Published in:
01-12-2006 | Original Article
Expectations to and evaluation of a palliative home-care team as seen by patients and carers
Authors:
Dorthe Goldschmidt, Lone Schmidt, Allan Krasnik, Ulla Christensen, Mogens Groenvold
Published in:
Supportive Care in Cancer
|
Issue 12/2006
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Abstract
Objectives
Although the number of palliative home-care teams is increasing, knowledge of what patients and principal informal carers expect from a home-care team is sparse. We aimed to elucidate this as well as evaluate a home-care team.
Patients and methods
Individual semi-structured interviews with nine patients and six carers before receiving home care and 2–4 weeks after. In total, 26 interviews were conducted. Interviews were analysed with Template Analysis. Peer debriefing was performed.
Main results
Patients and carers expected the team members to have specialised knowledge in palliative care and to improve their sense of security being at home. They also expected respite for carers and activities for patients. They evaluated the team positively but missed respite for carers and 24-h on-call service.
Conclusions
Patients and carers found the home-care team essential to their sense of security being at home. Primary health care professionals must receive any necessary training outside patients’ homes. Offering respite for carers and 24-h on-call service would be an improvement.