Skip to main content
Top
Published in: The Patient - Patient-Centered Outcomes Research 1/2010

01-03-2010 | Original Research Article

Is it Possible to Measure What Truly Matters? The Paradox of Clinical Audit in Developing Continence Service Standards for Older People

Authors: Patrick Brown, Lecturer, Jenny Billings, Adrian Wagg, Jonathan Potter

Published in: The Patient - Patient-Centered Outcomes Research | Issue 1/2010

Login to get access

Abstract

Background: Standards, benchmarking, and audits are integral to quality monitoring in health and social service provision. Recent policy in the UK National Health Service dictating the need for increased consumer involvement necessitates that service users have significant input into the composition of standards for quality of care.
Objective: To report the authors’ recent involvement in research towards developing a set of agreed, measureable statements regarding quality in the provision of continence services using the views of older service users.
Methods: This article focuses on the third of a three-stage project to involve, identify, and incorporate the views of older continence service users in the development of standards of care in continence services. Whereas stage 1 developed a questionnaire with the assistance of service users, and stage 2 piloted this as a postal survey in two contrasting areas, stage 3 applied the tool in the context of face-to-face interviews with more vulnerable older people. The approach also included open-ended questions to elicit qualitative data around experiences of continence service provision.
Results: Earlier stages of the project involved the relatively unproblematic construction of standards based on views given by experts and focus groups of older people. However, more in-depth, semi-structured interviews with service users brought to light the holistic, complex, and subjective way in which the sample viewed their experiences.
Conclusions: This study raises a number of questions over the efficacy of simple statements in capturing what is important to service users. If such standards are to empower patients usefully and assist professionals informatively in their provision of high-quality care, greater effort and sophistication is needed to truly reflect the needs and interests of service users. Alongside these concerns, however, there are potential ways of bridging the gap between standard setting and the lived patient experience.
Literature
1.
go back to reference Williamson C. Whose standards? Consumer and professional standards in health care. Buckingham: Open University Press, 1992 Williamson C. Whose standards? Consumer and professional standards in health care. Buckingham: Open University Press, 1992
2.
go back to reference Power M. The audit society: rituals of verification. Oxford: Oxford University Press, 1997 Power M. The audit society: rituals of verification. Oxford: Oxford University Press, 1997
3.
go back to reference Alaszewski A. The impact of the Bristol Royal Infirmary disaster and inquiry on public services in the UK. J Interprof Care 2002 Aug; 16(4): 371–8PubMedCrossRef Alaszewski A. The impact of the Bristol Royal Infirmary disaster and inquiry on public services in the UK. J Interprof Care 2002 Aug; 16(4): 371–8PubMedCrossRef
4.
go back to reference Department of Health. The new NHS, modern, dependable. London: HMSO (Cm 3807), 1997 Department of Health. The new NHS, modern, dependable. London: HMSO (Cm 3807), 1997
5.
go back to reference Baggott R. A funny thing happened on the way to the forum? Reforming patient and public involvement in the NHS in England. Public Adm 2005 Aug; 83(3): 533–51CrossRef Baggott R. A funny thing happened on the way to the forum? Reforming patient and public involvement in the NHS in England. Public Adm 2005 Aug; 83(3): 533–51CrossRef
6.
go back to reference Cooper L, Coote A, Davies A, et al. Voices off? Tackling the democratic deficit in health. London: Institute for Public Policy Research, 1995 Cooper L, Coote A, Davies A, et al. Voices off? Tackling the democratic deficit in health. London: Institute for Public Policy Research, 1995
7.
go back to reference Department of Health. The NHS plan: a plan for investment, a plan for reform. London: Stationery Office, 2000 Department of Health. The NHS plan: a plan for investment, a plan for reform. London: Stationery Office, 2000
8.
go back to reference Mechanic D. Dilemmas in rationing health care services: the case for implicit rationing. BMJ 1995 Jun 24; 310(6995): 1655–9PubMedCrossRef Mechanic D. Dilemmas in rationing health care services: the case for implicit rationing. BMJ 1995 Jun 24; 310(6995): 1655–9PubMedCrossRef
10.
