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Annals of Behavioral Medicine
Published in: Annals of Behavioral Medicine 1/2011

01-02-2011 | Original Article

Development and Validation of the Health Competence Beliefs Inventory in Young Adults With and Without a History of Childhood Cancer

Authors: Branlyn Werba DeRosa, Ph.D., Anne E. Kazak, Ph.D., A.B.P.P., Kinjal Doshi, M.A., Lisa A. Schwartz, Ph.D., Jill Ginsberg, M.D., Jun J. Mao, M.D., M.S.C.E., Joseph Straton, M.D., M.S.C.E., Wendy Hobbie, C.R.N.P., Mary T. Rourke, Ph.D., Claire Carlson, B.S.N., R.N., Richard F. Ittenbach, Ph.D.

Published in: Annals of Behavioral Medicine | Issue 1/2011

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Abstract

Background

Adolescent and young adult survivors of childhood cancer are a vulnerable population. Health beliefs may be related to necessary follow-up care.

Purpose

This study seeks to develop a measure of health beliefs for adolescents and young adults with and without a history of cancer.

Methods

Inductive and deductive methods and focus groups were used to develop the Health Competence Beliefs Inventory. Cancer survivors (n = 138) and comparison participants (n = 130) completed the Health Competence Beliefs Inventory and other measures. Healthcare providers reported current medical problems.

Results

A series of iterative exploratory factor analyses generated a 21-item four-factor solution: (1) Health Perceptions; (2) Satisfaction with Healthcare; (3) Cognitive Competence; and (4) Autonomy. Survivors reported significantly different Health Competence Beliefs Inventory scale scores than comparisons (p < .05). The Health Competence Beliefs Inventory was associated with beliefs, affect, quality of life, posttraumatic stress symptoms, and medical problems.

