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Open Access 01-12-2014 | Original Contribution

Development of ICF Core Sets to standardize assessment of functioning and impairment in ADHD: the path ahead

Authors: Sven Bölte, Elles de Schipper, Martin Holtmann, Sunil Karande, Petrus J. de Vries, Melissa Selb, Rosemary Tannock

Published in: European Child & Adolescent Psychiatry | Issue 12/2014

Abstract

In the study of health and quality of life in attention deficit/hyperactivity disorder (ADHD), it is of paramount importance to include assessment of functioning. The International Classification of Functioning, Disability and Health (ICF) provides a comprehensive, universally accepted framework for the description of functioning in relation to health conditions. In this paper, the authors outline the process to develop ICF Core Sets for ADHD. ICF Core Sets are subgroups of ICF categories selected to capture the aspects of functioning that are most likely to be affected in specific disorders. The ICF categories that will be included in the ICF Core Sets for ADHD will be determined at an ICF Core Set Consensus Conference, wherein evidence from four preliminary studies (a systematic review, an expert survey, a patient and caregiver qualitative study, and a clinical cross-sectional study) will be integrated. Comprehensive and Brief ICF Core Sets for ADHD will be developed with the goal of providing useful standards for research and clinical practice, and to generate a common language for the description of functioning in ADHD in different areas of life and across the lifespan.

Polanczyk G, de Lima MS, Horta BL, Biederman J, Rohde LA (2007) The worldwide prevalence of ADHD: a systematic review and metaregression analysis. Am J Psychiatry 164:942–948. doi:10.1176/appi.ajp.164.6.942 PubMedCrossRef

Klassen AF, Miller A, Fine S (2004) Health-related quality of life in children and adolescents Who have a diagnosis of attention-deficit/hyperactivity disorder. Pediatrics 114(5):541–547. doi:10.1542/peds.2004-0844 CrossRef

Nigg JT (2013) Attention-deficit/hyperactivity disorder and adverse health outcomes. Clin Psychol Rev 33(2):215–228. doi:10.1016/j.cpr.2012.11.005 PubMedCrossRef

Spencer TJ, Biederman J, Mick E (2007) Attention-deficit/hyperactivity disorder: diagnosis, lifespan, comorbidities, and neurobiology. J Pediatr Psychol 32(6):631–642. doi:10.1093/jpepsy/jsm005 PubMedCrossRef

World Health Organization (1992-1994) International statistical classification of diseases and related health problems, tenth revision. In: World Health Organization, vol 1–3. Geneva, Switzerland

(1946) In: Preamble to the constitution of the world health organization as adopted by the international health conference (Official records of the World Health Organization, no. 2, p. 100) and entered into force on 7 April 1948, 19–22 June, 1946; signed on 22 July 1946 by the representatives of 61 states. New York

Kuriyan AB, Pelham WE Jr, Molina BS, Waschbusch DA, Gnagy EM, Sibley MH, Babinski DE, Walther C, Cheong J, Yu J, Kent KM (2013) Young adult educational and vocational outcomes of children diagnosed with ADHD. J Abnorm Child Psychol 41(1):27–41. doi:10.1007/s10802-012-9658-z PubMedCentralPubMedCrossRef

Coghill D, Danckaerts M, Sonuga-Barke E, Sergeant J; ADHD European Guidelines Group (2009) Practitioner review: quality of life in child mental health—conceptual challenges and practical choices. J Child Psychol Psychiatry 50(5):544–561. doi:10.1111/j.1469-7610.2009.02008.x CrossRef

Danckaerts M, Sonuga-Barke EJS, Banaschewski T, Buitelaar J, Döpfner M, Hollis C, Santosh P, Rothenberger A, Sergeant J, Steinhausen HC, Taylor E, Zuddas A, Coghill D (2010) The quality of life of children with attention deficit/hyperactivity disorder: a systematic review. Eur Child Adolesc Psychiatry 19:83–105. doi:10.1007/s10802-012-9658-z PubMedCentralPubMedCrossRef

10.

Agarwal R, Goldenberg M, Perry R, Ishak WW (2012) The quality of life of adults with attention deficit hyperactivity disorder: a systematic review. Innov Clin Neurosci 9(5–6):10–21PubMedCentralPubMed

11.

Üstün TB (2007) Using the international classification of functioning, disease and health in attention-deficit/hyperactivity disorder: separating the disease from its epiphenomena. Ambul Pediatr 7:132–139. doi:10.1016/j.ambp.2006.05.004 PubMedCrossRef

12.

World Health Organization (1992) International classification of diseases: diagnostic criteria for research, 10th edn. World Health Organization, Geneva

13.

American Psychiatric Association (2000) Diagnostic and statistical manual of mental health disorders. In: Text revision, 4th edn. Washington DC

14.

