Published in:
01-06-2018 | Editorial
A Shift in Focus
Author:
Ra-id Abdulla
Published in:
Pediatric Cardiology
|
Issue 5/2018
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Excerpt
The Heart Innovation Forum, an AHA-sponsored conference hosted an unexpected speaker in its Fall 2017 meeting. The speaker, Jackson (Jack) Radant, was eloquent, effective, inspiring, and very young. He must have been no more than 18 years old, yet he provided unrivaled wisdom and experience. Jack talked about living with hypoplastic left heart (HLH) syndrome, not as a physician, but as a patient who survived three stages of Fontan procedure, heart failure, LVAD, and finally cardiac transplantation. Jack had experience we as health care providers lack. His positive disposition enabled him to envision how things could be better and his fluency of expression allowed his message to be clear and effective. Therefore, I was pleased when he agreed to my offer to narrate his experience though an editorial for Pediatric Cardiology. …