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Published in: BMC Palliative Care 1/2016

Open Access 01-12-2016 | Research article

Improving end of life care in care homes; an evaluation of the six steps to success programme

Authors: Mary O’Brien, Jennifer Kirton, Katherine Knighting, Brenda Roe, Barbara Jack

Published in: BMC Palliative Care | Issue 1/2016

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Abstract

Background

There are approximately 426,000 people residing within care homes in the UK. Residents often have complex trajectories of dying, which make it difficult for staff to manage their end-of-life care. There is growing recognition for the need to support care homes staff in the care of these residents with increased educational initiatives. One educational initiative is The Six Steps to Success programme.

Method

In order to evaluate the implementation of Six Steps with the first cohort of care homes to complete the end-of-life programme in the North West of England., a pragmatic evaluation methodology was implemented in 2012–2013 using multiple methods of qualitative data collection; online questionnaire with facilitators (n = 16), interviews with facilitators (n = 9) and case studies of care homes that had completed the programme (n = 6). The evaluation explored the implementation approach and experiences of the programme facilitators and obtain a detailed account of the impact of Six Steps on individual care homes. Based upon the National Health Service (NHS) End of Life Care (EoLC) Programme, The Route to Success in EoLC – Achieving Quality in Care Homes.

Results

The programme was flexibly designed so that it could be individually tailored to the geographical location and the individual cohort requirements. Facilitators provided comprehensive and flexible support to care homes.
Challenges to programme success were noted as; lack of time allocated to champions to devote to additional programme work, inappropriate staff selected as ‘Champions’ and staff sickness/high staff turnover presented challenges to embedding programme values.
Benefits to completing the programme were noted as; improvement in Advance Care Planning, improved staff communication/confidence when dealing with multi-disciplinary teams, improved end-of-life processes/documentation and increased staff confidence through acquisition of new knowledge and new processes.

