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Published in: Quality of Life Research 6/2020

Open Access 01-06-2020

Whom should we ask? A systematic literature review of the arguments regarding the most accurate source of information for valuation of health states

Authors: Gert Helgesson, Olivia Ernstsson, Mimmi Åström, Kristina Burström

Published in: Quality of Life Research | Issue 6/2020

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Abstract

Purpose

To determine and critically evaluate the arguments in the published literature regarding the most accurate source of information for valuation of health states: values based on experienced health states (patient values) or values based on described health states (general public values).
Appendix
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Literature
1.
go back to reference Nord, E. (1999). Cost-value analysis in health care. Cambridge: Cambridge University Press.CrossRef Nord, E. (1999). Cost-value analysis in health care. Cambridge: Cambridge University Press.CrossRef
2.
go back to reference Brazier, J., Akehurst, R., Brennan, A., et al. (2005). Should patients have a greater role in valuing health states? Applied Health Economics and Health Policy,4(4), 201–208.PubMedCrossRef Brazier, J., Akehurst, R., Brennan, A., et al. (2005). Should patients have a greater role in valuing health states? Applied Health Economics and Health Policy,4(4), 201–208.PubMedCrossRef
3.
go back to reference Dolan, P. (2008). Developing methods that really do value the ‘Q’ in the QALY. Health Economics, Policy and Law,3(1), 69–77.CrossRef Dolan, P. (2008). Developing methods that really do value the ‘Q’ in the QALY. Health Economics, Policy and Law,3(1), 69–77.CrossRef
4.
go back to reference Dolan, P., & Kahneman, D. (2008). Interpretations of utility and their implications for the valuation of health. The Economic Journal,118, 215–234.CrossRef Dolan, P., & Kahneman, D. (2008). Interpretations of utility and their implications for the valuation of health. The Economic Journal,118, 215–234.CrossRef
5.
go back to reference Dolan, P. (2009). NICE should value real experiences over hypothetical opinions. Nature,462(7269), 35.PubMedCrossRef Dolan, P. (2009). NICE should value real experiences over hypothetical opinions. Nature,462(7269), 35.PubMedCrossRef
6.
go back to reference Drummond, M., Brixner, D., Gold, M., et al. (2009). Toward a consensus on the QALY. Value in Health,12(Suppl 1), s31–35.PubMedCrossRef Drummond, M., Brixner, D., Gold, M., et al. (2009). Toward a consensus on the QALY. Value in Health,12(Suppl 1), s31–35.PubMedCrossRef
7.
go back to reference Drummond, M. F., Sculpher, M. J., Claxton, K., Stoddart, G. L., & Torrance, G. W. (2015). Methods for the economic evaluation of health care programmes. New York: Oxford University Press. Drummond, M. F., Sculpher, M. J., Claxton, K., Stoddart, G. L., & Torrance, G. W. (2015). Methods for the economic evaluation of health care programmes. New York: Oxford University Press.
8.
go back to reference Hausman, D. M. (2015). Valuing health. Well-being, freedom, and suffering. New York: Oxford University Press. Hausman, D. M. (2015). Valuing health. Well-being, freedom, and suffering. New York: Oxford University Press.
9.
go back to reference Brazier, J., Rowen, D., Karimi, M., et al. (2018). Experienced-based utility and own health state valuation for a health state classification system: Why and how to do it. The European Journal of Health Economics,19, 881–891.PubMedCrossRef Brazier, J., Rowen, D., Karimi, M., et al. (2018). Experienced-based utility and own health state valuation for a health state classification system: Why and how to do it. The European Journal of Health Economics,19, 881–891.PubMedCrossRef
10.
go back to reference Brazier, J., Ratcliffe, J., Saloman, J., & Tsuchiya, A. (2016). Measuring and valuing health benefits for economic evaluation (2nd ed.). Oxford: Oxford University Press.CrossRef Brazier, J., Ratcliffe, J., Saloman, J., & Tsuchiya, A. (2016). Measuring and valuing health benefits for economic evaluation (2nd ed.). Oxford: Oxford University Press.CrossRef
11.
