Skip to main content
Top
Published in: BMC Health Services Research 1/2021

Open Access 01-12-2021 | Disorders of Intellectual Development | Research

State of the practice of health information systems: a survey study amongst health care professionals in intellectual disability care

Authors: Joep Tummers, Hilde Tobi, Bianca Schalk, Bedir Tekinerdogan, Geraline Leusink

Published in: BMC Health Services Research | Issue 1/2021

Login to get access

Abstract

Background

Care for people with an Intellectual Disability (ID) is complex: multiple health care professionals are involved and use different Health Information Systems (HISs) to store medical and daily care information on the same individuals. The objective of this study is to identify the HISs needs of professionals in ID care by addressing the obstacles and challenges they meet in their current HISs.

Methods

We distributed an online questionnaire amongst Dutch ID care professionals via different professional associations and care providers. 328 respondents answered questions on their HISs. An inventory was made of HIS usage purposes, problems, satisfaction and desired features, with and without stratification on type of HIS and care professional.

Results

Typical in ID care, two types of HISs are being used that differ with respect to their features and users: Electronic Client Dossiers (ECDs) and Electronic Patient Dossiers (EPDs). In total, the respondents mentioned 52 unique HISs. Groups of care professionals differed in their satisfaction with ECDs only. Both HIS types present users with difficulties related to the specifics of care for people with an ID. Particularly the much needed communication between the many unique HISs was reported a major issue which implies major issues with inter-operability. Other problems seem design-related as well.

