Skip to main content
Top
Published in: Journal of General Internal Medicine 12/2008

01-12-2008 | Populations at Risk

Engaging Homeless Persons in End of Life Preparations

Authors: John Song, MD, MPH, MAT, Melanie M. Wall, PhD, Edward R. Ratner, MD, Dianne M. Bartels, RN, PhD, Nancy Ulvestad, BSN, MART, Lillian Gelberg, MD, MSPH

Published in: Journal of General Internal Medicine | Issue 12/2008

Login to get access

Abstract

Background

There are no prospective studies that have investigated the effects of an intervention to improve end of life (EOL) care in an underserved population.

Objective

To determine whether homeless persons will complete an advance directive (AD).

Design

Randomized trial comparing two modes of providing an opportunity for homeless persons to complete an AD. Half of the subjects were randomized to a self-guided group (SG) who were given an AD and written instructions; the other half were given the same material but, in addition, were offered the opportunity to receive guidance to complete the AD (CG).

Participants

Fifty-nine homeless persons recruited from a drop-in center.

Measures

Rate of AD completion and baseline and 3-month follow-up EOL-related knowledge, attitudes, and behaviors.

Results

The overall AD completion rate was 44%, with a statistically significant higher completion rate of 59% in the CG group compared to 30% in the self-guided only group. Frequency of worry about death decreased among those who filled out an AD from 50% to 12.5%, and also among those who did not (25% to 12.5%) (p < .05). Among those who filled out an AD, there were increases in plans to write down EOL wishes (56% to 100%; p < .05) and plans to talk about these wishes with someone (63% to 94%; p < .05).

