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Published in: Clinical Rheumatology 5/2016

01-05-2016 | Original Article

Barriers to accessing the culturally sensitive healthcare that could decrease the disabling effects of arthritis in a rural Mayan community: a qualitative inquiry

Authors: Adalberto Loyola-Sanchez, Julie Richardson, Seanne Wilkins, John N. Lavis, Michael G. Wilson, Jose Alvarez-Nemegyei, Ingris Pelaez-Ballestas

Published in: Clinical Rheumatology | Issue 5/2016

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Abstract

The impact of living with arthritis in a rural Mexican Mayan community along with the barriers encountered by people living with this chronic condition were investigated in this study. The community needs around this health issue were investigated by conducting an ethnographic study using data obtained during two time periods (August 2012–April 2013 and December 2013–December 2014). During the first period, fieldwork observations and interviews with 65 individuals, which included people with arthritis, health professionals, traditional health providers, and community leaders were undertaken. During the second period, 46 community meetings were conducted to identify the needs associated with arthritis in the municipality. Data were analyzed following a modified version of the Framework approach. The results show that arthritis reduces the health-related quality of life of the people in Chankom through a process of disablement, conditioning a need to access culturally sensitive healthcare. Availability, attainability, and acceptability barriers prevent access to this type of healthcare and result from power imbalance between indigenous and non-indigenous people. There is a need to develop culturally sensitive rehabilitation services for people living with arthritis in Chankom. Mayan people should be involved in the design and implementation of these services. Moreover, it is important to improve our understanding of the processes behind the healthcare access inequities identified in this study by attending to the historical generation of current social, economical, cultural, and political structures.
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Footnotes
1
A mecate is a measurement of area commonly used by the Mayans. One mecate equals to 20 m2.
 