Conclusion

This study can be used to improve current HISs and design new HISs that take ID care professionals requirements into account.
Appendix
Available only for authorised users
Literature
1.
go back to reference Woittiez I, Putman L, Eggink E, Ras M. Zorg beter begrepen. Verklaringen voor de groeiende vraag naar zorg voor mensen met een verstandelijke beperking. Den Haag: SCP; 2014. Woittiez I, Putman L, Eggink E, Ras M. Zorg beter begrepen. Verklaringen voor de groeiende vraag naar zorg voor mensen met een verstandelijke beperking. Den Haag: SCP; 2014.
2.
go back to reference Polder JJ, Meerding WJ, Bonneux L, van der Maas PJ. Healthcare costs of intellectual disability in the Netherlands: a cost-of-illness perspective. J Intellect Disabil Res. 2002;46(2):168–78.CrossRef Polder JJ, Meerding WJ, Bonneux L, van der Maas PJ. Healthcare costs of intellectual disability in the Netherlands: a cost-of-illness perspective. J Intellect Disabil Res. 2002;46(2):168–78.CrossRef
3.
go back to reference Hanekamp M, Heesbeen S, van der Helm I, Valks R. Administratieve belasting langdurige zorg 2019. Berenschot: Technical report; 2019. Hanekamp M, Heesbeen S, van der Helm I, Valks R. Administratieve belasting langdurige zorg 2019. Berenschot: Technical report; 2019.
4.
go back to reference Yusof MM, Kuljis J, Papazafeiropoulou A, Stergioulas LK. An evaluation framework for Health Information Systems: human, organization and technology-fit factors (HOT-fit). Int J Med Inform. 2008;77(6):386–98.CrossRef Yusof MM, Kuljis J, Papazafeiropoulou A, Stergioulas LK. An evaluation framework for Health Information Systems: human, organization and technology-fit factors (HOT-fit). Int J Med Inform. 2008;77(6):386–98.CrossRef
7.
go back to reference World Health Organization. Everybody’s business: strengthening health systems to improve health outcomes. WHO’s Framework for Action. Geneva: World Health Organization; 2007. Technical report, World Health Organization, 2007 World Health Organization. Everybody’s business: strengthening health systems to improve health outcomes. WHO’s Framework for Action. Geneva: World Health Organization; 2007. Technical report, World Health Organization, 2007
8.
go back to reference Skolnik R. Global health 101: New Haven, CT: Jones & Bartlett Publishers; 2015. ISBN 9781284050547 Skolnik R. Global health 101: New Haven, CT: Jones & Bartlett Publishers; 2015. ISBN 9781284050547
9.
go back to reference McAlearney AS, Robbins J, Hirsch A, Jorina M, Harrop JP. Perceived efficiency impacts following electronic health record implementation: an exploratory study of an urban community health center network. Int J Med Inform. 2010;79(12):807–16.CrossRef McAlearney AS, Robbins J, Hirsch A, Jorina M, Harrop JP. Perceived efficiency impacts following electronic health record implementation: an exploratory study of an urban community health center network. Int J Med Inform. 2010;79(12):807–16.CrossRef
10.
go back to reference Sinard JH, Castellani WJ, Wilkerson ML, Henricks WH. Stand-alone laboratory information systems versus laboratory modules incorporated in the electronic health record. Arch Pathol Lab Med. 2015;139(3):311–8.CrossRef Sinard JH, Castellani WJ, Wilkerson ML, Henricks WH. Stand-alone laboratory information systems versus laboratory modules incorporated in the electronic health record. Arch Pathol Lab Med. 2015;139(3):311–8.CrossRef
12.
go back to reference Trudel M-C, Marsan J, Paré G, Raymond L, de Guinea AO, Maillet É, et al. Ceiling effect in EMR system assimilation: a multiple case study in primary care family practices. BMC Med Inform Decis Mak. 2017;17(1):46.CrossRef Trudel M-C, Marsan J, Paré G, Raymond L, de Guinea AO, Maillet É, et al. Ceiling effect in EMR system assimilation: a multiple case study in primary care family practices. BMC Med Inform Decis Mak. 2017;17(1):46.CrossRef
13.
go back to reference Brailer DJ. Interoperability: the key to the future health care system: interoperability will bind together a wide network of real-time, life-critical data that not only transform but become health care. Health Aff. 2005;24(Suppl1):W5–19.CrossRef Brailer DJ. Interoperability: the key to the future health care system: interoperability will bind together a wide network of real-time, life-critical data that not only transform but become health care. Health Aff. 2005;24(Suppl1):W5–19.CrossRef
16.
go back to reference Adler-Milstein J, Holmgren AJ, Kralovec P, Worzala C, Searcy T, Patel V. Electronic health record adoption in US hospitals: the emergence of a digital “advanced use” divide. J Am Med Inform Assoc. 2017;24(6):1142–8.CrossRef Adler-Milstein J, Holmgren AJ, Kralovec P, Worzala C, Searcy T, Patel V. Electronic health record adoption in US hospitals: the emergence of a digital “advanced use” divide. J Am Med Inform Assoc. 2017;24(6):1142–8.CrossRef
17.