Conclusion

This study demonstrates that people living in dire economic and social situations will complete an AD when offered the opportunity. While offering guidance resulted in higher rates of completion; even a simple self-guided AD process can achieve completion of ADs in this population.
Appendix
Available only for authorised users
Literature
1.
go back to reference Field MJ, Cassel CK, eds. Approaching death: improving care at the end of life/Committee on Care at the End of Life, Division of Health Care Services, Institute of Medicine. Washington, D.C.: National Academy Press, 1997 Field MJ, Cassel CK, eds. Approaching death: improving care at the end of life/Committee on Care at the End of Life, Division of Health Care Services, Institute of Medicine. Washington, D.C.: National Academy Press, 1997
3.
go back to reference Meier DE, Fuss BR, O’Rourke D. Marked improvement in recognition and completion of health care proxies. Arch Intern Med. 1996;156:1227–32.PubMedCrossRef Meier DE, Fuss BR, O’Rourke D. Marked improvement in recognition and completion of health care proxies. Arch Intern Med. 1996;156:1227–32.PubMedCrossRef
4.
go back to reference Hanson LC, Rodgman E. The use of living wills at the end of life. Arch Intern Med. 1996;156:1018–22.PubMedCrossRef Hanson LC, Rodgman E. The use of living wills at the end of life. Arch Intern Med. 1996;156:1018–22.PubMedCrossRef
5.
go back to reference Degenholtz HB, Arnold RA, Meisel A, Lave JR. Persistence of racial disparities in advance care plan documents among nursing home residents. J Am Geriatr Soc. 2002;50(2):378–81.PubMedCrossRef Degenholtz HB, Arnold RA, Meisel A, Lave JR. Persistence of racial disparities in advance care plan documents among nursing home residents. J Am Geriatr Soc. 2002;50(2):378–81.PubMedCrossRef
6.
go back to reference Phillips RS, Hamel MB, Teno JM, et al. Race, resource use, and survival in seriously ill hospitalized adults. J Gen Intern Med. 1996;11:387–96.PubMedCrossRef Phillips RS, Hamel MB, Teno JM, et al. Race, resource use, and survival in seriously ill hospitalized adults. J Gen Intern Med. 1996;11:387–96.PubMedCrossRef
7.
go back to reference Patel RV, Sinuff T, Cook DJ. Influencing advance directive completion rates in non-terminally ill patients: a systematic review. J Crit Care. 2004;19(1):1–9.PubMedCrossRef Patel RV, Sinuff T, Cook DJ. Influencing advance directive completion rates in non-terminally ill patients: a systematic review. J Crit Care. 2004;19(1):1–9.PubMedCrossRef
8.
go back to reference Caralis PV, Davis B, Wright K, Marcial E. The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia. J Clin Ethics. 1993;4(2):155–65.PubMed Caralis PV, Davis B, Wright K, Marcial E. The influence of ethnicity and race on attitudes toward advance directives, life-prolonging treatments, and euthanasia. J Clin Ethics. 1993;4(2):155–65.PubMed
9.
go back to reference Morrison RS, Morrison EW, Glickman DF. Physician reluctance to discuss advance directives. Arch Intern Med. 1994;154:2311–8.PubMedCrossRef Morrison RS, Morrison EW, Glickman DF. Physician reluctance to discuss advance directives. Arch Intern Med. 1994;154:2311–8.PubMedCrossRef
13.
go back to reference Burt MR. Homelessness: Definitions and counts. In: Baumohl J, ed. Homelessness in America. Phoenix, AZ: Oryx Press; 1996:15–23. Burt MR. Homelessness: Definitions and counts. In: Baumohl J, ed. Homelessness in America. Phoenix, AZ: Oryx Press; 1996:15–23.
14.
go back to reference Link BG, Susser E, Stueve A, et al. Lifetime and five-year prevalence of homelessness in the United States. Am J Public Health. 1994;84:1907–12.PubMedCrossRef Link BG, Susser E, Stueve A, et al. Lifetime and five-year prevalence of homelessness in the United States. Am J Public Health. 1994;84:1907–12.PubMedCrossRef
15.
16.
