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Quality of Life Research
Published in: Quality of Life Research 6/2010

Open Access 01-08-2010 | Original Paper

Development of the EQ-5D-Y: a child-friendly version of the EQ-5D

Authors: Nora Wille, Xavier Badia, Gouke Bonsel, Kristina Burström, Gulia Cavrini, Nancy Devlin, Ann-Charlotte Egmar, Wolfgang Greiner, Narcis Gusi, Michael Herdman, Jennifer Jelsma, Paul Kind, Luciana Scalone, Ulrike Ravens-Sieberer

Published in: Quality of Life Research | Issue 6/2010

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Abstract

Purpose

To develop a self-report version of the EQ-5D for younger respondents, named the EQ-5D-Y (Youth); to test its comprehensibility for children and adolescents and to compare results obtained using the standard adult EQ-5D and the EQ-5D-Y.

Methods

An international task force revised the content of EQ-5D and wording to ensure relevance and clarity for young respondents. Children’s and adolescents’ understanding of the EQ-5D-Y was tested in cognitive interviews after the instrument was translated into German, Italian, Spanish and Swedish. Differences between the EQ-5D and the EQ-5D-Y regarding frequencies of reported problems were investigated in Germany, Spain and South Africa.

Results

The content of the EQ-5D dimensions proved to be appropriate for the measurement of HRQOL in young respondents. The wording of the questionnaire had to be adapted which led to small changes in the meaning of some items and answer options. The adapted EQ-5D-Y was satisfactorily understood by children and adolescents in different countries. It was better accepted and proved more feasible than the EQ-5D. The administration of the EQ-5D and of the EQ-5D-Y causes differences in frequencies of reported problems.

Conclusions

The newly developed EQ-5D-Y is a useful tool to measure HRQOL in young people in an age-appropriate manner.
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Metadata
Title
Development of the EQ-5D-Y: a child-friendly version of the EQ-5D
Authors
Nora Wille
Xavier Badia
Gouke Bonsel
Kristina Burström
Gulia Cavrini
Nancy Devlin
Ann-Charlotte Egmar
Wolfgang Greiner
Narcis Gusi
Michael Herdman
Jennifer Jelsma
Paul Kind
Luciana Scalone
Ulrike Ravens-Sieberer
Publication date
01-08-2010
Publisher
Springer Netherlands
Published in
Quality of Life Research / Issue 6/2010
Print ISSN: 0962-9343
Electronic ISSN: 1573-2649
DOI
https://doi.org/10.1007/s11136-010-9648-y

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