go back to reference Alsohime F, Temsah M-H, Al-Eyadhy A, Bashiri FA, Househ M, Jamal A, et al. Satisfaction and perceived usefulness with newly-implemented Electronic Health Records System among pediatricians at a university hospital. Comput Methods Programs Biomed. 2019;169:51–7.CrossRef Alsohime F, Temsah M-H, Al-Eyadhy A, Bashiri FA, Househ M, Jamal A, et al. Satisfaction and perceived usefulness with newly-implemented Electronic Health Records System among pediatricians at a university hospital. Comput Methods Programs Biomed. 2019;169:51–7.CrossRef
19.
go back to reference Holanda AA, Sá HL d C e, Vieira APGF, Catrib AMF. Use and satisfaction with electronic health record by primary care physicians in a health district in Brazil. J Med Syst. 2012;36(5):3141–9.CrossRef Holanda AA, Sá HL d C e, Vieira APGF, Catrib AMF. Use and satisfaction with electronic health record by primary care physicians in a health district in Brazil. J Med Syst. 2012;36(5):3141–9.CrossRef
20.
go back to reference Soderberg K, Rajamani S, Wholey D, LaVenture M. Health Reform in Minnesota: An Analysis of Complementary Initiatives Implementing Electronic Health Record Technology and Care Coordination. Online J Public Health Inform. 2016;8(3):e204.CrossRef Soderberg K, Rajamani S, Wholey D, LaVenture M. Health Reform in Minnesota: An Analysis of Complementary Initiatives Implementing Electronic Health Record Technology and Care Coordination. Online J Public Health Inform. 2016;8(3):e204.CrossRef
21.
go back to reference Willis GB. Cognitive interviewing: Thousand Oaks, California: A tool for improving questionnaire design: Sage Publications; 2004. Willis GB. Cognitive interviewing: Thousand Oaks, California: A tool for improving questionnaire design: Sage Publications; 2004.
22.
go back to reference Qualtrics. Qualtrics survey software, 2020. Qualtrics. Qualtrics survey software, 2020.
23.
go back to reference May ME, Kennedy CH. Health and problem behavior among people with intellectual disabilities. Behav Anal Pract. 2010;3(2):4–12. May ME, Kennedy CH. Health and problem behavior among people with intellectual disabilities. Behav Anal Pract. 2010;3(2):4–12.
24.
go back to reference Kim S, Lee K-H, Hwang H, Yoo S. Analysis of the factors influencing healthcare professionals’ adoption of mobile electronic medical record (EMR) using the unified theory of acceptance and use of technology (UTAUT) in a tertiary hospital. BMC Med Inform Decis Mak. 2016;16(1):12.CrossRef Kim S, Lee K-H, Hwang H, Yoo S. Analysis of the factors influencing healthcare professionals’ adoption of mobile electronic medical record (EMR) using the unified theory of acceptance and use of technology (UTAUT) in a tertiary hospital. BMC Med Inform Decis Mak. 2016;16(1):12.CrossRef
26.
go back to reference Resnick HE, Alwan M. Use of health information technology in home health and hospice agencies: United States, 2007. J Am Med Inform Assoc. 2010;17(4):389–95.CrossRef Resnick HE, Alwan M. Use of health information technology in home health and hospice agencies: United States, 2007. J Am Med Inform Assoc. 2010;17(4):389–95.CrossRef
27.
go back to reference Pfoh ER, Abramson E, Zandieh S, Edwards A, Kaushal R. Satisfaction after the transition between electronic health record systems at six ambulatory practices. J Eval Clin Pract. 2012;18(6):1133–9.CrossRef Pfoh ER, Abramson E, Zandieh S, Edwards A, Kaushal R. Satisfaction after the transition between electronic health record systems at six ambulatory practices. J Eval Clin Pract. 2012;18(6):1133–9.CrossRef
29.
go back to reference Topaz M, Ronquillo C, Peltonen L-M, Pruinelli L, Sarmiento RF, Badger MK, et al. Nurse informaticians report low satisfaction and multi-level concerns with electronic health records: results from an international survey. AMIA Annu Symp Proc. 2016;2016:2016–25. American Medical Informatics Association.PubMed Topaz M, Ronquillo C, Peltonen L-M, Pruinelli L, Sarmiento RF, Badger MK, et al. Nurse informaticians report low satisfaction and multi-level concerns with electronic health records: results from an international survey. AMIA Annu Symp Proc. 2016;2016:2016–25. American Medical Informatics Association.PubMed
30.
go back to reference Pickering BW, Dong Y, Ahmed A, Giri J, Kilickaya O, Gupta A, et al. The implementation of clinician designed, human-centered electronic medical record viewer in the intensive care unit: a pilot step-wedge cluster randomized trial. Int J Med Inform. 2015;84(5):299–307.CrossRef Pickering BW, Dong Y, Ahmed A, Giri J, Kilickaya O, Gupta A, et al. The implementation of clinician designed, human-centered electronic medical record viewer in the intensive care unit: a pilot step-wedge cluster randomized trial. Int J Med Inform. 2015;84(5):299–307.CrossRef
34.
go back to reference Balogh R, McMorris CA, Lunsky Y, Ouellette-Kuntz H, Bourne L, Colantonio A, et al. Organising healthcare services for persons with an intellectual disability. Cochrane Database Syst Rev. 2016;4:CD007492.PubMed Balogh R, McMorris CA, Lunsky Y, Ouellette-Kuntz H, Bourne L, Colantonio A, et al. Organising healthcare services for persons with an intellectual disability. Cochrane Database Syst Rev. 2016;4:CD007492.PubMed
