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Published in: Pediatric Rheumatology 1/2014

Open Access 01-12-2014 | Research

Feasibility of an online and a face-to-face version of a self-management program for young adults with a rheumatic disease: experiences of young adults and peer leaders

Authors: Judy Ammerlaan, Harmieke van Os-Medendorp, Lieske Scholtus, André de Vos, Matthijs Zwier, Hans Bijlsma, Aike A Kruize

Published in: Pediatric Rheumatology | Issue 1/2014

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Abstract

Background

Based on the self-efficacy theory, an online and a face-to-face self-management programs ‘Challenge your Arthritis’ for young adults with a rheumatic disease have recently been developed. These two courses are led by young peer leaders. The objective of this study was to test the feasibility of the online and face-to-face self-management program.

Methods

Feasibility was evaluated on items of perceived usefulness, perceived ease of use, user-acceptance, and adherence to both programs in young adults and peer leaders. Additional analyses of interactions on the e-Health applications, discussion board and chat board, were conducted.

Results

Twenty-two young adults with a diagnosed rheumatic disease participated in the study: 12 young adults followed the online program and 10 followed the face-to-face program. Both programs appeared to be feasible, especially in dealing with problems in daily life, and the participants indicated the time investment as ‘worthwhile’. In using the online program, no technical problems occurred. Participants found the program easy to use, user friendly, and liked the ‘look and feel’ of the program.

