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Published in: Medicine, Health Care and Philosophy 4/2012

01-11-2012 | Scientific Contribution

Patient autonomy and choice in healthcare: self-testing devices as a case in point

Authors: Anna-Marie Greaney, Dónal P. O’Mathúna, P. Anne Scott

Published in: Medicine, Health Care and Philosophy | Issue 4/2012

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Abstract

This paper aims to critique the phenomenon of advanced patient autonomy and choice in healthcare within the specific context of self-testing devices. A growing number of self-testing medical devices are currently available for home use. The premise underpinning many of these devices is that they assist individuals to be more autonomous in the assessment and management of their health. Increased patient autonomy is assumed to be a good thing. We take issue with this assumption and argue that self-testing provides a specific example how increased patient autonomy and choice within healthcare might not best serve the patient population. We propose that current interpretations of autonomy in healthcare are based on negative accounts of liberty to the detriment of a more relational understanding. We also propose that Kantian philosophy is often applied to the healthcare arena in an inappropriate manner. We draw on the philosophical literature and examples from the self-testing process to support these claims. We conclude by offering an alternative account of autonomy based on the interrelated concepts of relationality, care and responsibility.
Footnotes
1
The impetus for this paper arose from an exploration of the meanings ascribed to autonomy in the philosophical literature. A review of key seminal works revealed an incompatibility with the prevailing understanding of autonomy in healthcare and prompted the particular focus of this paper.
 
2
The use of the word ‘definition’ has particular significance in philosophy. Downie encourages the writer to look beyond ‘lexical’ or ‘word-word’ dictionary definitions which merely report the common usage of terms. He advocates replacing such nominal definitions with more essential definitions. The latter, he contends, can be arrived at through classification and analysis (Downie 1994).
 
3
The terms liberty and freedom are used interchangeably here as reflected in the work of Berlin (1969) and Dworkin (1988).
 
4
It is important to note that this genealogy of autonomy is primarily rooted in western liberal-democratic and liberal-humanistic thought. Therefore, it is important to appreciate the specific cultural context of this discussion. See Pennycook (1997).
 
5
The term bioethics is described by O’Neill (2002) as a meeting ground for those who debate the legal, social and ethical implications of new advances in medicine, science and bio-technology. A detailed account of the ‘birth’ of bioethics is beyond the scope of this paper but a comprehensive historical account is found in Reich (1994).
 
6
This example was constructed following a review of Kim Atkins’ paper which is discussed later in this section.
 
7
Holroyd maintains that while agents may be relational entities autonomy cannot be. See Holroyd (2009). Christman (2004, p. 158), within his account of relational autonomy, raises a concern that a purely relational approach to autonomy may lend itself to an “overarching paternalism”.
 
8
A recent “Liberating the NHS” (2010) white paper proposal, announced by the Secretary for State for Health in the UK, suggests a greater role for doctors in managing budgets at a local level through primary care consortia. See British Doctors to take charge of spending, http://​www.​ama-assn.​org/​amednews/​2010/​08/​16/​gvsb0816.​htm (Accessed 4th April 2011).
 
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Metadata
Title
Patient autonomy and choice in healthcare: self-testing devices as a case in point
Authors
Anna-Marie Greaney
Dónal P. O’Mathúna
P. Anne Scott
Publication date
01-11-2012
Publisher
Springer Netherlands
Published in
Medicine, Health Care and Philosophy / Issue 4/2012
Print ISSN: 1386-7423
Electronic ISSN: 1572-8633
DOI
https://doi.org/10.1007/s11019-011-9356-6

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