go back to reference Breakey WR, Fischer PJ, Kramer M. Health and mental problems of homeless men and women in Baltimore. JAMA. 1989;262:1352–7.PubMedCrossRef Breakey WR, Fischer PJ, Kramer M. Health and mental problems of homeless men and women in Baltimore. JAMA. 1989;262:1352–7.PubMedCrossRef
17.
go back to reference Gelberg L, Andersen RM, Leake BD. Healthcare access and utilization. Health Serv Res. 2000;34(6):1273–314.PubMed Gelberg L, Andersen RM, Leake BD. Healthcare access and utilization. Health Serv Res. 2000;34(6):1273–314.PubMed
18.
go back to reference Lim YW, Andersen R, Leake B, Cunningham W, Gelberg L. How accessible is medical care for homeless women? Med Care. 2002;40(6):510–20.PubMedCrossRef Lim YW, Andersen R, Leake B, Cunningham W, Gelberg L. How accessible is medical care for homeless women? Med Care. 2002;40(6):510–20.PubMedCrossRef
19.
go back to reference Hibbs JR, Benner L. Mortality in a cohort of homeless adults in Philadelphia. N Engl J Med. 1994;331:304–9.PubMedCrossRef Hibbs JR, Benner L. Mortality in a cohort of homeless adults in Philadelphia. N Engl J Med. 1994;331:304–9.PubMedCrossRef
20.
go back to reference Barrow SM, Herman DB, Cordova PBA. Mortality among shelter residents in New York City. Am J Public Health. 1999;89:529–34.PubMedCrossRef Barrow SM, Herman DB, Cordova PBA. Mortality among shelter residents in New York City. Am J Public Health. 1999;89:529–34.PubMedCrossRef
21.
go back to reference Cheung AM, Hwang SW. Risk of death among homeless women: A cohort study and review of the literature. CMAJ. 2004;170:1243–7.PubMed Cheung AM, Hwang SW. Risk of death among homeless women: A cohort study and review of the literature. CMAJ. 2004;170:1243–7.PubMed
22.
go back to reference Greenberg GA, Rosenheck RA. Jail incarceration, homelessness, and mental health: a national study. Psych Services. 2008;59(2):170–7.CrossRef Greenberg GA, Rosenheck RA. Jail incarceration, homelessness, and mental health: a national study. Psych Services. 2008;59(2):170–7.CrossRef
23.
go back to reference Nyamathi A, Dixon EL, Shoptaw S, Marfisee M, Gelberg L, Williams S, et al. Profile of lifetime methamphetamine use among homeless adults in Los Angeles. Drug and Alcohol Depend. 2008;92(1–3):277–81.CrossRef Nyamathi A, Dixon EL, Shoptaw S, Marfisee M, Gelberg L, Williams S, et al. Profile of lifetime methamphetamine use among homeless adults in Los Angeles. Drug and Alcohol Depend. 2008;92(1–3):277–81.CrossRef
24.
go back to reference Dietz TL. Predictors of reported current and lifetime substance abuse problems among a national sample of U.S. homeless. Subst Use Misuse. 2007;42(11):1745–66.PubMedCrossRef Dietz TL. Predictors of reported current and lifetime substance abuse problems among a national sample of U.S. homeless. Subst Use Misuse. 2007;42(11):1745–66.PubMedCrossRef
25.
go back to reference Riley ED, Gandhi M, Hare C, Cohen J, Hwang S. Poverty, unstable housing, and HIV infection among women living in the United States. Curr HIV/AIDS Rep. 2007;4(4):181–6.PubMedCrossRef Riley ED, Gandhi M, Hare C, Cohen J, Hwang S. Poverty, unstable housing, and HIV infection among women living in the United States. Curr HIV/AIDS Rep. 2007;4(4):181–6.PubMedCrossRef
26.
go back to reference Kyle T, Dunn JR. Effects of housing circumstances on health, quality of life and healthcare use for people with severe mental illness: a review. Health and Social Care in the Community. 2008;16(1):1–15.PubMed Kyle T, Dunn JR. Effects of housing circumstances on health, quality of life and healthcare use for people with severe mental illness: a review. Health and Social Care in the Community. 2008;16(1):1–15.PubMed
27.
go back to reference Walley AY, Cheng DM, Libman H, Nunes D, Horsburgh CR Jr, Saitz R, Samet JH. Recent drug use, homelessness and increased short-term mortality in HIV-infected persons with alcohol problems. AIDS. AIDS 2008;22(3):415–20.PubMed Walley AY, Cheng DM, Libman H, Nunes D, Horsburgh CR Jr, Saitz R, Samet JH. Recent drug use, homelessness and increased short-term mortality in HIV-infected persons with alcohol problems. AIDS. AIDS 2008;22(3):415–20.PubMed