Conclusions

The Health Competence Beliefs Inventory is a promising measure of adolescent and young adult perceptions of health and well-being.
Literature
1.
Park MJ, Mulye TP, Adams SH, Brindis C, Irwin CE, Jr. The health status of young adults in the U.S. J Adolesc Health. 2006; 39: 305–317.CrossRefPubMed
2.
National Cancer Institute, LIVESTRONG Young Adult Alliance. Closing the gap: Research and care imperative for adolescents and young adults with cancer, report of the adolescent and young adult oncology progress review group. NIH Publication No. 06-6067; 2006.
3.
Oeffinger KC, Mertens MD, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med. 2006; 355: 1572–1582.CrossRefPubMed
4.
Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA. Young adult patients with a history of pediatric disease: Impact on course of life and transition into adulthood. J Adolesc Health. 2006; 39: 4–13.CrossRefPubMed
5.
Zeltzer LK, Recklitis CJ, Buchbinder D, et al. Psychological status in childhood cancer survivors: A report for the childhood cancer survivor study. J Clin Oncol. 2009; 27: 2396–2404.CrossRefPubMed
6.
Schwartz L, Drotar D. Defining the nature and impact of goals in children and adolescents with a chronic health condition: A review of research and a theoretical framework. J Clin Psychol Med Settings. 2006; 13: 393–405.CrossRef
7.
Rourke MT, Hobbie WL, Schwartz LA, Kazak AE. Posttraumatic stress disorder (PTSD) in young adult survivors of childhood cancer. Pediatr Blood Cancer. 2007; 49: 177–182.CrossRefPubMed
8.
Lee YL, Santacroce SJ, Sadler L. Predictors of healthy behaviour in long-term survivors of childhood cancer. J Clin Nurs. 2007; 16: 285–295.CrossRefPubMed
9.
American Academy of Pediatrics and the Children’s Oncology Group. Long-term follow-up care for pediatric cancer survivors. Pediatrics. 2009; 123: 906–915.CrossRef
10.
Kadan-Lottick NS, Robison LL, Gurney JG, et al. Childhood cancer survivors’ knowledge about their past diagnosis and treatment: Childhood cancer survivor study. J Am Med Assoc. 2002; 287: 1832–1839.CrossRef
11.
Reiss JG, Gibson RW, Walker LR. Health care transition: Youth, family, and provider. Pediatrics. 2005; 115: 112–120.CrossRefPubMed
12.
Ginsberg JP, Hobbie WL, Carlson CA, Meadows AT. Delivering Long-Term Follow-Up Care to Pediatric Cancer Survivors: Transitional Care Issues. Pediatr Blood Cancer. 2006; 46: 169–173.CrossRefPubMed
13.
Haller DA, Sanci LA, Sawyer SM, Patton G. Do young people’s illness beliefs affect health care? A systematic view. J Adolesc Health. 2008; 42: 436–449.CrossRefPubMed
14.
Oeffinger KC. Longitudinal risk-based health care for adult survivors of childhood cancer. Curr Probl Cancer. 2003; 27(3): 143–167.CrossRefPubMed
15.
Smith MS, Wallston KA, Smith CA. The development and validation of the perceived health competence scale. Health Educ Res. 1995; 10: 51–64.CrossRefPubMed
16.
Zebrack B. Developing a new instrument to assess the impact of cancer in young adult survivors of childhood cancer. J Cancer Surviv. 2009; 3: 174–180.CrossRefPubMed
17.
Kazak AE, DeRosa BW, Schwartz LA, et al. Psychological outcomes and health beliefs in adolescent and young adult (AYA) survivors of childhood cancer and controls. J Clin Oncol. 2010; 28: 2002–2007.CrossRefPubMed
18.
Author. The Health Competence Beliefs Inventory: A technical report of scale development. Author Institution; 2009.
19.
Schwarzer R, Jerusalem M. Generalized Self-Efficacy scale. In: Weinman J, Wright S, Johnston M, eds. Measures in health psychology: A user’s portfolio. Causal and control beliefs; 1995: 35–37.
20.
Scholz U, Dona B, Sud S, Schwarzer, R. Is general self-efficacy a universal construct? Psychometric findings from 25 countries. Eur J Psychol Assess. 2002; 18: 242–251.CrossRef
21.
Schwartz L, Mao J, DeRosa B, et al. Self-reported health problems of young adults in clinical settings: Survivors of childhood cancer and healthy controls. J Am Board Fam Med. 2010; 23: 306–314.CrossRefPubMed
22.
Diener E, Emmons RA. The independence of positive and negative affect. J Pers Soc Psychol. 1985; 47: 1105–1117.
23.
Gill KM, Carson JW, Porter LS, et al. Daily stress and mood and their association with pain, health-care use, and school activity in adolescents with sickle cell disease. J Pediatr Psychol. 2003; 28: 363–373.CrossRef
24.
Weathers FW, Ford J. Psychometric review of the PTSD Checklist. In: Stamm, BH, ed. Measurement of stress, trauma, and adaptation; 1996: 250–251.
25.
Andrykowski MA, Cordova MJ, Studts JL, Miller TW. Posttraumatic stress disorder after treatment for breast cancer: Prevalence of diagnosis and use of the PTSD Checklist-Civilian Version (PCL-C) as a screening instrument. J Consult Clin Psychol. 1998; 66: 586–90.CrossRefPubMed
26.
Smith MY, Redd WH, DuHamel KN, Viekberg SMJ, Ricketts R. Validation of the post-traumatic stress disorder checklist-civilian in survivors of bone marrow transplantation. J Trauma Stress. 1999; 12: 485–499.CrossRefPubMed
27.
Ware JE Jr, Kosinski M, Keller SD. A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity. Med Care. 1996; 34: 220–33.CrossRefPubMed
28.
Jenkinson C, Chandola T, Coulter A, Bruster A. An assessment of the construct validity of the SF-12 summary scores across ethnic groups. J Public Health Med. 2001; 23: 187–194.CrossRefPubMed
29.
Hayton JC, Allen DG, Scarpello, V. Factor Retention Decisions in Explorator Factor Analysis: A Tutorial on Parallel Analysis. Organizational Research Methods. 2004; 7: 191–205.CrossRef
30.
Zwick WR, Velicer WF. Comparison of five rules for determining the number of components to retain. Psychol Bull. 1986; 99: 4327–4442.CrossRef
31.
DeVellis, R. Scale development: Theory and applications. 2nd ed. Thousand Oaks, CA: Sage Publications, Inc.; 2003.
32.
Kline, P. The new psychometrics: Science, psychology and measurement. London: Routledge; 1998.
33.
Worthington RL, Whittaker T A. Scale development research: A content analysis and recommendations for best practices. Couns Psychol. 2006; 34(6): 806–838.CrossRef
34.
Alazri MH, Neal RD. The association between satisfaction with services provided in primary care and outcomes in Type 2 diabetes mellitus. Diabet Med. 2003; 20: 486–90.CrossRefPubMed
35.
Fan VS, Burman M, McDonell MB, Fihn SD. Continuity of care and other determinants of patient satisfaction with primary care. J Gen Intern Med. 2005; 20: 226.CrossRefPubMed
36.
Oeffinger KC, Mertens AC, Hudson MM, et al. Health care of young adult survivors of childhood cancer: A report from the childhood cancer survivor study. Ann Fam Med. 2004; 2: 61–70.CrossRefPubMed
37.
Ressler IB, Cash J, McNeill D, Joy S, Rosoff PM. Continued parental attendance at a clinic for adult survivors of childhood cancer. J Pediatr Hematol Oncol. 2003; 25: 868–873.CrossRefPubMed
38.
Banner LM, Mackie EJ, Hill JW. Family relationships in survivors of childhood cancer: Resource or restraint? Patient Educ Couns. 1996; 28: 191–199.CrossRefPubMed
39.
O’Leary TE, Diller L, Reklitis CJ. The effects of response bias on self-reported quality of life among childhood cancer survivors. Qual Life Res. 2007; 16: 1211–1220.CrossRefPubMed
Metadata
Title
Development and Validation of the Health Competence Beliefs Inventory in Young Adults With and Without a History of Childhood Cancer
Authors
Branlyn Werba DeRosa, Ph.D.
Anne E. Kazak, Ph.D., A.B.P.P.
Kinjal Doshi, M.A.
Lisa A. Schwartz, Ph.D.
Jill Ginsberg, M.D.
Jun J. Mao, M.D., M.S.C.E.
Joseph Straton, M.D., M.S.C.E.
Wendy Hobbie, C.R.N.P.
Mary T. Rourke, Ph.D.
Claire Carlson, B.S.N., R.N.
Richard F. Ittenbach, Ph.D.
Publication date
01-02-2011
Publisher
Springer-Verlag
Published in
Annals of Behavioral Medicine / Issue 1/2011
Print ISSN: 0883-6612
Electronic ISSN: 1532-4796
DOI
https://doi.org/10.1007/s12160-010-9228-y

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