go back to reference McPherson, K., Myers, J., Taylor, W. J., McNaughton, H. K., & Weatherall, M. (2004). Self-valuation and societal valuations of health state differ with disease severity in chronic and disabling conditions. Medical Care,42(11), 1143–1151.PubMedCrossRef McPherson, K., Myers, J., Taylor, W. J., McNaughton, H. K., & Weatherall, M. (2004). Self-valuation and societal valuations of health state differ with disease severity in chronic and disabling conditions. Medical Care,42(11), 1143–1151.PubMedCrossRef
12.
go back to reference Mann, R., Brazier, J., & Tsuchiya, A. (2009). A comparison of patient and general population weightings of the EQ-5D dimensions. Health Economics,18(3), 363–372.PubMedCrossRef Mann, R., Brazier, J., & Tsuchiya, A. (2009). A comparison of patient and general population weightings of the EQ-5D dimensions. Health Economics,18(3), 363–372.PubMedCrossRef
13.
go back to reference Burström, K., Johannesson, M., & Diderichsen, F. (2006). A comparison of individual and social time trade-off values for health states in the general population. Health Policy,76, 359–370.PubMedCrossRef Burström, K., Johannesson, M., & Diderichsen, F. (2006). A comparison of individual and social time trade-off values for health states in the general population. Health Policy,76, 359–370.PubMedCrossRef
14.
go back to reference Krabbe, P. F. M., Tromp, N., Ruers, T. J. M., & van Riel, P. L. C. M. (2011). Are patients’ judgements of health status really different from the general population? Health and Quality of Life Outcomes,9, 31.PubMedPubMedCentralCrossRef Krabbe, P. F. M., Tromp, N., Ruers, T. J. M., & van Riel, P. L. C. M. (2011). Are patients’ judgements of health status really different from the general population? Health and Quality of Life Outcomes,9, 31.PubMedPubMedCentralCrossRef
15.
go back to reference McNamee, P. (2007). What difference does it make? The calculation of QALY gains from health profiles using patient and general population values. Health Policy,84, 321–331.PubMedCrossRef McNamee, P. (2007). What difference does it make? The calculation of QALY gains from health profiles using patient and general population values. Health Policy,84, 321–331.PubMedCrossRef
16.
go back to reference Versteegh, M. M., & Brouwer, W. B. F. (2016). Patient and general public preferences for health states: A call to reconsider current guidelines. Social Science and Medicine,165, 66–74.PubMedCrossRef Versteegh, M. M., & Brouwer, W. B. F. (2016). Patient and general public preferences for health states: A call to reconsider current guidelines. Social Science and Medicine,165, 66–74.PubMedCrossRef
17.
go back to reference Burström, K., Sun, S., Gerdtham, U. G., et al. (2014). Swedish experience-based value sets for EQ-5D health states. Quality of Life Research,23, 431–442.PubMedCrossRef Burström, K., Sun, S., Gerdtham, U. G., et al. (2014). Swedish experience-based value sets for EQ-5D health states. Quality of Life Research,23, 431–442.PubMedCrossRef
18.
go back to reference Cubi-Molla, P., Shah, K., & Burström, K. (2018). Experience-based values: A framework for classifying different types of experience in health valuation research. Patient,11(3), 253–270.PubMedCrossRef Cubi-Molla, P., Shah, K., & Burström, K. (2018). Experience-based values: A framework for classifying different types of experience in health valuation research. Patient,11(3), 253–270.PubMedCrossRef
19.
go back to reference Leidl, R., & Reitmeir, P. (2011). A value set for the EQ-5D based on experienced health states Development and testing for the German population. PharmacoEconomics,29(6), 521–534.PubMedCrossRef Leidl, R., & Reitmeir, P. (2011). A value set for the EQ-5D based on experienced health states Development and testing for the German population. PharmacoEconomics,29(6), 521–534.PubMedCrossRef
20.
go back to reference Sun, S., Chen, J., Kind, P., et al. (2015). Experience-based VAS values for EQ-5D-3L health states in a national general population health survey in China. Quality of Life Research,24, 693–703.PubMedCrossRef Sun, S., Chen, J., Kind, P., et al. (2015). Experience-based VAS values for EQ-5D-3L health states in a national general population health survey in China. Quality of Life Research,24, 693–703.PubMedCrossRef
21.
