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Journal of Clinical Psychology in Medical Settings

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01-09-2007

Correlates of Maternal and Paternal Adjustment to Chronic Childhood Disease

Authors: Deborah Dewey, Susan G. Crawford

Published in: Journal of Clinical Psychology in Medical Settings | Issue 3/2007

Abstract

This study investigated the correlates of psychosocial adjustment in mothers and fathers of children with chronic disease. Participants were 20 mothers and 15 fathers of children with cystic fibrosis, 11 mothers and 9 fathers of children with muscular dystrophy, 18 mothers and 9 fathers of children with asthma, 13 mothers and 8 fathers of children with Type 1 diabetes and 19 mothers and 11 fathers of healthy children. Questionnaires relating to the variables of interest were used. Poorer levels of adjustment were associated with lower levels of social support and family cohesion for mothers and coping by understanding the child’s medical situation, more family life events and lower family cohesion for fathers. These findings suggest that the correlates associated with maternal and paternal psychological adjustment to chronic childhood disease differ. These differences are important to consider when providing care to children with chronic disease and their families.

Azar, R., & Solomon, C. R. (2001). Coping strategies of parents facing child diabetes mellitus. Journal of Pediatric Nursing, 16, 418–428.PubMedCrossRef

Brazil, K., & Krueger, P. (2002). Patterns of family adaptation to childhood asthma. Journal of Pediatric Nursing, 17, 167–173.PubMedCrossRef

Cadman, D., Rosenbaum, P., Boyle, M., & Offord, D. R. (1991). Children with chronic disease: Family and parent demographic characteristics and psychosocial adjustment. Pediatrics, 87, 884–889.PubMed

Daoud, A., Dooley, J. M., & Gordon, K. E. (2004). Depression in parents of children with Duchenne muscular dystrophy. Pediatric Neurology, 31, 16–19.CrossRef

Drotar, D. (1997). Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: What have we learned? What do we need to know? Journal of Pediatric Psychology, 22, 149–165.PubMedCrossRef

Glasscoe, C., Lancaster, G. A., Smyth, R .L., & Hill, J. (2007). Parental depression following early diagnosis of cystic fibrosis: A matched, prospective study. Journal of Pediatrics, 150, 185–191.PubMedCrossRef

Hamlett, K. W., Pellegrini, D. S., & Katz, K. S. (1992). Childhood chronic disease as a family stressor. Journal of Pediatric Psychology, 17, 33–47.PubMedCrossRef

Handal, P. J., DeWitt, G., Gilner, F. H., & Searight, H. R. (1993). Preliminary validity for the Langner Symptoms Survey and Brief Symptom Inventory as mass-screening instruments for adolescent adjustment. Journal of Clinical Child Psychology, 22, 382–386.CrossRef

Ievers, C. E., & Drotar, D. (1996). Family and prenatal functioning in cystic fibrosis. Developmental and Behavioral Pediatrics, 17, 48–55.CrossRef

Katz, S. (2002). Gender differences in adapting to a child’s chronic illness: A causal model. Journal of Pediatric Nursing, 17, 257–269.PubMedCrossRef

Kazak, A. E., Boyer, B. A., Brophy, P., Johnson K., Scher, C. D., Covelman, K., & Scott, S. (1995). Parental perceptions of procedure-related distress and family adaptation in childhood leukemia. Children’s Health Care, 24, 143–158.PubMedCrossRef

Kazak, A .E., Christakis, D., Alderfer, M., & Coiro, M. (1994). Young adolescent cancer survivors and their parents: Adjustment, learning problems and gender. Journal of Family Psychology, 8, 74–84.CrossRef

Kovacs, M., Iyengar, S., Goldston, D., Obrosky, D. S., Stewart, J., & Marsh, J., (1990). Psychological functioning among mothers of children with insulin-dependent diabetes mellitus: A longitudinal study. Journal of Consulting and Clinical Psychology, 58, 189–195.PubMedCrossRef

Langner, T. (1962). A 22 item screening score of psychiatric symptoms indicating impairment. Journal of Health and Human Behavior, 3, 269–276.PubMedCrossRef

McCubbin, H. I., McCubbin, M., Nevin, R., & Cauble, A. E. (1979). Coping health inventory for parents (CHIP). Madison: University of Wisconsin.

