Skip to main content
Top
Published in: Journal of Cancer Education 4/2010

01-12-2010

Developing and Implementing a Local Education and Support Program for Patients with Gastrointestinal Stromal Tumors (GISTs)

Authors: Marilee Kuhrik, Nancy S. Kuhrik, Teresa L. Deshields, JoAnn O’Neill, Beth Zubal

Published in: Journal of Cancer Education | Issue 4/2010

Login to get access

Excerpt

Providing a venue for quality education and support groups that meet the needs of oncology patients with both common and rare cancers is a challenge for most cancer centers. We describe how this challenge was addressed and the process used to develop, pilot, implement, and evaluate a successful model that can be used as a template in other cancer centers. We will demonstrate how an interdisciplinary team can work together to develop and sustain a successful, useful, low-cost education, and support program for patients with an uncommon cancer. …
Literature
1.
go back to reference Foltz A, Sullivan J (1996) Reading level, learning presentation preference, and desire for information among cancer patients. J Cancer Educ 11:32–38PubMed Foltz A, Sullivan J (1996) Reading level, learning presentation preference, and desire for information among cancer patients. J Cancer Educ 11:32–38PubMed
3.
go back to reference Cassileth B, Volckmar D, Goodman R (1980) The effect of experience on radiation therapy patients’ desire for information. Int J Radiat Oncol Biol Phys 6:493–496CrossRefPubMed Cassileth B, Volckmar D, Goodman R (1980) The effect of experience on radiation therapy patients’ desire for information. Int J Radiat Oncol Biol Phys 6:493–496CrossRefPubMed
4.
go back to reference Cassileth BR, Zupkis RV, Sutton-Smith K, March V (1980) Information and participation preferences among cancer patients. Ann Intern Med 92:832–836PubMed Cassileth BR, Zupkis RV, Sutton-Smith K, March V (1980) Information and participation preferences among cancer patients. Ann Intern Med 92:832–836PubMed
5.
go back to reference Iconomou G, Viha A, Koutras A, Vagenakis AG, Kalofonos HP (2002) Information needs and awareness of diagnosis in patients with cancer receiving chemotherapy: a report from Greece. Palliat Med 16:315–321CrossRefPubMed Iconomou G, Viha A, Koutras A, Vagenakis AG, Kalofonos HP (2002) Information needs and awareness of diagnosis in patients with cancer receiving chemotherapy: a report from Greece. Palliat Med 16:315–321CrossRefPubMed
6.
go back to reference Chelf JH, Deshler AM, Thiemann MB, Dose AM, Quella SK, Hillman S (2002) Learning and support preferences of adult patients with cancer at a comprehensive cancer center. Oncol Nurs Forum 29:863–867CrossRefPubMed Chelf JH, Deshler AM, Thiemann MB, Dose AM, Quella SK, Hillman S (2002) Learning and support preferences of adult patients with cancer at a comprehensive cancer center. Oncol Nurs Forum 29:863–867CrossRefPubMed
7.
go back to reference Demetri GD, Benjamin RS, Blanke CD et al (2007) NCCN task force report: management of patients with gastrointestinal stromal tumor (GIST)—update of the NCCN clinical practice guidelines. J Natl Comprehensive Cancer Network 5(suppl 2):S1–S30 Demetri GD, Benjamin RS, Blanke CD et al (2007) NCCN task force report: management of patients with gastrointestinal stromal tumor (GIST)—update of the NCCN clinical practice guidelines. J Natl Comprehensive Cancer Network 5(suppl 2):S1–S30
8.
go back to reference Gold JS, DeMatteo RP (2006) Combined surgical and molecular therapy: the gastrointestinal stromal tumor model. Ann Surg 244:176–184CrossRefPubMed Gold JS, DeMatteo RP (2006) Combined surgical and molecular therapy: the gastrointestinal stromal tumor model. Ann Surg 244:176–184CrossRefPubMed
9.