go back to reference Flynn R. Clinical governance and governmentality. Health Risk Soc 2002 Dec; 4(2): 155–70CrossRef Flynn R. Clinical governance and governmentality. Health Risk Soc 2002 Dec; 4(2): 155–70CrossRef
11.
go back to reference Department of Health. The essence of care: patient-focused benchmarking for health care practitioners. London: Stationery Office, 2001 Department of Health. The essence of care: patient-focused benchmarking for health care practitioners. London: Stationery Office, 2001
12.
go back to reference Walker A. Extending quality life: policy prescriptions from the growing older programme. J Soc Policy 2006 Jul; 35(3): 437–54CrossRef Walker A. Extending quality life: policy prescriptions from the growing older programme. J Soc Policy 2006 Jul; 35(3): 437–54CrossRef
13.
go back to reference Gilleard C, Higgs P. Cultures of ageing: self, citizen and the body. Harlow: Prentice Hall, 2000 Gilleard C, Higgs P. Cultures of ageing: self, citizen and the body. Harlow: Prentice Hall, 2000
14.
go back to reference Newman A, Vidler E. Discriminating customers, responsible patients, empowered users: consumerism and the modernisation of health care. J Soc Policy 2006 Apr; 35(2): 193–209CrossRef Newman A, Vidler E. Discriminating customers, responsible patients, empowered users: consumerism and the modernisation of health care. J Soc Policy 2006 Apr; 35(2): 193–209CrossRef
15.
go back to reference Marcuse H. One dimensional man: studies in the ideology of advanced industrial society. Boston (MA): Beacon, 1964 Marcuse H. One dimensional man: studies in the ideology of advanced industrial society. Boston (MA): Beacon, 1964
16.
go back to reference Power M. Evaluating the audit explosion. Law Policy 2003 Jul; 25(3): 185–202CrossRef Power M. Evaluating the audit explosion. Law Policy 2003 Jul; 25(3): 185–202CrossRef
17.
go back to reference Marcuse H. From ontology to technology: fundamental tendencies of industrial society. In: Bronner S, Kellner D, editors. Critical theory and society: a reader. London: Routledge, 1989: 119–27 Marcuse H. From ontology to technology: fundamental tendencies of industrial society. In: Bronner S, Kellner D, editors. Critical theory and society: a reader. London: Routledge, 1989: 119–27
18.
go back to reference Burnside I, Preski S, Hertz JE. Research instrumentation and elderly subjects. J Nurs Scholars 1988 Jun; 30(2): 185–90CrossRef Burnside I, Preski S, Hertz JE. Research instrumentation and elderly subjects. J Nurs Scholars 1988 Jun; 30(2): 185–90CrossRef
19.
go back to reference Walker E, Dewar EJ. How do we facilitate carers’ involvement in decision-making? J Advanced Nurs 2001 May; 34(3): 329–37CrossRef Walker E, Dewar EJ. How do we facilitate carers’ involvement in decision-making? J Advanced Nurs 2001 May; 34(3): 329–37CrossRef
20.
go back to reference Bowling A. Measuring health: a review of quality of life scales. 2nd ed. Buckingham: Open University Press, 1997 Bowling A. Measuring health: a review of quality of life scales. 2nd ed. Buckingham: Open University Press, 1997
21.
go back to reference Kelleher CJ, Cardozo LD, Khullar V, et al. A new questionnaire to assess the quality of life of urinary incontinent women. Br J Obstet Gynaecol 1997 Dec; 104(12): 1374–9PubMedCrossRef Kelleher CJ, Cardozo LD, Khullar V, et al. A new questionnaire to assess the quality of life of urinary incontinent women. Br J Obstet Gynaecol 1997 Dec; 104(12): 1374–9PubMedCrossRef
22.
go back to reference McDonald A, Langford H. Observations and recommendations for assessing patient satisfaction in a primary care setting using a previously validated questionnaire. Health Soc Care Community 2000 Mar; 8(2): 109–18PubMedCrossRef McDonald A, Langford H. Observations and recommendations for assessing patient satisfaction in a primary care setting using a previously validated questionnaire. Health Soc Care Community 2000 Mar; 8(2): 109–18PubMedCrossRef
23.
go back to reference Edwards C, Staniszewska S. Accessing the user’s perspective. Health Soc Care Community 2000 Nov; 8(6): 417–24PubMedCrossRef Edwards C, Staniszewska S. Accessing the user’s perspective. Health Soc Care Community 2000 Nov; 8(6): 417–24PubMedCrossRef
24.
go back to reference Flick U. An introduction to qualitative methods. Thousand Oaks (CA): Sage Publications, 1988 Flick U. An introduction to qualitative methods. Thousand Oaks (CA): Sage Publications, 1988
26.
go back to reference Gill TM, Allore HG, Hardy SE, et al. The dynamic nature of mobility disability in older persons. J Am Geriatr Soc 2006 Feb; 54(2): 248–54PubMedCrossRef Gill TM, Allore HG, Hardy SE, et al. The dynamic nature of mobility disability in older persons. J Am Geriatr Soc 2006 Feb; 54(2): 248–54PubMedCrossRef
28.
