Skip to main content
Top
Published in: Journal of Medical Systems 4/2012

01-08-2012 | ORIGINAL PAPER

Intelligent Personal Health Record: Experience and Open Issues

Authors: Gang Luo, Chunqiang Tang, Selena B. Thomas

Published in: Journal of Medical Systems | Issue 4/2012

Login to get access

Abstract

Web-based personal health records (PHRs) are under massive deployment. To improve PHR’s capability and usability, we previously proposed the concept of intelligent PHR (iPHR). By introducing and extending expert system technology and Web search technology into the PHR domain, iPHR can automatically provide users with personalized healthcare information to facilitate their daily activities of living. Our iPHR system currently provides three functions: guided search for disease information, recommendation of home nursing activities, and recommendation of home medical products. This paper discusses our experience with iPHR as well as the open issues, including both enhancements to the existing functions and potential new functions. We outline some preliminary solutions, whereas a main purpose of this paper is to stimulate future research work in the area of consumer health informatics.
Literature
1.
go back to reference Ackley, B. J., and Ladwig, G. B., Nursing Diagnosis Handbook: An Evidence-based Guide to Planning Care, 8th ed. Mosby, 2007. Ackley, B. J., and Ladwig, G. B., Nursing Diagnosis Handbook: An Evidence-based Guide to Planning Care, 8th ed. Mosby, 2007.
2.
go back to reference Adomavicius, G., and Tuzhilin, A., Toward the next generation of recommender systems: a survey of the state-of-the-art and possible extensions. TKDE 17(6):734–749, 2005. Adomavicius, G., and Tuzhilin, A., Toward the next generation of recommender systems: a survey of the state-of-the-art and possible extensions. TKDE 17(6):734–749, 2005.
6.
go back to reference Bulechek, G. M., Butcher, H. K., and Dochterman, J. M., Nursing Interventions Classification (NIC), 5th ed. Mosby, 2007. Bulechek, G. M., Butcher, H. K., and Dochterman, J. M., Nursing Interventions Classification (NIC), 5th ed. Mosby, 2007.
7.
go back to reference Baeza-Yates, R. A., and Ribeiro-Neto, B. A., Modern Information Retrieval. ACM Press/Addison-Wesley, 1999. Baeza-Yates, R. A., and Ribeiro-Neto, B. A., Modern Information Retrieval. ACM Press/Addison-Wesley, 1999.
8.
go back to reference Billings, J. A., and Stoeckle, J. D., The Clinical Encounter: A Guide to the Medical Interview & Case Presentation, 2nd ed. Mosby, 1999. Billings, J. A., and Stoeckle, J. D., The Clinical Encounter: A Guide to the Medical Interview & Case Presentation, 2nd ed. Mosby, 1999.
10.
go back to reference Cimino, J. J., Use, usability, usefulness and impact of an Infobutton manager. Proceedings of AMIA’06, pp. 151–155, 2006. Cimino, J. J., Use, usability, usefulness and impact of an Infobutton manager. Proceedings of AMIA’06, pp. 151–155, 2006.
11.
go back to reference Collins, R. D., Algorithmic Diagnosis of Symptoms and Signs: Cost-Effective Approach. Lippincott Williams & Wilkins, 2002. Collins, R. D., Algorithmic Diagnosis of Symptoms and Signs: Cost-Effective Approach. Lippincott Williams & Wilkins, 2002.
14.
go back to reference Dunning, T., Nursing Care of Older People with Diabetes. Wiley-Blackwell, 2005. Dunning, T., Nursing Care of Older People with Diabetes. Wiley-Blackwell, 2005.
15.
go back to reference Duyff, R. L., American Dietetic Association Complete Food and Nutrition Guide, 3rd ed. Wiley, 2006. Duyff, R. L., American Dietetic Association Complete Food and Nutrition Guide, 3rd ed. Wiley, 2006.
16.
go back to reference Eysenbach, G., Consumer health informatics. BMJ 320(7251):1713–1716, 2000.CrossRef Eysenbach, G., Consumer health informatics. BMJ 320(7251):1713–1716, 2000.CrossRef
17.
go back to reference Eysenbach, G., Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 10(3):e22, 2008.CrossRef Eysenbach, G., Medicine 2.0: social networking, collaboration, participation, apomediation, and openness. J Med Internet Res 10(3):e22, 2008.CrossRef