2
The milpa is a popular term among the Mayans used to refer to all of their usual agricultural activities.
 
Literature
1.
go back to reference Reginster JY (2002) The prevalence and burden of arthritis. Rheumatology (Oxford, England) 41:3–6CrossRef Reginster JY (2002) The prevalence and burden of arthritis. Rheumatology (Oxford, England) 41:3–6CrossRef
2.
go back to reference Arthritis Community Research and Evaluation Unit (2013) Arthritis in Canada. CAN2013-1 Arthritis Community Research and Evaluation Unit (2013) Arthritis in Canada. CAN2013-1
3.
go back to reference Gabriel SE, Crowson CS, O’Fallon WM (1995) Costs of osteoarthritis: estimates from a geographically defined population. J Rheumatol Suppl 43:23–25PubMed Gabriel SE, Crowson CS, O’Fallon WM (1995) Costs of osteoarthritis: estimates from a geographically defined population. J Rheumatol Suppl 43:23–25PubMed
5.
go back to reference Baldassari AR, Cleveland RJ, Callahan LF (2013) Independent influences of current and childhood socioeconomic status on health outcomes in a North Carolina family practice sample of arthritis patients. 65:1334–1342 Baldassari AR, Cleveland RJ, Callahan LF (2013) Independent influences of current and childhood socioeconomic status on health outcomes in a North Carolina family practice sample of arthritis patients. 65:1334–1342
6.
go back to reference Alvarez-Hernandez E, Pelaez-Ballestas I, Boonen A et al (2012) Catastrophic health expenses and impoverishment of households of patients with rheumatoid arthritis. Reumatol Clin 8:168–173CrossRefPubMed Alvarez-Hernandez E, Pelaez-Ballestas I, Boonen A et al (2012) Catastrophic health expenses and impoverishment of households of patients with rheumatoid arthritis. Reumatol Clin 8:168–173CrossRefPubMed
7.
go back to reference Rodriguez-Amado J, Moreno-Montoya J, Alvarez-Nemegyei J et al (2014) The social gap index and the prevalence of osteoarthritis in the community: a cross-sectional multilevel study in Mexico. Clin Rheumatol. doi:10.1007/s10067-014-2776-y PubMed Rodriguez-Amado J, Moreno-Montoya J, Alvarez-Nemegyei J et al (2014) The social gap index and the prevalence of osteoarthritis in the community: a cross-sectional multilevel study in Mexico. Clin Rheumatol. doi:10.​1007/​s10067-014-2776-y PubMed
8.
go back to reference Targa LV, Couper ID, Worley P (2014) A new ally for the promotion of better rural health in Latin America. Rural Remote Health 14:3376PubMed Targa LV, Couper ID, Worley P (2014) A new ally for the promotion of better rural health in Latin America. Rural Remote Health 14:3376PubMed
9.
go back to reference Montenegro RA, Stephens C (2006) Indigenous health in Latin America and the Caribbean. Lancet 367:1859–1869CrossRefPubMed Montenegro RA, Stephens C (2006) Indigenous health in Latin America and the Caribbean. Lancet 367:1859–1869CrossRefPubMed
10.
go back to reference Loyola Sanchez A, Richardson J, Pelaez-Ballestas I et al (2014) Developing community-based rehabilitation programs for musculoskeletal diseases in low-income areas of Mexico: the community-based rehabilitation for low-income communities living with rheumatic diseases (CONCORD) protocol. JMIR Res Protoc 3:e57CrossRefPubMedPubMedCentral Loyola Sanchez A, Richardson J, Pelaez-Ballestas I et al (2014) Developing community-based rehabilitation programs for musculoskeletal diseases in low-income areas of Mexico: the community-based rehabilitation for low-income communities living with rheumatic diseases (CONCORD) protocol. JMIR Res Protoc 3:e57CrossRefPubMedPubMedCentral
11.
go back to reference INEGI (2005) 11 Conteo de Población y Vivienda INEGI (2005) 11 Conteo de Población y Vivienda
12.
go back to reference Consejo Nacional de Evaluación de la Política de Desarrollo Social (2014) Informe Anual sobre la Situación de Pobreza y Rezago Social. Chankom, Yucatán. [Annual inform on the Poverty and Social Lag Situation. Chankom, Yucatán]. Yucatán_017 Consejo Nacional de Evaluación de la Política de Desarrollo Social (2014) Informe Anual sobre la Situación de Pobreza y Rezago Social. Chankom, Yucatán. [Annual inform on the Poverty and Social Lag Situation. Chankom, Yucatán]. Yucatán_017
13.
go back to reference Frenk J, Gonzalez-Pier E, Gomez-Dantes O, Lezana MA, Knaul FM (2007) Comprehensive reform to improve health system performance in Mexico. Salud Publica Mex 49:S23–S36CrossRefPubMed Frenk J, Gonzalez-Pier E, Gomez-Dantes O, Lezana MA, Knaul FM (2007) Comprehensive reform to improve health system performance in Mexico. Salud Publica Mex 49:S23–S36CrossRefPubMed
14.
go back to reference Berger PL, Luckmann T (1966) The social construction of reality. Anchor, NY Berger PL, Luckmann T (1966) The social construction of reality. Anchor, NY
15.
