Skip to main content
Top
Published in: BMC Palliative Care 1/2009

Open Access 01-12-2009 | Research article

GPs' views on transfer of information about terminally ill patients to the out-of-hours co-operative

Authors: Bart Schweitzer, Nettie Blankenstein, Maartje Willekens, Elmi Terpstra, Paul Giesen, Luc Deliens

Published in: BMC Palliative Care | Issue 1/2009

Login to get access

Abstract

Background

In the Netherlands, the increase in of out-of-hours care that is provided by GP co-operatives is challenging the continuity of care for the terminally ill in general practice. Aim of this study is to investigate the views of general practitioners (GPs) on the transfer of information about terminally ill patients to the GP co-operatives. GPs were asked to give their view from two different perspectives: as a GP in their daily practice and as a locum in the GP co-operative.

Methods

Retrospective web based questionnaire sent to all 424 GPs in the Amsterdam region.

Results

With a response rate of 42%, 177 physicians completed the questionnaire. Transfer of information to the GP co-operative about most of their terminally ill patients was reported by 82% of the GPs and 5% did not do so for any of their patients. A faster than foreseen deterioration of the patient's situation was the most frequently reported reason for not transferring information.
Of those who transferred information to the GP co-operative, more than 95% reported that they provided information about the diagnosis and terminally ill status of the patient. Information about medication, patient wishes regarding treatment, and prognosis was reported by respectively 90%, 87%, and 74% of the GPs. Less than 50% of the GPs reported that they transferred information about the patient's awareness of both the diagnosis and the prognosis, about the psychosocial context, and intolerances.
In their role as locum, over 90% of the GPs wanted to receive information about the diagnosis, the terminally ill status of the patient, the medication and the patient's wishes regarding treatment.

