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Published in: Journal of Occupational Rehabilitation 4/2009

Open Access 01-12-2009

Facilitating Empowerment in Employees with Chronic Disease: Qualitative Analysis of the Process of Change

Authors: Inge Varekamp, Annelies Heutink, Selma Landman, Cees E. M. Koning, Gabe de Vries, Frank J. H. van Dijk

Published in: Journal of Occupational Rehabilitation | Issue 4/2009

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Abstract

Introduction In the field of healthcare, empowering patients who have a chronic disease is defined as increasing their knowledge and skills, in order to enable them to define their treatment goals and take personal responsibility for their medical treatment. Our goal was to explore the nature of empowerment for employees who have a chronic disease and who experience work-related problems. Methods We used an explorative qualitative approach to document, from a professional perspective, the experiences of patients who participated in an empowerment training program. The researcher and the three instructors identified several themes which appeared to be important to many participants. These themes were fine-tuned and illustrated using brief case histories. Results We identified seven themes and characterized them in terms of employee tasks. These included: (1) developing a realistic understanding of one’s abilities, (2) standing up for oneself in a self-confident way, (3) maintaining social relations based on mutual understanding with supervisors and colleagues, (4) collecting and assimilating knowledge of one’s options, rights and duties, (5) consulting others and negotiating with regard to work accommodations, (6) planning one’s job so as to provide personal satisfaction, and (7) maintaining a social life outside work. Not every employee is faced with all of these tasks, but most have to deal with several. Conclusion Empowerment presupposes that employees with a chronic disease can act to solve problems at the workplace. The experiences during a comprehensive empowerment training illustrate that a process of reflection on personal emotions and a cognitive process of exploration and identification of bottlenecks at work may precede these actions. Our primary contribution is the aforementioned list of seven common tasks that many workers have to perform. Disseminating the list can support employees who have a chronic disease and may also be useful for their managers, HRM staff, occupational health and other healthcare workers.
Literature
1.
go back to reference Allaire S, Wolfe F, Niu J, Lavalley MP. Contemporary prevalence and incidence of work disability associated with rheumatoid arthritis in the US. Arthritis Rheum. 2008;59(4):474–80.CrossRefPubMed Allaire S, Wolfe F, Niu J, Lavalley MP. Contemporary prevalence and incidence of work disability associated with rheumatoid arthritis in the US. Arthritis Rheum. 2008;59(4):474–80.CrossRefPubMed
2.
go back to reference Verstappen SM, Boonen A, Bijlsma JW, Buskens E, Verkleij H, Schenk Y, et al. Working status among Dutch patients with rheumatoid arthritis: work disability and working conditions. Rheumatology (Oxford). 2005;44(2):202–6.CrossRef Verstappen SM, Boonen A, Bijlsma JW, Buskens E, Verkleij H, Schenk Y, et al. Working status among Dutch patients with rheumatoid arthritis: work disability and working conditions. Rheumatology (Oxford). 2005;44(2):202–6.CrossRef
3.
go back to reference Feagan BG, Bala M, Yan S, Olson A, Hanauer S. Unemployment and disability in patients with moderately to severely active Crohn’s disease. J Clin Gastroenterol. 2005;39(5):390–5.CrossRefPubMed Feagan BG, Bala M, Yan S, Olson A, Hanauer S. Unemployment and disability in patients with moderately to severely active Crohn’s disease. J Clin Gastroenterol. 2005;39(5):390–5.CrossRefPubMed
4.
go back to reference Longobardi T, Jacobs P, Bernstein CN. Work losses related to inflammatory bowel disease in the United States: results from the National Health Interview Survey. Am J Gastroenterol. 2003;98(5):1064–72.PubMed Longobardi T, Jacobs P, Bernstein CN. Work losses related to inflammatory bowel disease in the United States: results from the National Health Interview Survey. Am J Gastroenterol. 2003;98(5):1064–72.PubMed
5.
go back to reference Longobardi T, Jacobs P, Wu L, Bernstein CN. Work losses related to inflammatory bowel disease in Canada: results from a National Population Health Survey. Am J Gastroenterol. 2003;98(4):844–9.CrossRefPubMed Longobardi T, Jacobs P, Wu L, Bernstein CN. Work losses related to inflammatory bowel disease in Canada: results from a National Population Health Survey. Am J Gastroenterol. 2003;98(4):844–9.CrossRefPubMed
6.