McCubbin, H. I., Patterson, J. M., & Glynn, T. (1982). Social support index. Madison: University of Wisconsin.

McCubbin, H. I., Patterson, J. M., & Wilson, L. (1979). Family inventory of life events (FILE). Madison: University of Wisconsin.

Mullins, L. L., Chaney, J. M., Hartman, V. L., Olson, R. A., Youll, L. K., Reyes, S., et al. (1995). Child and maternal adaptation to cystic fibrosis and insulin-dependent diabetes: Differential patterns across disease states. Journal of Pediatric Psychology, 20, 173–186.PubMedCrossRef

Mullins, L. L., Olson, R. A., Reyes, S., Bernardy, N., Huszti, H. C., & Volk, R. J. (1991). Risk and resistance factors in the adjustment of mothers of children with cystic fibrosis. Journal of Pediatric Psychology, 16, 701–715.PubMedCrossRef

Olson, D. H., Portner, J., & Bell, R. (1982). FACES II: Family adaptability and cohesion evaluation scales. St. Paul: Family Social Science, University of Minnesota.

Quittner, A. L., DiGirolamo, A. M., Michel, M., & Eigen, H. (1992). Parental response to cystic fibrosis: A contextual analysis of the diagnostic phase. Journal of Pediatric Psychology, 17, 683–704.PubMedCrossRef

Rodick, J. D., Henggeler S. W., & Hanson, C. L. (1986). An evaluation of the family adaptability and cohesion evaluation scales and the circumplex model. Journal of Abnormal Child Psychology, 14, 77–87.PubMedCrossRef

Saddler, A. L., Hillman, S. B., & Benjamins, D. (1993). The influence of disabling condition visibility on family functioning. Journal of Pediatric Psychology, 18, 425–439.PubMedCrossRef

Seiffge-Krenke, I. (2002). ‘Come on, say something Dad!’: Communication and coping in fathers of diabetic adolescents. Journal of Pediatric Psychology, 27, 439–450.PubMedCrossRef

Stein, R. E. K., & Jessop, D. J. (1989). What diagnosis does not tell: The case for a noncategorical approach to chronic disease in childhood. Social Science Medicine, 29, 769–778.PubMedCrossRef

Timko, C., Stovel, K. V., & Moos, R. H. (1992). Functioning among mothers and fathers of children with juvenile rheumatic disease: A longitudinal study. Journal of Pediatric Psychology, 17, 705–724.PubMedCrossRef

Walker, L. S., Van Slyke, D. A., & Newbrough, J. R. (1992). Family resources and stress: A comparison of families of children with cystic fibrosis, diabetes and mental retardation. Journal of Pediatric Psychology, 17, 327–343.PubMedCrossRef

Wallander, J. L., & Varni, J. W. (1998). Effects of pediatric chronic physical disorders on child and family adjustment. Journal of Child Psychology and Psychiatry, 39, 29–46.PubMedCrossRef

Wallander, J. L., Varni, J. W., Babani, L., Banis, H. T., & Wilcox, K. T. (1989a). Family resources as resistance factors for psychological maladjustment in chronically ill and handicapped children. Journal of Pediatric Psychology, 14, 157–173.PubMedCrossRef

Wallander, J. L., Varni, J. W., Babani, L., DeHaan, C. B., Wilcox, K. T., & Banis, H. T. (1989b). The social environment and the adjustment of mothers of physically handicapped children. Journal of Pediatric Psychology, 14, 371–387.PubMedCrossRef

Title: Correlates of Maternal and Paternal Adjustment to Chronic Childhood Disease
Authors: Deborah Dewey
Susan G. Crawford
Publication date: 01-09-2007
Publisher: Springer US
Published in: Journal of Clinical Psychology in Medical Settings / Issue 3/2007
Print ISSN: 1068-9583
Electronic ISSN: 1573-3572
DOI: https://doi.org/10.1007/s10880-007-9069-4

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