Conclusions

Although most GPs reported that they transferred information about their terminally ill patients to the GP co-operative, the content of this information varies considerably. Only 21% of the GPs, working out of hours as a locum, were satisfied with the quality of the information transferred.
Appendix
Available only for authorised users
Literature
1.
go back to reference Muysenbergh Van den METC: Palliative care provided by the general practitioner. (In Dutch). 2001, Thesis Rijksuniversiteit Leiden, 153. Muysenbergh Van den METC: Palliative care provided by the general practitioner. (In Dutch). 2001, Thesis Rijksuniversiteit Leiden, 153.
3.
go back to reference De Wit NJ, Broek Van den MW, Thomeer I, Stalman W: Terminal care for cancer patients in general practice; frequence, content and experienced burden. (In Dutch) Huisarts Wet. 2003, 46 (2): 86-90. De Wit NJ, Broek Van den MW, Thomeer I, Stalman W: Terminal care for cancer patients in general practice; frequence, content and experienced burden. (In Dutch) Huisarts Wet. 2003, 46 (2): 86-90.
4.
go back to reference Giesen P, Mokkink H, Ophey G, Drijver R, Grol R, Bosch van den W: How urgent is the morbidity presented at GP cooperatives?. Huisarts Wet. 2005, 48: 207-10.CrossRef Giesen P, Mokkink H, Ophey G, Drijver R, Grol R, Bosch van den W: How urgent is the morbidity presented at GP cooperatives?. Huisarts Wet. 2005, 48: 207-10.CrossRef
5.
go back to reference Giesen P, Van Lin N, Mokkink H, Bosch Van den W, Grol R: General Practice Co-operatives: long waiting times for home visits due to long distances?. BMC Health Serv Res. 2007, 7-19. Giesen P, Van Lin N, Mokkink H, Bosch Van den W, Grol R: General Practice Co-operatives: long waiting times for home visits due to long distances?. BMC Health Serv Res. 2007, 7-19.
6.
go back to reference Moll van Charante E, Giesen P, Mokkink H, Oort F, Grol R, Klazinga N, Bindels P: Patient satisfaction with large-scale out-of hours primary health care in The Netherlands: development of a postal questionnaire. Family Practice. 2006, 23: 437-443. 10.1093/fampra/cml017.CrossRefPubMed Moll van Charante E, Giesen P, Mokkink H, Oort F, Grol R, Klazinga N, Bindels P: Patient satisfaction with large-scale out-of hours primary health care in The Netherlands: development of a postal questionnaire. Family Practice. 2006, 23: 437-443. 10.1093/fampra/cml017.CrossRefPubMed
7.
go back to reference Giesen P, Moll van Charante E, Janssens H, Mokkink H, Bindels P, Bosch Van den W, Grol R: Patients evaluate accesibility and nurse telephone consultations in out-of-hours GP care: determinants of a negative evalution. Patient Educ Couns. 2007, 65: 131-136. 10.1016/j.pec.2006.06.021.CrossRefPubMed Giesen P, Moll van Charante E, Janssens H, Mokkink H, Bindels P, Bosch Van den W, Grol R: Patients evaluate accesibility and nurse telephone consultations in out-of-hours GP care: determinants of a negative evalution. Patient Educ Couns. 2007, 65: 131-136. 10.1016/j.pec.2006.06.021.CrossRefPubMed
8.
go back to reference Michiels E, Deschepper R, Kelen Van der G, Bernheim J, Mortier F, Stichele Van der R, Deliens L: The role of general practitioners in continuity of care at the end of life: a qualitative study of terminally ill patients and their next of kin. Palliat Med. 2007, 21 (5): 409-15. 10.1177/0269216307078503.CrossRefPubMed Michiels E, Deschepper R, Kelen Van der G, Bernheim J, Mortier F, Stichele Van der R, Deliens L: The role of general practitioners in continuity of care at the end of life: a qualitative study of terminally ill patients and their next of kin. Palliat Med. 2007, 21 (5): 409-15. 10.1177/0269216307078503.CrossRefPubMed
9.
go back to reference Thomas K: Out-of-hours palliative care in the community. 2001, London:Macmillan Cancer Relief, 5-6. Thomas K: Out-of-hours palliative care in the community. 2001, London:Macmillan Cancer Relief, 5-6.
11.
go back to reference Burt J, Barclay S, Marshall N, Shipman C, Stimson A, Young J: Continuity within primary palliative care: an audit of practice out-of-hours co-operative. J Public Health (Oxf). 2004, 26 (3): 275-6. 10.1093/pubmed/fdh161.CrossRef Burt J, Barclay S, Marshall N, Shipman C, Stimson A, Young J: Continuity within primary palliative care: an audit of practice out-of-hours co-operative. J Public Health (Oxf). 2004, 26 (3): 275-6. 10.1093/pubmed/fdh161.CrossRef
13.
go back to reference Thomas K: Family carers' experiences of out-of-hours community palliative care: a qualitative study. Int J Palliat Nurs. 2004, 10 (2): 76-83.CrossRefPubMed Thomas K: Family carers' experiences of out-of-hours community palliative care: a qualitative study. Int J Palliat Nurs. 2004, 10 (2): 76-83.CrossRefPubMed
14.
go back to reference Worth A, Boyd K, Kendall M, Heany D, Macleod U, Cormie P, Hockley J, Murray S: Out-of-hours palliative care: a qualitative study of cancer patients, carers and professionals. Br J Gen Pract. 2006, 56: 6-13.PubMedPubMedCentral Worth A, Boyd K, Kendall M, Heany D, Macleod U, Cormie P, Hockley J, Murray S: Out-of-hours palliative care: a qualitative study of cancer patients, carers and professionals. Br J Gen Pract. 2006, 56: 6-13.PubMedPubMedCentral
15.
go back to reference Shipman C, Addington-Hall J, Barclay S, Briggs J, Cox I, Daniels L, Millar D: Providing palliative care in primary care: how satisfied are GPs and district nurses with current out-of-hours arrangements?. Br J Gen Pract. 2000, 50: 477-8.PubMedPubMedCentral Shipman C, Addington-Hall J, Barclay S, Briggs J, Cox I, Daniels L, Millar D: Providing palliative care in primary care: how satisfied are GPs and district nurses with current out-of-hours arrangements?. Br J Gen Pract. 2000, 50: 477-8.PubMedPubMedCentral
16.
go back to reference Borgsteede SD, Riedstra C, Deliens L, Francke AL, Van Eijck JThM, Willems DL: Good end-of-life care according to patients and their GPs. Br J Gen Pract. 2006, 56 (522): 20-26.PubMedPubMedCentral Borgsteede SD, Riedstra C, Deliens L, Francke AL, Van Eijck JThM, Willems DL: Good end-of-life care according to patients and their GPs. Br J Gen Pract. 2006, 56 (522): 20-26.PubMedPubMedCentral
Metadata
Title
GPs' views on transfer of information about terminally ill patients to the out-of-hours co-operative
Authors
Bart Schweitzer
Nettie Blankenstein
Maartje Willekens
Elmi Terpstra
Paul Giesen
Luc Deliens
Publication date
01-12-2009
Publisher
BioMed Central
Published in
BMC Palliative Care / Issue 1/2009
Electronic ISSN: 1472-684X
DOI
https://doi.org/10.1186/1472-684X-8-19

Other articles of this Issue 1/2009

BMC Palliative Care 1/2009 Go to the issue