18.
go back to reference Farfan, F., Hristidis, V., and Ranganathan, A., et al., XOntoRank: Ontology-aware search of electronic medical records. Proceedings of ICDE’09, pp. 820-831, 2009. Farfan, F., Hristidis, V., and Ranganathan, A., et al., XOntoRank: Ontology-aware search of electronic medical records. Proceedings of ICDE’09, pp. 820-831, 2009.
19.
go back to reference Gagliano, M. E., A literature review on the efficacy of video in patient education. J Med Educ 63(10):785–792, 1988. Gagliano, M. E., A literature review on the efficacy of video in patient education. J Med Educ 63(10):785–792, 1988.
21.
go back to reference Goetz, T., The Decision Tree: Taking Control of Your Health in the New Era of Personalized Medicine. Rodale Books, 2010. Goetz, T., The Decision Tree: Taking Control of Your Health in the New Era of Personalized Medicine. Rodale Books, 2010.
23.
go back to reference Hanas, R., Type 1 Diabetes in Children, Adolescents and Young Adults: How to Become an Expert on Your Own Diabetes, 4th ed. Class Publishing, 2009. Hanas, R., Type 1 Diabetes in Children, Adolescents and Young Adults: How to Become an Expert on Your Own Diabetes, 4th ed. Class Publishing, 2009.
24.
go back to reference Hanson, W., The Edge of Medicine: The Technology That will Change Our Lives. Palgrave Macmillan, 2008. Hanson, W., The Edge of Medicine: The Technology That will Change Our Lives. Palgrave Macmillan, 2008.
30.
go back to reference Johnson, M., Bulechek, G. M., and Dochterman, J. M., et al., NANDA, NOC, and NIC Linkages: Nursing Diagnoses, Outcomes, and Interventions, 2nd ed. Mosby, 2005. Johnson, M., Bulechek, G. M., and Dochterman, J. M., et al., NANDA, NOC, and NIC Linkages: Nursing Diagnoses, Outcomes, and Interventions, 2nd ed. Mosby, 2005.
31.
go back to reference Li, X., and Croft, W. B., Time-based language models. Proceedings of CIKM’03, pp. 469–475, 2003. Li, X., and Croft, W. B., Time-based language models. Proceedings of CIKM’03, pp. 469–475, 2003.
32.
go back to reference Luo, G., Design and evaluation of the iMed intelligent medical search engine. Proceedings of ICDE’09, pp. 1379–1390, 2009. Luo, G., Design and evaluation of the iMed intelligent medical search engine. Proceedings of ICDE’09, pp. 1379–1390, 2009.
33.
go back to reference Luo, G., Intelligent output interface for intelligent medical search engine. Proceedings of AAAI’08, pp. 1201–1206, 2008. Luo, G., Intelligent output interface for intelligent medical search engine. Proceedings of AAAI’08, pp. 1201–1206, 2008.
34.
go back to reference Luo, G., Lessons learned from building the iMed intelligent medical search engine. Proceedings of EMBC’09, pp. 5138–5142, 2009. Luo, G., Lessons learned from building the iMed intelligent medical search engine. Proceedings of EMBC’09, pp. 5138–5142, 2009.
35.
go back to reference Luo, G., On search guide phrase compilation for recommending home medical products. Proceedings of EMBC’10, pp. 2167–2171, 2010. Luo, G., On search guide phrase compilation for recommending home medical products. Proceedings of EMBC’10, pp. 2167–2171, 2010.
36.
go back to reference Luo, G., Navigation interface for recommending home medical products. JMS, to appear. Luo, G., Navigation interface for recommending home medical products. JMS, to appear.
37.
go back to reference Luo, G., and Tang, C., On iterative intelligent medical search. Proceedings of SIGIR’08, pp. 3–10, 2008. Luo, G., and Tang, C., On iterative intelligent medical search. Proceedings of SIGIR’08, pp. 3–10, 2008.
38.
go back to reference Luo, G., and Tang, C., Challenging issues in iterative intelligent medical search. Proceedings of ICPR’08, pp. 1–4, 2008. Luo, G., and Tang, C., Challenging issues in iterative intelligent medical search. Proceedings of ICPR’08, pp. 1–4, 2008.
39.
go back to reference Luo, G., and Tang, C., Automatic home nursing activity recommendation. Proceedings of AMIA’09, pp. 401–405, 2009. Luo, G., and Tang, C., Automatic home nursing activity recommendation. Proceedings of AMIA’09, pp. 401–405, 2009.
