Skip to main content
Top
Published in: Health Care Analysis 1/2012

01-03-2012 | Original Article

Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement

Authors: Pier Jaarsma, Stellan Welin

Published in: Health Care Analysis | Issue 1/2012

Login to get access

Abstract

Neurodiversity has remained a controversial concept over the last decade. In its broadest sense the concept of neurodiversity regards atypical neurological development as a normal human difference. The neurodiversity claim contains at least two different aspects. The first aspect is that autism, among other neurological conditions, is first and foremost a natural variation. The other aspect is about conferring rights and in particular value to the neurodiversity condition, demanding recognition and acceptance. Autism can be seen as a natural variation on par with for example homosexuality. The broad version of the neurodiversity claim, covering low-functioning as well as high-functioning autism, is problematic. Only a narrow conception of neurodiversity, referring exclusively to high-functioning autists, is reasonable. We will discuss the effects of DSM categorization and the medical model for high functioning autists. After a discussion of autism as a culture we will analyze various possible strategies for the neurodiversity movement to claim extra resources for autists as members of an underprivileged culture without being labelled disabled or as having a disorder. We will discuss their vulnerable status as a group and what obligation that confers on the majority of neurotypicals.
Literature
1.
go back to reference Allred, S. (2009). Reframing Asperger syndrome: Lessons from other challenges to the diagnostic and statistical manual and ICIDH approaches. Disability and Society, 24(3), 343–355.CrossRef Allred, S. (2009). Reframing Asperger syndrome: Lessons from other challenges to the diagnostic and statistical manual and ICIDH approaches. Disability and Society, 24(3), 343–355.CrossRef
2.
go back to reference Baker, D. L. (2006). Neurodiversity, neurological disability and the public sector: notes on the autism spectrum. Disability and Society, 21(1), 15–29.CrossRef Baker, D. L. (2006). Neurodiversity, neurological disability and the public sector: notes on the autism spectrum. Disability and Society, 21(1), 15–29.CrossRef
3.
go back to reference Baron-Cohen, S. (2002). Is Asperger syndrome necessarily viewed as a disability? Focus on autism and other developmental disabilities, 17(3), 186–191.CrossRef Baron-Cohen, S. (2002). Is Asperger syndrome necessarily viewed as a disability? Focus on autism and other developmental disabilities, 17(3), 186–191.CrossRef
4.
go back to reference Broderick, A. A. (2008). Autism as metaphor: Narrative and counter-narrative. International Journal of Inclusive Education, 12(5), 459–476.CrossRef Broderick, A. A. (2008). Autism as metaphor: Narrative and counter-narrative. International Journal of Inclusive Education, 12(5), 459–476.CrossRef
5.
go back to reference Brownlow, C., & O’Dell, L. (2009). Challenging understandings of theory of mind: A brief report. Intellectual and developmental disabilities, 47(6), 473–478.PubMedCrossRef Brownlow, C., & O’Dell, L. (2009). Challenging understandings of theory of mind: A brief report. Intellectual and developmental disabilities, 47(6), 473–478.PubMedCrossRef
6.
go back to reference Davidson, J. (2008). Autistic culture online: Virtual communication and cultural expression on the spectrum. Social and Cultural Geography, 9(7), 791–806.CrossRef Davidson, J. (2008). Autistic culture online: Virtual communication and cultural expression on the spectrum. Social and Cultural Geography, 9(7), 791–806.CrossRef
7.
go back to reference Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health and Illness, 31(7), 1011–1027.PubMedCrossRef Farrugia, D. (2009). Exploring stigma: Medical knowledge and the stigmatisation of parents of children diagnosed with autism spectrum disorder. Sociology of Health and Illness, 31(7), 1011–1027.PubMedCrossRef
8.
go back to reference Fenton, A., & Krahn, T. (2007). Autism, neurodiversity and equality beyond the ‘normal’. Journal of Ethics in Mental Health, 2(2), 1–6. Fenton, A., & Krahn, T. (2007). Autism, neurodiversity and equality beyond the ‘normal’. Journal of Ethics in Mental Health, 2(2), 1–6.
9.
go back to reference Fitzgerald, M., & O’Brien, B. (2007). Genius genes. How Asperger talents changed the world. Shawnee Mission/Autism Asperger Publishing Company. Fitzgerald, M., & O’Brien, B. (2007). Genius genes. How Asperger talents changed the world. Shawnee Mission/Autism Asperger Publishing Company.
10.
go back to reference Goodin, R. E. (1985). Protecting the vulnerable: A reanalysis of our social responsibilities. Chicago: The University of Chicago Press. Goodin, R. E. (1985). Protecting the vulnerable: A reanalysis of our social responsibilities. Chicago: The University of Chicago Press.
11.