go back to reference Leidl, R., & Reitmeir, P. (2017). An experience-based value set for the EQ-5D-5L in Germany. Value in Health,20, 1150–1156.PubMedCrossRef Leidl, R., & Reitmeir, P. (2017). An experience-based value set for the EQ-5D-5L in Germany. Value in Health,20, 1150–1156.PubMedCrossRef
22.
go back to reference Gold, M. R., Siegel, J. E., Russell, L. B., & Weinstein, M. C. (Eds.). (1996). Cost-effectiveness in health and medicine. New York: Oxford University Press. Gold, M. R., Siegel, J. E., Russell, L. B., & Weinstein, M. C. (Eds.). (1996). Cost-effectiveness in health and medicine. New York: Oxford University Press.
23.
go back to reference Kind, P. (2009). Valuing EQ-5D health states—A VAStly simpler solution? In J. Busschbach, R. Rabin, F. de Charro (Eds.), Proceedings of the 24th scientific plenary meeting of the EuroQol Group (pp. 319–337). Kijkduin-The Hague, The Netherlands Rotterdam: EuroQol Group Executive Office. Retrieved 9 September 2015. Kind, P. (2009). Valuing EQ-5D health states—A VAStly simpler solution? In J. Busschbach, R. Rabin, F. de Charro (Eds.), Proceedings of the 24th scientific plenary meeting of the EuroQol Group (pp. 319–337). Kijkduin-The Hague, The Netherlands Rotterdam: EuroQol Group Executive Office. Retrieved 9 September 2015.
24.
go back to reference Rand-Hendriksen, K., Augestad, L. A., Kristiansen, I. S., & Stavem, K. (2012). Comparison of hypothetical and experienced EQ-5D valuations: Relative weights of the five dimensions. Quality of Life Research,21, 1005–1012.PubMedCrossRef Rand-Hendriksen, K., Augestad, L. A., Kristiansen, I. S., & Stavem, K. (2012). Comparison of hypothetical and experienced EQ-5D valuations: Relative weights of the five dimensions. Quality of Life Research,21, 1005–1012.PubMedCrossRef
25.
go back to reference Leidl, R., Reitmeir, P., König, H. H., & Stark, R. (2012). The performance of a value set for the EQ-5D based on experienced health states in patients with inflammatory bowel disease. Value in Health,15(1), 151–157.PubMedCrossRef Leidl, R., Reitmeir, P., König, H. H., & Stark, R. (2012). The performance of a value set for the EQ-5D based on experienced health states in patients with inflammatory bowel disease. Value in Health,15(1), 151–157.PubMedCrossRef
26.
go back to reference Wolff, J., Edwards, S., Richmond, S., Orr, S., & Rees, G. (2012). Evaluating interventions in health: A reconciliatory approach. Bioethics,26(9), 455–463.PubMedCrossRef Wolff, J., Edwards, S., Richmond, S., Orr, S., & Rees, G. (2012). Evaluating interventions in health: A reconciliatory approach. Bioethics,26(9), 455–463.PubMedCrossRef
30.
go back to reference Brouwer, W. B. F., Culyer, A. J., van Exel, N. J. A., & Rutten, F. F. H. (2008). Welfarism vs. extra-welfarism. Journal of Health Economics,27, 325–338.PubMedCrossRef Brouwer, W. B. F., Culyer, A. J., van Exel, N. J. A., & Rutten, F. F. H. (2008). Welfarism vs. extra-welfarism. Journal of Health Economics,27, 325–338.PubMedCrossRef
31.
go back to reference Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health,23, 334–340.CrossRef Sandelowski, M. (2000). Whatever happened to qualitative description? Research in Nursing & Health,23, 334–340.CrossRef
32.
go back to reference Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today,24(2), 105–112.PubMedCrossRef Graneheim, U. H., & Lundman, B. (2004). Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness. Nurse Education Today,24(2), 105–112.PubMedCrossRef
33.
go back to reference Ubel, P. A., Nord, E., Gold, M., Menzel, P., Prades, J. L., & Richardson, J. (2000). Improving value measurement in cost-effectiveness analysis. Medical Care,38(9), 892–901.PubMedCrossRef Ubel, P. A., Nord, E., Gold, M., Menzel, P., Prades, J. L., & Richardson, J. (2000). Improving value measurement in cost-effectiveness analysis. Medical Care,38(9), 892–901.PubMedCrossRef
34.
go back to reference Ogorevc, M., Murovec, N., Fernandez, N. B., & Rupel, V. P. (2017). Questioning the differences between general public vs. patient based preferences towards EQ-5D-5L defined hypothetical health states. Health Policy,123, 166–172.PubMedCrossRef Ogorevc, M., Murovec, N., Fernandez, N. B., & Rupel, V. P. (2017). Questioning the differences between general public vs. patient based preferences towards EQ-5D-5L defined hypothetical health states. Health Policy,123, 166–172.PubMedCrossRef
35.
go back to reference Rowen, D., Zouraq, I. A., Chevrou-Severac, H., & van Hout, B. (2017). International regulations and recommendations for utility data for health technology assessment. PharmacoEconomics,35(Suppl 1), 11–19.PubMedCrossRef Rowen, D., Zouraq, I. A., Chevrou-Severac, H., & van Hout, B. (2017). International regulations and recommendations for utility data for health technology assessment. PharmacoEconomics,35(Suppl 1), 11–19.PubMedCrossRef
36.
go back to reference Ubel, P. A., Loewenstein, G., & Jepson, C. (2003). Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public. Quality of Life Research,12, 599–607.PubMedCrossRef Ubel, P. A., Loewenstein, G., & Jepson, C. (2003). Whose quality of life? A commentary exploring discrepancies between health state evaluations of patients and the general public. Quality of Life Research,12, 599–607.PubMedCrossRef
37.
go back to reference Stamuli, E. (2011). Health outcomes in economic evaluation: who should value health? British Medical Bulletin,97, 197–210.PubMedCrossRef Stamuli, E. (2011). Health outcomes in economic evaluation: who should value health? British Medical Bulletin,97, 197–210.PubMedCrossRef
38.
go back to reference Lenert, L. A., Treadwell, J. R., & Schwartz, C. E. (1999). Associations between health status and utilities implications for policy. Medical Care,37(5), 479–489.PubMedCrossRef Lenert, L. A., Treadwell, J. R., & Schwartz, C. E. (1999). Associations between health status and utilities implications for policy. Medical Care,37(5), 479–489.PubMedCrossRef
39.
go back to reference de Wit, G. A., Busschbach, J. J. V., & de Charro, F. T. H. (2000). Sensitivity and perspective in the valuation of health status: whose values count? Health Economics,9, 109–126.PubMedCrossRef de Wit, G. A., Busschbach, J. J. V., & de Charro, F. T. H. (2000). Sensitivity and perspective in the valuation of health status: whose values count? Health Economics,9, 109–126.PubMedCrossRef
40.
go back to reference Polsky, D., Willke, R. J., Scott, K., Schulman, K. A., & Glick, H. A. (2001). A comparison of scoring weights for the EUROQOL derived from patients and the general public. Health Economics,10, 27–37.PubMedCrossRef Polsky, D., Willke, R. J., Scott, K., Schulman, K. A., & Glick, H. A. (2001). A comparison of scoring weights for the EUROQOL derived from patients and the general public. Health Economics,10, 27–37.PubMedCrossRef
41.
go back to reference Happich, M., & von Lengerke, T. (2005). Valuing the health state ‘tinnitus’: differences between patients and the general public. Hearing Research,207, 50–58.PubMedCrossRef Happich, M., & von Lengerke, T. (2005). Valuing the health state ‘tinnitus’: differences between patients and the general public. Hearing Research,207, 50–58.PubMedCrossRef
42.
go back to reference Garau, M., Shah, K. K., Mason, A. R., et al. (2011). Using QALYs in cancer A review of the methodological limitations. Pharmacoeconomics,29(8), 673–685.PubMedCrossRef Garau, M., Shah, K. K., Mason, A. R., et al. (2011). Using QALYs in cancer A review of the methodological limitations. Pharmacoeconomics,29(8), 673–685.PubMedCrossRef
43.
go back to reference Ratcliffe, J., Brazier, J., Palfreyman, S., & Michaels, J. (2007). A comparison of patient and population values for health states in varicose veins patients. Health Economics,16, 395–405.PubMedCrossRef Ratcliffe, J., Brazier, J., Palfreyman, S., & Michaels, J. (2007). A comparison of patient and population values for health states in varicose veins patients. Health Economics,16, 395–405.PubMedCrossRef
44.
go back to reference Gandjour, A. (2010). Theoretical foundation of patient v population preferences in calculating QALYs. Medical Decision Making,30, 57–63.CrossRef Gandjour, A. (2010). Theoretical foundation of patient v population preferences in calculating QALYs. Medical Decision Making,30, 57–63.CrossRef
45.
go back to reference Menzel, P., Dolan, P., Richardson, J., & Olsen, J. A. (2002). The role of adaptation to disability and disease in health state valuation: A preliminary normative analysis. Social Science and Medicine,55, 2149–2158.PubMedCrossRef Menzel, P., Dolan, P., Richardson, J., & Olsen, J. A. (2002). The role of adaptation to disability and disease in health state valuation: A preliminary normative analysis. Social Science and Medicine,55, 2149–2158.PubMedCrossRef
46.
go back to reference Edelaar-Peeters, Y., Putter, H., Snoek, G. J., et al. (2012). The influence of time and adaptation on health state valuations in patients with spinal cord injury. Medical Decision Making,32, 805–814.PubMedCrossRef Edelaar-Peeters, Y., Putter, H., Snoek, G. J., et al. (2012). The influence of time and adaptation on health state valuations in patients with spinal cord injury. Medical Decision Making,32, 805–814.PubMedCrossRef
47.
go back to reference Myers, J. A., McPherson, K. M., Taylor, W. J., Weatherall, M., & McNaughton, H. K. (2003). Duration of condition is unrelated to health-state valuation on the EuroQol. Clinical Rehabilitation,17, 209–215.PubMedCrossRef Myers, J. A., McPherson, K. M., Taylor, W. J., Weatherall, M., & McNaughton, H. K. (2003). Duration of condition is unrelated to health-state valuation on the EuroQol. Clinical Rehabilitation,17, 209–215.PubMedCrossRef
48.
go back to reference McTaggart-Cowan, H. M., O’Cathain, A., Tsuchiya, A., & Brazier, J. E. (2012). Using mixed methods research to explore the effect of an adaptation exercise on general population valuations of health states. Quality of Life Research,21, 465–473.PubMedCrossRef McTaggart-Cowan, H. M., O’Cathain, A., Tsuchiya, A., & Brazier, J. E. (2012). Using mixed methods research to explore the effect of an adaptation exercise on general population valuations of health states. Quality of Life Research,21, 465–473.PubMedCrossRef
49.
go back to reference Daniels, N. (1985). Just health care. New York: Cambridge University Press.CrossRef Daniels, N. (1985). Just health care. New York: Cambridge University Press.CrossRef
50.
go back to reference Daniels, N. (2007). Just health. Meeting health needs fairly. New York: Cambridge University Press.CrossRef Daniels, N. (2007). Just health. Meeting health needs fairly. New York: Cambridge University Press.CrossRef
51.
go back to reference Sen, A. (1985). Commodities and capabilities. Amsterdam: North-Holland. Sen, A. (1985). Commodities and capabilities. Amsterdam: North-Holland.
52.
go back to reference Sen, A. (1992). Inequality reexamined. Cambridge: Harvard University Press. Sen, A. (1992). Inequality reexamined. Cambridge: Harvard University Press.
53.
go back to reference Nussbaum, M., & Sen, A. (Eds.). (1993). The quality of life. Oxford: Clarendon Press. Nussbaum, M., & Sen, A. (Eds.). (1993). The quality of life. Oxford: Clarendon Press.
Metadata
Title
Whom should we ask? A systematic literature review of the arguments regarding the most accurate source of information for valuation of health states
Authors
Gert Helgesson
Olivia Ernstsson
Mimmi Åström
Kristina Burström
Publication date
01-06-2020
Publisher
Springer International Publishing
Published in
Quality of Life Research / Issue 6/2020
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-020-02426-4

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