28.
go back to reference Kushel MB, Miaskowski C. End-of-life care for homeless patients: “she says she is there to help me in any situation”. JAMA. 2007;296(24):2959–66.CrossRef Kushel MB, Miaskowski C. End-of-life care for homeless patients: “she says she is there to help me in any situation”. JAMA. 2007;296(24):2959–66.CrossRef
29.
go back to reference Song J, Bartels DM, Ratner ER, Alderton L, Hudson B, Ahluwalia JS. Dying on the streets: Homeless persons’ concerns and desires about end of life care. J Gen Intern Med. 2007;22:435–41.PubMedCrossRef Song J, Bartels DM, Ratner ER, Alderton L, Hudson B, Ahluwalia JS. Dying on the streets: Homeless persons’ concerns and desires about end of life care. J Gen Intern Med. 2007;22:435–41.PubMedCrossRef
30.
go back to reference Song J, Ratner ER, Bartels DM, Alderton L, Hudson B, Ahluwalia JS. Experiences with and attitudes toward death and dying among homeless persons. J Gen Intern Med. 2007;22:427–34.PubMedCrossRef Song J, Ratner ER, Bartels DM, Alderton L, Hudson B, Ahluwalia JS. Experiences with and attitudes toward death and dying among homeless persons. J Gen Intern Med. 2007;22:427–34.PubMedCrossRef
31.
go back to reference Song J, Ratner E, Bartels D. Dying While Homeless: Is it a concern when life itself is such a struggle? J Clin Ethics. 2005;16(3):251–61, Fall.PubMed Song J, Ratner E, Bartels D. Dying While Homeless: Is it a concern when life itself is such a struggle? J Clin Ethics. 2005;16(3):251–61, Fall.PubMed
32.
go back to reference Tarzian A, Neal M, O’Neil J. Attitudes, experiences, and beliefs affecting end-of-life decision-making among homeless individuals. J Palliat Med. 2005;8(1):36–48, Feb.PubMedCrossRef Tarzian A, Neal M, O’Neil J. Attitudes, experiences, and beliefs affecting end-of-life decision-making among homeless individuals. J Palliat Med. 2005;8(1):36–48, Feb.PubMedCrossRef
34.
go back to reference Crane M, Byrne K, Fu R, Lipmann B, Mirabelli F, Rota-Bartelink MA, et al. The causes of homelessness in later life: findings from a 3-nation study. J Geront Ser B Psychol Sci Soc Sci. 2005;60:S152–9. Crane M, Byrne K, Fu R, Lipmann B, Mirabelli F, Rota-Bartelink MA, et al. The causes of homelessness in later life: findings from a 3-nation study. J Geront Ser B Psychol Sci Soc Sci. 2005;60:S152–9.
35.
go back to reference Buchanan D, Rohr L, Stevak L, Sai T. Documenting attitude changes towards homeless people: comparing two standardised surveys. Med Educ. 2007;41(4):346–8.PubMedCrossRef Buchanan D, Rohr L, Stevak L, Sai T. Documenting attitude changes towards homeless people: comparing two standardised surveys. Med Educ. 2007;41(4):346–8.PubMedCrossRef
36.
go back to reference Wen CK, Hudak PL, Hwang SW. Homeless people’s perceptions of welcomeness and unwelcomeness in healthcare encounters. J Gen Intern Med. 2007;22(7):1011–7.PubMedCrossRef Wen CK, Hudak PL, Hwang SW. Homeless people’s perceptions of welcomeness and unwelcomeness in healthcare encounters. J Gen Intern Med. 2007;22(7):1011–7.PubMedCrossRef
38.
go back to reference Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002;54:433–43.PubMedCrossRef Chochinov HM, Hack T, McClement S, Kristjanson L, Harlos M. Dignity in the terminally ill: a developing empirical model. Soc Sci Med. 2002;54:433–43.PubMedCrossRef
39.
go back to reference Chochinov HM. Dignity-conserving care-a new model for palliative care: Helping the patient feel valued. JAMA. 2002;287:2253–60.PubMedCrossRef Chochinov HM. Dignity-conserving care-a new model for palliative care: Helping the patient feel valued. JAMA. 2002;287:2253–60.PubMedCrossRef
40.
go back to reference Fagerlin A, Schneider CE. Enough: The failure of the living will. Hastings Center Report. 2004;34:30–42.PubMedCrossRef Fagerlin A, Schneider CE. Enough: The failure of the living will. Hastings Center Report. 2004;34:30–42.PubMedCrossRef
41.
