Published in:
Open Access
01-12-2015 | Poster presentation
Evaluation of parental knowledge after establishing CAH clubs in Vietnam & Indonesia
Authors:
Irene Mitchelhill, Kate Armstrong, Maria Craig, Vu Chi Dung, Bui Phuong Thao, Nguyen Ngoc Khanh, Thi Bich Ngoc, Thuy Thi Diem Hoang, Huynh Quynh, Dong Trieu Phuong Tran, Pham Ngoc Trach, Huynh Thoai Loan, Nguyen Phuong Khanh, Tran Thi Bich Huyen, Aman Pulungan, Frida Soesanti
Published in:
International Journal of Pediatric Endocrinology
|
Special Issue 1/2015
Login to get access
Excerpt
The incidence of Congenital Adrenal Hyperplasia (CAH) in some Asian countries is far higher than in Australia, (eg 1:6000 as per the Filipino Newborn Screening Program). For many families in low and middle-income countries in Asia resources are limited, affordable and reliable access to essential medicines is problematic, and families living remotely are required to travel long distances for medical care [
1]. CAH is associated with significant physical & psychosocial consequences for affected children & their families where treatment is suboptimal, so there are important equity implications for the global CAH and paediatric endocrinology communities to consider. …