Conclusions

Both the online and the face-to-face versions of a self-management program. ‘Challenge your arthritis’ were found to be feasible and well appreciated by young adults with a rheumatic disease. Because these programs are likely to be a practical aid to health practices, a randomized controlled study to investigate the effects on patient outcomes is planned.
Literature
1.
go back to reference Prakken B, Albani S, Martini A: Juvenile idiopathic arthritis. Lancet. 2011, 377: 2138-2149. 10.1016/S0140-6736(11)60244-4.CrossRefPubMed Prakken B, Albani S, Martini A: Juvenile idiopathic arthritis. Lancet. 2011, 377: 2138-2149. 10.1016/S0140-6736(11)60244-4.CrossRefPubMed
2.
go back to reference Tucker LB, Cabral DA: Transition of the adolescent patient with rheumatic disease: issues to consider. Rheum Dis Clin North Am. 2007, 33: 661-672. 10.1016/j.rdc.2007.07.005.CrossRefPubMed Tucker LB, Cabral DA: Transition of the adolescent patient with rheumatic disease: issues to consider. Rheum Dis Clin North Am. 2007, 33: 661-672. 10.1016/j.rdc.2007.07.005.CrossRefPubMed
3.
go back to reference Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR: What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol. 2005, 32: 354-361.PubMed Adam V, St-Pierre Y, Fautrel B, Clarke AE, Duffy CM, Penrod JR: What is the impact of adolescent arthritis and rheumatism? Evidence from a national sample of Canadians. J Rheumatol. 2005, 32: 354-361.PubMed
4.
go back to reference Duffy CM: Health outcomes in pediatric rheumatic diseases. Curr Opin Rheumatol. 2004, 16: 102-108. 10.1097/00002281-200403000-00005.CrossRefPubMed Duffy CM: Health outcomes in pediatric rheumatic diseases. Curr Opin Rheumatol. 2004, 16: 102-108. 10.1097/00002281-200403000-00005.CrossRefPubMed
5.
go back to reference Hazel E, Zhang X, Duffy CM, Campillo S: High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2010, 8: 2-10.1186/1546-0096-8-2.PubMedCentralCrossRefPubMed Hazel E, Zhang X, Duffy CM, Campillo S: High rates of unsuccessful transfer to adult care among young adults with juvenile idiopathic arthritis. Pediatr Rheumatol Online J. 2010, 8: 2-10.1186/1546-0096-8-2.PubMedCentralCrossRefPubMed
6.
go back to reference Shaw KL, Southwood TR, McDonagh JE, Group BPR: Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology (Oxford). 2004, 43: 211-219.CrossRef Shaw KL, Southwood TR, McDonagh JE, Group BPR: Developing a programme of transitional care for adolescents with juvenile idiopathic arthritis: results of a postal survey. Rheumatology (Oxford). 2004, 43: 211-219.CrossRef
7.
go back to reference Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven : Self-management skills in adolescents with chronic rheumatic disease: a cross-sectional survey. Pediatr Rheumatol Online J. 2011, 9: 35-10.1186/1546-0096-9-35.PubMedCentralCrossRefPubMed Lawson EF, Hersh AO, Applebaum MA, Yelin EH, Okumura MJ, von Scheven : Self-management skills in adolescents with chronic rheumatic disease: a cross-sectional survey. Pediatr Rheumatol Online J. 2011, 9: 35-10.1186/1546-0096-9-35.PubMedCentralCrossRefPubMed
8.
go back to reference Ammerlaan JW, Scholtus LW, Bijlsma HJ, Prakken BJ, Kruize AA: An urge for change: transitional care for young adults with juvenile idiopathic arthritis. Patient Educ Couns. 2013, 92: 127-129. 10.1016/j.pec.2013.02.006.CrossRefPubMed Ammerlaan JW, Scholtus LW, Bijlsma HJ, Prakken BJ, Kruize AA: An urge for change: transitional care for young adults with juvenile idiopathic arthritis. Patient Educ Couns. 2013, 92: 127-129. 10.1016/j.pec.2013.02.006.CrossRefPubMed
9.
go back to reference Lorig KR, Sobel DS, Stewart AL, Brown BW, Bandana A, Ritter P, Gonzalez VM, Laurent DD, Holman HR: Evidence suggesting that a chronic disease self management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999, 37: 5-14. 10.1097/00005650-199901000-00003.CrossRefPubMed Lorig KR, Sobel DS, Stewart AL, Brown BW, Bandana A, Ritter P, Gonzalez VM, Laurent DD, Holman HR: Evidence suggesting that a chronic disease self management program can improve health status while reducing hospitalization: a randomized trial. Med Care. 1999, 37: 5-14. 10.1097/00005650-199901000-00003.CrossRefPubMed
10.
go back to reference Bandura A: Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977, 84: 191-215.CrossRefPubMed Bandura A: Self-efficacy: toward a unifying theory of behavioral change. Psychol Rev. 1977, 84: 191-215.CrossRefPubMed
11.
go back to reference Davis FD: Perceived usefulness, perceived ease of use and user acceptance of information technology. MIS Q. 1989, 13: 319-340. 10.2307/249008.CrossRef Davis FD: Perceived usefulness, perceived ease of use and user acceptance of information technology. MIS Q. 1989, 13: 319-340. 10.2307/249008.CrossRef
12.
go back to reference Holden RJ, Karsh BT: The technology acceptance model: its past and its future in health care. J Biomed Inform. 2010, 43: 159-172. 10.1016/j.jbi.2009.07.002.PubMedCentralCrossRefPubMed Holden RJ, Karsh BT: The technology acceptance model: its past and its future in health care. J Biomed Inform. 2010, 43: 159-172. 10.1016/j.jbi.2009.07.002.PubMedCentralCrossRefPubMed
13.
