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Health and Quality of Life Outcomes
Published in: Health and Quality of Life Outcomes 1/2012

Open Access 01-12-2012 | Research

Factors associated with health-related quality of life among Chinese caregivers of the older adults living in the community: a cross-sectional study

Authors: Xiaoshi Yang, Yiming Hao, Shernelle Marlah George, Lie Wang

Published in: Health and Quality of Life Outcomes | Issue 1/2012

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Abstract

Background

Under the culture of filial piety and due to the Confucianism spirit in China, family caregivers usually undertake the responsibilities of caring for the older adults. They usually suffer from a heavy burden which is believed to impair their mental and physical health. Thus this study aims to describe the health-related quality of life (HRQOL) among Chinese caregivers of the older adults living in the community and explore the predictors of caregivers’ HRQOL.

Methods

A cross-sectional study was conducted through convenience sampling. The study population was composed of 1,144 caregivers of older adults who suffered from one or more types of chronic diseases in 15 communities in 3 eastern cities of China. Family caregivers were interviewed face-to-face using the 36-item Short-Form Health Survey (SF-36) and the ZARIT Caregiver Burden interview (ZBI) scales. The Antonovsky's Sense of coherence (SOC) scale was also used to measure personal coping capability of the caregivers. Hierarchical multiple regression analysis (HMR) was performed to explore the predictors of caregivers’ HRQOL.

Results

The majority of the caregivers were females (60.0%) or adult children (66.5%). Mental QOL was significantly lower than physical QOL. Hierarchical multiple regression analysis showed that Demographic Characteristics of Caregivers, Patients’ Characteristics, and Subjective Caregiver Burden explained most of the total variance of all aspects of HRQOL. While, Objective Caregiving Tasks was only associated with physical QOL. Subjective Caregiver Burden was the strongest predictor of both physical and mental QOL. SOC was also a strong predictor of physical and mental QOL.

