Skip to main content
Top
Published in: Social Psychiatry and Psychiatric Epidemiology 1/2014

01-01-2014 | Original Paper

Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies

Authors: Annelien Mestdagh, Bart Hansen

Published in: Social Psychiatry and Psychiatric Epidemiology | Issue 1/2014

Login to get access

Abstract

Purpose

The aim of this review is to identify consistent themes among the qualitative literature on stigma as experienced by patients with schizophrenia receiving community mental health care. With the treatment focus of schizophrenia nowadays shifting more and more towards community-based mental health care, professionals need to be aware of the increased vulnerability of their clients in their social environment as a result of stigma towards their disease. In-depth knowledge on stigma is critical in order to offer a dignifying community mental health care.

Methods

A systematic search of the qualitative literature in Web of Science, PubMed, PsycINFO and Francis was performed to review the subjective experiences and ideas on stigma in outpatients with schizophrenia.

Results

Three major themes were identified in 18 studies and need to be taken into consideration when implementing an adequate community mental health care: (i) the continuing existence of stigma inherent in the health care setting, (ii) the importance of relational aspects of stigma encounters in daily life and (iii) the significance of the behavioural aspects related to previous stigma experiences and beliefs among patients.

Conclusions

Despite much effort in community treatment, patients still experience stigma and discrimination. Community mental health care professionals should not only be aware of structural problems in mental health care, but should also pay considerable attention towards the relational and behavioural aspects in their clients’ life concerning stigma. Furthermore, they have the crucial role in the community to raise awareness about stigma in order to increase their clients’ acceptance in society.
Literature
5.
go back to reference World Health Organisation (2005) Mental health declaration for Europe. WHO regional office for Europe, Copenhagen World Health Organisation (2005) Mental health declaration for Europe. WHO regional office for Europe, Copenhagen
6.
go back to reference Semrau M, Barley EA, Law A, Thornicroft G (2011) Lessons learned in developing community mental health care in Europe. World Psychiatry 10(3):217–225PubMedCentralPubMed Semrau M, Barley EA, Law A, Thornicroft G (2011) Lessons learned in developing community mental health care in Europe. World Psychiatry 10(3):217–225PubMedCentralPubMed
7.
go back to reference World Health Organisation (2005) Mental health action plan for Europe. WHO regional office for Europe, Copenhagen World Health Organisation (2005) Mental health action plan for Europe. WHO regional office for Europe, Copenhagen
8.
go back to reference World Health Organisation (2005) Mental health: facing the challenges, building solutions. Report from the WHO ministerial conference. WHO regional office for Europe, Copenhagen World Health Organisation (2005) Mental health: facing the challenges, building solutions. Report from the WHO ministerial conference. WHO regional office for Europe, Copenhagen
9.
go back to reference Dixon-Woods M, Fitzpatrick R, Roberts K (2001) Including qualitative research in systematic reviews: opportunities and problems. J Eval Clin Pract 7(2):125–133 (pii jep257)PubMedCrossRef Dixon-Woods M, Fitzpatrick R, Roberts K (2001) Including qualitative research in systematic reviews: opportunities and problems. J Eval Clin Pract 7(2):125–133 (pii jep257)PubMedCrossRef
12.
go back to reference Schulze B, Angermeyer MC (2003) Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Soc Sci Med (1982) 56(2):299–312CrossRef Schulze B, Angermeyer MC (2003) Subjective experiences of stigma. A focus group study of schizophrenic patients, their relatives and mental health professionals. Soc Sci Med (1982) 56(2):299–312CrossRef
14.
15.
go back to reference Gonzalez-Torres MA, Oraa R, Aristegui M, Fernandez-Rivas A, Guimon J (2007) Stigma and discrimination towards people with schizophrenia and their family members—a qualitative study with focus groups. Soc Psychiatry Psychiatr Epidemiol 42(1):14–23. doi:10.1007/s00127-006-0126-3 PubMedCrossRef Gonzalez-Torres MA, Oraa R, Aristegui M, Fernandez-Rivas A, Guimon J (2007) Stigma and discrimination towards people with schizophrenia and their family members—a qualitative study with focus groups. Soc Psychiatry Psychiatr Epidemiol 42(1):14–23. doi:10.​1007/​s00127-006-0126-3 PubMedCrossRef
16.
go back to reference Jenkins JH, Carpenter-Song EA (2008) Stigma despite recovery: strategies for living in the aftermath of psychosis. Med Anthropol Q 22(4):381–409PubMedCrossRef Jenkins JH, Carpenter-Song EA (2008) Stigma despite recovery: strategies for living in the aftermath of psychosis. Med Anthropol Q 22(4):381–409PubMedCrossRef
18.
23.
go back to reference Perry BM, Taylor D, Shaw SK (2007) You’ve got to have a positive state of mind: an interpretative phenomenological analysis of hope and first episode psychosis. J Ment Health 16(6):781–793. doi:10.1080/09638230701496360 CrossRef Perry BM, Taylor D, Shaw SK (2007) You’ve got to have a positive state of mind: an interpretative phenomenological analysis of hope and first episode psychosis. J Ment Health 16(6):781–793. doi:10.​1080/​0963823070149636​0 CrossRef
26.
go back to reference Forrester-Jones R, Barnes A (2008) On being a girlfriend not a patient: the quest for an acceptable identity amongst people diagnosed with a severe mental illness. J Ment Health 17(2):153–172. doi:10.1080/09638230701498341 CrossRef Forrester-Jones R, Barnes A (2008) On being a girlfriend not a patient: the quest for an acceptable identity amongst people diagnosed with a severe mental illness. J Ment Health 17(2):153–172. doi:10.​1080/​0963823070149834​1 CrossRef
27.
go back to reference Tidefors I, Olin E (2011) A need for “good eyes”: experiences told by patients diagnosed with psychosis. Int J Qual Stud Health Well Being 6(1) doi:10.3402/qhw.v6i1.5243 Tidefors I, Olin E (2011) A need for “good eyes”: experiences told by patients diagnosed with psychosis. Int J Qual Stud Health Well Being 6(1) doi:10.​3402/​qhw.​v6i1.​5243
34.
go back to reference Beauchamp TL, Childress JF (2009) Principles of biomedical ethics, 6th edn. Oxford University Press, New York Beauchamp TL, Childress JF (2009) Principles of biomedical ethics, 6th edn. Oxford University Press, New York
35.
go back to reference Grisso T, Appelbaum PS (1995) The MacArthur treatment competence study III: abilities of patients to consent to psychiatric and medical treatments. Law Hum Behav 19(2):149–174PubMedCrossRef Grisso T, Appelbaum PS (1995) The MacArthur treatment competence study III: abilities of patients to consent to psychiatric and medical treatments. Law Hum Behav 19(2):149–174PubMedCrossRef
36.
go back to reference Jeste DV, Depp CA, Palmer BW (2006) Magnitude of impairment in decisional capacity in people with schizophrenia compared to normal subjects: an overview. Schizophr Bull 32(1):121–128 10.1093/schbul/sbj001PubMedCrossRef Jeste DV, Depp CA, Palmer BW (2006) Magnitude of impairment in decisional capacity in people with schizophrenia compared to normal subjects: an overview. Schizophr Bull 32(1):121–128 10.1093/schbul/sbj001PubMedCrossRef
38.
go back to reference Quirk A, Chaplin R, Hamilton S, Lelliott P, Seale C (2013) Communication about adherence to long-term antipsychotic prescribing: an observational study of psychiatric practice. Soc Psychiatry Psychiatr Epidemiol 48(4):639–647. doi:10.1007/s00127-012-0581-y PubMedCrossRef Quirk A, Chaplin R, Hamilton S, Lelliott P, Seale C (2013) Communication about adherence to long-term antipsychotic prescribing: an observational study of psychiatric practice. Soc Psychiatry Psychiatr Epidemiol 48(4):639–647. doi:10.​1007/​s00127-012-0581-y PubMedCrossRef
39.
40.
43.
go back to reference Elbogen EB, Johnson SC (2009) The intricate link between violence and mental disorder. Arch Gen Psychiatry 66(2):152–161PubMedCrossRef Elbogen EB, Johnson SC (2009) The intricate link between violence and mental disorder. Arch Gen Psychiatry 66(2):152–161PubMedCrossRef
45.
Metadata
Title
Stigma in patients with schizophrenia receiving community mental health care: a review of qualitative studies
Authors
Annelien Mestdagh
Bart Hansen
Publication date
01-01-2014
Publisher
Springer Berlin Heidelberg
Published in
Social Psychiatry and Psychiatric Epidemiology / Issue 1/2014
Print ISSN: 0933-7954
Electronic ISSN: 1433-9285
DOI
https://doi.org/10.1007/s00127-013-0729-4

Other articles of this Issue 1/2014

Social Psychiatry and Psychiatric Epidemiology 1/2014 Go to the issue