Published in:
01-08-2010 | Letter to the Editor
Re: Unprepared, Understaffed, and Unplanned
Author:
Edward P. Taubman
Published in:
Journal of Genetic Counseling
|
Issue 4/2010
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Excerpt
I appreciate the issues that Robert Resta has importantly raised, Wendy Uhlmann’s comments, and Heather Hampel’s sharing her experiences. I certainly agree that, when the time comes, an improved team effort of patients and counselors will be necessary. However, we haven’t said much about the two major players who really need to be on the team: the testing companies and the insurers. They both already have the information infrastructure to identify patients, the personnel to track them down, and the funds to send the message out over the print, radio, and TV media. I believe that companies that are presently charging thousands of dollars to perform, and report, these mostly uninformative tests, have a responsibility to use their resources to help when more informative testing becomes available. Furthermore, the insurance companies who, in the name of best patient care, have created policies and infrastructure to control who is presently eligible for these tests, and have required information about family histories to limit access to these tests, also have a responsibility to use those same resources to help inform their clients when something more informative comes along. …