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Open Access 01-12-2022 | Research

Iranian future healthcare professionals' knowledge and opinions about rare diseases: cross-sectional study

Authors: Reza Jahanshahi, Amirreza Nasirzadeh, Mahan Farzan, Jan Domaradzki, Leila Jouybari, Akram Sanagoo, Mahour Farzan, Komeil Aghazadeh-Habashi, Ahmadreza Fallah Faraghe, Sadegh Bagheri, Marziyeh Samiee, Arina Ansari, Kimia Eskandari, Negar Namakkoobi, Fatemeh Soltanimoghadam, Hadi Mashali, Erfan Yavari, Saba Bay, Nafiseh Memaripanah, Elahe Meftah, Saeed Amanzadeh, Fatemeh Talati, Sasan Bahramzadeh

Published in: Orphanet Journal of Rare Diseases | Issue 1/2022

Abstract

Background

Rare diseases are a new global health priority, requiring evidence-based estimates of the global prevalence of diseases to inform public policymakers and provide a serious challenge to the healthcare system that must not be ignored. The purpose of this study is to investigate Iranian future healthcare professionals' knowledge and opinions about rare diseases.

Results

A total of 6838 students responded to the questionnaire. Nursing and medical students had the highest participation. Almost 85% of participants rated their knowledge about rare diseases as poor or insufficient. While nearly 70 percent of participants took courses about rare diseases at university. Finally, 72.7% of future healthcare professionals did not feel ready to take care of a patient with a rare disease.

Conclusion

The present study has indicated a gap in Iranian medical students’ knowledge of rare diseases. The researchers believe that health science policymakers should make a joint effort to improve knowledge about rare diseases. Including courses with regard to rare diseases would be of benefit to future healthcare professionals.

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Title: Iranian future healthcare professionals' knowledge and opinions about rare diseases: cross-sectional study
Authors: Reza Jahanshahi
Amirreza Nasirzadeh
Mahan Farzan
Jan Domaradzki
Leila Jouybari
Akram Sanagoo
Mahour Farzan
Komeil Aghazadeh-Habashi
Ahmadreza Fallah Faraghe
Sadegh Bagheri
Marziyeh Samiee
Arina Ansari
Kimia Eskandari
Negar Namakkoobi
Fatemeh Soltanimoghadam
Hadi Mashali
Erfan Yavari
Saba Bay
Nafiseh Memaripanah
Elahe Meftah
Saeed Amanzadeh
Fatemeh Talati
Sasan Bahramzadeh
Publication date: 01-12-2022
Publisher: BioMed Central
Published in: Orphanet Journal of Rare Diseases / Issue 1/2022
Electronic ISSN: 1750-1172
DOI: https://doi.org/10.1186/s13023-022-02458-8

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Iranian future healthcare professionals' knowledge and opinions about rare diseases: cross-sectional study

Abstract

Background

Results

Conclusion

Keynote webinar | Spotlight on medication adherence

Springer Medicine

Abstract

Background

Results

Conclusion

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