World Health Organization (2001) International classification of functioning, disability and health: ICF. World Health Organization, Geneva

15.

Rauch A, Lückenkemper M, Cieza A (2012) Introduction to the international classification of functioning, disability and health. In: Bickenbach JE, Cieza A, Rauch A, Stucki G (eds) ICF core sets: manual for clinical practice. Hogrefe Publishing, Göttingen, pp 4–13

16.

McDougall J, Wright V, Rosenbaum P (2010) The ICF model of functioning and disability: incorporating quality of life and human development. Dev Neurorehabil 13(3):204–211. doi:10.3109/17518421003620525 PubMedCrossRef

17.

World Health Organization (2007) International classification of functioning, disability and health: children & youth version: ICF-CY. World Health Organization, Geneva

18.

Kostanjsek N (2011) Use of the international classification of functioning, disability and health (ICF) as a conceptual framework and common language for disability statistics and health information systems. BMC Public Health 11(Suppl 4):S3. doi:10.1186/1471-2458-11-S4-S3 PubMedCentralPubMedCrossRef

19.

Wilens TE, Biederman J, Spencer TJ (2002) Attention deficit/hyperactivity disorder across the lifespan. Annu Rev Med 53:113–131. doi:10.1146/annurev.med.53.082901.103945 PubMedCrossRef

20.

Fayed N, Cieza A, Bickenbach JE (2011) Linking health and health-related information to the ICF: a systematic review of the literature from 2001 to 2008. Disabil Rehabil 33(21–22):1941–1951. doi:10.3109/09638288.2011.553704 PubMedCrossRef

21.

Cerniauskaite M, Quintas R, Boldt C, Raggi A, Cieza A, Bickenbach JE, Leonardi M (2011) Systematic literature review on ICF from 2001 to 2009: its use, implementation and operationalisation. Disabil Rehabil 33(4):281–309. doi:10.3109/09638288.2010.529235 PubMedCrossRef

22.

Stucki G, Cieza A (2008) The international classification of functioning, disability and health (ICF) in physical and rehabilitation medicine. Eur J Phys Rehabil Med 44:299–302PubMed

23.

Álvarez AS (2012) The application of the international classification of functioning, disability, and health in psychiatry: possible reasons for the lack of implementation. Am J Phys Med Rehabil 91(suppl):S69–S73. doi:10.1097/PHM.0b013e31823d4f1c CrossRef

24.

Stucki G, Grimby G (2004) Applying the ICF in medicine. J Rehabil Med 44(Suppl):5–6. doi:10.1080/16501960410022300 PubMedCrossRef

25.

Üstün B, Chatterji S, Kostanjsek N (2004) Comments from WHO for the journal of rehabilitation medicine special supplement on ICF core sets. J Rehabil Med 44(Suppl):7–8. doi:10.1080/16501960410015344 PubMed

26.

Peyrin-Biroulet L, Cieza A, Sandbom WJ, Coenen M, Chowers Y, Hibi T, Kostanjsek N, Stucki G, Colombel JF; International Programme to Develop New Indexes for Crohn’s Disease (IPNIC) group (2012) Development of the first disability index for inflammatory bowel disease based on the international classification of functioning, disability and health. Gut, 61(2):241–247. doi:10.1136/gutjnl-2011-300049

27.

Klitz U, van der Heijde D, Cieza A, Boonen A, Stucki G, Üstün B, Braun J (2011) Developing and validating an index for measuring health in patients with ankylosing spondylitis. Rheumatology (Oxford) 50(5):894–898. doi:10.1093/rheumatology/keq315 CrossRef

28.

Cieza A, Geyh S, Chatterji S, Kostanjsek N, Üstün B, Stucki G (2005) ICF linking rules: an update based on lessons learned. J Rehabil Med 37:212–218. doi:10.1080/16501970510040263 PubMedCrossRef

29.

World Health Organization (2003) ICF checklist version 2.1a, clinicians form for international classification of functioning, disability and health. In: World Health Organization, Geneva, Switzerland

30.

Taurines R, Schmitt J, Renner T, Conner AC, Warnke A, Romanos M (2010) Developmental comorbidity in attention-deficit/hyperactivity disorder. Atten Defic Hyperact Disord 2(4):267–289. doi:10.1007/s12402-010-0040-0 PubMedCrossRef

31.

Biederman J (2004) Impact of comorbidity in adults with attention-deficit/hyperactivity disorder. J Clin Psychiatry 65(Suppl 3):3–7PubMed

32.

Cieza A, Chatterji S, Andersen C, Cantista P, Herceq M, Melvin J, Stucki G, de Bie R (2004) ICF core sets for depression. J Rehabil Med 44(suppl):128–134PubMedCrossRef

33.