40.
go back to reference Luo, G., Thomas, S. B., and Tang, C., Intelligent consumer-centric electronic medical record. Proceedings of MIE’09, pp. 120–124, 2009. Luo, G., Thomas, S. B., and Tang, C., Intelligent consumer-centric electronic medical record. Proceedings of MIE’09, pp. 120–124, 2009.
41.
go back to reference Luo, G., Thomas, S. B., and Tang, C., Automatic home medical product recommendation. JMS, to appear. Luo, G., Thomas, S. B., and Tang, C., Automatic home medical product recommendation. JMS, to appear.
44.
go back to reference Meyer, M. M., and Derr, P., The Comfort of Home: a Complete Guide for Caregivers, 3rd ed. CareTrust Publications LLC, 2007. Meyer, M. M., and Derr, P., The Comfort of Home: a Complete Guide for Caregivers, 3rd ed. CareTrust Publications LLC, 2007.
46.
go back to reference Prevention magazine editors. The Doctors Book of Home Remedies. Bantam, 2003. Prevention magazine editors. The Doctors Book of Home Remedies. Bantam, 2003.
47.
go back to reference Ramasubramanian, V., Peterson, R., and Sirer, E. G., Corona: A high performance publish-subscribe system for the World Wide Web. Proceedings of NSDI’06, 2006. Ramasubramanian, V., Peterson, R., and Sirer, E. G., Corona: A high performance publish-subscribe system for the World Wide Web. Proceedings of NSDI’06, 2006.
49.
go back to reference Radomski, M. V., and Trombly, C. A., Occupational Therapy for Physical Dysfunction, 6th ed. Lippincott Williams & Wilkins, 2007. Radomski, M. V., and Trombly, C. A., Occupational Therapy for Physical Dysfunction, 6th ed. Lippincott Williams & Wilkins, 2007.
52.
go back to reference Teevan, J., Dumais, S. T., and Liebling, D. J., To personalize or not to personalize: modeling queries with variation in user intent. Proceedings of SIGIR’08, pp. 163-170, 2008. Teevan, J., Dumais, S. T., and Liebling, D. J., To personalize or not to personalize: modeling queries with variation in user intent. Proceedings of SIGIR’08, pp. 163-170, 2008.
53.
go back to reference Thompson, H. J., and Thielke, S. M., How do health care providers perceive technologies for monitoring older adults? Proceedings of EMBC’09, pp. 4315–4318, 2009. Thompson, H. J., and Thielke, S. M., How do health care providers perceive technologies for monitoring older adults? Proceedings of EMBC’09, pp. 4315–4318, 2009.
54.
go back to reference Vogeli, C., Shields, A. E., Lee, T. A., et al., Multiple chronic conditions: prevalence, health consequences, and implications for quality, care management, and costs. JGIM 22(Suppl 3):391–395, 2007.CrossRef Vogeli, C., Shields, A. E., Lee, T. A., et al., Multiple chronic conditions: prevalence, health consequences, and implications for quality, care management, and costs. JGIM 22(Suppl 3):391–395, 2007.CrossRef
56.
go back to reference White, R.W., and Horvitz, E., Cyberchondria: Studies of the escalation of medical concerns in Web search. ACM Trans. Inf. Syst. 27(4), 2009. White, R.W., and Horvitz, E., Cyberchondria: Studies of the escalation of medical concerns in Web search. ACM Trans. Inf. Syst. 27(4), 2009.
59.
go back to reference Wilkinson, R., and Smeaton, A.F., Automatic link generation. ACM Comput. Surv. 31(4), 1999. Wilkinson, R., and Smeaton, A.F., Automatic link generation. ACM Comput. Surv. 31(4), 1999.
61.
go back to reference Yang, K., Evens, M. W., and Trace, D., Improving the text summaries in the intelligent medical record system. Proceedings of MAICS’06, 2006. Yang, K., Evens, M. W., and Trace, D., Improving the text summaries in the intelligent medical record system. Proceedings of MAICS’06, 2006.
63.
go back to reference Bakken, S., Currie, L. M., Lee, N. J., et al., Integrating evidence into clinical information systems for nursing decision support. I J Med Inform 77(6):413–420, 2008.CrossRef Bakken, S., Currie, L. M., Lee, N. J., et al., Integrating evidence into clinical information systems for nursing decision support. I J Med Inform 77(6):413–420, 2008.CrossRef