go back to reference MacIntyre J (2007) Pharmacologic application of sunitinib malate in the management of gastrointestinal stromal tumors. Clin J Oncol Nurs 11:237–241CrossRefPubMed MacIntyre J (2007) Pharmacologic application of sunitinib malate in the management of gastrointestinal stromal tumors. Clin J Oncol Nurs 11:237–241CrossRefPubMed
12.
go back to reference Kuperman D, Adkins D (2008) Sarcoma. In: Govindan R (ed) The Washington Manual of Oncology, pp. 363–376 Kuperman D, Adkins D (2008) Sarcoma. In: Govindan R (ed) The Washington Manual of Oncology, pp. 363–376
13.
go back to reference Joensuu H (2007) Second line therapies for the treatment of gastrointestinal stromal tumor. Curr Opin Oncol 19:353–358CrossRefPubMed Joensuu H (2007) Second line therapies for the treatment of gastrointestinal stromal tumor. Curr Opin Oncol 19:353–358CrossRefPubMed
16.
go back to reference Duffaud R, Blay JY (2003) Gastrointestinal stromal tumors: biology and treatment. Oncology 65:187–197CrossRefPubMed Duffaud R, Blay JY (2003) Gastrointestinal stromal tumors: biology and treatment. Oncology 65:187–197CrossRefPubMed
17.
go back to reference Griffin J, Amand M, Demetri G (2005) Nursing implications of imatinib as molecularly targeted therapy for gastrointestinal stromal tumors. Clinl J Oncol Nurs 9:161–169CrossRef Griffin J, Amand M, Demetri G (2005) Nursing implications of imatinib as molecularly targeted therapy for gastrointestinal stromal tumors. Clinl J Oncol Nurs 9:161–169CrossRef
18.
go back to reference Heinrich MC, Demetri GD, Messner C (2005) Treatment update on gastrointestinal stromal tumors. CANCERcare Heinrich MC, Demetri GD, Messner C (2005) Treatment update on gastrointestinal stromal tumors. CANCERcare
19.
go back to reference DeMatteo RP et al (2007) Efficacy of adjuvant imatinib mesylate following completed resection of localized primary gastrointestinal stromal tumor (GIST) at high risk of recurrence: The US Intergroup phase II trial ACOSSOG 29000. Abstract 8 DeMatteo RP et al (2007) Efficacy of adjuvant imatinib mesylate following completed resection of localized primary gastrointestinal stromal tumor (GIST) at high risk of recurrence: The US Intergroup phase II trial ACOSSOG 29000. Abstract 8
21.
go back to reference Corless CL, Heinrich MC (2008) Molecular pathobiology of gastrointestinal stromal sarcomas. Annu Rev Pathol 3:557–586CrossRefPubMed Corless CL, Heinrich MC (2008) Molecular pathobiology of gastrointestinal stromal sarcomas. Annu Rev Pathol 3:557–586CrossRefPubMed
22.
go back to reference DeMatteo R, Owzar K, Maki R et al (2007): Adjuvant imatinib mesylate increases recurrence free survival (RFS) in patients with completely resected localized primary gastrointestinal stromal tumor (GIST): North America Intergroup Phase III ACOSOG Z9001. American Society of Clinical Oncology Annual Meeting, Chicago, Illinois, June 1–5, (Abstr 10079). DeMatteo R, Owzar K, Maki R et al (2007): Adjuvant imatinib mesylate increases recurrence free survival (RFS) in patients with completely resected localized primary gastrointestinal stromal tumor (GIST): North America Intergroup Phase III ACOSOG Z9001. American Society of Clinical Oncology Annual Meeting, Chicago, Illinois, June 1–5, (Abstr 10079).
23.
go back to reference von Mehren M, Pisters PW, Blanke CD et al (2009) Analysis of an observational registry of gastrointestinal stromal tumor (GIST) patients (pts) in the USA: reGISTry. Gastrointestinal Cancers Symposium-American Society of Clinical Oncology, San Francisco, California, January 15–17, (Abstr 13). von Mehren M, Pisters PW, Blanke CD et al (2009) Analysis of an observational registry of gastrointestinal stromal tumor (GIST) patients (pts) in the USA: reGISTry. Gastrointestinal Cancers Symposium-American Society of Clinical Oncology, San Francisco, California, January 15–17, (Abstr 13).
24.
go back to reference Adams M (1991) Information and education across the phases of cancer care. Sem Oncol Nurs 7(2):105–111CrossRef Adams M (1991) Information and education across the phases of cancer care. Sem Oncol Nurs 7(2):105–111CrossRef