Vieta E, Cieza A, Stucki G, Chatterji S, Nieto M, Sánchez-Moreno J, Jaeger J, Grunze H, Ayuso-Mateos JL (2007) Developing core sets for persons with bipolar disorder based on the international classification of functioning, disability and health. Bipolar Disord 9(1–2):16–24PubMedCrossRef

34.

Coenen M, Cieza A, Freeman J, Khan F, Miller D, Weise A, Kesselring J (2011) The development of ICF core sets for multiple sclerosis: results of the international consensus conference. J Neurol 258(8):1477–1488. doi:10.1007/s00415-011-5963-7 PubMedCrossRef

35.

Ewert T, Grill E, Bartholomeyczik S, Finger M, Mokrusch T, Kostanjsek N, Stucki G (2005) ICF Core Set for patients with neurological conditions in the acute hospital. Disabil Rehabil 27(7–8):367–373

36.

Stier-Jarmer M, Grill E, Ewert T, Bartholomeyczik S, Finger M, Mokrusch T, Kostanjsek N, Stucki G (2005) ICF Core Set for patients with neurological conditions in early post-acute rehabilitation facilities. Disabil Rehabil 27(7–8):389–395

37.

Cieza A, Kirchberger I, Biering-Sørensen F, Baumberger M, Charlifue S, Post MW, Campbell R, Kovindha A, Ring H, Sinnott A, Kostanjsek N, Stucki G (2010) ICF core sets for individuals with spinal cord injury in the long-term context. Spinal Cord 48(4):305–312. doi:10.1038/sc.2009.183 PubMedCrossRef

38.

Laxe S, Zasler N, Selb M, Tate R, Tormos JM, Bernabeu M (2013) Development of the international classification of functioning, disability and health core sets for traumatic brain injury: an international consensus process. Brain Inj 27(4):379–387PubMedCrossRef

39.

Boldt C, Grill E, Wildner M, Portenier L, Wilke S, Stucki G, Kostanjsek N, Quittan M (2005) ICF Core Set for patients with cardiopulmonary conditions in the acute hospital. Disabil Rehabil 27(7–8):375–380

40.

Wildner M, Quittan M, Portenier L, Wilke S, Boldt C, Stucki G, Kostanjsek N, Grill E (2005) ICF Core Set for patients with cardiopulmonary conditions in early post-acute rehabilitation facilities. Disabil Rehabil 27(7–8):397–404

41.

Stucki A, Stoll T, Cieza A, Weigl M, Giardini A, Wever D, Kostanjsek N, Stucki G (2004) ICF core sets for obstructive pulmonary diseases. J Rehabil Med 44(suppl):114–120PubMedCrossRef

42.

Stucki A, Daansen P, Fuessl M, Cieza A, Huber E, Atkinson R, Kostanjsek N, Stucki G, Ruof J (2004) ICF core sets for obesity. J Rehabil Med 44(suppl):107–113PubMedCrossRef

43.

Ruof J, Cieza A, Wolff B, Angst F, Ergeletzis D, Omar Z, Kostanjsek N, Stucki G (2004) ICF core sets for diabetes mellitus. J Rehabil Med 44(suppl):100–106PubMed

44.

Geyh S, Cieza A, Schouten J, Dickson H, Frommelt P, Omar Z, Kostanjsek N, Ring H, Stucki G (2004) ICF core sets for stroke. J Rehabil Med 44(suppl):135–141PubMedCrossRef

45.

Cieza A, Stucki A, Geyh S, Berteanu M, Quittan M, Simon A, Kostanjsek N, Stucki G, Walsh N (2004) ICF core sets for chronic ischaemic heart disease. J Rehabil Med 44(suppl):94–99PubMedCrossRef

46.

Tschiesner U, Rogers S, Dietz A, Yueh B, Cieza A (2010) Development of ICF core sets for head and neck cancer. Head Neck 32(2):210–220. doi:10.1002/hed.21172 PubMed

47.

Brach M, Cieza A, Stucki G, Füssl M, Cole A, Ellerin B, Fialka-Moser V, Kostanjsek N, Melvin J (2004) ICF core sets for breast cancer. J Rehabil Med 44(suppl):121–127PubMedCrossRef

48.

Grill E, Zochling J, Stucki G, Mittrach R, Scheuringer M, Liman W, Kostanjsek N, Braun N (2007) International classification of functioning, disability and health (ICF) core set for patients with acute arthritis. Clin Exp Rheumatol 25(2):252–258PubMed

49.

Boonen A, Braun J, van der Horst Bruinsma IE, Huang F, Maksymowych W, Kostanjsek N, Cieza A, Stucki G, van der Heijde D (2010) ASAS/WHO ICF core sets for ankylosing spondylitis (AS): How to classify the impact of AS on functioning and health. Ann Rheum Dis 69(1):102–107. doi:10.1136/ard.2008.104117 PubMedCrossRef

50.