go back to reference Donabedian A. Evaluating the quality of medical care. Millbank Mem Fund Q 2006 Sep; 44(3 Suppl.): 166–206 Donabedian A. Evaluating the quality of medical care. Millbank Mem Fund Q 2006 Sep; 44(3 Suppl.): 166–206
29.
go back to reference Hall R. Organizations: structure, process and outcomes. Englewood Cliffs (NJ): Prentice-Hall, 1987 Hall R. Organizations: structure, process and outcomes. Englewood Cliffs (NJ): Prentice-Hall, 1987
31.
go back to reference Wilson I, Cleary P. Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA 1995 Jan; 273(1): 59–65PubMedCrossRef Wilson I, Cleary P. Linking clinical variables with health-related quality of life: a conceptual model of patient outcomes. JAMA 1995 Jan; 273(1): 59–65PubMedCrossRef
32.
go back to reference Kennedy H. Just law: the changing face of justice — and why it matters to us all. London: Secker & Warburg, 2004 Kennedy H. Just law: the changing face of justice — and why it matters to us all. London: Secker & Warburg, 2004
33.
go back to reference Power M. The audit explosion. London: Demos, 1994 Power M. The audit explosion. London: Demos, 1994
36.
go back to reference Means R, Smith R. The development of welfare services for elderly people. London: Croom Helm, 1985 Means R, Smith R. The development of welfare services for elderly people. London: Croom Helm, 1985
37.
go back to reference Coyne K, Matza L, Kopp Z, et al. The validation of the Patient Perception of Bladder Condition (PPBC): a single-item global measure for patients with overactive bladder. Eur Urol 2006 Jun; 49(6): 1079–86PubMedCrossRef Coyne K, Matza L, Kopp Z, et al. The validation of the Patient Perception of Bladder Condition (PPBC): a single-item global measure for patients with overactive bladder. Eur Urol 2006 Jun; 49(6): 1079–86PubMedCrossRef
38.
go back to reference Chouliara Z, Kearney N, Worth A, et al. Challenges in conducting research with hospitalised older people with cancer: drawing from the experience of an on-going interview based project. Eur J Cancer Care 2004 Dec; 13(5): 409–15CrossRef Chouliara Z, Kearney N, Worth A, et al. Challenges in conducting research with hospitalised older people with cancer: drawing from the experience of an on-going interview based project. Eur J Cancer Care 2004 Dec; 13(5): 409–15CrossRef
39.
go back to reference Rowland RM, Fisher KJ, Green M, et al. Recruiting inactive older adults to a neighbourhood walking trial: the SHAPE project. J Aging Stud 2004 Aug; 18(3): 353–68CrossRef Rowland RM, Fisher KJ, Green M, et al. Recruiting inactive older adults to a neighbourhood walking trial: the SHAPE project. J Aging Stud 2004 Aug; 18(3): 353–68CrossRef
40.
go back to reference Addington-Hall J. Research sensitivities to palliative care patients. Eur J Cancer Care 2002 Sep; 11(3): 220–4CrossRef Addington-Hall J. Research sensitivities to palliative care patients. Eur J Cancer Care 2002 Sep; 11(3): 220–4CrossRef
41.
go back to reference Billings J, Macvarish J. Teenage parents’ views of sex and relationships education and family support services: antenatal report. Canterbury: University of Kent, 2007 Billings J, Macvarish J. Teenage parents’ views of sex and relationships education and family support services: antenatal report. Canterbury: University of Kent, 2007
Metadata
Title
Is it Possible to Measure What Truly Matters? The Paradox of Clinical Audit in Developing Continence Service Standards for Older People
Authors
Patrick Brown, Lecturer
Jenny Billings
Adrian Wagg
Jonathan Potter
Publication date
01-03-2010
Publisher
Springer International Publishing
Published in
The Patient - Patient-Centered Outcomes Research / Issue 1/2010
Print ISSN: 1178-1653
Electronic ISSN: 1178-1661
DOI
https://doi.org/10.2165/11318800-000000000-00000

Other articles of this Issue 1/2010

The Patient - Patient-Centered Outcomes Research 1/2010 Go to the issue
Live Webinar | 27-06-2024 | 18:00 (CEST)

Keynote webinar | Spotlight on medication adherence

Live: Thursday 27th June 2024, 18:00-19:30 (CEST)

WHO estimates that half of all patients worldwide are non-adherent to their prescribed medication. The consequences of poor adherence can be catastrophic, on both the individual and population level.

Join our expert panel to discover why you need to understand the drivers of non-adherence in your patients, and how you can optimize medication adherence in your clinics to drastically improve patient outcomes.

Prof. Kevin Dolgin
Prof. Florian Limbourg
Prof. Anoop Chauhan
Developed by: Springer Medicine
Obesity Clinical Trial Summary

At a glance: The STEP trials

A round-up of the STEP phase 3 clinical trials evaluating semaglutide for weight loss in people with overweight or obesity.

Developed by: Springer Medicine