go back to reference Kremer AM, Pal TM, van Keimpema AR. Employment and disability for work in patients with COPD: a cross-sectional study among Dutch patients. Int Arch Occup Environ Health. 2006;80(1):78–86.CrossRefPubMed Kremer AM, Pal TM, van Keimpema AR. Employment and disability for work in patients with COPD: a cross-sectional study among Dutch patients. Int Arch Occup Environ Health. 2006;80(1):78–86.CrossRefPubMed
7.
go back to reference Kutner N, Bowles T, Zhang R, Huang Y, Pastan S. Dialysis facility characteristics and variation in employment rates: a national study. Clin J Am Soc Nephrol. 2008;3(1):111–6.CrossRefPubMed Kutner N, Bowles T, Zhang R, Huang Y, Pastan S. Dialysis facility characteristics and variation in employment rates: a national study. Clin J Am Soc Nephrol. 2008;3(1):111–6.CrossRefPubMed
8.
go back to reference Banks P, Lawrence M. The Disability Discrimination Act, a necessary, but not sufficient safeguard for people with progressive conditions in the workplace? The experiences of younger people with Parkinson’s disease. Disabil Rehabil. 2006;28(1):13–24.CrossRefPubMed Banks P, Lawrence M. The Disability Discrimination Act, a necessary, but not sufficient safeguard for people with progressive conditions in the workplace? The experiences of younger people with Parkinson’s disease. Disabil Rehabil. 2006;28(1):13–24.CrossRefPubMed
9.
go back to reference Martikainen KK, Luukkaala TH, Marttila RJ. Parkinson’s disease and working capacity. Mov Disord. 2006;21(12):2187–91.CrossRefPubMed Martikainen KK, Luukkaala TH, Marttila RJ. Parkinson’s disease and working capacity. Mov Disord. 2006;21(12):2187–91.CrossRefPubMed
10.
go back to reference Pompeii LA, Moon SD, McCrory DC. Measures of physical and cognitive function and work status among individuals with multiple sclerosis: a review of the literature. J Occup Rehabil. 2005;15(1):69–84.CrossRefPubMed Pompeii LA, Moon SD, McCrory DC. Measures of physical and cognitive function and work status among individuals with multiple sclerosis: a review of the literature. J Occup Rehabil. 2005;15(1):69–84.CrossRefPubMed
11.
go back to reference Nivel, Factsheet PPCZ. Chronisch zieken en de nieuwe WAO-plannen. Utrecht: Nivel; 2002. Nivel, Factsheet PPCZ. Chronisch zieken en de nieuwe WAO-plannen. Utrecht: Nivel; 2002.
12.
go back to reference Detaille SI, Haafkens JA, Van Dijk FJH. What employees with rheumatoid arthritis, diabetes mellitus and hearing loss need to cope at work. Scand J Work Environ Health. 2003;29:134–42.PubMed Detaille SI, Haafkens JA, Van Dijk FJH. What employees with rheumatoid arthritis, diabetes mellitus and hearing loss need to cope at work. Scand J Work Environ Health. 2003;29:134–42.PubMed
13.
go back to reference Varekamp I, Haafkens JA, Detaille SI, Tak PP, van Dijk FJ. Preventing work disability among employees with rheumatoid arthritis: what medical professionals can learn from the patients’ perspective. Arthritis Rheum. 2005;53(6):965–72.CrossRefPubMed Varekamp I, Haafkens JA, Detaille SI, Tak PP, van Dijk FJ. Preventing work disability among employees with rheumatoid arthritis: what medical professionals can learn from the patients’ perspective. Arthritis Rheum. 2005;53(6):965–72.CrossRefPubMed
14.
go back to reference Waddell G, Burton AK, Kendall NAS. Vocational rehabilitation. What works, for whom, and when?. London: TSO; 2008. Waddell G, Burton AK, Kendall NAS. Vocational rehabilitation. What works, for whom, and when?. London: TSO; 2008.
15.
go back to reference Beatty JA, Joffe R. An overlooked dimension of diversity: the career effects of chronic illness. Organ Dyn. 2006;35:182–95.CrossRef Beatty JA, Joffe R. An overlooked dimension of diversity: the career effects of chronic illness. Organ Dyn. 2006;35:182–95.CrossRef
16.
go back to reference Varekamp I, Verbeek JH, van Dijk FJ. How can we help employees with chronic diseases to stay at work? A review of interventions aimed at job retention and based on an empowerment perspective. Int Arch Occup Environ Health. 2006;80(2):87–97.CrossRefPubMed Varekamp I, Verbeek JH, van Dijk FJ. How can we help employees with chronic diseases to stay at work? A review of interventions aimed at job retention and based on an empowerment perspective. Int Arch Occup Environ Health. 2006;80(2):87–97.CrossRefPubMed
17.
go back to reference Rappaport J. Terms of empowerment/exemplars of prevention: toward a theory for community psychology. Am J Community Psychol. 1987;15(2):121–48.CrossRefPubMed Rappaport J. Terms of empowerment/exemplars of prevention: toward a theory for community psychology. Am J Community Psychol. 1987;15(2):121–48.CrossRefPubMed
18.
go back to reference Perkins DD, Zimmerman MA. Empowerment theory, research, and application. Am J Community Psychol. 1995;23(5):569–79.CrossRefPubMed Perkins DD, Zimmerman MA. Empowerment theory, research, and application. Am J Community Psychol. 1995;23(5):569–79.CrossRefPubMed
19.
