Skip to main content
Key Specialties
Cardiology Diabetology Endocrinology Gastroenterology Geriatrics and Gerontology Gynecology and Obstetrics Hematology Infectious Disease Internal Medicine Nephrology Neurology Oncology Pediatrics Respiratory Medicine Rheumatology Surgery
Congress Coverage
2024 ACC Congress 2023 ESMO Congress 2023 EASD Congress 2023 ERS Congress 2023 ESC Congress
Clinical Collections
Advances in Alzheimer’s

Keynote webinar | Spotlight on medication adherence

LIVE: Thursday 27th June 2024, 18:00-19:30 (CEST)
Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.
ADVANCED SEARCH
Log in
Top
Quality of Life Research
Published in: Quality of Life Research 10/2012

Open Access 01-12-2012

Satisfaction with care as a quality-of-life predictor for stroke patients and their caregivers

Authors: Jane M. Cramm, Mathilde M. H. Strating, Anna P. Nieboer

Published in: Quality of Life Research | Issue 10/2012

Login to get access

Abstract

Purpose

We sought to identify indicators associated with the quality of life (QoL) of stroke patients and caregivers.

Methods

The cross-sectional study was conducted at nine Dutch stroke service facilities involving 251 stroke patients and their caregivers. We used the EuroQol (EQ-5D) and Satisfaction with Stroke Care questionnaires, and included the variables (1) disability at hospital admission, (2) length of hospital stay, (3) demographic data, and (4) caregivers’ relationship with stroke patients. The Actor–Partner (patient–caregiver) Interdependence Model (APIM) was used to examine dependence between patients’ and caregivers’ QoL scores through dyad membership.

Results

Patients’ age was significantly related to their QoL, and caregivers’ age and educational level were significantly related to their QoL. Patients’ disability on hospital admission and length of stay were associated with patients’ QoL, and their disability on admission was related to caregivers’ QoL. No relationship was found between length of stay and caregivers’ QoL. Satisfaction with care was associated with both patients’ and caregivers’ QoL.