go back to reference Grandin, T. (2006). Thinking in pictures and other reports from my life with autism. London: Bloomsbury. Grandin, T. (2006). Thinking in pictures and other reports from my life with autism. London: Bloomsbury.
12.
go back to reference Griffin, E., & Pollak, D. (2009). Student experiences of neurodiversity in higher education: Insights from the BRAINHE Project. Dyslexia, 15, 23–41.PubMedCrossRef Griffin, E., & Pollak, D. (2009). Student experiences of neurodiversity in higher education: Insights from the BRAINHE Project. Dyslexia, 15, 23–41.PubMedCrossRef
13.
go back to reference Jones, R. S. P., Zahl, A., & Huws, J. C. (2001). First-hand accounts of emotional experiences in autism: A qualitative analysis. Disability and Society, 16(3), 393–401.CrossRef Jones, R. S. P., Zahl, A., & Huws, J. C. (2001). First-hand accounts of emotional experiences in autism: A qualitative analysis. Disability and Society, 16(3), 393–401.CrossRef
14.
go back to reference Jurecic, A. (2006). Mind-blindness: Autism, writing, and the problem of empathy. Literature and Medicine, 25(1), 1–23.PubMedCrossRef Jurecic, A. (2006). Mind-blindness: Autism, writing, and the problem of empathy. Literature and Medicine, 25(1), 1–23.PubMedCrossRef
15.
go back to reference Kymlicka, W. (1996). Multicultural citizenship: A liberal theory of minority rights (pp. 107–110). Oxford: Oxford University Press. Kymlicka, W. (1996). Multicultural citizenship: A liberal theory of minority rights (pp. 107–110). Oxford: Oxford University Press.
16.
go back to reference Lawson, W. (2009). Single attention and associated cognition in autism (SAACA). PhD thesis Deakin University. Lawson, W. (2009). Single attention and associated cognition in autism (SAACA). PhD thesis Deakin University.
18.
go back to reference McGeer, V. (2004). Autistic self-awareness. Philosophy Psychiatry and Psychology, 11(3), 253–254.CrossRef McGeer, V. (2004). Autistic self-awareness. Philosophy Psychiatry and Psychology, 11(3), 253–254.CrossRef
19.
go back to reference Moy, S. S., & Nadler, J. J. (2008). Advances in behavioral genetics: Mouse models of autism. Molecular Psychiatry, 13, 4–26.PubMedCrossRef Moy, S. S., & Nadler, J. J. (2008). Advances in behavioral genetics: Mouse models of autism. Molecular Psychiatry, 13, 4–26.PubMedCrossRef
21.
go back to reference Nordenfelt, L. (1987). On the nature of health. Dordrecht: Reidel. Nordenfelt, L. (1987). On the nature of health. Dordrecht: Reidel.
22.
go back to reference Ortega, F. (2009). The cerebral subject and the challenge of neurodiversity. Biosciences, 4, 425–445. Ortega, F. (2009). The cerebral subject and the challenge of neurodiversity. Biosciences, 4, 425–445.
23.
go back to reference Parens, E., & Asch, A. (2003). Disability rights critique of prenatal genetic testing: Reflections and recommendations. Mental retardation and developmental disabilities, 9, 40–47.CrossRef Parens, E., & Asch, A. (2003). Disability rights critique of prenatal genetic testing: Reflections and recommendations. Mental retardation and developmental disabilities, 9, 40–47.CrossRef
24.
go back to reference Ruof, M. C. (2004). Vulnerability, vulnerable populations, and policy. Kennedy Institute of Ethics Journal, 14(4), 411–425.PubMedCrossRef Ruof, M. C. (2004). Vulnerability, vulnerable populations, and policy. Kennedy Institute of Ethics Journal, 14(4), 411–425.PubMedCrossRef
25.
go back to reference Schroeder, D., & Gefenas, E. (2009). Vulnerability: Too vague and too broad? Cambridge Quarterly of Healthcare Ethics, 18, 113–121.PubMedCrossRef Schroeder, D., & Gefenas, E. (2009). Vulnerability: Too vague and too broad? Cambridge Quarterly of Healthcare Ethics, 18, 113–121.PubMedCrossRef
26.
go back to reference Singer, J. (1999). ‘Why can’t you be normal for once in your life?’ From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability and discourse. Buckingham/Philadelphia: Open University Press. Singer, J. (1999). ‘Why can’t you be normal for once in your life?’ From a ‘problem with no name’ to the emergence of a new category of difference. In M. Corker & S. French (Eds.), Disability and discourse. Buckingham/Philadelphia: Open University Press.
27.
go back to reference Williams, D. (2002). Exposure anxiety–The invisible cage: An exploration of self-protection responses in the autism spectrum, Jessica Kingsley Publishers. Williams, D. (2002). Exposure anxietyThe invisible cage: An exploration of self-protection responses in the autism spectrum, Jessica Kingsley Publishers.
28.
go back to reference Wing, L. (1997). The autistic spectrum. The Lancet, 350(9093), 1761–1766.CrossRef Wing, L. (1997). The autistic spectrum. The Lancet, 350(9093), 1761–1766.CrossRef
Metadata
Title
Autism as a Natural Human Variation: Reflections on the Claims of the Neurodiversity Movement
Authors
Pier Jaarsma
Stellan Welin
Publication date
01-03-2012
Publisher
Springer US
Published in
Health Care Analysis / Issue 1/2012
Print ISSN: 1065-3058
Electronic ISSN: 1573-3394
DOI
https://doi.org/10.1007/s10728-011-0169-9

Other articles of this Issue 1/2012

Health Care Analysis 1/2012 Go to the issue