Conclusions

The mental QOL of the caregivers of older adults was disrupted more seriously than physical QOL. Additionally, Subjective Caregiver Burden might decrease caregiver’ health. A decrease in caregiver burden could promote better management of caregiving tasks, and improve HRQOL. Also, coping capabilities, like SOC, are needed to decrease the impact of caregiving on HRQOL of Chinese caregivers of the older adults.
Literature
1.
Zheng XY, Chen LX: Features of China’s population ageing and its policies. Chin Gen Pract 2006, 9: 1919–1923.
2.
Amendola F, Oliveira MA, Alvarenga MR: Influence of social support on the quality of life of family caregivers while caring for people with dependence. Rev Esc Enferm USP 2011, 45(4):884–9. 10.1590/S0080-62342011000400013CrossRefPubMed
3.
Martinez-Martin P, Rodriguez-Blazquez C, Forjaz MJ: Quality of life and burden in caregivers for patients with Parkinson's disease: concepts, assessment and related factors. Expert Rev Pharmacoecon Outcomes Res 2012, 12(2):221–30. 10.1586/erp.11.106CrossRefPubMed
4.
Juratovac E, Morris DL, Zauszniewski JA, Wykle ML: Effort, workload, and depressive symptoms in family caregivers of older adults: conceptualizing and testing a work-health relationship. Res Theory Nurs Pract 2012, 26(2):74–94. 10.1891/1541-6577.26.2.74CrossRefPubMed
5.
Schulz R, Beach SR: Caregiving as a risk factor for mortality: the Caregiver health effects study. J Am Med Assoc 1999, 282(23):2215–2219. 10.1001/jama.282.23.2215CrossRef
6.
Song JI, Shin DW, Choi JY, Kang J, Baik YJ, Mo H, Park MH, et al.: Quality of life and mental health in family caregivers of patients with terminal cancer. Support Care Cancer 2011, 19(10):1519–26. 10.1007/s00520-010-0977-8CrossRefPubMed
7.
Northouse LL, Mood D, Kershaw T, Schafenacker A, Mellon S, Walker J, Galvin E, et al.: Quality of life of women with recurrent breast cancer and their family members. J Clin Oncol 2002, 20: 4050–64. 10.1200/JCO.2002.02.054CrossRefPubMed
8.
Rhee YS, Yun YH, Park S, Shin DO, Lee KM, Yoo HJ, Kim JH, et al.: Depression in family caregivers of the elderly: the feeling of burden as a predictor of depression. J Clin Oncol 2008, 26: 5890–5. 10.1200/JCO.2007.15.3957CrossRefPubMed
9.
Wilkinson AM, Joanne Lynn : Caregiving for advanced chronic illness patients. Tech region Anesth Pain Manag 2005, 9: 122–132. 10.1053/j.trap.2005.06.004CrossRef
10.
Julkunen J, Ahlström R: Hostility, anger, and sense of coherence as predictors of health-related quality of life. Results of an ASCOT substudy. J Psychosom Res 2006, 61(1):33–9. 10.1016/j.jpsychores.2005.12.005CrossRefPubMed
11.
Chumbler NR, Rittman MR, Wu SS: Associations in sense of coherence and depression in caregivers of stroke survivors across 2 years. J Behav Health Serv Res 2008, 35(2):226–34. 10.1007/s11414-007-9083-1CrossRefPubMed
12.
Antonovsky A: Unraveling the mystery of health: how people manage stress and stay well. Jossey-Bass, San Francisco; 1987.
13.
Mei’e X: The related topics of long-term care for the elderly [M]. Laureate Book Co., Ltd, Taipei; 1993:14–26.
14.
Ni R, Liu X, Zhu C: Digital Health Management of long-term cared disabled elders in urban communities. Health Research 2011, 5: 352–354. In Chinese
15.
Ware JE Jr, Kosinski M, Gandek B, Aaronson NK, Apolone G, Bech P, et al.: The factor structure of the SF-36 Health Survey in 10 countries: results from the IQOLA Project. International Quality of Life Assessment. J Clin Epidemiol 1998, 51: 1159–65. 10.1016/S0895-4356(98)00107-3CrossRefPubMed
16.
Li L, Wang HM, hen YS: Chinese SF-36 health survey: translation, culture adaption, validation, and normalisation. J Epidemiol Community Health 2003, 57(4):259–263. 10.1136/jech.57.4.259CrossRefPubMed
17.
Lawton MP, Brody EM: Assessment of older people: self-maintaining and instrumental activities of daily living. Gerontologist 1969, 9(3):179–86. 10.1093/geront/9.3_Part_1.179CrossRefPubMed
18.
Emanuel EJ, Fairclough DL, Slutsman J, Alpert H, Baldwin D, Emanuel LL: Assistance from family members, friends, paid care givers and volunteers in the care of terminally ill patients. New Engl J Med 1999, 341: 956–963. 10.1056/NEJM199909233411306CrossRefPubMed
19.
Zarit SH, Femia EE, Kim K, Whitlatch CJ: The structure of risk factors and outcomes for family caregivers: implications for assessment and treatment. Aging Ment Health 2010, 14(2):220–31. 10.1080/13607860903167861CrossRefPubMed
20.
Lu L, Wang L, Yang X, Feng Q: Zarit Caregiver Burden Interview: Development, reliability and validity of the Chinese version. Psy Clin Neuros 2009, 63: 730–734. 10.1111/j.1440-1819.2009.02019.xCrossRef
21.