go back to reference Hammersley M, Atkinson P (1995) Ethnography. principles in practice. Routledge, NY Hammersley M, Atkinson P (1995) Ethnography. principles in practice. Routledge, NY
16.
go back to reference Kleinman A (1980) Orientations 3. core clinical functions and explanatory models. In: Leslie C (ed) Patients and healers in the context of culture. University of California Press, London, pp 71–118 Kleinman A (1980) Orientations 3. core clinical functions and explanatory models. In: Leslie C (ed) Patients and healers in the context of culture. University of California Press, London, pp 71–118
17.
go back to reference Kleinman A (1980) Orientations 2:culture, health care systems, and clinical reality. In: Leslie C (ed) Patients and healers in the context of culture, 1st edn. University of California Press, London, pp 24–70 Kleinman A (1980) Orientations 2:culture, health care systems, and clinical reality. In: Leslie C (ed) Patients and healers in the context of culture, 1st edn. University of California Press, London, pp 24–70
19.
go back to reference Ritchie J, Spencer L (2002) Qualitative data analysis for applied policy research. In: Huberman AM, Miles MB (eds) The qualitative researcher’s companion. Sage, Thousand Oaks, pp 305–330 Ritchie J, Spencer L (2002) Qualitative data analysis for applied policy research. In: Huberman AM, Miles MB (eds) The qualitative researcher’s companion. Sage, Thousand Oaks, pp 305–330
20.
go back to reference Hammersley M, Atkinson P (2007) The process of analysis. In: Hammersley M, Atkinson P (eds) Ethnography. principles in practice, 3rd edn. Routledge, NY, pp 158–190 Hammersley M, Atkinson P (2007) The process of analysis. In: Hammersley M, Atkinson P (eds) Ethnography. principles in practice, 3rd edn. Routledge, NY, pp 158–190
22.
go back to reference Larkin PJ, Dierckx de Casterle B, Schotsmans P (2007) Multilingual translation issues in qualitative research: reflections on a metaphorical process. Qual Health Res 17:468–476CrossRefPubMed Larkin PJ, Dierckx de Casterle B, Schotsmans P (2007) Multilingual translation issues in qualitative research: reflections on a metaphorical process. Qual Health Res 17:468–476CrossRefPubMed
23.
25.
go back to reference World Health Organization (2001) International classification of functioning, disability, and health. World Health Organization, Geneva World Health Organization (2001) International classification of functioning, disability, and health. World Health Organization, Geneva
27.
go back to reference Redfield R, Villa Rojas A (1934) Chankom. A Mayan village. University of Chicago Press, USA Redfield R, Villa Rojas A (1934) Chankom. A Mayan village. University of Chicago Press, USA
28.
go back to reference Ferrans CE, Johnson Zerwic J, Ellen Wilbur J, Larson JL (2005) Conceptual model of health-related quality of life. J Nurs Scholarsh 37:336–342CrossRefPubMed Ferrans CE, Johnson Zerwic J, Ellen Wilbur J, Larson JL (2005) Conceptual model of health-related quality of life. J Nurs Scholarsh 37:336–342CrossRefPubMed
29.
go back to reference Stack RJ, Sahni M, Mallen CD, Raza K (2013) Symptom complexes at the earliest phases of rheumatoid arthritis: a synthesis of the qualitative literature. Arthrit Care Res (Hoboken) 65:1916–1926CrossRef Stack RJ, Sahni M, Mallen CD, Raza K (2013) Symptom complexes at the earliest phases of rheumatoid arthritis: a synthesis of the qualitative literature. Arthrit Care Res (Hoboken) 65:1916–1926CrossRef
30.
go back to reference Matheson L, Harcourt D, Hewlett S (2010) ‘Your whole life, your whole world, it changes’: partners’ experiences of living with rheumatoid arthritis. Musculoskelet Care 8:46–54CrossRef Matheson L, Harcourt D, Hewlett S (2010) ‘Your whole life, your whole world, it changes’: partners’ experiences of living with rheumatoid arthritis. Musculoskelet Care 8:46–54CrossRef
31.
go back to reference Victor CR, Ross F, Axford J (2004) Capturing lay perspectives in a randomized control trial of a health promotion intervention for people with osteoarthritis of the knee. J Eval Clin Pract 10:63–70CrossRefPubMed Victor CR, Ross F, Axford J (2004) Capturing lay perspectives in a randomized control trial of a health promotion intervention for people with osteoarthritis of the knee. J Eval Clin Pract 10:63–70CrossRefPubMed
32.
go back to reference Eyckmans L, Hilderson D, Westhovens R, Wouters C, Moons P (2011) What does it mean to grow up with juvenile idiopathic arthritis? a qualitative study on the perspectives of patients. Clin Rheumatol 30:459–465CrossRefPubMed Eyckmans L, Hilderson D, Westhovens R, Wouters C, Moons P (2011) What does it mean to grow up with juvenile idiopathic arthritis? a qualitative study on the perspectives of patients. Clin Rheumatol 30:459–465CrossRefPubMed