go back to reference van Gemert-Pijnen JE, Nijland N, van Limburg M, Ossebaard HC, Eysenbach G, Seydel ER: A holistic framework to improve the uptake and impact of eHealth technologies. J Med Internet Res. 2011, 13: e111-10.2196/jmir.1672.PubMedCentralCrossRefPubMed van Gemert-Pijnen JE, Nijland N, van Limburg M, Ossebaard HC, Eysenbach G, Seydel ER: A holistic framework to improve the uptake and impact of eHealth technologies. J Med Internet Res. 2011, 13: e111-10.2196/jmir.1672.PubMedCentralCrossRefPubMed
15.
go back to reference McLean S, Protti D, Sheikh A: Telehealthcare for long term conditions. BMJ. 2011, 342: d120-10.1136/bmj.d120.CrossRefPubMed McLean S, Protti D, Sheikh A: Telehealthcare for long term conditions. BMJ. 2011, 342: d120-10.1136/bmj.d120.CrossRefPubMed
16.
go back to reference Stinson J, Wilson R, Gill N, Yamada J, Holt J: A systematic review of internet-based self-management interventions for youth with health conditions. J Pediatr Psychol. 2009, 34: 495-499. 10.1093/jpepsy/jsn115.CrossRefPubMed Stinson J, Wilson R, Gill N, Yamada J, Holt J: A systematic review of internet-based self-management interventions for youth with health conditions. J Pediatr Psychol. 2009, 34: 495-499. 10.1093/jpepsy/jsn115.CrossRefPubMed
17.
go back to reference Shigaki CL, Smarr KL, Yang G, Donovan-Hanson K, Siva C, Johnson RA, Ge B, Musser DR: Social interactions in an online self-management program for rheumatoid arthritis. Chronic Illn. 2008, 4: 239-246. 10.1177/1742395308097862.CrossRefPubMed Shigaki CL, Smarr KL, Yang G, Donovan-Hanson K, Siva C, Johnson RA, Ge B, Musser DR: Social interactions in an online self-management program for rheumatoid arthritis. Chronic Illn. 2008, 4: 239-246. 10.1177/1742395308097862.CrossRefPubMed
18.
go back to reference Tang TS, Funnell MM, Gillard M, Nwankwo R, Heisler M: Training peers to provide ongoing diabetes self-management support (DSMS): results from a pilot study. Patient Educ Couns. 2011, 85: 160-168. 10.1016/j.pec.2010.12.013.PubMedCentralCrossRefPubMed Tang TS, Funnell MM, Gillard M, Nwankwo R, Heisler M: Training peers to provide ongoing diabetes self-management support (DSMS): results from a pilot study. Patient Educ Couns. 2011, 85: 160-168. 10.1016/j.pec.2010.12.013.PubMedCentralCrossRefPubMed
19.
go back to reference Tang TS, Funnell MM, Gillard M, Nwandkwo R, Heisler M: The development of a pilot training program for peer leaders in diabetes: process and content. Diabetes Educ. 2011, 37: 67-77. 10.1177/0145721710387308.PubMedCentralCrossRefPubMed Tang TS, Funnell MM, Gillard M, Nwandkwo R, Heisler M: The development of a pilot training program for peer leaders in diabetes: process and content. Diabetes Educ. 2011, 37: 67-77. 10.1177/0145721710387308.PubMedCentralCrossRefPubMed
20.
go back to reference Catalano T, Kendall E, Vandenberg A, Hunter B: The experiences of leaders of self management courses in Queensland: exploring Health Professional and Peer Leaders' perceptions of working together. Health Soc Care Community. 2009, 17: 105-115. 10.1111/j.1365-2524.2008.00801.x.CrossRefPubMed Catalano T, Kendall E, Vandenberg A, Hunter B: The experiences of leaders of self management courses in Queensland: exploring Health Professional and Peer Leaders' perceptions of working together. Health Soc Care Community. 2009, 17: 105-115. 10.1111/j.1365-2524.2008.00801.x.CrossRefPubMed
21.
go back to reference Stinson J, McGrath P, Hodnett E, Feldman B, Duffy C, Huber A, Tucker L, Hetherington R, Tse S, Spiegel L, Campillo S, Gill N, White M: Usability testing of an online self-Management program for adolescents with juvenile idiopathic arthritis. J Med Internet Res. 2010, 12: e30-10.2196/jmir.1349.PubMedCentralCrossRefPubMed Stinson J, McGrath P, Hodnett E, Feldman B, Duffy C, Huber A, Tucker L, Hetherington R, Tse S, Spiegel L, Campillo S, Gill N, White M: Usability testing of an online self-Management program for adolescents with juvenile idiopathic arthritis. J Med Internet Res. 2010, 12: e30-10.2196/jmir.1349.PubMedCentralCrossRefPubMed
22.
go back to reference White M, Stinson JN, Lingley-Pottie P, McGrath PJ, Gill N, Vijenthira A: Exploring therapeutic alliance with an internet-based self-management program with brief telephone support for youth with arthritis: a pilot study. Telemed J E Health. 2012, 18: 271-276. 10.1089/tmj.2011.0150.CrossRefPubMed White M, Stinson JN, Lingley-Pottie P, McGrath PJ, Gill N, Vijenthira A: Exploring therapeutic alliance with an internet-based self-management program with brief telephone support for youth with arthritis: a pilot study. Telemed J E Health. 2012, 18: 271-276. 10.1089/tmj.2011.0150.CrossRefPubMed
Metadata
Title
Feasibility of an online and a face-to-face version of a self-management program for young adults with a rheumatic disease: experiences of young adults and peer leaders
Authors
Judy Ammerlaan
Harmieke van Os-Medendorp
Lieske Scholtus
André de Vos
Matthijs Zwier
Hans Bijlsma
Aike A Kruize
Publication date
01-12-2014
Publisher
BioMed Central
Published in
Pediatric Rheumatology / Issue 1/2014
Electronic ISSN: 1546-0096
DOI
https://doi.org/10.1186/1546-0096-12-10

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