37.
go back to reference Whitt KJ, Eden L, Merrill KC, Hughes M. Nursing student experiences regarding safe use of electronic health records: a pilot study of the Safety and Assurance Factors for EHR Resilience guides. Comput Inform Nurs. 2017;35(1):45–53.CrossRef Whitt KJ, Eden L, Merrill KC, Hughes M. Nursing student experiences regarding safe use of electronic health records: a pilot study of the Safety and Assurance Factors for EHR Resilience guides. Comput Inform Nurs. 2017;35(1):45–53.CrossRef
38.
go back to reference Adler-Milstein J, Everson J, Lee S-YD. Sequencing of EHR adoption among US hospitals and the impact of meaningful use. J Am Med Inform Assoc. 2014;21(6):984–91.CrossRef Adler-Milstein J, Everson J, Lee S-YD. Sequencing of EHR adoption among US hospitals and the impact of meaningful use. J Am Med Inform Assoc. 2014;21(6):984–91.CrossRef
40.
go back to reference Kihuba E, Gathara D, Mwinga S, Mulaku M, Kosgei R, Mogoa W, et al. Assessing the ability of health information systems in hospitals to support evidence-informed decisions in Kenya. Glob Health Action. 2014;7(1):24859.CrossRef Kihuba E, Gathara D, Mwinga S, Mulaku M, Kosgei R, Mogoa W, et al. Assessing the ability of health information systems in hospitals to support evidence-informed decisions in Kenya. Glob Health Action. 2014;7(1):24859.CrossRef
41.
go back to reference Tubaishat A, AL-Rawajfah OM. The use of electronic medical records in jordanian hospitals: a nationwide survey. Comput Inform Nurs. 2017;35(10):538–45.CrossRef Tubaishat A, AL-Rawajfah OM. The use of electronic medical records in jordanian hospitals: a nationwide survey. Comput Inform Nurs. 2017;35(10):538–45.CrossRef
42.
go back to reference Karimi M, Asadi F, Moghaddasi H, Rabiei R. Features of intellectual disability information system: a comparative study. Clin Rev Case Rep. 2018;18:20. Karimi M, Asadi F, Moghaddasi H, Rabiei R. Features of intellectual disability information system: a comparative study. Clin Rev Case Rep. 2018;18:20.
43.
go back to reference Sockolow PS, Weiner JP, Bowles KH, Abbott P, Lehmann HP. Advice for decision makers based on an electronic health record evaluation at a program for all-inclusive care for elders site. Appl Clin Inform. 2011;2(01):18–38.CrossRef Sockolow PS, Weiner JP, Bowles KH, Abbott P, Lehmann HP. Advice for decision makers based on an electronic health record evaluation at a program for all-inclusive care for elders site. Appl Clin Inform. 2011;2(01):18–38.CrossRef
44.
go back to reference Wang T, Biedermann S. Adoption and utilization of electronic health record systems by long-term care facilities in Texas. Perspectives in Health Information Management/AHIMA, American Health Information Management Association, 9 (Spring); 2012. Wang T, Biedermann S. Adoption and utilization of electronic health record systems by long-term care facilities in Texas. Perspectives in Health Information Management/AHIMA, American Health Information Management Association, 9 (Spring); 2012.
46.
47.
go back to reference Raymond L, Paré G, de Guinea AO, Poba-Nzaou P, Trudel M-C, Marsan J, et al. Improving performance in medical practices through the extended use of electronic medical record systems: a survey of Canadian family physicians. BMC Med Inform Decis Mak. 2015;15(1):27.CrossRef Raymond L, Paré G, de Guinea AO, Poba-Nzaou P, Trudel M-C, Marsan J, et al. Improving performance in medical practices through the extended use of electronic medical record systems: a survey of Canadian family physicians. BMC Med Inform Decis Mak. 2015;15(1):27.CrossRef
48.
go back to reference Dutch Ministry of Health Welfare and Sport. “Act amending the Act on the use of the citizen service number in health care, etc. (client rights in the case of electronic data processing)” [Wijzigingswet Wet gebruik burgerservicenummer in de zorg, enz. (cliëntenrechten bij elektronische verwerking va, 2016. Dutch Ministry of Health Welfare and Sport. “Act amending the Act on the use of the citizen service number in health care, etc. (client rights in the case of electronic data processing)” [Wijzigingswet Wet gebruik burgerservicenummer in de zorg, enz. (cliëntenrechten bij elektronische verwerking va, 2016.
49.
go back to reference Muller G. A reference architecture primer. Eindhoven Univ. of Techn., Eindhoven, White paper; 2012. Muller G. A reference architecture primer. Eindhoven Univ. of Techn., Eindhoven, White paper; 2012.
Metadata
Title
State of the practice of health information systems: a survey study amongst health care professionals in intellectual disability care
Authors
Joep Tummers
Hilde Tobi
Bianca Schalk
Bedir Tekinerdogan
Geraline Leusink
Publication date
01-12-2021
Publisher
BioMed Central
Published in
BMC Health Services Research / Issue 1/2021
Electronic ISSN: 1472-6963
DOI
https://doi.org/10.1186/s12913-021-07256-9

Other articles of this Issue 1/2021

BMC Health Services Research 1/2021 Go to the issue