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Published in: AIDS and Behavior 1/2019

01-01-2019 | Original Paper

Lost to Care and Back Again: Patient and Navigator Perspectives on HIV Care Re-engagement

Authors: Heather E. Parnell, Miriam B. Berger, Margaret W. Gichane, Anna F. LeViere, Kristen A. Sullivan, Jacquelyn M. Clymore, Evelyn Byrd Quinlivan

Published in: AIDS and Behavior | Special Issue 1/2019

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Abstract

Engagement in HIV care is critical to achieve viral suppression and ultimately improve health outcomes for people living with HIV (PLWH). However, maintaining their engagement in care is often a challenging goal. Utilizing patient navigators, trained in an adapted ARTAS intervention, to help re-engage out-of-care PLWH has proven to be a valuable resource. This qualitative study describes the encounters between PLWH (n = 11) and their care re-engagement navigators (n = 9). Participants were interviewed in-person; interviews were transcribed and analyzed using the strengths model of case management. PLWH shared how working with navigators increased their motivation to return to HIV care and assisted them to overcome barriers that were a hindrance to care engagement. Navigators described a strengths-based approach to working with their clients, thus helping facilitate PLWH care re-engagement goals and successes. Results from this study may inform the development of effective HIV navigation programs to re-engage out-of-care PLWH, often the hardest-to-engage.
Literature
2.
go back to reference Bradley H, Hall HI, Wolitski RJ, et al. Vital Signs: HIV diagnosis, care, and treatment among persons living with HIV—United States, 2011. Morb Mortal Wkly Rep. 2014;63(47):1113–7. Bradley H, Hall HI, Wolitski RJ, et al. Vital Signs: HIV diagnosis, care, and treatment among persons living with HIV—United States, 2011. Morb Mortal Wkly Rep. 2014;63(47):1113–7.
3.
go back to reference Gardner EM, McLees MP, Steiner JF, del Rio C, Burman WJ. The spectrum of engagement in HIV care and its relevance to test-and-treat strategies for prevention of HIV infection. Clin Infect Dis. 2011;52(6):793–800.CrossRefPubMedPubMedCentral Gardner EM, McLees MP, Steiner JF, del Rio C, Burman WJ. The spectrum of engagement in HIV care and its relevance to test-and-treat strategies for prevention of HIV infection. Clin Infect Dis. 2011;52(6):793–800.CrossRefPubMedPubMedCentral
4.
go back to reference Dombrowski JC, Kitahata MM, Van Rompaey SE, et al. High levels of antiretroviral use and viral suppression among persons in HIV care in the United States, 2010. J Acquir Immune Defic Syndr. 2013;63(3):299–306.CrossRefPubMedPubMedCentral Dombrowski JC, Kitahata MM, Van Rompaey SE, et al. High levels of antiretroviral use and viral suppression among persons in HIV care in the United States, 2010. J Acquir Immune Defic Syndr. 2013;63(3):299–306.CrossRefPubMedPubMedCentral
5.
go back to reference Cohen MS, Smith MK, Muessig KE, Hallett TB, Powers KA, Kashuba AD. Antiretroviral treatment of HIV-1 prevents transmission of HIV-1: where do we go from here? Lancet. 2013;382(9903):1515–24.CrossRefPubMed Cohen MS, Smith MK, Muessig KE, Hallett TB, Powers KA, Kashuba AD. Antiretroviral treatment of HIV-1 prevents transmission of HIV-1: where do we go from here? Lancet. 2013;382(9903):1515–24.CrossRefPubMed
6.
go back to reference Horstmann E, Brown J, Islam F, Buck J, Agins BD. Retaining HIV-infected patients in care: Where are we? Where do we go from here? Clin Infect Dis. 2010;50(5):752–61.PubMed Horstmann E, Brown J, Islam F, Buck J, Agins BD. Retaining HIV-infected patients in care: Where are we? Where do we go from here? Clin Infect Dis. 2010;50(5):752–61.PubMed
7.
go back to reference Mugavero MJ, Lin H-Y, Willig JH, et al. Missed visits and mortality among patients establishing initial outpatient HIV treatment. Clin Infect Dis. 2009;48(2):248–56.CrossRefPubMed Mugavero MJ, Lin H-Y, Willig JH, et al. Missed visits and mortality among patients establishing initial outpatient HIV treatment. Clin Infect Dis. 2009;48(2):248–56.CrossRefPubMed
8.
go back to reference Cheever LW. Engaging HIV-infected patients in care: their lives depend on it. Clin Infect Dis. 2007;44(11):1500–2.CrossRefPubMed Cheever LW. Engaging HIV-infected patients in care: their lives depend on it. Clin Infect Dis. 2007;44(11):1500–2.CrossRefPubMed
9.
go back to reference Giordano TP, Gifford AL, White AC, et al. Retention in care: a challenge to survival with HIV infection. Clin Infect Dis. 2007;44(11):1493–9.CrossRefPubMed Giordano TP, Gifford AL, White AC, et al. Retention in care: a challenge to survival with HIV infection. Clin Infect Dis. 2007;44(11):1493–9.CrossRefPubMed
10.
go back to reference Horberg MA, Hurley LB, Silverberg MJ, Klein DB, Quesenberry CP, Mugavero MJ. Missed office visits and risk of mortality among HIV-infected subjects in a large healthcare system in the United States. AIDS Patient Care STDS. 2013;27(8):442–9.CrossRefPubMedPubMedCentral Horberg MA, Hurley LB, Silverberg MJ, Klein DB, Quesenberry CP, Mugavero MJ. Missed office visits and risk of mortality among HIV-infected subjects in a large healthcare system in the United States. AIDS Patient Care STDS. 2013;27(8):442–9.CrossRefPubMedPubMedCentral
11.
go back to reference Mugavero MJ, Westfall AO, Cole SR, et al. Beyond core indicators of retention in HIV care: missed clinic visits are independently associated with all-cause mortality. Clin Infect Dis. 2014;59(10):1471–9.CrossRefPubMedPubMedCentral Mugavero MJ, Westfall AO, Cole SR, et al. Beyond core indicators of retention in HIV care: missed clinic visits are independently associated with all-cause mortality. Clin Infect Dis. 2014;59(10):1471–9.CrossRefPubMedPubMedCentral
12.
go back to reference Stricker SM, Fox KA, Baggaley R, et al. Retention in care and adherence to ART are critical elements of HIV care interventions. AIDS Behav. 2013;18(Suppl 5):S465–75. Stricker SM, Fox KA, Baggaley R, et al. Retention in care and adherence to ART are critical elements of HIV care interventions. AIDS Behav. 2013;18(Suppl 5):S465–75.
13.
go back to reference Saleebey D. The strengths perspective in social work practice: extensions and cautions. Soc Work. 1996;41(3):296–305.PubMed Saleebey D. The strengths perspective in social work practice: extensions and cautions. Soc Work. 1996;41(3):296–305.PubMed
14.
go back to reference Fukui S, Goscha R, Rapp CA, Mabry A, Liddy P, Marty D. Strengths model case management fidelity scores and client outcomes. Psychiatr Serv. 2012;63(7):708–10.CrossRefPubMed Fukui S, Goscha R, Rapp CA, Mabry A, Liddy P, Marty D. Strengths model case management fidelity scores and client outcomes. Psychiatr Serv. 2012;63(7):708–10.CrossRefPubMed
15.
go back to reference Marty D, Rapp CA, Carlson L. The experts speak: the critical ingredients of strengths model case management. Psychiatr Rehabil J. 2001;24(3):214–21.CrossRefPubMed Marty D, Rapp CA, Carlson L. The experts speak: the critical ingredients of strengths model case management. Psychiatr Rehabil J. 2001;24(3):214–21.CrossRefPubMed
16.
go back to reference Gardner LI, Metsch LR, Anderson-Mahoney P, et al. Efficacy of a brief case management intervention to link recently diagnosed HIV-infected persons to care. AIDS. 2005;19(4):423–31.CrossRefPubMed Gardner LI, Metsch LR, Anderson-Mahoney P, et al. Efficacy of a brief case management intervention to link recently diagnosed HIV-infected persons to care. AIDS. 2005;19(4):423–31.CrossRefPubMed
17.
go back to reference Craw JA, Gardner LI, Marks G, et al. Brief strengths-based case management promotes entry into HIV medical care: results of the antiretroviral treatment access study-II. J Acquir Immune Defic Syndr. 2008;47(5):597–606.CrossRefPubMed Craw JA, Gardner LI, Marks G, et al. Brief strengths-based case management promotes entry into HIV medical care: results of the antiretroviral treatment access study-II. J Acquir Immune Defic Syndr. 2008;47(5):597–606.CrossRefPubMed
18.
go back to reference Bradford JB, Coleman S, Cunningham W. HIV System Navigation: an emerging model to improve HIV care access. AIDS Patient Care STDS. 2007;21(S1):S-49–58.CrossRef Bradford JB, Coleman S, Cunningham W. HIV System Navigation: an emerging model to improve HIV care access. AIDS Patient Care STDS. 2007;21(S1):S-49–58.CrossRef
19.
go back to reference Rajabiun S, Mallinson RK, McCoy K, et al. Getting me back on track: the role of outreach interventions in engaging and retaining people living with HIV/AIDS in medical care. AIDS Patient Care STDS. 2007;21(Suppl 1):S20–9.CrossRefPubMed Rajabiun S, Mallinson RK, McCoy K, et al. Getting me back on track: the role of outreach interventions in engaging and retaining people living with HIV/AIDS in medical care. AIDS Patient Care STDS. 2007;21(Suppl 1):S20–9.CrossRefPubMed
20.
go back to reference Higa D, Crepaz N, Mullins M. Identifying best practices for increasing linkage to, retention, and re-engagement in HIV medical care: findings from a systematic review, 1996–2014. AIDS Behav. 2015;20(5):951–66.CrossRef Higa D, Crepaz N, Mullins M. Identifying best practices for increasing linkage to, retention, and re-engagement in HIV medical care: findings from a systematic review, 1996–2014. AIDS Behav. 2015;20(5):951–66.CrossRef