go back to reference Feste C, Anderson RM. Empowerment: from philosophy to practice. Patient Educ Couns. 1995;26(1–3):139–44.CrossRefPubMed Feste C, Anderson RM. Empowerment: from philosophy to practice. Patient Educ Couns. 1995;26(1–3):139–44.CrossRefPubMed
20.
go back to reference Johnson TJ. Professions and power. London: The Macmillan Press Ltd; 1979. Johnson TJ. Professions and power. London: The Macmillan Press Ltd; 1979.
21.
go back to reference Zimmerman MA, Warschausky S. Empowerment theory for rehabilitation research: conceptual and methodological issues. Rehabil Psychol. 1998;43:3–16.CrossRef Zimmerman MA, Warschausky S. Empowerment theory for rehabilitation research: conceptual and methodological issues. Rehabil Psychol. 1998;43:3–16.CrossRef
22.
go back to reference Palmer CD. Self-advocacy among people with disabilities in the transition from good will to civil rights: Is it sufficient? Work. 2000;14(1):61–5.PubMed Palmer CD. Self-advocacy among people with disabilities in the transition from good will to civil rights: Is it sufficient? Work. 2000;14(1):61–5.PubMed
23.
go back to reference Varekamp I, de Vries G, Heutink A, van Dijk FJ. Empowering employees with chronic diseases; development of an intervention aimed at job retention and design of a randomised controlled trial. BMC Health Serv Res. 2008;8:224.CrossRefPubMed Varekamp I, de Vries G, Heutink A, van Dijk FJ. Empowering employees with chronic diseases; development of an intervention aimed at job retention and design of a randomised controlled trial. BMC Health Serv Res. 2008;8:224.CrossRefPubMed
24.
go back to reference Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC. Patient empowerment. Results of a randomized controlled trial. Diabetes Care. 1995;18(7):943–9.CrossRefPubMed Anderson RM, Funnell MM, Butler PM, Arnold MS, Fitzgerald JT, Feste CC. Patient empowerment. Results of a randomized controlled trial. Diabetes Care. 1995;18(7):943–9.CrossRefPubMed
25.
go back to reference Taal E. Self-efficacy, self-management and patient education in rheumatoid arthritis. Ph D thesis. Delft: Eburon; 1995. Taal E. Self-efficacy, self-management and patient education in rheumatoid arthritis. Ph D thesis. Delft: Eburon; 1995.
26.
go back to reference Schreurs KMG, Colland VT, Kuijer RG, De Ridder DTD, Van Elderen Th. Development, content, and process evaluation of a short self-management intervention in patients with chronic diseases requiring self-care behaviours. Patient Educ Couns. 2003;51(2):133–41.CrossRefPubMed Schreurs KMG, Colland VT, Kuijer RG, De Ridder DTD, Van Elderen Th. Development, content, and process evaluation of a short self-management intervention in patients with chronic diseases requiring self-care behaviours. Patient Educ Couns. 2003;51(2):133–41.CrossRefPubMed
27.
go back to reference Landsman-Dijkstra JJA. Building an effective short healthpromotion intervention. Ph D thesis. Hasselt: Drukkerij Schuttersmagazijn bv; 2005. Landsman-Dijkstra JJA. Building an effective short healthpromotion intervention. Ph D thesis. Hasselt: Drukkerij Schuttersmagazijn bv; 2005.
28.
go back to reference Nijhof G. Ziekenwerk; Een kleine sociologie van alledaags ziekenleven (Illness work; a small sociology of everyday illness life). Amsterdam: Aksant; 2002. Nijhof G. Ziekenwerk; Een kleine sociologie van alledaags ziekenleven (Illness work; a small sociology of everyday illness life). Amsterdam: Aksant; 2002.
29.
go back to reference Strauss A, Corbin JM. Shaping a new health care system: the explosion of chronic illness as a catalyst for change. San Francisco: Jossey-Bass Publishers; 1988. Strauss A, Corbin JM. Shaping a new health care system: the explosion of chronic illness as a catalyst for change. San Francisco: Jossey-Bass Publishers; 1988.
30.
go back to reference Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–95.CrossRefPubMed Charmaz K. Loss of self: a fundamental form of suffering in the chronically ill. Sociol Health Illn. 1983;5(2):168–95.CrossRefPubMed
31.
go back to reference Gustafsson M, Ekholm J, Ohman A. From shame to respect: musculoskeletal pain patients’ experience of a rehabilitation programme, a qualitative study. J Rehabil Med. 2004;36(3):97–103.CrossRefPubMed Gustafsson M, Ekholm J, Ohman A. From shame to respect: musculoskeletal pain patients’ experience of a rehabilitation programme, a qualitative study. J Rehabil Med. 2004;36(3):97–103.CrossRefPubMed
Metadata
Title
Facilitating Empowerment in Employees with Chronic Disease: Qualitative Analysis of the Process of Change
Authors
Inge Varekamp
Annelies Heutink
Selma Landman
Cees E. M. Koning
Gabe de Vries
Frank J. H. van Dijk
Publication date
01-12-2009
Publisher
Springer US
Published in
Journal of Occupational Rehabilitation / Issue 4/2009
Print ISSN: 1053-0487
Electronic ISSN: 1573-3688
DOI
https://doi.org/10.1007/s10926-009-9188-x

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