64.
go back to reference Barnett, G. O., Cimino, J. J., Hupp, J. A., et al., DXplain. An evolving diagnostic decision-support system. JAMA 258(1):67–74, 1987.CrossRef Barnett, G. O., Cimino, J. J., Hupp, J. A., et al., DXplain. An evolving diagnostic decision-support system. JAMA 258(1):67–74, 1987.CrossRef
65.
go back to reference Batavia, M., Contraindications in Physical Rehabilitation: Doing No Harm. Saunders, 2006. Batavia, M., Contraindications in Physical Rehabilitation: Doing No Harm. Saunders, 2006.
66.
go back to reference Brin, S., and Page, L., The anatomy of a large-scale hypertextual Web search engine. Comput Netw 30(1–7):107–117, 1998. Brin, S., and Page, L., The anatomy of a large-scale hypertextual Web search engine. Comput Netw 30(1–7):107–117, 1998.
67.
go back to reference Collins, R.D., Algorithmic Approach to Treatment. Lippincott Williams & Wilkins, 1997. Collins, R.D., Algorithmic Approach to Treatment. Lippincott Williams & Wilkins, 1997.
68.
go back to reference Collins, R.D., Algorithmic Selection and Interpretation of Diagnostic Tests. Williams & Wilkins, 1998. Collins, R.D., Algorithmic Selection and Interpretation of Diagnostic Tests. Williams & Wilkins, 1998.
69.
go back to reference Demner-Fushman, D., Seckman, C., and Fisher, C., et al., A prototype system to support evidence-based practice. Proceedings of AMIA’08, pp. 151-155, 2008. Demner-Fushman, D., Seckman, C., and Fisher, C., et al., A prototype system to support evidence-based practice. Proceedings of AMIA’08, pp. 151-155, 2008.
70.
go back to reference Doenges, M., Moorhouse, M., and Murr, A., Nursing Care Plans: Guidelines for Individualizing Client Care across the Life Span, 8th ed. F.A. Davis Company, 2009. Doenges, M., Moorhouse, M., and Murr, A., Nursing Care Plans: Guidelines for Individualizing Client Care across the Life Span, 8th ed. F.A. Davis Company, 2009.
71.
go back to reference Elhadad, N., Kan, M., Klavans, J. L., et al., Customization in a unified framework for summarizing medical literature. Artif Intell Med 33(2):179–198, 2005.CrossRef Elhadad, N., Kan, M., Klavans, J. L., et al., Customization in a unified framework for summarizing medical literature. Artif Intell Med 33(2):179–198, 2005.CrossRef
75.
go back to reference Haugen, N., and Galura, S.J., Ulrich & Canale's Nursing Care Planning Guides: Prioritization, Delegation, and Critical Thinking, 7th ed. Saunders, 2010. Haugen, N., and Galura, S.J., Ulrich & Canale's Nursing Care Planning Guides: Prioritization, Delegation, and Critical Thinking, 7th ed. Saunders, 2010.
77.
go back to reference Luo, G., Tang, C., and Thomas, S. B., Intelligent personal health record: experience and open issues. Proceedings of IHI’10, pp. 326-335, 2010. Luo, G., Tang, C., and Thomas, S. B., Intelligent personal health record: experience and open issues. Proceedings of IHI’10, pp. 326-335, 2010.
78.
go back to reference Rodgers, S., Delmar's Medical-Surgical Nursing Care Plans. Delmar Cengage Learning, 2007. Rodgers, S., Delmar's Medical-Surgical Nursing Care Plans. Delmar Cengage Learning, 2007.
79.
go back to reference Tatro, D. S., 2011 Drug Interaction Facts: The Authority on Drug Interactions. Lippincott Williams & Wilkins, 2010. Tatro, D. S., 2011 Drug Interaction Facts: The Authority on Drug Interactions. Lippincott Williams & Wilkins, 2010.
80.
go back to reference Wang, Y., and Liu, Z., Automatic detecting indicators for quality of health information on the Web. I J Med Inform 76(8):575–582, 2007.CrossRef Wang, Y., and Liu, Z., Automatic detecting indicators for quality of health information on the Web. I J Med Inform 76(8):575–582, 2007.CrossRef
81.
go back to reference Wilson, P., How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet. BMJ 324(7337):598–602, 2002.CrossRef Wilson, P., How to find the good and avoid the bad or ugly: a short guide to tools for rating quality of health information on the internet. BMJ 324(7337):598–602, 2002.CrossRef