21.
go back to reference Maulsby C, Charles V, Kinsky S, Riordan M, Jain K, Holtgrave D. Positive charge: filling the gaps in the U.S. HIV continuum of care. AIDS Behav. 2015;19(11):2097–107.CrossRefPubMed Maulsby C, Charles V, Kinsky S, Riordan M, Jain K, Holtgrave D. Positive charge: filling the gaps in the U.S. HIV continuum of care. AIDS Behav. 2015;19(11):2097–107.CrossRefPubMed
22.
go back to reference Wohl AR, Dierst-Davies R, Victoroff A, et al. Implementation and operational research: the navigation program: an intervention to reengage lost patients at 7 HIV clinics in Los Angeles County, 2012–2014. J Acquir Immune Defic Syndr. 2016;71(2):e44–50.CrossRefPubMed Wohl AR, Dierst-Davies R, Victoroff A, et al. Implementation and operational research: the navigation program: an intervention to reengage lost patients at 7 HIV clinics in Los Angeles County, 2012–2014. J Acquir Immune Defic Syndr. 2016;71(2):e44–50.CrossRefPubMed
23.
go back to reference Swygard H, Seña AC, Mobley V, et al. Implementation of statewide team to facilitate linkage and re-engagement in HIV care in North Carolina. N C Med J. (accepted for publication). Swygard H, Seña AC, Mobley V, et al. Implementation of statewide team to facilitate linkage and re-engagement in HIV care in North Carolina. N C Med J. (accepted for publication).
24.
go back to reference Christopoulos KA, Olender S, Lopez AM, et al. Retained in HIV care but not on antiretroviral treatment: a qualitative patient-provider dyadic study. PLoS Med. 2015;12(8):e1001863.CrossRefPubMedPubMedCentral Christopoulos KA, Olender S, Lopez AM, et al. Retained in HIV care but not on antiretroviral treatment: a qualitative patient-provider dyadic study. PLoS Med. 2015;12(8):e1001863.CrossRefPubMedPubMedCentral
25.
go back to reference Gruber D, Campos P, Dutcher M, et al. Linking recently diagnosed HIV-positive persons to medical care: perspectives of referring providers. AIDS Care. 2011;23(1):16–24.CrossRefPubMed Gruber D, Campos P, Dutcher M, et al. Linking recently diagnosed HIV-positive persons to medical care: perspectives of referring providers. AIDS Care. 2011;23(1):16–24.CrossRefPubMed
26.
go back to reference Brun C, Rapp RC. Strengths-based case management: individuals’ perspectives on strengths and the case manager relationship. Soc Work. 2001;46(3):278–88.CrossRefPubMed Brun C, Rapp RC. Strengths-based case management: individuals’ perspectives on strengths and the case manager relationship. Soc Work. 2001;46(3):278–88.CrossRefPubMed
28.
go back to reference Hedlund N, Risendal BC, Pauls H, et al. Dissemination of patient navigation programs across the United States. J Public Health Manag Pract. 2014;20(4):E15–24.CrossRefPubMed Hedlund N, Risendal BC, Pauls H, et al. Dissemination of patient navigation programs across the United States. J Public Health Manag Pract. 2014;20(4):E15–24.CrossRefPubMed
29.
go back to reference Koester KA, Morewitz M, Pearson C, et al. Patient navigation facilitates medical and social services engagement among HIV-infected individuals leaving jail and returning to the community. AIDS Patient Care STDS. 2014;28(2):82–90.CrossRefPubMedPubMedCentral Koester KA, Morewitz M, Pearson C, et al. Patient navigation facilitates medical and social services engagement among HIV-infected individuals leaving jail and returning to the community. AIDS Patient Care STDS. 2014;28(2):82–90.CrossRefPubMedPubMedCentral
30.
go back to reference Vargas RB, Cunningham WE. Evolving trends in medical care-coordination for patients with HIV and AIDS. Curr HIV/AIDS Rep. 2006;3(4):149–53.CrossRefPubMed Vargas RB, Cunningham WE. Evolving trends in medical care-coordination for patients with HIV and AIDS. Curr HIV/AIDS Rep. 2006;3(4):149–53.CrossRefPubMed
31.
go back to reference Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.CrossRef Guest G, Bunce A, Johnson L. How many interviews are enough?: an experiment with data saturation and variability. Field Methods. 2006;18(1):59–82.CrossRef
Metadata
Title
Lost to Care and Back Again: Patient and Navigator Perspectives on HIV Care Re-engagement
Authors
Heather E. Parnell
Miriam B. Berger
Margaret W. Gichane
Anna F. LeViere
Kristen A. Sullivan
Jacquelyn M. Clymore
Evelyn Byrd Quinlivan
Publication date
01-01-2019
Publisher
Springer US
Published in
AIDS and Behavior / Issue Special Issue 1/2019
Print ISSN: 1090-7165
Electronic ISSN: 1573-3254
DOI
https://doi.org/10.1007/s10461-017-1919-y

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