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Pediatric Surgery International

Published in:

01-08-2015 | Original Article

Transition from childhood to adolescence: Quality of life changes 6 years later in patients born with anorectal malformations

Authors: Caterina Grano, S. Bucci, D. Aminoff, F. Lucidi, C. Violani

Published in: Pediatric Surgery International | Issue 8/2015

Abstract

Background/purpose

Disease-specific quality of life (QoL) may be more or less relevant when children enter preadolescence/adolescence. Few attentions have been given to development and transition periods. Aim of the present longitudinal study is to evaluate ARM specific changes in QoL and the stability of QoL over 6 years.

Methods

Questionnaires were sent to families of the AIMAR Association (in 2007 and in 2013/2014). They included the Hirschsprung’s Disease/ARM QoL Questionnaire (HAQL, [1]). Rank correlations and within group comparisons for the HAQL subscales were conducted analyzing the scores of time 1 vs time 2. Gender effects were tested.

Results

134 parents answered the questionnaires at time 1 and 73 at time 2. Results of the repeated Analyses of Variance indicated improvements in the continence subscales (“Presence of Diarrhea,” “Fecal Continence”). QoL significantly worsened in “Social and Emotional Functioning” and in “Body Image” areas. The analysis of stability of change indicates that QoL scores remain stable, with the exception of the Body Image area.

Conclusions

Despite improvements in the continence areas, parents reported worse levels of QoL in the psychosocial areas, as their child grow. As patients grow, they might have more difficulties in daily and social activities, and feel more frequently ashamed and more dissatisfied with their body.

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Title: Transition from childhood to adolescence: Quality of life changes 6 years later in patients born with anorectal malformations
Authors: Caterina Grano
S. Bucci
D. Aminoff
F. Lucidi
C. Violani
Publication date: 01-08-2015
Publisher: Springer Berlin Heidelberg
Published in: Pediatric Surgery International / Issue 8/2015
Print ISSN: 0179-0358
Electronic ISSN: 1437-9813
DOI: https://doi.org/10.1007/s00383-015-3736-6

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Transition from childhood to adolescence: Quality of life changes 6 years later in patients born with anorectal malformations

Abstract

Background/purpose

Methods

Results

Conclusions

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Background/purpose

Methods

Results

Conclusions

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