Cieza A, Stucki G, Weigl M, Kullmann L, Stoll T, Kamen L, Kostanjsek N, Walsh N (2004) ICF core sets for chronic widespread pain. J Rehabil Med 44(suppl):63–68PubMedCrossRef

51.

Stoll T, Brach M, Huber EO, Scheuringer M, Schwarzkopf SR, Kostanjsek N, Stucki G (2005) ICF Core Set for patients with musculoskeletal conditions in the acute hospital. Disabil Rehabil 27(7–8):381–387

52.

Scheuringer M, Stucki G, Huber EO, Brach M, Schwarzkopf SR, Kostanjsek N, Stoll T (2005) ICF Core Set for patients with musculoskeletal conditions in early post-acute rehabilitation facilities. Disabil Rehabil 27(7–8):405–410

53.

Cieza A, Schwarzkopf S, Sigl T, Stucki G, Melvin J, Stoll T, Woolf A, Kostanjsek N, Walsh N (2004) ICF core sets for osteoporosis. J Rehabil Med 44(suppl):81–86PubMedCrossRef

54.

Dreinhöfer K, Stucki G, Ewert T, Huber E, Ebenbichler G, Gutenbrunner C, Kostanjsek N, Cieza A (2004) ICF core sets for osteoarthritis. J Rehabil Med 44(suppl):75–80PubMed

55.

Cieza A, Stucki G, Weigl M, Disler P, Jäckel W, van der Linden S, Kostanjsek N, de Bie R (2004) ICF core sets for low back pain. J Rehabil Med 44(suppl):69–74PubMedCrossRef

56.

Stucki G, Cieza A, Geyh S, Battistella L, Lloyd J, Symmons D, Kostanjsek N, Schouten J (2004) ICF core sets for rheumatoid arthritis. J Rehabil Med 44(suppl):87–93PubMedCrossRef

57.

Danermark B, Granberg S, Kramer SE, Selb M, Möller C (2013) The creation of a comprehensive and a brief core set for hearing loss using the international classification of functioning, disability and health (ICF). Am J Audiol [Epub ahead of print]

58.

Grill E, Bronstein A, Furman J, Zee DS, Müller M (2012) International classification of functioning, disability and health (ICF) core set for patients with vertigo, dizziness and balance disorders. J Vestib Res 22(5–6):261–271. doi:10.3233/VES-120459 PubMed

59.

Peyrin-Biroulet L, Cieza A, Sandborn WJ, Coenen M, Chowers Y, Hibi T, Kostanjsek N, Stucki G, Colombel JF; International Programme to Develop New Indexes for Crohn's Disease (IPNIC) group (2012) Development of the first disability index for inflammatory bowel disease based on the international classification of functioning, disability and health. Gut 61(2):241–247

60.

Gradinger F, Cieza A, Stucki A, Michel F, Bentley A, Oksenberg A, Rogers AE, Stucki G, Partinen M (2011) Part 1. International classification of functioning, disability and health (ICF) Core sets for persons with sleep disorders: results of the consensus process integrating evidence from preparatory studies. Sleep Med 12(1):92–96. doi:10.1016/j.sleep.2010.08.009 PubMedCrossRef

61.

Rudolf KD, Kus S, Chung KC, Johnston M, LeBlanc M, Cieza A (2012) Development of the international classification of functioning, disability and health core sets for hand conditions—results of the World Health Organization international consensus process. Disabil Rehabil 34(8):681–693. doi:10.3109/09638288.2011.613514 PubMedCrossRef

62.

Grill E, Hermes R, Swoboda W, Uzarewicz C, Kostanjsek N, Stucki G (2005) ICF Core Set for geriatric patients in early post-acute rehabilitation facilities. Disabil Rehabil 27(7–8):411–417

63.

Finger ME, Escorpizo R, Glässel A, Gmünder HP, Lückenkemper M, Chan C, Fritz J, Studer U, Ekholm J, Kostanjsek N, Stucki G, Cieza A (2012) ICF core set for vocational rehabilitation: results of an international consensus conference. Disabil Rehabil 34(5):429–438. doi:10.3109/09638288.2011.608145 PubMedCrossRef

Title: Development of ICF Core Sets to standardize assessment of functioning and impairment in ADHD: the path ahead
Authors: Sven Bölte
Elles de Schipper
Martin Holtmann
Sunil Karande
Petrus J. de Vries
Melissa Selb
Rosemary Tannock
Publication date: 01-12-2014
Publisher: Springer Berlin Heidelberg
Published in: European Child & Adolescent Psychiatry / Issue 12/2014
Print ISSN: 1018-8827
Electronic ISSN: 1435-165X
DOI: https://doi.org/10.1007/s00787-013-0496-5

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Development of ICF Core Sets to standardize assessment of functioning and impairment in ADHD: the path ahead

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Keynote webinar | Spotlight on medication adherence

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