25.
go back to reference Yalom ID, Leszcz M (2005) The theory and practice of group psychotherapy, 5th edn. Basic Books, New York Yalom ID, Leszcz M (2005) The theory and practice of group psychotherapy, 5th edn. Basic Books, New York
27.
go back to reference Boesen EH, Boesen SH, Frederiksen K, Lone R, Dahlstrom K, Schmidt G et al (2007) Survival after a psychoeducational intervention for patients with cutaneous malignant melanoma: a replication study. J Clin Oncol 25:5698–5703CrossRefPubMed Boesen EH, Boesen SH, Frederiksen K, Lone R, Dahlstrom K, Schmidt G et al (2007) Survival after a psychoeducational intervention for patients with cutaneous malignant melanoma: a replication study. J Clin Oncol 25:5698–5703CrossRefPubMed
28.
go back to reference Helgeson VS, Cohen S, Schulz R, Yasko J (1999) Education and peer discussion group interventions and adjustment to breast cancer. Arch Gen Psychiatry 56:340–347CrossRefPubMed Helgeson VS, Cohen S, Schulz R, Yasko J (1999) Education and peer discussion group interventions and adjustment to breast cancer. Arch Gen Psychiatry 56:340–347CrossRefPubMed
29.
go back to reference Katz MR, Irish JC, Devins GM (2004) Development and pilot testing of a psychoeducational intervention for oral cancer patients. Psycho-Oncology 13:642–653CrossRefPubMed Katz MR, Irish JC, Devins GM (2004) Development and pilot testing of a psychoeducational intervention for oral cancer patients. Psycho-Oncology 13:642–653CrossRefPubMed
30.
go back to reference Zimmermann T, Heinrichs N, Baucom DH (2007) “Does one size fit all?” Moderators in psychosocial interventions for breast cancer patients: a meta-analysis. Annals Behav Med 34(3):225–239CrossRef Zimmermann T, Heinrichs N, Baucom DH (2007) “Does one size fit all?” Moderators in psychosocial interventions for breast cancer patients: a meta-analysis. Annals Behav Med 34(3):225–239CrossRef
31.
go back to reference Budin WC, Hoskins CN, Haber J, Sherman DW, Maislin G, Cater J et al (2008) Breast cancer: education, counseling, and adjustment among patients and partners: a randomized clinical trial. Nurs Res 57(3):199–213CrossRefPubMed Budin WC, Hoskins CN, Haber J, Sherman DW, Maislin G, Cater J et al (2008) Breast cancer: education, counseling, and adjustment among patients and partners: a randomized clinical trial. Nurs Res 57(3):199–213CrossRefPubMed
32.
go back to reference Bultz BD, Speca M, Brasher M, Geggie PH, Page SA (2000) A randomized controlled trial of a brief psychoeducational support group for partners of early stage breast cancer patients. Psycho-Oncology 9:303–313CrossRefPubMed Bultz BD, Speca M, Brasher M, Geggie PH, Page SA (2000) A randomized controlled trial of a brief psychoeducational support group for partners of early stage breast cancer patients. Psycho-Oncology 9:303–313CrossRefPubMed
Metadata
Title
Developing and Implementing a Local Education and Support Program for Patients with Gastrointestinal Stromal Tumors (GISTs)
Authors
Marilee Kuhrik
Nancy S. Kuhrik
Teresa L. Deshields
JoAnn O’Neill
Beth Zubal
Publication date
01-12-2010
Publisher
Springer-Verlag
Published in
Journal of Cancer Education / Issue 4/2010
Print ISSN: 0885-8195
Electronic ISSN: 1543-0154
DOI
https://doi.org/10.1007/s13187-010-0084-z

Other articles of this Issue 4/2010

Journal of Cancer Education 4/2010 Go to the issue
Webinar | 19-02-2024 | 17:30 (CET)

Keynote webinar | Spotlight on antibody–drug conjugates in cancer

Antibody–drug conjugates (ADCs) are novel agents that have shown promise across multiple tumor types. Explore the current landscape of ADCs in breast and lung cancer with our experts, and gain insights into the mechanism of action, key clinical trials data, existing challenges, and future directions.

Dr. Véronique Diéras
Prof. Fabrice Barlesi
Developed by: Springer Medicine