33.
go back to reference World Health Organization (2013) The right to health. 323 World Health Organization (2013) The right to health. 323
34.
go back to reference Badley EM, Canizares M, Gunz AC, Davis AM (2015) Visits to rheumatologists for arthritis: the role of access to primary care physicians, geographic availability of rheumatologists, and socioeconomic status. Arthritis Care Res (Hoboken) 67:230–239CrossRef Badley EM, Canizares M, Gunz AC, Davis AM (2015) Visits to rheumatologists for arthritis: the role of access to primary care physicians, geographic availability of rheumatologists, and socioeconomic status. Arthritis Care Res (Hoboken) 67:230–239CrossRef
35.
go back to reference McIntyre D, Thiede M, Birch S (2009) Access as a policy-relevant concept in low- and middle-income countries. Health Econ Policy Law 4:179–193CrossRefPubMed McIntyre D, Thiede M, Birch S (2009) Access as a policy-relevant concept in low- and middle-income countries. Health Econ Policy Law 4:179–193CrossRefPubMed
36.
go back to reference Thurston WE, Coupal S, Jones CA et al (2014) Discordant indigenous and provider frames explain challenges in improving access to arthritis care: a qualitative study using constructivist grounded theory. Intern J Equity Health 13:46CrossRef Thurston WE, Coupal S, Jones CA et al (2014) Discordant indigenous and provider frames explain challenges in improving access to arthritis care: a qualitative study using constructivist grounded theory. Intern J Equity Health 13:46CrossRef
38.
go back to reference Programa de las Naciones Unidas para el desarrollo (PNUD), (2010) Informe sobre el desarrollo humano de los pueblos indígenas en México: El reto de las desigualdad de oportunidades. Programa de las Naciones Unidas para el desarrollo, Mexico Programa de las Naciones Unidas para el desarrollo (PNUD), (2010) Informe sobre el desarrollo humano de los pueblos indígenas en México: El reto de las desigualdad de oportunidades. Programa de las Naciones Unidas para el desarrollo, Mexico
39.
go back to reference Quijano A (2014) Colonialidad del poder y clasificación social. In: De Souza Santos B, Meneses MP (eds) Epistemologías del sur (Perspectivas). Ediciones Akal, S.A., España, pp 67–108 Quijano A (2014) Colonialidad del poder y clasificación social. In: De Souza Santos B, Meneses MP (eds) Epistemologías del sur (Perspectivas). Ediciones Akal, S.A., España, pp 67–108
40.
go back to reference Constitución Política de los Estados Unidos Mexicanos. (2001) Articulo Segundo. La nación Mexicana es única e indivisible Constitución Política de los Estados Unidos Mexicanos. (2001) Articulo Segundo. La nación Mexicana es única e indivisible
41.
go back to reference Ley para la protección de los derechos de la comunidad Maya del Estado de Yucatan. (2011) Decreto 407 Diario Oficial del Gobierno del Estado de Yucatán Ley para la protección de los derechos de la comunidad Maya del Estado de Yucatan. (2011) Decreto 407 Diario Oficial del Gobierno del Estado de Yucatán
42.
go back to reference Ley general para la inclusión de las personas con discapacidad. (2011) Diario Oficial de la Federación 30/05/2011 Ley general para la inclusión de las personas con discapacidad. (2011) Diario Oficial de la Federación 30/05/2011
43.
go back to reference Ley para la protección de los derechos de las personas con discapacidad del Estado de Yucatán. (2011) Decreto 469 Ley para la protección de los derechos de las personas con discapacidad del Estado de Yucatán. (2011) Decreto 469
44.
go back to reference Gomez Dantes O, Sesma S, Becerril VM, Knaul FM, Arreola H, Frenk J (2011) The health system of Mexico. Salud Publica Mex 53:s220–s232PubMed Gomez Dantes O, Sesma S, Becerril VM, Knaul FM, Arreola H, Frenk J (2011) The health system of Mexico. Salud Publica Mex 53:s220–s232PubMed
45.
go back to reference Santacruz Varela J, Castillo Carrión JC (2014) Manual del sistema de acreditación y garantía de calidad en establecimientos para la prestación de servicios de salud Santacruz Varela J, Castillo Carrión JC (2014) Manual del sistema de acreditación y garantía de calidad en establecimientos para la prestación de servicios de salud
Metadata
Title
Barriers to accessing the culturally sensitive healthcare that could decrease the disabling effects of arthritis in a rural Mayan community: a qualitative inquiry
Authors
Adalberto Loyola-Sanchez
Julie Richardson
Seanne Wilkins
John N. Lavis
Michael G. Wilson
Jose Alvarez-Nemegyei
Ingris Pelaez-Ballestas
Publication date
01-05-2016
Publisher
Springer London
Published in
Clinical Rheumatology / Issue 5/2016
Print ISSN: 0770-3198
Electronic ISSN: 1434-9949
DOI
https://doi.org/10.1007/s10067-015-3061-4

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