84.
go back to reference Comer, S. R., Delmar's Geriatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004. Comer, S. R., Delmar's Geriatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004.
85.
go back to reference Comer, S. R., Delmar's Critical Care Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004. Comer, S. R., Delmar's Critical Care Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004.
86.
go back to reference Luxner, K. L., Delmar's Maternal-Infant Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004. Luxner, K. L., Delmar's Maternal-Infant Nursing Care Plans, 2nd ed. Delmar Cengage Learning, 2004.
87.
go back to reference Luxner, K. L., Delmar's Pediatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004. Luxner, K. L., Delmar's Pediatric Nursing Care Plans, 3rd ed. Delmar Cengage Learning, 2004.
88.
go back to reference Gulanick, M., and Myers, J. L., Nursing Care Plans: Diagnoses, Interventions, and Outcomes, 7th ed. Mosby, 2010. Gulanick, M., and Myers, J. L., Nursing Care Plans: Diagnoses, Interventions, and Outcomes, 7th ed. Mosby, 2010.
89.
go back to reference Swearingen, P. L., All-in-One Care Planning Resource: Medical-Surgical, Pediatric, Maternity, and Psychiatric Nursing Care Plans, 2nd ed. Mosby, 2007. Swearingen, P. L., All-in-One Care Planning Resource: Medical-Surgical, Pediatric, Maternity, and Psychiatric Nursing Care Plans, 2nd ed. Mosby, 2007.
90.
go back to reference Schultz, J. M., and Videbeck, S. L., Lippincott's Manual of Psychiatric Nursing Care Plans, 8th ed. Lippincott Williams & Wilkins, 2008. Schultz, J. M., and Videbeck, S. L., Lippincott's Manual of Psychiatric Nursing Care Plans, 8th ed. Lippincott Williams & Wilkins, 2008.
91.
go back to reference Varcarolis, E. M., Manual of Psychiatric Nursing Care Planning: Assessment Guides, Diagnoses, Psychopharmacology, 4th ed. Saunders, 2010. Varcarolis, E. M., Manual of Psychiatric Nursing Care Planning: Assessment Guides, Diagnoses, Psychopharmacology, 4th ed. Saunders, 2010.
92.
go back to reference Cawsey, A. J., Jones, R. B., and Pearson, J., The evaluation of a personalised health information system for patients with cancer. User Model User-Adapt Interact 10(1):47–72, 2000.CrossRef Cawsey, A. J., Jones, R. B., and Pearson, J., The evaluation of a personalised health information system for patients with cancer. User Model User-Adapt Interact 10(1):47–72, 2000.CrossRef
93.
go back to reference Al-Busaidi, A., Gray, A., and Fiddian, N., Personalizing web information for patients: linking patient medical data with the web via a patient personal knowledge base. Health Inform J 12(1):27–39, 2006.CrossRef Al-Busaidi, A., Gray, A., and Fiddian, N., Personalizing web information for patients: linking patient medical data with the web via a patient personal knowledge base. Health Inform J 12(1):27–39, 2006.CrossRef
94.
go back to reference Bental, D. S., Cawsey, A., and Jones, R., Patient information systems that tailor to the individual. Patient Educ Couns 36(2):171–180, 1999.CrossRef Bental, D. S., Cawsey, A., and Jones, R., Patient information systems that tailor to the individual. Patient Educ Couns 36(2):171–180, 1999.CrossRef
96.
go back to reference Luo, G., Tang, C., and Yang, H., et al., MedSearch: a specialized search engine for medical information retrieval. Proceedings of CIKM’08, pp. 143-152, 2008. Luo, G., Tang, C., and Yang, H., et al., MedSearch: a specialized search engine for medical information retrieval. Proceedings of CIKM’08, pp. 143-152, 2008.
Metadata
Title
Intelligent Personal Health Record: Experience and Open Issues
Authors
Gang Luo
Chunqiang Tang
Selena B. Thomas
Publication date
01-08-2012
Publisher
Springer US
Published in
Journal of Medical Systems / Issue 4/2012
Print ISSN: 0148-5598
Electronic ISSN: 1573-689X
DOI
https://doi.org/10.1007/s10916-011-9674-5

Other articles of this Issue 4/2012

Journal of Medical Systems 4/2012 Go to the issue