Conclusions

The APIM distinguished the different roles of patients and caregivers while acknowledging the interdependence of their QoL scores. Satisfaction with care was identified as important indicator of stroke patients’ and caregivers’ QoL.
Literature
1.
Schweikert, B., Hahmann, H., & Leidl, R. (2006). Validation of the EuroQoL questionnaire in cardiac rehabilitation. Heart, 92, 62–67.PubMedCrossRef
2.
Ahlsio, B., Britton, M., Murray, V., & Theorell, T. (1984). Disablement and quality of life after stroke. Stroke, 15, 886–890.PubMedCrossRef
3.
4.
Osberg, J. S., DeJong, G., Haley, S. M., Seward, M. L., McGinnis, G. E., & Germaine, J. (1988). Predicting long-term outcome among post-rehabilitation stroke patients. American Journal of Physical Medicine and Rehabilitation, 67, 94–103.PubMedCrossRef
5.
Viitanen, M., Fugl-Meyer, K. S., Bernspang, B., & Fugl-Meyer, A. R. (1988). Life satisfaction in long term survivors after stroke. Scandinavian Journal of Rehabilitation Medicine, 20, 17–24.PubMed
6.
Duncan, P. W., Jorgensen, H. S., & Wade, D. T. (2000). Outcome measures in acute stroke trials: a systematic review and some recommendations to improve practice. Stroke, 31(1429), 1438.
7.
Anderson, R. (1988). The contribution of informal care to the management of stroke. International Journal of Disability Studies, 10, 107–112.CrossRef
8.
Wade, D. T., & Langton-Hewer, R. (1985). Hospital admission for acute stroke care: who, for how long, and to what effect. Journal of Epidemiology and Community Health, 39, 347–352.PubMedCrossRef
9.
Wilkinson, P. R., Wolfe, C. D. A., Warburton, F. G., Rudd, A. G., Howard, R. S., Ross Russell, R. W., et al. (1997). A long-term follow-up of stroke patients. Stroke, 28, 507–512.PubMedCrossRef
10.
Addington-Hall, J., Lay, M., Altmann, D., & McCarthy, M. (1998). Community care for stroke patients in the last year of their life: results of a national retrospective survey of surviving family, friends and officials. Health and Social Care in the Community, 6, 112–119.PubMedCrossRef
11.
Scholte, O. P., Reimer, W. J. M., de Haan, R. J., Pijeneborg, J. M. A., Limburg, M., & van den Bos, G. A. M. (1998). The burden of caregiving in partners of long term stroke survivors. Stroke, 29, 1605–1611.CrossRef
12.
Anderson, C., Linton, J., & Stewart-Wynne, E. (1995). A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke, 26, 843–849.PubMedCrossRef
13.
Dennis, M., O’Rourke, S., Lewis, S., Sharpe, M., & Warlow, C. (1998). A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke, 8, 7–17.
14.
Greveson, G. C., Gray, C. S., French, J. M., & James, O. F. (1991). Long term outcomes for patients and caregivers following hospital admission for stroke. Age and Ageing, 20, 337–344.PubMedCrossRef
15.
Brugge, C., Alexander, H., & Hagen, S. (1990). Stroke patients’ informal caregivers: patient, caregiver, service factors that affect caregiver strain. Stroke, 30, 1478–1485.
16.
Kotila, M., Numminen, H., Waltimo, O., & Kaste, M. (1998). Depression after stroke: result Of the FINNSTROKE study. Stroke, 29, 368–372.PubMedCrossRef
17.
Wade, D. T., Legh-Smith, J., & Langton, H. R. (1986). Effects of living with and looking after survivors of a stroke. British Medical Journal, 293, 368–372.CrossRef
18.
Campbell, L., & Kashy, D. A. (2002). Estimating actor, partner, and interaction effects for dyadic data using PROC MIXED and HLM: a user-friendly guide. Personal Relationships, 9, 327–342.CrossRef
19.
Kenny, D. A., & Cook, W. (1999). Partner effects in relationships research: conceptual issues, analytic difficulties, and illustrations. Personal Relationships, 6, 433–448.CrossRef
20.
Boter, H., de Haan, R. J., & Rinkel, G. L. E. (2003). Clinimetric evaluation of a satisfaction with Stroke-Care questionnaire. Journal of Neurology, 250, 534–541.PubMedCrossRef
21.
Pound, P., Gompertz, P., & Ebrahim, S. (1994). Patients’ satisfaction with stroke services. Clinical Rehabilitation, 8, 7–17.CrossRef
22.
Nieboer, A., Pepels, R., Have, L., van der Kool, T., & Huijsman, R. (2005). Stroke Services Gespiegeld, Hoofdrapport [Comparison of Stroke Services, main report]. Den Haag, NL: ZonMW.
23.
Cramm, J. M., & Nieboer, A. P. (2011). Professionals’ views on factors contributing to multidisciplinary stroke team success. International Journal of Integrated Care, 11, 1–8.
24.
EuroQol Group. (1990). EuroQol: a new facility for the measurement of health-related quality of life. Health Policy, 16, 199–208.CrossRef
25.
26.
Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: the Barthel Index. Maryland State Medical Journal, 14, 61–65.PubMed
27.
de Haan, R., Limburg, M., Schuling, J., Broeshart, J., Jonkers, L., & van Zuylen, P. (1993). Klinimetrische evaluatie van de Barthel-index, een maat voor beperkingen in het dagelijks functioneren. Nederlands Tijdschrift voor Geneeskunde, 37, 917–921.
28.
Cramm, J. M., Strating, M. M. H., & Nieboer, A. P. (2011). Validation of the caregivers’ Satisfaction with Stroke Care Questionnaire: C-SASC hospital scale. Journal of Neurology, 258(6), 1008–1012.PubMedCrossRef
29.
Stolk, E. A., Krabbe, P., & Busschbach, J. (2007). Using the internet to collect EQ-5D norm scores: a valid alternative? In: Proceedings of the 24th Scientific Plenary Meeting of the EuroQol Group. Kijkdui—The Hague, The Netherlands, September 13–15.
30.
Snijders, T. A. B., & Kenny, D. A. (1999). The social relations model for family data: a multilevel approach. Personal Relationships, 6, 471–486.CrossRef
31.
Draper, B. M., Poulos, C. J., Cole, A., Poulos, R. G., & Ehrlich, F. (1992). A comparison of care-givers for elderly stroke and dementia victims. Journal of American Geriatrics Society, 40, 896–901.
32.
Ross, S., & Morris, R. G. (1988). Psychological adjustment of the spouses of aphasic stroke patients. International Journal of Rehabilitation Research, 11, 383–386.CrossRef
33.
Schulz, R., Tompkins, C. A., & Rau, M. T. (1988). A longitudinal study of psychosocial impact of stroke on primary support persons. Psychology and Aging, 3, 131–141.PubMedCrossRef
Metadata
Title
Satisfaction with care as a quality-of-life predictor for stroke patients and their caregivers
Authors
Jane M. Cramm
Mathilde M. H. Strating
Anna P. Nieboer
Publication date
01-12-2012
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 10/2012
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-011-0107-1

Other articles of this Issue 10/2012

Quality of Life Research 10/2012 Go to the issue

OriginalPaper

The effect of weight loss on changes in health-related quality of life among overweight and obese women with urinary incontinence

OriginalPaper

Sense of coherence as an independent predictor of health-related quality of life among coronary heart disease patients

OriginalPaper

Trends in health-related quality of life and health service use associated with body mass index and comorbid major depression in South Australia, 1998–2008

OriginalPaper

Sex differences in the change in health-related quality of life associated with low back pain

Brief Communication

The impact of functional constipation on quality of life of middle-aged Black Americans: a prospective case–control study

OriginalPaper

From well-being to positive mental health: conceptualization and qualitative development of an instrument in Singapore