go back to reference Teno JM. Advance directives: time to move on. Ann Intern Med. 2004;141(2):159–60.PubMed Teno JM. Advance directives: time to move on. Ann Intern Med. 2004;141(2):159–60.PubMed
42.
go back to reference Gready RM, Ditto PH, Danks JH, Coppola KM, Lockhart LK, Smucker WD. Actual and perceived stability of preferences for life-sustaining treatment. J Clin Ethics. 2000;11(4):334–46.PubMed Gready RM, Ditto PH, Danks JH, Coppola KM, Lockhart LK, Smucker WD. Actual and perceived stability of preferences for life-sustaining treatment. J Clin Ethics. 2000;11(4):334–46.PubMed
43.
go back to reference Hare J, Nelson C. Will outpatients complete living wills? A comparison of two interventions. J Gen Intern Med. 1991;6:41–6.PubMedCrossRef Hare J, Nelson C. Will outpatients complete living wills? A comparison of two interventions. J Gen Intern Med. 1991;6:41–6.PubMedCrossRef
44.
go back to reference Hopp FP. Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study. Gerontologist. 2000;40(4):449–57PubMed Hopp FP. Preferences for surrogate decision makers, informal communication, and advance directives among community-dwelling elders: results from a national study. Gerontologist. 2000;40(4):449–57PubMed
45.
go back to reference Morrison RS, Olson E, Mertz KR, Meier DE. The inaccessibility of advance directives on transfer from ambulatory to acute care settings. JAMA. 1995;274:478–82.PubMedCrossRef Morrison RS, Olson E, Mertz KR, Meier DE. The inaccessibility of advance directives on transfer from ambulatory to acute care settings. JAMA. 1995;274:478–82.PubMedCrossRef
46.
go back to reference Prendergast TJ. Advance care planning: pitfalls, progress, promise. Crit Care Med. 2001;29(2 Suppl):N34–9.PubMedCrossRef Prendergast TJ. Advance care planning: pitfalls, progress, promise. Crit Care Med. 2001;29(2 Suppl):N34–9.PubMedCrossRef
47.
go back to reference The SUPPORT Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). J Am Med Assoc. 1995;274:1591–8.CrossRef The SUPPORT Investigators. A controlled trial to improve care for seriously ill hospitalized patients: The Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments (SUPPORT). J Am Med Assoc. 1995;274:1591–8.CrossRef
48.
go back to reference Jezewski MA, Meeker MA, Sessanna L, Finnell DS. The Effectiveness of Interventions to Increase Advance Directive Completion Rates. J Aging Health. 2007; 19:519–536.PubMedCrossRef Jezewski MA, Meeker MA, Sessanna L, Finnell DS. The Effectiveness of Interventions to Increase Advance Directive Completion Rates. J Aging Health. 2007; 19:519–536.PubMedCrossRef
51.
go back to reference Gelberg L, Andersen R, Leake B. The Behavioral Model for Vulnerable Populations: application to medical care use and outcomes. Health Serv Res. 2000;3461273–302.PubMed Gelberg L, Andersen R, Leake B. The Behavioral Model for Vulnerable Populations: application to medical care use and outcomes. Health Serv Res. 2000;3461273–302.PubMed
52.
go back to reference Robertson MJ, Zlotnick C, Westerfelt A. Drug use disorders and treatment contact among homeless adults in Alameda County, California. Am J Public Health. 1997;87:221–8.PubMedCrossRef Robertson MJ, Zlotnick C, Westerfelt A. Drug use disorders and treatment contact among homeless adults in Alameda County, California. Am J Public Health. 1997;87:221–8.PubMedCrossRef
Metadata
Title
Engaging Homeless Persons in End of Life Preparations
Authors
John Song, MD, MPH, MAT
Melanie M. Wall, PhD
Edward R. Ratner, MD
Dianne M. Bartels, RN, PhD
Nancy Ulvestad, BSN, MART
Lillian Gelberg, MD, MSPH
Publication date
01-12-2008
Publisher
Springer-Verlag
Published in
Journal of General Internal Medicine / Issue 12/2008
Print ISSN: 0884-8734
Electronic ISSN: 1525-1497
DOI
https://doi.org/10.1007/s11606-008-0771-1

Other articles of this Issue 12/2008

Journal of General Internal Medicine 12/2008 Go to the issue

Reflection

Two Deaths

Letter to the Editor

Author Reply

Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine