Deheinzelin D (2008) Families’ interaction with physicians in the intensive care unit: the impact on family’s satisfaction. J Crit Care 23:281–286CrossRefPubMed
28.
go back to reference Jha AK, Orav EJ, Zheng J, Epstein AM (2008) Patients’ satisfaction of hospital care in the United States. N Engl J Med 359:1921–1931CrossRefPubMed Jha AK, Orav EJ, Zheng J, Epstein AM (2008) Patients’ satisfaction of hospital care in the United States. N Engl J Med 359:1921–1931CrossRefPubMed
29.
go back to reference Azoulay E, Pochard F, Chevret S, Lemaire F, Mokhtari M, Le Gall R, Dhainaut JF, Schlemmer B (2001) Meeting the needs of intensive care unit patient families. Am J Respir Crit Care Med 163:135–139PubMed Azoulay E, Pochard F, Chevret S, Lemaire F, Mokhtari M, Le Gall R, Dhainaut JF, Schlemmer B (2001) Meeting the needs of intensive care unit patient families. Am J Respir Crit Care Med 163:135–139PubMed
30.
go back to reference Amaravadi R, Dimick J, Pronovost PJ, Lipsett P (2000) ICU nurse-to-patient ratio is associated with complications and resource use after esophagectomy. Intensive Care Med 26:1857–1862CrossRefPubMed Amaravadi R, Dimick J, Pronovost PJ, Lipsett P (2000) ICU nurse-to-patient ratio is associated with complications and resource use after esophagectomy. Intensive Care Med 26:1857–1862CrossRefPubMed
31.
go back to reference Hugonnet S, Chevrolet J, Pittet D (2007) The effect of workload on infection risk in critically ill patients. Crit Care Med 35:76–81CrossRefPubMed Hugonnet S, Chevrolet J, Pittet D (2007) The effect of workload on infection risk in critically ill patients. Crit Care Med 35:76–81CrossRefPubMed
32.
go back to reference Wall RJ, Curtis JR, Cooke CR, Engelberg RA (2007) Family satisfaction in the ICU, differences between families of survivors and nonsurvivors. Chest 132:1425–1433CrossRefPubMed Wall RJ, Curtis JR, Cooke CR, Engelberg RA (2007) Family satisfaction in the ICU, differences between families of survivors and nonsurvivors. Chest 132:1425–1433CrossRefPubMed
33.
go back to reference Lederer MA, Goode T, Dowling J (2005) Origins and development. The critical care family assistance program. Chest 128:65S–75SCrossRefPubMed Lederer MA, Goode T, Dowling J (2005) Origins and development. The critical care family assistance program. Chest 128:65S–75SCrossRefPubMed
34.
go back to reference Hartlieb MC, Sibbald WJ (2002) Simple intervention—significant impact. Am J Respir Crit Care Med 165:434–435PubMed Hartlieb MC, Sibbald WJ (2002) Simple intervention—significant impact. Am J Respir Crit Care Med 165:434–435PubMed
35.
go back to reference McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR (2004) Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction. Crit Care Med 32:1484–1488CrossRefPubMed McDonagh JR, Elliott TB, Engelberg RA, Treece PD, Shannon SE, Rubenfeld GD, Patrick DL, Curtis JR (2004) Family satisfaction with family conferences about end-of-life care in the intensive care unit: Increased proportion of family speech is associated with increased satisfaction. Crit Care Med 32:1484–1488CrossRefPubMed
36.
go back to reference Robinson SM, Mackenzie-Ross S, Campbell Hewson GL, Egleston CV, Prevost AT (1998) Psychological effect of witnessed resuscitation on bereaved relatives. Lancet 352:614–617CrossRefPubMed Robinson SM, Mackenzie-Ross S, Campbell Hewson GL, Egleston CV, Prevost AT (1998) Psychological effect of witnessed resuscitation on bereaved relatives. Lancet 352:614–617CrossRefPubMed
37.
go back to reference Bournes DA, Mitchell GJ (2002) Waiting: the experience of persons in a critical care waiting room. Res Nurs Health 25:58–67CrossRefPubMed Bournes DA, Mitchell GJ (2002) Waiting: the experience of persons in a critical care waiting room. Res Nurs Health 25:58–67CrossRefPubMed
38.
go back to reference Norris CM, Ghali WA, Saunders LD, Brant R, Galbraith D, Faris P, Knudtson ML (2006) Ordinal regression model and the linear regression model were superior to the logistic regression models. J Clin Epidemiol 59:448–456CrossRefPubMed Norris CM, Ghali WA, Saunders LD, Brant R, Galbraith D, Faris P, Knudtson ML (2006) Ordinal regression model and the linear regression model were superior to the logistic regression models. J Clin Epidemiol 59:448–456CrossRefPubMed
39.
go back to reference Nathanson B, Higgins T, Teres D, Copes W, Kramer AMS (2007) A revised method to assess intensive care unit clinical performance and resource utilization. Crit Care Med 35:1953–1962CrossRef Nathanson B, Higgins T, Teres D, Copes W, Kramer AMS (2007) A revised method to assess intensive care unit clinical performance and resource utilization. Crit Care Med 35:1953–1962CrossRef
40.
go back to reference Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Peters S, Tranmer JE, O’Callaghan CJ (2003) Decision-making in the ICU: perspectives of the substitute decision-maker. Intensive Care Med 29:75–82PubMed Heyland DK, Cook DJ, Rocker GM, Dodek PM, Kutsogiannis DJ, Peters S, Tranmer JE, O’Callaghan CJ (2003) Decision-making in the ICU: perspectives of the substitute decision-maker. Intensive Care Med 29:75–82PubMed
Metadata
Title
Family satisfaction in the intensive care unit: what makes the difference?
Authors
Kay H. Stricker
Oliver Kimberger
Kurt Schmidlin
Marcel Zwahlen
Ulrike Mohr
Hans U. Rothen
Publication date
01-12-2009
Publisher
Springer-Verlag
Published in
Intensive Care Medicine / Issue 12/2009
Print ISSN: 0342-4642
Electronic ISSN: 1432-1238
DOI
https://doi.org/10.1007/s00134-009-1611-4

Other articles of this Issue 12/2009

Intensive Care Medicine 12/2009 Go to the issue