Eriksson M, Lindström B: Validity of Antonovsky's sense of coherence scale: a systematic review. J Epidemiol Community Health 2005, 59: 460–6. 10.1136/jech.2003.018085CrossRefPubMed
22.
20Kahn HA, Sempos CT: Statistical methods in epidemiology. Oxford University Press, New York; 1989:147–8. 156–7
23.
Tzuh Tang S, Li CY: The important role of sense of coherence in relation to depressive symptoms for Taiwanese family caregivers of cancer patients at the end of life. J Psychosom Res 2008, 64(2):195–203. 10.1016/j.jpsychores.2007.08.013CrossRefPubMed
24.
Ningxiu L, Chaojie L, Jun L, Xiaohui R: The norms of SF-36 scale scores in urban and rural residents of Sichuan province. J West China University Med Sci 2001, 32(1):43–47.
25.
Ho SC, Chan A, Woo J, Chong P, Sham A: Impact of caregiving on health and quality of life: a comparative population-based study of caregivers for elderly persons and noncaregivers. J Gerontol A Biol Sci Med Sci 2009, 64(8):873–9.CrossRefPubMed
26.
McPherson CJ, Wilson KG, Chyurlia L, Leclerc C: The caregiving relationship and quality of life among partners of stroke survivors: a cross-sectional study. Health Qual Life Outcomes 2011, 9(1):29. 10.1186/1477-7525-9-29CrossRefPubMed
27.
Saunders MM: Factors associated with caregiver burden in heart failure family caregivers. West J Nurs Res 2008, 30(8):943–59. 10.1177/0193945908319990CrossRefPubMed
28.
Van Puymbroeck M, Rittman MR: Quality-of-life predictors for caregivers at 1 and 6 months poststroke: Results of path analyses. J Rehabi Rese Develop 2005, 42(6):747–60. 10.1682/JRRD.2005.01.0025CrossRef
29.
Martínez-Martín P, Benito-León J, Alonso F, Catalán MJ, Pondal M, Zamarbide I, Tobías A, de Pedro J: Quality of life of caregivers in Parkinson's disease. Qual Life Res 2005, 14(2):463–72. 10.1007/s11136-004-6253-yCrossRefPubMed
30.
Haley WE, Roth DL, Coleton MI, Ford GR, West CA, Collins RP, Isobe TL: Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer's disease. J Consult Clin Psychol 1996, 64(1):121–9.CrossRefPubMed
31.
Saunders MM: Working and caregiving: a comparison of employed and unemployed caregivers of older heart failure patients. Holist Nurs Pract 2010, 24(1):16–22.CrossRefPubMed
32.
Morimoto T, Schreiner AS, Asano H: Caregiver burden and health-related quality of life among Japanese stroke caregivers. Age Ageing 2003, 32: 218–223. 10.1093/ageing/32.2.218CrossRefPubMed
33.
Yang X, Wang L, He J, Ge C, Chang Y, Fu J, Wei J, Pattaramongkolar E, Zhou Y: Factors related to depressive symptoms among Chinese caregivers of cancer patients. Psychooncology 2012, 21(10):1063–70. 10.1002/pon.1999CrossRefPubMed
34.
Tsai HH, Chen MH, Tsai YF: Perceptions of filial piety among Taiwanese university students. J Adv Nurs 2008, 63(3):284–90. 10.1111/j.1365-2648.2008.04711.xCrossRefPubMed
35.
Saunders MM: Indicators of health-related quality of life in heart failure family caregivers. J Community Health Nurs 2009, 26(4):173–82. 10.1080/07370010903259196CrossRefPubMed
36.
29Chang HY, Chiou CJ, Chen NS: Impact of mental health and caregiver burden on family caregivers' physical health. Arch Gerontol Geriat 2010, 50(3):267–71. 10.1016/j.archger.2009.04.006CrossRef
37.
30Takai M, Takahashi M, Iwamitsu Y, Oishi S, Miyaoka H: Subjective experiences of family caregivers of patients with dementia as predictive factors of quality of life. Psychogeriatrics 2011, 11(2):98–104. 10.1111/j.1479-8301.2011.00354.xCrossRefPubMed
38.
31Mizuno E, Iwasaki M, Sakai I, Kamizawa N: Sense of coherence and quality of life in family caregivers of persons with schizophrenia living in the community. Arch Psychiatr Nurs 2012, 26(4):295–306. 10.1016/j.apnu.2012.01.003CrossRefPubMed
39.
32Khanjari S, Oskouie F, Langius-Eklöf A: Lower sense of coherence, negative religious coping, and disease severity as indicators of a decrease in quality of life in Iranian family caregivers of relatives with breast cancer during the first 6 months after diagnosis. Cancer Nurs 2012, 35(2):148–56. 10.1097/NCC.0b013e31821f1ddaCrossRefPubMed
40.
33Chumbler NR, Rittman M, Van Puymbroeck M, et al.: The sense of coherence, burden, and depressive symptoms in informal caregivers during the first month after stroke. Int J Geriatr Psych 2004, 19(10):944–953. 10.1002/gps.1187CrossRef
Metadata
Title
Factors associated with health-related quality of life among Chinese caregivers of the older adults living in the community: a cross-sectional study
Authors
Xiaoshi Yang
Yiming Hao
Shernelle Marlah George
Lie Wang
Publication date
01-12-2012
Publisher
BioMed Central
Published in
Health and Quality of Life Outcomes / Issue 1/2012
Electronic ISSN: 1477-7525
DOI
https://doi.org/10.1186/1477-7525-10-143

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