Conclusions

The findings suggested an overall positive impact from the programme. This flexibly designed programme continues to be dynamic, iteratively amended and improved which may affect the direct transferability of the results to future cohorts.
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Literature
2.
go back to reference Reitinger E, Froggatt K, Brazil K, Heimerl K, Hockley J, Kunz R, Morbey H, Parker D, & Husebo BS. Palliative Care in Long-term Care Settings for Older People: findings from an EAPC Taskforce. Eur J Palliat Care. 2013;20(5):251–3. Reitinger E, Froggatt K, Brazil K, Heimerl K, Hockley J, Kunz R, Morbey H, Parker D, & Husebo BS. Palliative Care in Long-term Care Settings for Older People: findings from an EAPC Taskforce. Eur J Palliat Care. 2013;20(5):251–3.
4.
go back to reference Public health England what we know now 2014. London: Public Health England; 2014. //file:///C:/Users/kirtonj/Downloads/What_we_know_now_2014%20(1).pdf Accessed 30 Nov 2015. Public health England what we know now 2014. London: Public Health England; 2014. //file:///C:/Users/kirtonj/Downloads/What_we_know_now_2014%20(1).pdf Accessed 30 Nov 2015.
7.
go back to reference Public Health England NEoLCIN analysis of ONS Mortality data. Office for National Statistics Mortality data. National Cancer Intelligence Network. Older People and Cancer. 2014538. London: Public Health England/National Cancer Intelligence Network. 2014 file:///C:/Users/kirtonj/Downloads/Older%20People%20and%20Cancer%20December%202014.pdf Accessed on 30 Nov 2015. Public Health England NEoLCIN analysis of ONS Mortality data. Office for National Statistics Mortality data. National Cancer Intelligence Network. Older People and Cancer. 2014538. London: Public Health England/National Cancer Intelligence Network. 2014 file:///C:/Users/kirtonj/Downloads/Older%20People%20and%20Cancer%20December%202014.pdf Accessed on 30 Nov 2015.
9.
go back to reference Froggatt K, Parker D. Supportive care for the person with dementia. In: Hughes JC, Lloyd-Williams M, Sachs G, editors. Oxford: Oxford University Press; 2010. p. 313. Froggatt K, Parker D. Supportive care for the person with dementia. In: Hughes JC, Lloyd-Williams M, Sachs G, editors. Oxford: Oxford University Press; 2010. p. 313.
11.
go back to reference Bowman C, Whistler J, Ellerby M. A national census of care home residents. Age Ageing. 2004;33(6):561–6.CrossRefPubMed Bowman C, Whistler J, Ellerby M. A national census of care home residents. Age Ageing. 2004;33(6):561–6.CrossRefPubMed
12.
go back to reference Falconer M, O’Neill D. Profiling disability within nursing homes: a census-based approach. Age Ageing. 2007;36(2):209–13.CrossRefPubMed Falconer M, O’Neill D. Profiling disability within nursing homes: a census-based approach. Age Ageing. 2007;36(2):209–13.CrossRefPubMed
13.
go back to reference Seymour JE, Kumar A, Froggatt K. Do nursing homes for older people have the support they need to provide end-of-life care? A mixed methods enquiry in England. Palliat Med. 2010;25(2):125–38.CrossRef Seymour JE, Kumar A, Froggatt K. Do nursing homes for older people have the support they need to provide end-of-life care? A mixed methods enquiry in England. Palliat Med. 2010;25(2):125–38.CrossRef
14.
go back to reference Public Health England. What we know now 2013. London: Public Health England; 2013. file:///C:/Users/kirtonj/Downloads/What_we_know_now_2013_Nov_2013%20(1).pdf Accessed 30 Nov 2015. Public Health England. What we know now 2013. London: Public Health England; 2013. file:///C:/Users/kirtonj/Downloads/What_we_know_now_2013_Nov_2013%20(1).pdf Accessed 30 Nov 2015.
15.
go back to reference Reymond L, Israel FJ, Charles MA. A residential aged care end-of-life care pathway (RAC EoLCP) for Australian aged care facilities. Aust Health Rev. 2010;35(3):350–6.CrossRef Reymond L, Israel FJ, Charles MA. A residential aged care end-of-life care pathway (RAC EoLCP) for Australian aged care facilities. Aust Health Rev. 2010;35(3):350–6.CrossRef
16.
go back to reference Hall S, Kolliakou A, Petkova H, Froggatt K, Higginson IJ. Interventions for improving palliative care for older people living in nursing care homes (Review), The Cochrane Library. 2011. Accessed 30 Nov 2015. Hall S, Kolliakou A, Petkova H, Froggatt K, Higginson IJ. Interventions for improving palliative care for older people living in nursing care homes (Review), The Cochrane Library. 2011. Accessed 30 Nov 2015.
18.
go back to reference Goddard C, Stewart F, Thompson G, Hall S. Providing End-of-Life Care in Care Homes for Older People: A Qualitative Study of the Views of Care Home Staff and Community Nurses. J Appl Gerontol. 2013;32(1):76–95.CrossRefPubMed Goddard C, Stewart F, Thompson G, Hall S. Providing End-of-Life Care in Care Homes for Older People: A Qualitative Study of the Views of Care Home Staff and Community Nurses. J Appl Gerontol. 2013;32(1):76–95.CrossRefPubMed
19.
go back to reference Gandy R, McClelland B, Ashton S, Roe B, Mazhindu D, Gomm S, Horgan E, Hughes J, McAinsh S, Wrigley K. An Economic Appraisal of an End-of-life Care Training Initiative for Care Homes with Dementia Patients. J Care Serv Manage. 2010;4(4):321–30.CrossRef Gandy R, McClelland B, Ashton S, Roe B, Mazhindu D, Gomm S, Horgan E, Hughes J, McAinsh S, Wrigley K. An Economic Appraisal of an End-of-life Care Training Initiative for Care Homes with Dementia Patients. J Care Serv Manage. 2010;4(4):321–30.CrossRef
20.
go back to reference Ashton S, McClelland B, Roe B, Mazhindu D, Gandy R. An End of Life Care Initiative for People with Dementia. Eur J Palliat Care. 2009;16(5):240–3. Ashton S, McClelland B, Roe B, Mazhindu D, Gandy R. An End of Life Care Initiative for People with Dementia. Eur J Palliat Care. 2009;16(5):240–3.
21.
go back to reference NHS End of Life Care Programme The Route to Success in End of Life Care – Achieving Quality in Care Homes. 2010. file:///C:/Users/kirtonj/Downloads/rts_care_homes_rev_2014_v0.1_updated_090315_final_version_sml_.pdf Accessed 30 Nov 2015. NHS End of Life Care Programme The Route to Success in End of Life Care – Achieving Quality in Care Homes. 2010. file:///C:/Users/kirtonj/Downloads/rts_care_homes_rev_2014_v0.1_updated_090315_final_version_sml_.pdf Accessed 30 Nov 2015.
22.
go back to reference Rossi PH, Lipsey MW, Freeman HE. Evaluation A systematic approach. 7th ed. London: Sage publications; 2004. Rossi PH, Lipsey MW, Freeman HE. Evaluation A systematic approach. 7th ed. London: Sage publications; 2004.
23.
go back to reference Patton MQ. Qualitative Research & Evaluation Methods: Integrating Theory and Practice fourth edition. London: Sage Publications; 2015. Patton MQ. Qualitative Research & Evaluation Methods: Integrating Theory and Practice fourth edition. London: Sage Publications; 2015.
24.
go back to reference McPeake J, Bateson M, O’Neill A. Electronic surveys: how to maximise success. Nurse Res. 2014;21(3):24–6.CrossRefPubMed McPeake J, Bateson M, O’Neill A. Electronic surveys: how to maximise success. Nurse Res. 2014;21(3):24–6.CrossRefPubMed
25.
go back to reference Cresswell JW. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 4th ed. London: Sage Publications; 2013. Cresswell JW. Research Design: Qualitative, Quantitative, and Mixed Methods Approaches. 4th ed. London: Sage Publications; 2013.
26.
go back to reference Polit DF, Beck CT. Essentials of nursing research. 8th ed. London: Lippincot Press; 2013. Polit DF, Beck CT. Essentials of nursing research. 8th ed. London: Lippincot Press; 2013.
27.
go back to reference Bowling A. Research Methods in Health: Investigating health and health services. London: Open University Press; 2014. Bowling A. Research Methods in Health: Investigating health and health services. London: Open University Press; 2014.
28.
go back to reference Miles MB, Huberman AM, Saldana J. Qualitative Data Analysis: A Methods Sourcebook. London: Sage Publications; 2013. Miles MB, Huberman AM, Saldana J. Qualitative Data Analysis: A Methods Sourcebook. London: Sage Publications; 2013.
29.
go back to reference Froggatt K, Heimerl K. Palliative care in long-term care settings for older people: a new web resource. Eur J Palliat Care. 2008;15(4):180–1.11. Froggatt K, Heimerl K. Palliative care in long-term care settings for older people: a new web resource. Eur J Palliat Care. 2008;15(4):180–1.11.
30.
go back to reference Ashton S, Jack B, McClelland B, Roe B. End of Life Care: The experiences of Advance Care Planning amongst family caregivers of people with advanced dementia. A qualitative study. 2014. doi:10.1177/1471301214548692. Dementia. Ashton S, Jack B, McClelland B, Roe B. End of Life Care: The experiences of Advance Care Planning amongst family caregivers of people with advanced dementia. A qualitative study. 2014. doi:10.​1177/​1471301214548692​. Dementia.
Metadata
Title
Improving end of life care in care homes; an evaluation of the six steps to success programme
Authors
Mary O’Brien
Jennifer Kirton
Katherine Knighting
Brenda Roe
Barbara Jack
Publication date
01-12-2016
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2016
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/s12904-016-0123-6

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