Issue 6/2015
Content (18 Articles)
Sickle Cell Trait Screening of Collegiate Athletes: Ethical Reasons for Program Reform
Rosalie Ferrari, Lisa S. Parker, Robin E. Grubs, Lakshmanan Krishnamurti
Cultural Concerns when Counseling Orthodox Jewish Couples for Genetic Screening and PGD
Richard V. Grazi, Joel B. Wolowelsky
A Novel von Hippel Lindau Gene Intronic Variant and Its Reclassification from VUS to Pathogenic: the Impact on a Large Family
A. Sexton, L. Rawlings, G. McKavanagh, K. Simons, I. Winship
Facilitators and Challenges in Psychosocial Adaptation to Being at Increased Familial Risk of Breast Cancer
Louise Heiniger, Melanie A. Price, Margaret Charles, Phyllis N. Butow
Using ApoE Genotyping to Promote Healthy Lifestyles in Finland – Psychological Impacts: Randomized Controlled Trial
H.-L. Hietaranta-Luoma, H. T. Luomala, H. Puolijoki, A. Hopia
Psychosocial Responses to being Identified as a Balanced Chromosomal Translocation Carrier: a Qualitative Investigation of Parents in Japan
Mikiko Kaneko, Hirofumi Ohashi, Tomoko Takamura, Hiroshi Kawame
The Impact of Neurofibromatosis Type 1 on the Health and Wellbeing of Australian Adults
Hilda A. Crawford, Belinda Barton, Meredith J. Wilson, Yemima Berman, Valerie J. McKelvey-Martin, Patrick J. Morrison, Kathryn N. North
Assessing Parental Knowledge About Thalassemia in a Thalassemia Center of Karachi, Pakistan
Humaira Maheen, Farrukh Malik, Barera Siddique, Asim Qidwai
Support Desired by Women Following Termination of Pregnancy for a Fetal Anomaly
Aarti Ramdaney, Syed S. Hashmi, Manju Monga, Rebecca Carter, Jennifer Czerwinski
Randomized Trial of Telegenetics vs. In-Person Cancer Genetic Counseling: Cost, Patient Satisfaction and Attendance
Adam H. Buchanan, Santanu K. Datta, Celette Sugg Skinner, Gail P. Hollowell, Henry F. Beresford, Thomas Freeland, Benjamin Rogers, John Boling, P. Kelly Marcom, Martha B. Adams
Feasibility of an Assessment Tool for Children’s Competence to Consent to Predictive Genetic Testing: a Pilot Study
Irma M. Hein, Pieter W. Troost, Robert Lindeboom, Imke Christiaans, Thomas Grisso, Johannes B. van Goudoever, Ramón J. L. Lindauer
Uptake of Genetic Counseling, Knowledge of Bleeding risks and Psychosocial Impact in a South African Cohort of Female Relatives of People with Hemophilia
Anne Gillham, Brenda Greyling, Tina-Marie Wessels, Bongi Mbele, Rosemarie Schwyzer, Amanda Krause, Johnny Mahlangu
“Suddenly Having two Positive People who are Carriers is a Whole New Thing”- Experiences of Couples Both Identified as Carriers of Cystic Fibrosis Through a Population-Based Carrier Screening Program in Australia
Liane Ioannou, Martin B. Delatycki, John Massie, Jan Hodgson, Sharon Lewis
Knowledge, Attitudes, and Practice Regarding Genetic Testing and Genetic Counselors in Jordan: A Population-Based Survey
Mamoun Ahram, Majd Soubani, Lana Abu Salem, Haneen Saker, Muayyad Ahmad
Analysis of the Reasons for Non-Uptake of Predictive Testing for Huntington’s Disease in Spain: A Qualitative Study
Jesús Rivera-Navarro, Esther Cubo, Natividad Mariscal
Genetics and Personal Insurance: the Perspectives of Canadian Cancer Genetic Counselors
Michelle Lane, Ida Ngueng Feze, Yann Joly
Perception of Genetic Testing for Deafness and Factors Associated with Interest in Genetic Testing Among Deaf People in a Selected Population in Sub-Saharan Africa
Babatunde O. Adedokun, Bidemi O. Yusuf, J. Taye Lasisi, A. A. Jinadu, M. T. Sunmonu, A. F. Ashanke, O. Akeem Lasisi
Presented Abstracts from the Thirty Fourth Annual Education Conference of the National Society of Genetic Counselors (Pittsburgh, PA, October 2015)
Beverly M. Yashar, Emily Edelman, Katie Darin, Zuri McClelland